PWD Index Mo 2015-07 (Jul)

SymptomPrspctvs 20150602a 2in300ppi

This month’s rotation will start with “C” for given names in alphabet (so end with “B”). 

Link Index for this month’s Newsletter,  gathering primarily July 2015 material from 76 different persons, with a total of 88 different links published Friday, August 7, 2015.  An additional 21 links have also been categorized here (but not included in NewsLetter) for a total of 109 links listed and categorized below.

Below is the index for July entries in the re-titled dementia “Symptom Perspectives” newsletter.  Since there has recently been hot debate about who has the right to call themselves “PWD” (Persons With Dementia); in what level of diagnosis is necessary to wear this label, and how often patient must be re-examined in order to retain the label  — (and ALSO Medical vocabulary changes in USA) — I am beginning to minimize the “PWD” label from my own vocabulary.  So now newsletter title reads

“Symptom Perspectives”;
See life “Thru the Looking Glass” of our dementia SYMPTOMS. Apply resource of lived experiences, & watch your own PWD relationships blossom as result.
Includes projects from persons with diagnosis of “Dementia” in various types … & includes MCI patients.

Hoping these changes of terminology will minimize misunderstandings and maximize participation.

I would like to thank each person sharing their personal life.  My hope is that these words and projects can become valuable resources for change in relationships, treatment, and policies.

This index is available as pdf at Index Perspectives 20150807

 

index Perspectives https://truthfulkindness.com/links/pwd-index-mo-2015-07-jul/
stigma, terms 18-Mar vid Agnes Houston Proj/vid: Power of Words https://vimeo.com/122528299
cooking, fear, living alone, living @home 16-Jul story Agnes Houston Losing Ability to Cook http://www.onourradar.org/dementia/2015/07/16/my-ability-to-cook-is-steadily-diminishing
SocProbs, travel 15-Jul categ Agnes Houston When Crossing the Road http://www.onourradar.org/dementia/2015/07/15/when-you-have-difficulties-and-issues-you-begin-to-realise-how-many-times-you-cross-a-road
Soc Probs 16-Jul categ Agnes Houston Professionals who Want to Help http://www.onourradar.org/dementia/2015/07/16/there-are-professionals-out-there-who-really-do-want-to-help-people-with-dementia
Speclst 01-Jul story Alan Bellchambers Dr’s Srgry http://www.onourradar.org/dementia/2015/07/01/just-a-few-things-to-say-about-my-doctors-surgery
Rx, hope 13-Jul story Alexandra Boothby  Hope Hope Hope http://livingwithpassion90.blogspot.com/2015/07/hope-hope-hope.html
stigma, Dx, symptms, ID, advocacy, $, 04-Jun vid Amy Shives Proj/intrvw: ’15 Alz Assoc https://www.youtube.com/watch?v=cJ0xojJYsHc&feature=youtu.be
ID 17-Jun story Anne MacDonald You’re Still Anne http://www.onourradar.org/dementia/2015/06/17/it-was-great-to-hear-her-say-youre-still-anne
fatigue, 16-Jul story Archie Latta More Fatigued http://www.onourradar.org/dementia/2015/07/16/im-feeling-a-wee-bit-more-fatigued
spiritual, peace 27-Jul project Barry Pankhurst Proj/Poetry: Spirituality https://truthfulkindness.com/index-persons-with-dementia-pwd/barry-pankhurst/july-2015/
driving, travl, symptms, 08-Jul vid Barry Pankhurst vid: Car Passenger https://vimeo.com/132949937
symptms, emot 28-Jun categ Barry Pankhurst 13 Mood Swings https://www.youtube.com/watch?v=M_bXJwpYnVM
ID, physcl symptms 10-Jul categ Barry Pankhurst Self-Analysis http://www.facesofdementia.co.uk/332251475?b=A4CA48183B56DB773ED2E66A89586B79885B4CDC
emot, holiday 16-Jul categ Barry Pankhurst Anxious Time http://www.facesofdementia.co.uk/354913504
Dx, prspectiv 15-Jul vid Brian LeBlanc Proj/intrvw: Today Show https://www.youtube.com/watch?v=Obf4HHAKbgs
cure, Rx, SocProbs, $ 21-Jul story Brian LeBlanc Is it Just about the Money http://abitofbriansbrilliance.com/2015/07/21/is-it-just-about-the-money/
cookg, driving, symptms, lost, tech 04-Jul categ Brian LeBlanc Saved by Siri http://abitofbriansbrilliance.com/2015/07/04/saved-by-siri/
balance, symptms, exercs, Dx, relat, activities 21-Jul vid Charles James Jaggers Proj/intrvw: Balance & Mixd D https://vimeo.com/134156533
confidence, communic, wrds, script 13-Jul story Chris Forse My Mind Wanders http://www.onourradar.org/dementia/2015/07/13/sometimes-when-i-speak-my-mind-wanders-off-in-a-totally-random-direction
prspectv, activities 09-Jun story Chris Norris Doesn’t Have Me http://www.onourradar.org/dementia/2015/06/09/i-may-have-dementia-but-dementia-does-not-have-me
Dx, Rx, Symptms, Relat, Resrch 25-Jul vid Chris Roberts Proj/intrvw: BBC vid https://www.youtube.com/watch?v=lPeR_C9xYlQ&sns=tw
poetry, CareHm, emot, 09-Jul story Chris Roberts In Care Home https://dementiacarervoices.wordpress.com/2015/07/09/poetry-week-day-4-looking-out-of-the-window-in-a-care-home/
psyc, speclst, relat, commun 01-Jul story Cindy Stolz-Odell Signs Signs Everywhere http://www.ftdnoflowers.blogspot.com/2015/07/signs-signs-everywhere-are-signs.html
media, symptms, Dx, humor 04-Mar project Cynthia A. Guzman Proj/intrvw: Consultnt4 Julianne Moore http://napavalleyregister.com/entertainment/arts-and-theatre/undaunted-by-alzheimer-s-guzman-served-as-consultant-for-oscar/article_1a9a492b-3ff3-515e-9c27-43d96f5fcfed.html
lit, emot, relat, perspectives 06-Jul story David Hilfiker Flowers 4 Algernon https://www.agingcare.com/Articles/lessons-from-flowers-for-algernon-184174.htm
prspectv, sup systm 19-May project David Kramer Proj/intrvw: Defyg Stereotypes http://mariashriver.com/blog/2015/05/living-well-when-cruising-with-alzheimers-disease-david-kramer-mike-good/
Dx, emot, socProbs, career 19-Jul story David Kramer Diagnosis 2 https://truthfulkindness.com/index-persons-with-dementia-pwd/david-kramer/july-2015/
art 3-Jul project Debbie Lawhorn Proj/Paintg: Forget-me-nots? https://truthfulkindness.com/index-persons-with-dementia-pwd/debbie-lawhorn/july-2015/
Symptms, hope, Spiritual, relat, co-diseases 12-Jul story Donnalynn Morin Another Day https://truthfulkindness.com/index-persons-with-dementia-pwd/donnalynn-morin/july-2015/
music 18-May vid Garry George Wilkes Proj/Ballet Overture https://www.youtube.com/watch?v=pkHCRAsrlTk
art 19-Jul vid Gene Suchma Proj/art: Retirementia https://vimeo.com/133848494
commun, wrds, art 15-Jul project George Huba PhD Proj/Mind-Map: Commun http://hubaisms.com/2015/07/15/watch-a-person-with-dementia-use-a-mindmap-to-communicate-time-lapse-video/
Dx, art, planng, commun 18-Jun story George Huba PhD When You Wake http://hubaisms.com/2015/06/18/when-you-wake-up-at-55-and-hear-you-have-early-onset-dementia-or-cognitive-impairment-a-mindmap/
Dx, Symptms, terms, stereotype 03-Jul story George Rook Think Ive Got Dementia? https://georgerook51.wordpress.com/2015/07/03/do-you-think-ive-got-dementia/
travl, symptms, commun, soc, 23-Jul categ George Rook A Yr from Now https://georgerook51.wordpress.com/2015/07/23/i-wonder-where-i-will-be-a-year-from-now/
travl, planng, safety, disorientatn 12-Jul story Gill HS Green LIttle Things Exposed http://gillhaygreen.com/2015/07/12/dementia-little-things-exposed/
grief, Rx, relat 04-Jul categ Gill HS Green Witnessing Release http://gillhaygreen.com/2015/07/04/dementia-witnessing-release-is-a-comfort/
Dx, activities 6-May vid Gina Shaw Proj/intrvw: Story https://www.youtube.com/watch?v=Z20ZnJsP7uc
media, exercs, hlth 30-Jul story Gina Shaw More healthy?? http://www.onourradar.org/dementia/2015/07/30/how-much-more-healthy-i-could-be-really
SocProbs, facilities 15-Jul categ Gina Shaw Where People Care http://www.onourradar.org/dementia/2015/07/15/we-do-need-places-that-care-for-people-but-we-need-places-where-people-care
id, symptms 02-Feb project Greg O’Brien Proj/intrvw: Self-Analysis http://memoriesproject.com/2015/02/02/interesting-self-analysis-of-alzheimers-from-greg-obrien/
emot, sensory symptms, eatg, relat 25-Jul story Greg O’Brien Remember to Laugh http://n.pr/1IhfTot
$, memories 18-Jul categ Greg O’Brien Losing Home http://n.pr/1IbooHK
advocacy, mission,  challenges, motives 17-Jul project Harry Urban Proj/Dementia StoryTellers https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/july-2015-b/
relat, commun, craft, emot, fam 02-Jul story Harry Urban July Part 1 https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/july-2015-a/
stigma, advocate 24-Jun project Helga Rohra Proj/inrvw: Standup Speak up http://my-klug-dumm.blogspot.com/2015/06/standup-speak-up-ein-leben-mit-demenz.html?spref=fb
Dx, $, SocProbs, symptms, craft ?? story Ian Thomas Ian’s Story http://www.youngdementiauk.org/ians-story
funerls, fam, laughtr, music 31-Jul story James Tomlinson 2Live a bit Longer http://www.onourradar.org/dementia/2015/07/31/i-decided-i-want-to-live-a-bit-longer-and-enjoy-life-while-i-can
schedulg, tech, symptms 23-Jul vid Jennifer Bute VIP Dates (vid) https://vimeo.com/134314802
music 12-Jul project Jim Pfefferkorn Proj: Musical Memories https://truthfulkindness.com/index-persons-with-dementia-pwd/jim-pfefferkorn/july-2015/
confusion, dressing 30-Jun story Jo Bennett So Muddled http://www.onourradar.org/dementia/2015/06/30/keep-getting-so-so-muddled
advocacy, civil disobed, $, SocProbs 28-Jul story Joe Potocny Richard Taylor Goodbye http://living-with-alzhiemers.blogspot.com/2015/07/dr-richard-taylor-goodbye-my-friend.html
terms, Dx, symptms, perspectv 21-Jul story John Quinn Our Reasons https://iamlivingwellwithdementia.wordpress.com/2015/07/21/287/
energy cost of advocacy, media, exercs, 08-Jul categ John Quinn Resting Up https://iamlivingwellwithdementia.wordpress.com/2015/07/08/its-no-wonder-that-im-resting-up/
exercs, gettg lost, paintg 20-Jul story John Williams Art Keeps me Going http://www.onourradar.org/dementia/2015/07/20/im-really-lucky-to-have-my-art-because-its-the-thing-that-keeps-me-going
Dx, career, fundraisg, advocatg, 15-Jul vid Kathleen Anduze vid:Lickin LBD & Dx https://vimeo.com/133615556
poetry, emot 26-Jun n/a Kathy Dunning Proj/Poetry http://www.onourradar.org/dementia/2015/06/26/poetry-dementia-is-a-strange-mind-game-by-kathy-dunning
stigma, appearance, relat 04-Jun project Kathy Ryan Proj/intrvw: Pain of Stigma http://www.irishexaminer.com/ireland/pain-of-stigma-a-reality-for-people-with-dementia-334525.html
emot depressn, relat interdependnt 09-Jul project Keith Oliver Proj/intrvw: BBC Radio You & Yours http://www.bbc.co.uk/programmes/b06125zr
Dx, symptms, coping 27-Apr vid Keith Oliver Vid: Dementia Trng https://www.youtube.com/watch?v=CPulwcrkcxA
media, Dx, speclist, resrch, infectn 17-Jun categ Keith Oliver Dementia Breakthru http://www.onourradar.org/dementia/2015/06/17/the-alzheimers-breakthrough-at-one-time-it-would-have-raised-my-hopes-now-it-just-makes-me-cross
symptms, prspectiv, relat 18-Jul project Kelli McGowan Proj/intrvw: Dancing w/ D http://mattersofcourse.com/2015/07/dancing-with-dementia/
hobby, art, 12-Jul project Ken Clasper Proj/Hobbies http://ken2clasper.blogspot.com/2015/07/memory-problems-and-hobbies.html
Dx, symptms, terms, travl 27-Jul story Ken Clasper Daily Problems w/MCI http://ken2clasper.blogspot.com/2015/07/daily-problems-associated-with-mild.html?spref=fb
Dx, speclst,emot, 17-Jul categ Ken Clasper Politics & Med http://ken2clasper.blogspot.com/2015/07/politics-on-medicine.html
music 13-Apr project Ken Payne Proj/intrvw: bid4 Talent Show http://www.sunderlandecho.com/news/health/sunderland-dementia-sufferer-bids-for-spot-on-this-year-s-x-factor-1-7206931
writing, symptms 06-Jul story Kris Bakowski Atlanta Magazine http://creatingmemories.blogspot.com/2015/07/atlanta-magazine.html
Dx, expectatns, conflict, music, symptms, $, commun 28-Jul project Laurie Scherrer Proj/intrvw/radio: Alz Speaks http://www.blogtalkradio.com/alzheimersspeaks/2015/07/28/living-with-dementia-daze-plus-keeping-up-with-medications#.VbgcTAqV_U8.facebook
planng, routine as tool 02-Mar story Laurie Scherrer Mix up my routine = Mix up Me http://dementiadaze.com/2015/03/02/mix-up-my-routine-mix-up-me/
stigma 05-Jul project Linda Pendergrass Proj/poety: The Dementia https://truthfulkindness.com/index-persons-with-dementia-pwd/linda-pendergrass/july-2015/
music 03-Dec vid Marty Everest Proj/music: Giving Voice Chorus https://www.youtube.com/watch?v=QGHCKsHGNGs
behavrl chng, destructiv outbursts, relat, care-partnrs 24-Jul story Mary Beth Wighton Breaking the Law https://uwaterloo.ca/murray-alzheimer-research-and-education-program/blog/post/breaking-law
stigma, visibility, truth, symptms 02-Jul categ Mary Beth Wighton Why do you Not Believe? https://uwaterloo.ca/murray-alzheimer-research-and-education-program/blog/post/why-do-you-not-believe-me
memory café 12-Jul project Mary Howard Proj/intrvw: Rnd Table re Mem Café https://vimeo.com/133277782
arts, therapy, symptms, ID, gardeng 28-Jul project Max McCormick Proj/arts: “Creativity” https://truthfulkindness.com/index-persons-with-dementia-pwd/max-mccormick/july-2015/
Dx, speclst, emot, symptms 15-Jul story Melanie Wagner Remember Me https://mwagner21.wordpress.com/2015/07/15/remember-me/
token PWD, lack of undrst by team, travel 24-Jul story Melvyn Brooks On The Committee http://www.onourradar.org/dementia/2015/07/24/im-the-only-one-with-dementia-on-the-committee
SocProbs, lack of undrst in med office, schedulg 17-Jul categ Melvyn Brooks going 2get Worse http://www.onourradar.org/dementia/2015/07/17/it-makes-me-feel-so-sad-and-its-going-to-get-worse
SocProbs, advocacy, politics, stigma, wrds 27-Jul story Michael Ellenbogen Speech at NAPA https://truthfulkindness.com/index-persons-with-dementia-pwd/michael-ellenbogen/july-2015/
loss, frustr 07-Jul story Mick Carmody 99% Imagination http://carmodym59.com/2015/07/07/99-imagination/
hlth 19-Jul vid Myrna Norman Proj/intrvw: Rnd Table https://vimeo.com/133906220
halluc, symptms, travl, emot 10-Jul story Norman Mc Namara Another Time http://tdaa.co.uk/dementia-another-time/
emot, halluc, symptms 22-Jul categ Norman Mc Namara Neither Here nor There http://tdaa.co.uk/dementia-neither-here-or-there/
exercs, strange 17-Mar story Pat McGonigal Strange Filmed Swimming http://www.onourradar.org/dementia/2015/03/17/to-show-people-that-they-could-still-have-some-quality-of-life-and-be-able-to-do-things
SocProbs, funding, travel 24-Jul story Paul Hitchmough Not as Bad in Liverpool http://www.onourradar.org/dementia/2015/07/24/its-not-as-bad-in-liverpool-as-it-is-everywhere-else-over-the-uk
biography, cookg, attitud, lit 09-Jun project Paula Wolfert Proj/Bk:Biographical CookBook Kickstarter https://www.kickstarter.com/projects/265444901/unforgettable-bold-flavors-from-a-renegade-life
Dx, symptms 09-Nov vid Paulan Gordon vid: Vascular Dementia https://vimeo.com/111343974
Symptms, commun, driving 05-Mar n/a Peter Van Spyk Proj/intrvw:Alz Soc http://www.endevr.com/dementia/Personal-Stories-Peter-Living-with-dementia
relat, stability, symptms, emot 25-Feb story Phillip Watmough She is just Magic http://www.onourradar.org/dementia/2015/02/25/i-couldnt-cope-without-her-shes-just-magic
arts, indiv care 30-Oct story Richard Taylor Goes2 Washington http://www.richardtaylorphd.com/blog/entry/193-richard-goes-to-washington.html
emot, challenges 31-Oct project Rick Phelps Proj/intrvw: Anothr Wrld (w/Harry Urban) https://www.agingcare.com/Articles/alzheimers-patients-share-their-experiences-153702.htm
emot, symptms, hypersensitizd, confusn 02-Jul story Rick Phelps Dementia Fog http://phelps2645.blogspot.com/2015/07/the-dementia-fog.html
emerg, end-of-life, DNR 15-Jul categ Rick Phelps DNR & Emergencies http://phelps2645.blogspot.com/2015/07/dnr-and-emergencies.html
Dx, symptms, 14-Jul vid Robert Bowles Proj/vid/intrvw: Diagnosis https://vimeo.com/133480351
spiritual, symptms, stigma 04-Jul story Robert Bowles Faith & Purpose http://lbdlivingbeyonddiagnosis.com/2/post/2015/07/living-beyond-diagnosis-with-faith-and-purpose.html
memry, emot, plans 16-Jul story Russell Scott Making Memories http://rustyhiggins2014.com/2015/07/16/making-memories-with-the-ones-that-matter/
media, advocacy 11-Jul project Sandy Oltz Proj/intrvw: adviser http://www.kdlt.com/news/local-news/movie-about-alzheimers-inspires-others-in-the-sioux-empire/34115886#.VaHsLmZwS3U.facebook
halluc, dreams, recogn, emot 01-Jul story Silverfox Who are YOU ? http://parkblog-silverfox.blogspot.com/2015/07/who-are-you.html
sex, symptms, relat 19-Jul categ Silverfox Open Bold Post http://parkblog-silverfox.blogspot.com/2015/07/an-open-bold-po.html
Dx/PPA, symptms 06-Jun vid Susan Suchan Vid: Primary Progressiv Aphasia (PPA) https://vimeo.com/97520516
advocacy, Dx, relat, purpos, cure $ 07-Apr story Terry Berry Why it Matters http://blog.alz.org/advocacy-why-it-matters/
Dx, symptms, advocacy 6-May vid Tommy Dunne Proj/vid: Tommy’s Story https://www.youtube.com/watch?v=NEXevkniq0U
media, cure 30-Jul story Tommy Dunne Put Up or Shut Up http://www.onourradar.org/dementia/2015/07/30/put-up-or-shut-up
stigma, lang, wrds, symptms 07-Jul project Truthful Kindness Proj/List4DAA: Feeliing Left-Out https://truthfulkindness.com/2015/07/07/feeling-left-out-with-dementia-symptoms/
time, energy, symptms, hygiene 20-Jul story Truthful Kindness Time Energy Consumption https://truthfulkindness.com/2015/07/20/time-energy-consumption-dementia-symptoms/
hist, fam, prspectiv 23-Jun categ Truthful Kindness Impact/ D Examples https://truthfulkindness.com/2015/06/23/impact-example-respond/
career, lit 13-Jul project Valerie Blumenthal Proj/Writing Workshops http://wanttowriteanovel.com/how-it-works/
loss, frustr 26-Jul project Vicki Atkinson Proj/Poem: I Miss Life https://truthfulkindness.com/index-persons-with-dementia-pwd/vicki-atkinson/july-2015/
advocacy, media, prspectiv, Dx, soc, hlth 27-Jul project Wendy 7713 Proj/intrvw/The Press http://www.yorkpress.co.uk/news/13501517._You_can_live_well_with_dementia_/
symptms, sensory challenges 09-Jul story Wendy 7713 Sensory Challenges https://whichmeamitoday.wordpress.com/2015/07/09/sensory-challenges-with-dementia/
index PWD Blog & Webpage Links https://truthfulkindness.com/links/


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