“Looking Normal”
August 3, 2015: Three days and a lot of sweat but I stained my front porch. The body feels the pain but I enjoyed the accomplishment. Rest waits me.lol. …
I painted the patio chairs last week and … I covered the cushions (a few months back). I only had to cut the pattern and glue. It was a challenge and they aren’t perfect but that’s o.k. The birds enjoy them and leave a special gift each day. Lol.
Dianne White I get a bit frustrated at people sometimes. They seem to see the outer shell of Alzheimer’s folks.
They say ,you look good, you seem to be doing fine .WELL…. How am I suppose to look???, and How am I’m suppose to be doing????
They don’t have a clue about the frustrations of trying so hard to stay on track and NORMAL looking to the outsiders.
E xample… I like to do cut my grass. I have a couple times this summer. Took me all day. Cut a bit, go inside, doze off in my chair,go back out ,cut a bit more. Repeat most of the day. Didn’t do anything else all day. That took full attention. Now, you see,to others they would say… She is doing good.
Everything we do takes so much thinking and forget trying to plan it out. You get side tracked a million times. I stained my front porch.Took me three days. That was more than I bargained for.couldn’t close my hand. Pain all over my body,and total exhaustion. I still enjoyed my accomplishment.
We are very determined that this disease will not control us. Soooo for those who say we do good ,and we look normal,YOU BET YOUR BUN’S WE DO ! We make it our main goal to do so. Blessings all. Yes Tru,you can use this in any of your writings. Keep up the good work folks.
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Hello Dianne,
Wanted to let you know that your article is included in the dementia “Symptom Perspectives” monthly links tonight, September 30, 2015
https://paper.li/f-1408973778
I would like to thank you for sharing your lived experience. My hope is that these words and projects can become valuable resources for change in relationships, treatment, and policies.
Much thanks,
Tru
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