Tru here:
The feeling of being surrounded by people
— but people so very DIFFERENT than I —
is loneliness … in a crowd of loved ones.

I APPEAR to be just my normal self.
No huge changes are visible.
All changes are beneath the surface.

You do not see change in my actions
so you assume no need to change YOUR actions.  … Yet.
— NOT TRUE — !

But even if you ask
I am not able to tell you in words.
… My words are not here.

My thoughts go around in circles — fragmented beyond retrieval.
Appearances are deceiving,
so YOU are the one who needs to take action:

I am consistently losing more ability to write,
but currently that is the best way to see what is going on,
for ideas on how to best participate in my life.

I know you do not see the need to make this a priority in your own life, … yet,
but if you want to be able to “reach” me next year, and the year after,
then these are necessary.

Please learn dementia communication techniques NOW while I can still participate in the learning;
while I can gain confidence and security that you have tools
to continue communication in the next couple years.  … when I cannot.

Otherwise I am alone in the “crowd” of my own family,
Terrified of misunderstandings in the coming years.
And screaming to be heard.

1. Listen to Teepa’s 15-minute introductory video at

2. Read my blog; start in July and catch up to today. (or go to “crucial” category at bottom of page & click each title to read only 16 entries).
3. Sign up to “follow” blog so you can receive email when I write update.

* Admin issues: SHARE dementia awareness thru buttons below. If interested in receiving notice of future blog postings there is a “follow” button in the upper left corner (MS Explorer) or lower right (Safari and Chrome). Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If there is an advertisement below, I have no control over what is shown. — Full legal name Truthful Loving Kindness copyright on 2014-11/21.
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