“PWD Perspective” Contributions from other Persons With Dementia (PWD): Debbi Haughey,
with Primary Progressive Aphasia (PPA type of FTD) & Alzheimer’s.
Dealing with grief and spirituality:
2018 Feb 25:
I have been re-examing my thinking.
I have been so wrong.
I have been focusing on my, as my son puts
“toe tag date”
that I have forgotten about the beauty of living.
I was no longer me.
I accepted my impending death and let go of the spirituality that I rejoiced in for my entire life.
I have long believed in the “metaphysical”
that there is so much more in this world that we see with our limited vision.
I have stopped meditating, white lighting, reaching out beyond my physical body.
To let my consciousness flow.
I have been mourning the fact that my beloved brain was dying,
rather than celebrating the fact that I was given a sky-high IQ that allowed me to learn and grow and understand things that surround us. I was able to look through a microscope and see a hidden world that was amazing.
And although I am unable to remember specific terms I still am capable of general understanding. So I am still a die-hard voter, and will still be involved in my dementia community.
I am no longer terminal or dying.
I still know I have a very limited shelf life,
but until I breathe my last breath
I will find the path of
exploring the world around us
like I did before my diagnosis.
I am still alive!!!
I will not question why anyone would want to become close to me knowing that there will be pain when I die.
I will allow people to love me.
I still have time.
And I want to be alive in that time!!!
Wish I was out in the wilderness where I could give a good primal scream!!!
Debbi’s index for other (future) pages is at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/debbi-haughey/
explanatory page for varieties of FTD (including PPA) at >> https://www.nia.nih.gov/health/types-frontotemporal-disorders
Association for Fronto-Temporal Degeneration Association >> http://www.theaftd.org/
Index for other contributions is at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/
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Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year