Tru here.
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These are Links i find myself repeatedly sharing
when folks have questions about how “dementia” works.
Teepa Snow is one of the best teachers i know for making dementia symptoms easier to understand,
so many of these Links are from her archives.
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i embedded the first few videos, and the last few. But if i embed all of them the page will be very long. So i just attached Links for each major type of dementia. Even tho learning these things is a source of anticipatory grief for us, i think learning these things early-on is important for both our care-partners and ourselves. in earlier stages these things will be easier for US to learn — and apply to our preparation-efforts … than in mid-to later stages. At this time we still have the ability to make choices in our preparation — and preparation for our future care-partners. ******* Unfortunately family and friends often feel they dont really need to FIND time and energy for things like getting this information … until our Lack-of-Abilities makes it so THEY get stuck and realize they need help. Until then it is all on US to find strategies and try to put them in action.
Dementia 101 from Teepa Snow on 20171221 at youtube https://www.youtube.com/watch?v=EpV83BVhXr4 .
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re Rx:
Teepa Snow What is Dementia (excerpt 1) at >> https://youtu.be/CT9dqYEIqbs .
Teepa Snow What is Dementia (excerpt 2) with basic info on Rx at >> https://youtu.be/drE_1nYa7Ao .
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TYPE:
Nice (DownLoadable) graphic at https://www.nia.nih.gov/health/infographics/understanding-different-types-dementia ;
Diagnosis Process (from Teepa Snow) at >> https://youtu.be/61dQDIuueyQ ;
More clinical explanation by Prof. Michael Hornberger (Professor of Applied Dementia Research at the Norwich Medical School, University of East Anglia, UK) at >> https://dementiascience.org/2020/11/23/how-many-types-of-dementia-are-there/ .
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Alcohol-Related Dementia
at https://truthfulkindness.com/about/d-info/alochol-dementia/ ;
Alzheimers
Alzheimers: (from Alz Society) at >> https://youtu.be/wfLP8fFrOp0 .
Alz: Explanatory page for Alzheimers-type of Dementia is here >> https://www.healthline.com/health/alzheimers-disease ;
Patient Experience/ Vid by Brian LeBlanc at >> https://vimeo.com/showcase/3464118/video/136847336 ;
Patient Experience/ David Kramer’s Diagnosis series begins (1/3) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/david-kramer/may-2015/ ;
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PCA (Posterior Cortical Atrophy) is an atypical variant of Alzheimer’s Disease:
Explanatory page for PCA at >> https://dementiascience.org/2021/02/09/less-common-dementia-series-posterior-cortical-atrophy/ ;
UK Medical Research Council at >> https://www.dementiasplatform.uk/news-and-blogs/blog/posterior-cortical-atrophy-a-dementia-that-affects-the-vision ;
Patient Experience/ Cecil Ristow Quilting with PCA >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cecil-ristow/july-2015/ ;
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Fronto-Temporal
FTD: CareBlazers’ FrontoTemporal Dementia at >> https://youtu.be/oKurhSgchww .
Explanatory page for Fronto-Temporal Dementia is here >> http://www.theaftd.org/life-with-ftd/newly-diagnosed ;
Teepa Snow FTD excerpt1 at >> https://youtu.be/w-YNwjpw7eE ;
Teepa Snow FTD excerpt2 at >> https://youtu.be/4gkqwqY-H00 ;
Explanatory page for varieties of FTD (including PPA) at >> https://www.nia.nih.gov/health/types-frontotemporal-disorders ;
Stages of FTD by geriatrician James Ellison >> https://www.brightfocus.org/alzheimers/article/what-are-stages-frontotemporal-dementia ;
Symptoms and Causes at >> https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/symptoms-causes.html ;
Lots of Links at >> https://memory.ucsf.edu/dementia/ftd ;
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… BvFTD (Behavioral Variant) is a type of FTD:
Patient Experience: Diana Winoker in 2-min vid at https://vimeo.com/showcase/3465224/video/96992793 ;
… PPA (Primary Progressive Aphasia) is a type of FTD; includes 3 variants >> https://truthfulkindness.com/about/d-info/variants-ppa/ ;
((no Links yet on other types of FTD))
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Lewy Body
LBD Resource Center at >> https://lewybodyresourcecenter.org/ ;
LBD Symptoms Pg2 at >> https://www.lbda.org/symptoms-2/ ;
10 Things to Know for Lewy Body Dementia is here >> https://www.lbda.org/10-things-you-should-know-about-lbd/ ;
LBD: Teepa Snow Lewy Body Dementia at https://youtu.be/UnjaAisyeN0 .
Patient Experience; Robert Bowles on diagnosis process, in 2-min vid at https://vimeo.com/showcase/3465232/video/133480351 ;
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Vascular
Explanatory page for Vascular Dementia at >> https://www.healthline.com/health/dementia/vascular-dementia ;
Teepa Snow Vascular Dementia (excerpt 1/ Apathy & Depression) at >> https://youtu.be/wHiWaQ_VdZc .
Teepa Snow Vascular Dementia (excerpt 2/Changing Levels of Alertness) at >> https://youtu.be/mSoUif-is54 .
Patient Experience; Janice Crich in 4-min vid at >> https://vimeo.com/showcase/4223086/video/170618074 ;
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Rare
Childhood Dementia >> https://www.childhooddementia.org/what-is-childhood-dementia .
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STAGES and MCI (Mild Cognitive Impairment):
Earliest Stages (from Teepa Snow) at >> https://youtu.be/nKND_yqKaZw .
Stages and Inconsistencies by Truthful Kindness at https://truthfulkindness.com/2021/06/02/dementia-stages-and-inconsistencies/ ;
Time Mag re 2011 change on diagnostic criteria for Mild Cognitive Impairment diagnosis instead of standard “dementia” diagnosis >> https://healthland.time.com/2012/02/08/why-a-new-definition-of-cognitive-impairment-may-confuse-patients/ .
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Diagnosis ETC:
Patient Experience of Diagnosis Process; 3-min vid with Paulan Gordon at >> https://vimeo.com/showcase/4223086/video/94796239 (Video shown below);
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Patient Experience/ Laurie Scherrer: early-stage “Christmas Tree Analogy” above.
Laurie Scherrer on what the doctors should have told you at >> https://dementiadaze.com/2018/04/14/what-they-dont-tell-you-about-dementia/ ;
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Patient Experience immediately following diagnosis; 2-min vid with Chris Roberts at >> https://vimeo.com/showcase/4223086/video/92972498 ;
Chris Roberts: Let the Diagnosis Sink In from Dementia Mentors on Vimeo.
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Reasons to go for Early Diagnosis by Truthful Kindness at https://truthfulkindness.com/about/d-info/reasons-4-early-dx/ ;
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non-PLwD: Safety Awareness (from Teepa Snow) at >> https://youtu.be/f8FwJUCLrSI .
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Links for TIPS on Symptoms and Strategies at https://truthfulkindness.com/about/d-info/links-sx-strategies/ .
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More Links:
My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/ .
Most recent are here >> https://truthfulkindness.com/ .
Patient Experience; Retired Dr Jennifer Bute has EXCELLENT website (with tab for down-loadable resources) at >> http://www.gloriousopportunity.org/ .
non-PLwD: Teepa Snow video on “not Normal ??” at https://youtu.be/oaM6wsQjJNM ;
Patient Experience; 26-min vid interview with retired Dr David Kramer on “Searching for Dementia Resources” at >> https://vimeo.com/106102283 ;
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PS: Abbreviations:
PLwD (Person Living with Dementia);
and abbreviations for the best-known types of dementia are below:
AD (Alzheimer’s Disease);
FTD (FrontoTemporal Degeneration & BvFTD for Behavioral Variant FTD);
LB (Lewy Body) in Europe usually abbreviated DLB (Dementia with Lewy Bodies) & in USA it is abbreviated as LBD;
PPA (Primary Progressive Aphasia has 3 sub-types);
PCA (Posterior Cortical Atrophy – a sub-type of Alz);
YOD (Young-Onset Dementia is when onset is before 65 yrs of age)
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… and you might want to check out the Links gathered for Dementia Symptoms and Strategies (alphabetized) at https://truthfulkindness.com/about/d-info/links-sx-strategies/.
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.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”. If you put your eMail address there you should get an eMail each time i write a blog entry. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** … If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness on 05Aug2020 UpDated Aug2020, Jan2021 + 4hrs text on 12Jan2022 + 6hrs painting on 12Jan2022). Digital Painting copyright Truthful Kindness on 12Jan2022. HiRes is on Flickr. Procreate “Liquid” project on iPad using Apple Pencil and Alaina Jensen Brushes. Invested 6hrs in this picture, then put it thru iColorama “raise” process to better show the brushstrokes. Tags: alzheimers, dementia, FrontoTemporal, information, lewy body, Links, vascular . (Link revw/modification 2022Jun28)
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