How many teachers have reiterated the importance of context context CONTEXT ?
But since almost 20 years ago i am constantly losing context;
Losing the context of time.
Losing the context of placement or location.
Losing the context of words.
… and losing the context of appearance
(because i expect to see you the way you looked when i was younger).
There is a strange car in the driveway.
i know what our car looks like,
because we bought it just before we married.
We have two matching big blue vans,
and the car now in the driveway is not ours !
i have misplaced the newer context of what i see
… and i dont know where to find it.
Because i have dealt with this symptom for years now,
i know that i will not recognize any cars in driveway … and that is okay.
i know i will not recognize my husband in the morning … and that is okay.
i know that person in the mirror does not look like me … and that is okay.
if i do not recognize the way you look today,
that does not mean you as a person are not important to me.
For me, I still recognize the sound of your voice.
For 20years (before my brain began decline)
you almost always wore a State Parks uniform and hat.
You are now retired and no longer wear a uniform to work.
Your hair and beard are now white.
And we live in a different house.
You discovered green pants were needed.
You found and bought green pants
And sometimes i need a hat covering your head
in order for me to recognize the way you look.
… and that is okay.
because you are VERY important in my life !!!
THIS WEEK along with daily Dementia Mentors’ video chats, i plan to join
Tue 28 May: Dementia Chats with Lori LaBey. This is twice-monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .
Wed 29 May: Teepa Snow “Let’s Talk” is scheduled Wed. May 29: Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group. Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help. That is what i needed to do, and so glad Teepa Snow provides a helper for this process. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .
29/30 May: Dementia Alliance International (DAI) Meeting of the Miinds webinar is scheduled with Neurologist Daniel Potts on Wed/Thurs May 29/30 >> https://www.dementiaallianceinternational.org/may-webinar-learnings-from-patients-and-families-by-dr-daniel-potts/ .
DAA Discussions on Thursday.
This week’s topic is “Hallucinations & Visual Perception”. It will be hosted by Chuck McClatchey at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time. These discussions are free and open to both persons with dementia and care-partners. See you there ! >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .
Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .
But i DO plan to attend Teepa Snow’s conference in November, so keep an eye out for that.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 27May2019. Tags are: dementia, family, Living with Dementia, memory, PLwD, recognizing family, relationship, symptoms.
UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year