This Link Legacy is compiled by Truthful Loving Kindness (yes, that is my full legal name) for publishing at http://www.truthfulkindness.com , so PLEASE address any questions or comments to that website, regardless of which website shows these words. *** Along with memories of my two grandmothers’ strategies, i have 3 major “Mentors” for my dementia journey: Harry Urban, Robert Bowles, and Jennifer Bute. Consequently, i have many Links with Robert’s dementia advocacy projects, but sadly, many of those are already broken Links. This page may take a while to load, due to the pictures and nine embedded short videos.
i would like to preface this Listing of Links with some quotes (shared with permission);
Quote from Robert Bowles on 02/25/2015 8:38pm; ” …, I told my family on the day that I was diagnosed in June 2012 that I would be totally transparent and tell the good, the bad and the ugly. I told them that … I would die trying to educate patients, care partners and doctors about medication sensitivity in LBD. Thanks for your love and support.” — Robert Bowles on 25Feb2015.
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Phil 4:13. “I can do all things through Christ who strengthens me”. Robert Bowles said “That ((verse)) sees me through this journey because I know I’m not going to be left alone. I know God’s lifting me up, and he’s going to see me through the journey.” — Robert Bowles on podcast at https://seniorprovisions.com/podcast/the-harvest-show-dementia-advocate-and-champion-robert-bowles/ . ((Have not figured out the year yet, but probably in December)).
Quotes ABOUT Robert Bowles from those living with dementia symptoms:
From Craig Hanke; “When I first started my dementia journey in 2013 I joined a group called Dementia Mentors. Your dad [[ Robert Bowles ]] was assigned to me as my mentor. I soon found out that he was a very special, intelligent, God fearing man that was full of wisdom. I couldn’t have made it through those first years without him. He was my rock and strength. What I learned from Robert, I was able to move from mentee to mentor. I continue mentoring to this day using the wisdom and knowledge that Robert passed on to me. I can’t even imagine the number of people that he touched in life either through his pharmacy or the dementia world. I thank God for him and I am fully confident that he is imparting his wisdom and kindness in Heaven side by side with Jesus!” — Craig Hanke on 30Dec2022.
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From Laurie Scherrer; “Robert was a fabulous dementia advocate and educator. He was a mentor to many -teaching us how to live a purpose filled life in spite of our dementia. He had a passion for helping others and was always will to share his medical knowledge. Robert was instrumental in starting Dementia Discussions. And Robert was an awesome friend!” — Laurie Scherrer on 30Dec2022.
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From Mary Radnofsky; “Such a gentle man as well as a true southern gentleman, Robert spoke with magnolia blossoms in his voice and the warmth of the Sun in his heart. I’m grateful for his goodness and kindness over the years, as we travelled on this journey, always striving to be the best version of ourselves through all the changes Life can bring. May he rest in peace.” — Mary Radnofsky on 30Dec2022.
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From Susan M.;
“His reassuring smile across the computer screen surprised me about 10 years ago, when I first met Robert Bowles. I hadn’t known what to expect. Feeling very nervous, speaking to the first person I’d ever met with the same diagnosis, I could barely speak. ♥
Robert waited patiently for me to compose myself.
“He was born to do this,” I thought. ♥
To reassure. ♥
To create a plan. ♥
To motivate us to raise awareness about Lewy Body Dementia and spread information to everyone that would listen. ♥
Robert was brilliant. His pharmaceutical expertise enabled him to reach out to valuable people across the globe, searching for answers and pushing for research. Robert so struck me, at that first zoom meeting, I knew I wasn’t going to travel down the dark path I was on. There were times I didn’t think I could make it this long- the depression and disappointment was so great. ♥
Robert, and others he introduced me too- made me feel part of a group that genuinely cared. We were all part of something bigger. And we were pulling each other along- positively. ♥
I “ met” his wonderful wife Judy through FB, and he always beamed when recounting when they met, and the joy he got from his family and his faith. So strong Robert was- he helped me believe I could be strong too. ♥
I can make it to the end because of Robert. He gave me that gift. Strength. ♥
Thank you Robert. Never forgotten.” – Susan M. on 11Jan2023.
From Truthful Kindness;
“i have 3 major “Mentors” for my dementia journey: Harry Urban, Robert Bowles, and Jennifer Bute.
They have been my mentors for eight years now.
Some leadership teachings talk about the need for others to expect “success” from you. — Robert never had a doubt in my drive and persistence to my purpose. He usually had a calm “take your time and think it through, girl” attitude for me.
Having Robert in my peer group was also important for his background with pharmacy; When prescribing medications for me, my family doctor would say “Lets consider these medication options. Why dont you talk to your friends in the group and find out their thoughts and how others have responded to these medications and then you can get back to me with their input and we will decide on which medication is for you.”
Personally i think one of the most valuable concepts from Robert that i find myself repeatedly sharing is his concept of ASAP; Acceptance, Socialization, Attitude and Purpose.” (now available at https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/asap/ ) .
— Truthful Kindness on 30Jan2023.
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Quotes ABOUT Robert Bowles from Dementia Advocates who are not Living with Dementia:
From (neurologist friend) Daniel C. Potts on 31Dec2022; “Robert was one of the most courageous, beautiful people we have known, as he traveled far and wide (including the American Academy of Neurology meeting in Los Angeles with us) to tell people what it is like to live with Dementia with Lewy Bodies, to advocate for others who are living with dementia and care partners, and to show all of us how to continue living lives of purpose and passion despite the struggles and losses. Now, it’s up to all of us, whose lives have been deeply touched by his, to show the world that personhood lives on, and dementia is no match for it. Rest in peace, Robert.” —D. Potts on 31Dec2022 at >> https://www.facebook.com/permalink.php?story_fbid=pfbid02zXzPh7G8WfoSCt6PXzg43ZD69cNasYWerLzPZWzSpiFgjLjDiYjnSYMkncR6epE2l&id=162239647129910 .
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From (Alzheimers Speaks) Lori La Bey on 30Dec2022; “Oh sad very sad to hear this news. Robert was such a huge advocate driving change. I was so honored to be able to meet him one day when he was at the Mayo Clinic in MN. Rest In Peace Robert. Wrapping Robert’s family in love, prayers and comfort.” — Lori La Bey on 30Dec2022 at >> https://www.facebook.com/DAAnow/posts/pfbid033P7jN1hZtRy9xP5u7DFzpz4infdvkujSPsrSWiUYPtUdxU8DgjsyzHtf3brHxPRal .
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. … and LEGACY LINKS
!! Remember, Links are in purple colored text, not the pictures !!
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are in purple colored text, NOT the pictures.
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This March 2010 vid was before Robert’s diagnosis. ((Should be able to play 1-minute video below but if not then Link is at https://youtu.be/w7uaVM9sUIY ))
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Diagnosis was June 2012
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2013
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Robert’s TWITTER accounts are thru “@robertcbowlesjr” on September 2013 , and “@rbowleslbd” on January 2015.
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Robert posted this on 2013Oct16: “Robert and Judy Bowles with Governor Nathan Deal for the signing of Proclamation for October 2013 Lewy Body Dementia Awareness Month. Thank you Governor Deal.” at https://www.facebook.com/photo?fbid=10200670716036466 .
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Robert Bowles is registered as CEO of non-Profit “United Against Dementia” beginning Oct 21, 2013. (see https://www.georgiacompanyregistry.com/companies/united-against-dementia-inc/ ).
.Find Broken Link Oct2013 from website Files; http://lbda.org/content/robert-bowles-comments-lbda-inaugural-leg-it-lewy-5k . October 2013; check YouTube, and use search engine on LBDA website.
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2014
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Robert Bowles: Hallucinations & Night Terrors from LBD from Dementia Mentors on Vimeo. Above is a 3-minute Video posted by Dementia Mentors on 03Jun2014 “Hallucinations and Night Terrors” at https://vimeo.com/97279256 .
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A 3-minute Video posted by Dementia Mentors regarding diagnosis with “Lewy Body Dementia” on 03Jun2014 . (must limit the number of embedded video or this page will take too long to load, but Link is at >> https://vimeo.com/97271488 .)
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A 3-minute Video posted by Dementia Mentors regarding “Mentoring” on 11Jul2014 . (must limit the number of embedded video or this page will take too long to load, but Link is at >> https://vimeo.com/100524587 .)
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A 5-minute Video posted by Dementia Mentors regarding “Dementia and Surgery” on 02Aug2014. (must limit the number of embedded video or this page will take too long to load, but Link is at >> https://vimeo.com/102426699 .)
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Quote Robert shared 25Aug2014; “”You’ve never felt your heart break more slowly” — Lewy Body dementia awareness .
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Robert Bowles: Finding Life’s Purpose from Dementia Mentors on Vimeo.
Above is a 3-minute Video posted by Dementia Mentors on 07Sep2014 “Finding Life’s Purpose” at https://vimeo.com/105478829 .
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2014 (excerpts from FaceBook page) at https://truthfulkindness.com/2014/09/24/robert-bowles-pwd/ ;
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Photo of Robert speaking with LBDA, shared 11Oct2014. i will not share this photo because i do not have permission from LBDA.
“Participants enjoyed an engaging speech from Robert Bowles, GA. Pharmacist, who declared that “he is living with LBD well!” — LBDA at Stone Mountain Park. at https://www.facebook.com/LewyBodyDementia/photos/pb.100064888683961.-2207520000./10152731970805266 , along with a photo of Robert and daughter Kelli on that day at https://www.facebook.com/LewyBodyDementia/photos/pb.100064888683961.-2207520000./10152731969835266 , and photo of Davida introducing Robert at https://www.facebook.com/LewyBodyDementia/photos/pb.100064888683961.-2207520000./10152731969660266 .
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2014 Oct 13 article after telephone interview. Available at https://www.rosevilletoday.com/columns/dementia-there-is-life-after-diagnosis/ and then reprinted at https://alzlive.com/your-health/mental-health/for-one-man-in-georgia-life-after-lbd-diagnosis/ .
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2014 Oct/Nov: On his FaceBook page Robert shared two quotes;
“Being negative only makes a difficult journey more difficult. You may be given a cactus, but you don’t have to sit on it.” and
“You cannot control the wind, But you can adjust your sails.” — Yiddish Proverb
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11 Nov 2014, DAI shared Robert’s letter to Dr. Sanja Gupta CNN at >> https://dementiaallianceinternational.org/blog/letter-from-robert-bowles ;
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16 Nov 2014 Robert shared this quote “GRATITUDE is not the result of things that happen to us; it is an attitude we cultivate by practice.” — Alan Cohen
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3-minute Video with Robert, posted by Dementia Mentors on 23Nov2014 “Handing over the Keys” at >> http://vimeo.com/112618209 .
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02 Dec 2014 Robert shared this quote “Stop focusing on how Stressed you are, and remember how Blessed you are.”
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30-minute video conversation with “Conversations in Care”, posted on 05 Dec 2014 at https://youtu.be/swY9zTsySKA .
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13 Dec 2014 Robert shared this quote “KEEP CALM and promote Dementia Awareness”.
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29 Dec 2014 Prayer request from Robert; “I have experienced extreme nerve pain in my shoulder, arm and fingers for the past 4 weeks. My disc replacement surgery in May was successful; however, my posture has deteriorated as a result of increased Parkinson’s symptoms. Thus the nerve pain. I saw the pain care specialist today and will be having a cervical epidural tomorrow. Please pray with me that this will be successful.” — Robert Bowles on 29Dec2014.
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2015
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Quote Robert shared on 04Jan2015; “In Alzheimer’s World NO means, I don’t have a clue what you are talking about.” — Bob DeMarco, AlzheimersReadingRoom.com
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Excerpt from Robert’s entry of 13Jan2015; “This was such a wonderful opportunity to take my pharmacy knowledge (especially in the area of medication sensitivity in LBD) and explain the impact of LBD as it especially relates to the cognitive swings that are all too common.” — Robert Bowles on 13Jan2015.
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2015Jan22 Robert contributed to “Dementia Success Stories” at >> https://truthfulkindness.com/dementia-success-stories/robert-bowles-jr/ .
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Visit My World (2015Jan27) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/visit-my-world/ ;
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Sizzled Brain (2015Jan29) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/sizzled-brain/ ;
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Emotional State (2015Jan30) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/emotional-state/ ;
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Train of Thought (2015Feb01) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/train-of-thought/ ;
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Medication Sensitivity (2015Feb04) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/med-sensitivity/ ;
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Physicians & Dementia (2015Feb08) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/physicians-n-dementia/ ;
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Visit Facility (2015Feb24) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/visit-facility/ ;
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25Feb2015 Entry and re-enactment video of Hallucination at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/visual-hallucinations/ .
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PWD Communication with Physician (2015Feb26) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/pwd-commun-w-dr/ ;
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Week at Glance (2015Feb28) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/week-at-glance/ ;
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How Can I (2015Mar01) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/how-can-i/ ;
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Bowles’ Prayer Request in ER (2015Mar04) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/prayer-req-er/ ;
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Six Brain Changes (2015Mar12) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/6-brain-changes/ ;
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Quote shared 20Mar2015;
“F-E-A-R has two meanings: ‘Forget Everything and Run,
or ‘Face Everything and Rise.’
The choice is yours.”
— Zig Ziglar, Ziglar.com .
.Quote from Robert:
“I opened two gifts this morning. They were my Eyes.”
— Robert Bowles on 2015 Mar25.
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2015Mar28: Robert was given the LBDA Volunteer of the Year award in 2014, but not presented with the Award until 28Mar2015. “Robert Bowles, a family man, retired pharmacist, and a man of faith, is guided by his passion for dementia advocacy and his desire to help others along their journey with the disease. He speaks about LBD to community groups, physicians and pharmacists. Robert has organized fundraisers and he mentors others who have dementia – both in person and online.” — An Early Diagnosis has Robert Bowles Making a Difference”. Poster dated 2014Nov29. Announcement at https://www.lbda.org/dorothy-mangurian-volunteer-of-the-year-awards/ has 2014, and see 28Mar2015 photo of presentation of award at >> https://www.facebook.com/LewyBodyDementia/photos/pb.100064888683961.-2207520000./10153100003375266/?type=3 .
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2015Mar29?: Robert’s “About Me” tab from his LBD LivingBeyondDiagnosis needs copy/pasted from my archived Files to an entry here. Find photo, topic tags, etc. The entry was written after 28Mar2015. Not even started yet.
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2015Apr12: Emergency Room & LBD at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/er-n-lbd/ ;
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2015Apr15 Quote Robert shared; “God is in Control … Just Relax.”
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LBD – Unpredictable on 23Apr2015 at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/lbd-unpredictable/ ;
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Quote Robert shared on 27Apr2015; “No place is more secure than to be in GOD’S hands.!!!”
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Astounding Lewy on 27Apr2015 at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/astounding-lewy/ ;
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Unpredictably Changing (2015May04) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/unpredictably-changing/ ;
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Half-hour Video for Dementia Mentors re DLB at >> https://vimeo.com/128728139 ;
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ShowTime With Lewy (2015Jun15) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/showtime-lewy/ ;
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Accepting Diagnosis of Dementia (2015Jun17) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/accept-dx/ ;
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Beyond Diagnosis with Faith & Purpose (2015Jul04) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/faith-n-purpose/ ;
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Quote Robert shared on 09Jul2015;
“Everything can be taken from man but one thing: the last of the human freedoms – To choose one’s attitude.”
— Viktor Frankl
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14Jul2015 with 3-min vid for Dementia Mentors on LBD Diagnosis Process at https://vimeo.com/133480351 , should play below
Dementia Short Talks: Being Diagnosed with Lewy Bodies Dementia (Robert Bowles) from Dementia Mentors on Vimeo.
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Interview with Brenda Avadian gave 24Jul2015 article with this; ‘Providing Care cf Living w/Dementia … “We need to keep pushing to raise awareness. Think of it: Why does someone not visit a person with dementia? They’re afraid. They don’t [feel they know how to talk with or interact with a person with dementia]. If we reduce the stigma, we’ll see the culture change and the lives of care partners and persons with dementia will be better.” Article is at >> http://health.usnews.com/health-news/patient-advice/articles/2015/07/24/voices-with-dementia-when-do-we-stop-listening .
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Driving More Than Memory (2015Aug10) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/driving-memory/ ;
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Quote Robert contributed to 09Sep2015 Dementia Action Alliance document “Words Matter”; “I read an article that women speak about 20,000 words a day and men speak about 7,000. Typically we speak at the rate of 100-150 words per minute. I cautiously showed this to my wife and suggested this might be the reason why I have so many emotional outbursts when she is talking. I asked her to imagine that she was talking to me for one minute and that during that time I had to process and remember 150 words. I would suggest that those without dementia consider having a better listening ear and decrease the number of words that are used in their communication with someone with dementia.”
— Robert Bowles, Jr. pdf at >> https://daanow.org/wp-content/uploads/2015/09/Living_Fully_with_Dementia-Words_Matter__9.9.2015.pdf .
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Robert’s note 2015Sep11; “I will be speaking to the Middle Georgia Long Term Care Social Workers today about dementia. They have asked me to share with them information about dementia and also my journey with LBD. Social workers have a key role in helping those with dementia. It will also be a time when I can share with them that Teepa Snow will be in Thomaston, Georgia on August 30, 2016. Teepa is a 30+ year Occupational Therapist who is one of the leading experts on dementia care education.” at https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid0PrLh2ifThPZgRKNohdh9D7UPMH6XyJfuPmoksvwybXxB1v5v3iHALKjckw4FLs9Pl .
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Robert shared this quote on 22Sep2015; “Accept what you cannot do, and you’ll find great success in doing what you can.” — Ralph Marston
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Robert shared photo on 20Nov2015 at https://www.facebook.com/photo.php?fbid=10205229463602306 , added here with permission.
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13Dec2015 Robert shared “Ministering to Persons Living with Dementia”, now available at https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/ministrg2-living-with-dementia/ ;
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I suspect this article came out sometime in 2015. Written by Angela Taylor of Lewy Body Dementia Association, and available at https://www.lbda.org/once-a-pharmacist-always-a-pharmacist/ .
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2016
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02Feb2016 and 03Feb2016 need to be put into one page in my blog, but that takes time i dont have yet to find or make applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here are the Links for “Diagnosis Path” and “6-Months After Diagnosis >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid02qy5mdGJGuqCW5dEdeUQZ81ji3D1azYhnUNGYrWnStRQ9VtZUkPqhjU8Empg5rwy2l and >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid0XR37kqS8xTvpAmxsXgfEwjo1XYgGocFBbAXoS9pUsipEwpk7UtnhYdM9JGVynZHal .
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05Feb2016 entry “Make the Days Count” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/501375850047943/ .
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06Feb2016 entry and 04Feb need to be put into one page in my blog, but that takes time i dont have yet to find or make applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here are the Links re Parkinsonism symptoms at >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid023dCn3Cm9szm3BmUfsHC5d9wseaHgqvsBatawov4xq5q1rfr6NFKZjiSRYFN3P9cLl and >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/501649946687200 .
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18Feb2016 was 1-hour Audio with Silver Dawn Radio; “Voice of Lewy Body Dementia” at https://www.blogtalkradio.com/silverdawnradio/2016/02/18/the-voice-of-lewy-body-dementia .
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18Feb2016 entry on symptom of “Lewy Sleep Experience” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid027TmsdUYwjhF76E2nVECohzcXRmLCvytSg8hZpPEfcy7CFimz3VrsUWYw9eY6KqbJl .
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Quote from Robert Bowles on 19Feb2016;
“My brain has taken a vacation this afternoon…
…increased drowsiness, decreased attention and focus. Blah Blah!
Like you are here but not!! I hate this disease.”
— Robert Bowles
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Quote from Robert Bowles on 20Feb2016; “Today is a new day. Lewy has gone on vacation. Brain has returned. Having fun with grandchildren today.” — Robert Bowles on 20Feb2016. And “Looking forward to Monday. Hope Center Memory Care in Fayetteville, Georgia contacted me and wanted me to meet with them. They want me to share insights into living with Lewy body dementia. After doing this Judy and I will tour the facility. We made the decision a year ago to visit facilities. We want to view the interior,exterior and meet staff. Planning for the future makes things much easier if the need arrives.” — Robert Bowles on 20Feb2016.
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24Feb2016 has 1-hour video with Dementia Chats on “Funding Feelings & Future” at >> https://youtu.be/rDKaT0Zhrq0 .
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Quote from Robert Bowles on 25Feb2016;
“I hate when triggers take place, and I have an emotional outburst.
Afterwards, I beat myself up for my action.
I suggested to me wife today that she put me in “time out” when happens next time.
We both laughed and moved on with the day.”
— Robert Bowles on 25Feb2016.
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2016Mar01 entry on Symptom of “Over-Stimulation then Brain-Drain” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid0QGat1iDRnycYVRt8gyLsAfYL4UhVDDbJcTfgyqoq6zvGf2DRgdHZN1BasFrDTiFgl .
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2016Mar02 entry on Symptom of “Autonomic DysFunction” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid0T2FSEmzqEMRoctLhWQFsGA1aEgD71iHtBd1BabJ6U9saHxuW7hqukmxt8dFyjo5Cl .
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13Mar2016 entry on symptom of “My Train Jumped the Track” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/514397758745752/ .
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Quote from Robert Bowles on 20Mar2016; “Living with dementia, your attitude has a huge impact on your altitude”. —-Robert Bowles
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2016Apr02 entry on “Lessons to Learn” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is excerpt and Link for until i get that done; “Giving up is NOT an option. I will fully acknowledge there are parts of living with dementia that are physical, emotional and cruel. I refuse to let those elements and others in this disease define who I am. Where do I go from here?”” — Robert Bowles on 02Apr2016 at >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/525325387652989/ .
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14Apr2016 Robert shared this Link from Mayo Clinic with the words “Pseudobulbar affect – uncontrollable and inappropriate laughter or crying. I have experienced this one time while going through a hallucination. My response was both uncontrollable and inappropriate. It consisted of both laughter and crying.” — Robert Bowles on 14Apr2016. >> https://www.mayoclinic.org/diseases-conditions/pseudobulbar-affect/symptoms-causes/syc-20353737 .
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19Apr2016 Robert shared this news;
“Experts often say that LBD is the most common, unknown disease. Today I saw a new physician.
It is refreshing to visit a physician, and they tell you they are not familiar with LBD;
but, also tell you they are going to research to learn about it.
Today was the 5th time this has happened to me. Each of these doctors practice outside of my hometown.
The important thing is, they are willing to interact and learn from the patients what it is like to live with LBD.
Kudos to them!” — Robert Bowles on 19Apr2016 .
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13May2016 Robert shared his Diagnosis Story at https://www.facebook.com/mydementiastory/photos/a.1555510624767252.1073741828.1555220321462949/1609438319374482/ .
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14May2016 entry on “Some Days Down” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. He also added the comment “It is a processing and retrieval issue. The brain cannot process all that is going on.” — Robert Bowles 14May2016. So here is Link for until i get that done >> at >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/540226796162848/ .
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17May2016 entry on “Snippets of Thought” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/541349666050561/ .
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19May2016 entry on “LBD Gait Strategy” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/541934635992064 .
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Quote from Robert Bowles on 21May2016.
“Dream, Nightmare, Violent, Exhaustion! What do these 4 things have in common?
They can all be part of the enemy called Lewy body dementia (LBD).
Fortunately for me, they rarely show up at the same time. They took place most of the night.
Several days ago, they came with a vengeance.
This was the worst one I have ever experienced. … ” Robert Bowles on 21May2016.
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on 23May2016 Robert wrote about Noise in Diner; “My wife and I had lunch in Griffin, Georgia today after I saw the ophthalmologist. … My brain was pinging as if I was playing a pinball machine. The neuron that need to pick up the signal had died, so the pinging kept on. Time to leave and find somewhere else to eat next time.” — Robert Bowles on 23May2016 .
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Short entry on 24May2016 on “LBD and Medical Professionals”. needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/543829722469222 .
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Quote from Robert Bowles on 2016Jun01; “So amazing the strength, energy, focus, attention and alertness that God is giving me as I work on our “A Day of Dementia Care Education With Teepa Snow Event”. To have all of this taking place at the same time along with no halluciatuins or dream acting over the past 7 days is virtually unheard of with LBD. To. To cap it off, it’s almost like I do not have LBD, but I know I do. Thank you Lord!” — Robert Bowles 01Jun2016
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04Jun2016 entry on “Rainy Night in Georgia” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/548181278700733/ .
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06Jun2016 entry on “Your Attitude Determines your ALTITUDE” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/549057405279787/ .
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12Jun2016 entry on “Daytime Drowsiness” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid02noHLNB5aTuC7wqeqfopytpSg8eTe3JWz3fPTNWKAhaWNueNQYCznAnnMGB9GHdL8l . ((When adding that page, also add Link to https://www.lbda.org/daytime-sleepiness-is-more-common-in-dementia-with-lewy-bodies-than-alzheimers/ )).
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On 13Jun2016 Robert talks about his speaking experience; “This afternoon was fun. I had the opportunity to speak to the Physicians at Upson Regional Medical Center. I was able to share with them my journey with LBD along with the symptoms that led to my diagnosis. In closing, I told them I had experienced most all of the symptoms of LBD except delusions. … Leaving the speaking area, all of the physicians applauded. …” — Robert Bowles on 13Jun2016.
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21Jun2016 entry on “Struggles with Siri” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/555077761344418/ .
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23Jun2016 entry on “Engaging with other People” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/555839281268266/ .
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26Jun2016 entry on “Dementia Diagnosis can be an Evolving Process” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/556936181158576/ .
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27Jun2016 entry on “Four Years with Dementia Diagnosis” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/557399261112268/ .
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30Jun2016 entry on “Waffle House” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/558483574337170/ .
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2016Jul03 entry on “Selecting Memory Care Community” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/559530137565847/ .
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Three Quotes Robert shared in July 2016 are;
“Be strong because things will get better. It may be stormy now, but it never rains forever.”
((This quote is from Evan Carmichael)).
“Life is 10% what happens to us and 90% how we react to it.” — Dennis P. Kimbro , and
“I can’t change the direction of the wind, but I can adjust my sails to always reach my destination.” — Jimmy Dean
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24Jul2016 Robert said “All last night was a dream starting about 10 PM when I went to sleep. I remember awakening during the night without any realization of my surroundings. Almost immediately, I would fall right back asleep to start the same thing over and over again. I have no remembrance of what the dream was about. This morning I was physically, mentally and emotionally drained. I was sore all over my body. My legs ached from moving and kicking all night long. Fully waking up at 6:30 AM was a relief. I was able to take my shower and go to Sunday School and Church. When I got home, I felt as if nothing had happened. It is so wonderful that those moments fall into the past.” — Robert Bowles on 24Jul2016.
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28Jul2016 entry on “Working Together” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/569266263258901/ .
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31Jul2016 entry on “To Change the Culture re Dementia Diagnosis” needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done . >> https://www.facebook.com/LBDlivingbeyonddiagnosis/photos/a.369822683203261/570727063112821/ .
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2016Aug17 quote from Robert; “Walk Forward – Go Backward; Parkinson’s Disease is a complex disease. With Lewy body dementia, it is often referred to as Parkinsonism. Sometimes I find the dots and dashes do not connect when I tell my brain that I want to do something.” — Robert Bowles on 17Aug2016
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2016Aug25 was 10-minute video with Gary Joseph LeBlanc on topic of Lewy Body Dementia and future project with Teepa Snow at https://vimeo.com/180211591 .
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2016Aug30 was Robert’s anticipated “A Day of Dementia Education with Teepa Snow”.
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03Oct2016 quote from Robert; “OCTOBER IS LEWY BODY DEMENTIA AWARENESS MONTH
There is a huge need for more physicians to become better educated on diagnosing LBD.
It is important to remember that over 50% of all dementia autopsy reports indicate mixed dementia.
Sometimes there are three or four type of dementia at the same time.
Recently a Neurologist shared with me that Lewy Body Dementia will likely become the number one cause of dementia.”
— Robert Bowles on 03Oct2016.
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12Oct2016 quote from Robert; “So refreshing to see a TWEET my neurologist shared with me this morning. A resounding YES from me, You can have dementia and still be HAPPY. Throw the STIGMA of dementia in the trashcan. MOST people LIVING with dementia are NOT in the final stage. Early diagnosis is VERY IMPORTANT. At diagnosis start enjoying life. ACCEPT the diagnosis, stay SOCIAL, have a POSITIVE attitude and find your new PURPOSE. You may just be surprised where those four things lead you. Enjoy your FAMILY. Please Share >> https://www.facebook.com/robert.bowles.923/posts/pfbid02v4Hd5TamLAkRDzAskoSG3reMJnTsyoYJBAfZF6WcFZAevR87nxqmXWGy3ZuM3bCul .
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30Oct2016 has 4-minute video on membership in Dementia Mentors at >> https://vimeo.com/189559568 , which should show below .
Robert Bowles Discusses Becoming a Member of Dementia Mentors from Dementia Mentors on Vimeo.
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30Oct2016 has photo and quote from Robert; “What a wonderful day with Laurie Scherrer from Pennsylvania. Judy Shaver Bowles told Laurie that she wished she had her camera when Laurie starting running to hug me. Almost three years ago, Laurie and I met on a Dementia Mentors Virtual Memory Cafe. We are bonded together like glue. We have struggled and experienced joy together through our journey. We have encouraged and given hope to each other. An added bonus is for us to pray together. If you are living with dementia, go to https://www.dementiamentors.org/ to see what you have missed.” — Robert Bowles on 30Oct2016.
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2016Nov21 on Defining NEEDS; “Determining the needs of the person living with dementia is necessary to define “Dementia Friendly”. Finding these needs will help lead to more dementia friendly cities. Unmet needs often lead to behavior symptoms in the person with dementia. Establishing better ways to meet these needs will often lead to fewer behavior symptoms and therefore fewer antipsychotic medications. This needs assessment focus groups are being done in Georgia and will be led by a Cognitive Neurologist/Neuroscientist in a major clinic in Georgia. The focus groups are being made possible by sponsoring grants from Dementia Spotlight Foundation and United Against Dementia.” — Robert Bowles on 21Nov2016
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2016Nov29; “Spoke at GARD (Georgia Alzheimer’s and Related Dementia) State Plan Meeting this morning in Atlanta. I shared my 18 month path to diagnosis of LBD, my lived experiences and my advocacy goals. It was amazing to watch the facial expressions of the audience and to listen to their comments after the meeting.” — Robert Bowles on 29Nov2016.
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2016Dec08 at Linkedin on “Overstimulation and Dementia” at https://www.linkedin.com/pulse/overstimulaton-dementia-robert-bowles/ .
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Robert Bowles’ quote 14Dec2016; “I’m glad I had an opportunity to see each of you today because I am not able to get on as much as I used to. But each of you mean the world to me. I am thankful for this time of year and what it means to me. I want to wish each one of you a Merry Christmas, and at the same time I want to tell you that each of you have had a huge impact on my life.
When Dementia Mentors was started I talked to Gary several times, because I didn’t know whether I wanted to participate or not — I was still struggling some. As it turned out, I did. I was on the inaugural café and it changed my life. It set the foundation for me doing as well as I am because of the socialization I received, and the impact that each of you have had on sharing your journey with me. So again Merry Christmas, and I hope each of you have a great Christmas.”
— Robert Bowles on Dementia Mentors’ 2016 Holiday Greeting, posted 14Dec2016.
Above is the opening to Dementia Mentors’ 2016 Holiday Greeting, posted 14Dec2016 at >> https://vimeo.com/195719393 . Should be able to watch below.
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DEMENTIA MENTORS’ HOLIDAY GREETINGS 2016 from Dementia Mentors on Vimeo.
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2017
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On 2017Jan14 Robert shared this quote, with follow-up thoughts. “Falling Down is part of life. — Getting back UP is living.” — Jose N. Harris .
… and Robert’s follow up:
“Being told you have dementia
is like being hit by a baseball bat
while falling to the ground and thinking there is No future.
— Standing back up and dusting yourself off, you will realize there is LIFE BEYOND DIAGNOSIS.
Start LIVING!!!” — Robert Bowles on 14Jan2017
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2017Jan25 has results of Robert’s interview with Brenda Avadian at https://thecaregiversvoice.com/voices-with-dementia/pharmacist-robert-bowles-engages-life-with-dementia/ .
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2017Feb15 had Robert participated in a 1-hour LBDA webinar (with LBDA Program Director Angela Taylor) on “Importance of Comprehensive Care & Support” at >> https://youtu.be/65oa_hyNhsk . Over 1000 attendees at webinar. Posted 21Feb2017.
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2017Mar18 Robert shared Link for LBDA Wallet Card. That Link is now broken, but found a new Link at >> https://www.lbda.org/blog/medical-alert-wallet-card/ . Robert reminded me (Truthful Kindness) several times, until we had the info in wallets, and in the door of the vehicle.
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2017Mar31 Robert was with Teepa Snow and Lauren speaking at Due West UMC in Marietta, Georgia. Robert said “Lauren shined like a bright light as she interacted with Teepa Snow on stage … Lauren slipped up from behind me. We embraced and latched on to each other. Lauren and I met about 3 years ago at a Dementia Mentors Memory Cafe. She was diagnosed with LBD about 2 years after me. Lauren was a Board Certified Neuropsychiatric Nurse. Every month she travels to a Teepa event and interacts with Teepa. This enables the audience to gain 1st hand knowledge of someone living with dementia. Words are inadequate to express the emotions of meeting someone from the west coast face to face who just like you is living with LBD. Emotions run high. Photo currently available at https://www.facebook.com/photo/?fbid=10208952299070866&set=pcb.10208952302430950 . Will attach photo when/if i get permission from those involved.
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A couple quotes from Robert Bowles during March of 2017;
“Realizing and understanding the needs of persons living with dementia will provide them better quality of life.”
— Robert Bowles on 04Mar2017. … and
“Using compensatory tools to face challenges in one’s journey with dementia will provide a better quality of life.”
— Robert Bowles on 10Mar2017.
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2017May09 Robert talked about Care Facility; “… We are traveling to Macon to visit two Memory Care Communities. These two will make 8 that we have visited. You never know if or when the need for care might take place. Being better prepared decreases stress at the time if care is needed. As Judy and I plan together for the future, we are trusting God every step of the way. Acceptance, Socialization, Positive Attitude, and Purpose are a way FORWARD (ASAP). …” — Robert Bowles on 09May2017.
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2017May30, Robert shared an entry at LinkedIn; “Killing Lewy” >> https://www.linkedin.com/pulse/killing-lewy-body-dementia-robert-bowles/ .
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A fun photo during DAA 2017 Conference (i believe June 24 – June 27) *** This is shared with permission from photographer Heather Miller (Susan Suchan’s daughter). … sprawled on the couch, laughing. (Truthful Kindness, Brian LeBlanc, Al Powers, Laurie Scherrer, Robert Bowles, and Susan Suchan). robert was in the introductory panel and the closing panel for conference. Robert’s quote; “Many people think that a person with dementia can’t have fun. Here’s proof they can. Enjoying fun with some of my friends at the Dementia Action Alliance Conference in Atlanta …”
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Robert shared other photos at these Links; https://www.facebook.com/photo.php?fbid=10209756810343145 with Susan Suchan, and on speaker panel at https://www.facebook.com/photo.php?fbid=10213187639110677 . One with Paulan Gordon at https://www.facebook.com/photo.php?fbid=10209756810183141 and with Laurie Scherrer at https://www.facebook.com/photo.php?fbid=10209756811823182 .
Robert’s speaking begins at about 12 minutes on this 30-minute video at https://youtu.be/s70rnzeJSc0 . Should be able to watch below .
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2017Jul11 quote from Robert; “Enjoyable morning in Gainesville, GA while speaking to the Georgia Area Agency on Aging Community Care Service Providers Legacy Link Group. Almost 100 attendees. There were excellent questions during the last 15 minutes of my hour presentation.” — Robert Bowles on 11Jul2017.
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2017Sep16 quote from Robert; “Enjoyable day today at Due West United Methodist Church 6th annual Caregivers’ Conference.” — Robert Bowles on 16Sep2017. Photo Link at https://www.facebook.com/photo.php?fbid=10210413380836997 and https://www.facebook.com/photo.php?fbid=10210413400237482 ., with quote “An honor to present with Ellen Potts, Neurologist Dr. Daniel Potts and Director Of Dementia Caregivers’ ministry at Due West United Methodist Church in Marietta, Sheila Welch. This was their 6th Caregivers’ Ministry Conference. What a joy it is to witness how Sheila is allowing God to lead her and to witness the passion of this church to minister to families affected by dementia. Their work has raised a high bar for other churches to follow.” — Robert Bowles on 16Sep2017.
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2017Oct02 quote from Robert; “There is so much a Person Living with Dementia can do. Acceptance, Socialization, Positive Attitude and Purpose provides a path forward.” by Robert Bowles on 02Oct2017.
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Quote shared by Robert Bowles on 02Oct2017; “Prepare now for emergencies, as half of LBD families had one last year.” -plz share msg, lbda.org .
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2017Oct10 has Four Tips from Robert at https://www.brookdale.com/en/brookdale-life/blogs/2017/10/four-tips-for-living-well-with-lewy-body-dementia.html .
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2017Nov14 Upson Beacon announces Robert Bowles earns LifeTime Achievement Award (but broken Link, and i have not been able to find replacement).
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2017Nov20 my notes from beginning of January say there is a photo at this Link, but i must have messed something up. Will include the Link, just in case; https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/863303463855178 .
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2018
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2018Feb06 had two articles released. Anthony wrote this article “Lessons from my Friend” after time with Robert Bowles. >> https://www.theagingexperience.com/2018/02/06/early-onset-dementia/ . And Deborah Shouse wrote this one “From Depression to Purpose” at >> https://dementiajourney.org/5347/ .
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2018Feb28 and 01Mar2018, Robert brought speakers to Thomaston GA; Walter Coffee and Kim McRae. He introduces them at this Link >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/pfbid0iZ1ocP3xRUgVGFH9iQapaL2MzkR9iCCMzCC5LGp3ZjFcUE88LfikPkAQqy9sWAgFl . Photo from this conference at https://www.facebook.com/photo.php?fbid=10221754944969012 .
2018Apr12 quote from Robert; “Arrived Wednesday at Lake Lanier for the Georgia Gerontology Society and Southern Gerontological Society joint Conference. The Conference ends Saturday. Today, I shared my journey of living with Lewy body dementia. Tomorrow, I will share some of my experiences of interacting and connecting with physicians and other health professionals while Judy was in the hospital for two heart valve replacements and the Acute Rehab Hospital. It is very rewarding to be part of a movement to change the culture of Dementia. It is both an honor and passion to be part of this movement.” — Robert Bowles on 12Apr2018. Photo at https://www.facebook.com/photo.php?fbid=10211960036342418&set=pb.1417752084.-2207520000.&type=3 .
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2018Apr15 “The Day I Lost It” (2018Apr15) at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/day-lost-it/ .
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2018Apr23 Robert Bowles was part of panel speaking at AAN Brain Health Fair (American Academy of Neurology). Robert shared the photo with him speaking below,
… and neurologist Daniel Potts gave permission to use this photo also (below and Link is at https://www.facebook.com/photo.php?fbid=2298129373747138 .
… and our video for the 2018 Neuro Film Festival is at https://youtu.be/kTPTCPaWD6M , but should also show below . Robert has longer part about half-way through this vid.
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2018Apr25 Robert shared Mug picture with quote “Love this mug … reminds me of myself when my brain is overstimulated.” ((Mug says ‘My Train of thought derailed … and there were no survivors.’))
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2018May14 photo shared by Alzheimer’s Music Fest at https://www.facebook.com/AlzheimersMusicFest/photos/t.1417752084/1768359246555520/?type=3 .
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2018Sep10 Robert shared this quote on poster
“When you are frustrated with me because of the things I cannot do
… Just imagine how frustrated I must be because I’m no longer able to.
Be mindful … Show compassion.”
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2018Sep28 Photo shared showing Robert with his doctor Dr. Hu, at https://www.facebook.com/photo.php?fbid=10215255558121239 .
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2018Oct30 Robert shared regarding “Sleep and Lewy Body Dementia”; REM Sleep Behavior Disorder (RBD) or (RSBD). Persons Living with Lewy Body Dementia never know how frequent this might occur. Up to 80% of people Living with Lewy will experience this. A few nights ago, I experienced 37 episodes of restlessness. As I awakened my legs felt weak and useless. Sometimes, I will experience nightmares, visual and audio hallucinations, and REM Sleep Behavior Disorder in the same night. I’m able to bounce back because my Lord Savior quickly calms the storm.
Robert Robert Bowles2019
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2019Jan03 Robert’s entry on Communication needs put into page in my blog, but that takes time i dont have yet to make or find applicable (copyright-free) picture, determine tag categories, copy/paste and re-insert paragraph breaks, etc. So here is Link for until i get that done >> https://www.facebook.com/LBDlivingbeyonddiagnosis/posts/1172917222893799 .
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2019Jan29 has article by Rodney Ho after interview with Robert Bowles. It is available at both https://www.ajc.com/lifestyles/health/what-lewy-body-dementia/nStCUFL82RKSBaoVGezlQP/ and https://www.indianagazette.com/health/lewy-body-dementia-just-as-deadly-as-alzheimers/article_756bcfc0-344c-11e9-bfee-030b8b5d0c5b.html .
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2019Mar21 Robert spoke with Workshop for Faith and Community Leaders at Due West UMC in Marietta, Georgia. Audio of “What does Dementia mean to the Family Loving someone through this Illness” is available at https://www.lovingthroughdementia.org/2019leaderworkshop.html and https://lovingthroughdementia.org/plwdresources.html .
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2019Apr12 Robert included this graphic with “Comparing path of Alzheimer’s, Vascular Dementis, Dementia with Lewy Bodies. Alzheimer’s tends to be a downward curve. Vascular Dementia tends to decline stepwise. Dementia with Lewy Body Bodies tends to be an unpredictable roller coaster ride.” — Robert Bowles on 12Apr2019.
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2019Jun15-17 National LBD conference had presentation of “A Life Re-examined” by Robert Bowles, which ended with a standing ovation. ” Article at https://www.lbda.org/what-happened-in-vegas-wont-stay-in-vegas/ . and a photo by LBDA at https://www.facebook.com/LewyBodyDementia/photos/pb.100064888683961.-2207520000./10156944435195266/?type=3 .
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Considering date of photo, i suspect this article by Chris Harper came out sometime in 2019. Available at https://www.arborcompany.com/blog/what-is-lewy-body-dementia-robert-boyles-shares-experience-with-the-arbor-team .
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2019Jun19 GPhA President’s Award and one-minute video should show below
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2019Sep20 Robert spoke at Dementia Spotlight Foundation Event
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2019Oct25 has two photos of Robert;
… and …
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2021
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2021Sep16 Announcement of Robert Bowles as Spotlight Foundation’s Advocate of the Year at https://www.newsbreak.com/news/2372973981053/dementia-spotlight-foundation-honors-robert-bowles-with-inaugural-dementia-advocate-of-the-year-award .
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2022
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2022Dec30 has DAA Announcement and personal comments at https://www.facebook.com/DAAnow/posts/pfbid033Cxj4sRq4nsZj5Xcrx1eTAGaSuYoCYJrbDqd92Jtkp86M96tFzBt7gJSc61yZNkQl .
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2022Dec31 has posting from Georgia Pharmacy Association; “We would like to take a moment to honor the life of former GPhA President Robert C. Bowles RPH. Mr. Bowles dedicated himself to his community and to the profession of pharmacy in Georgia in every regard. His work in Diabetes management and Lewy Body Dementia advocacy are part of his incredible legacy.” — GPhA ((Georgia Pharmacy Association) on 31Dec2022. with photo at https://www.facebook.com/GPhABuzz/photos/a.294289794025181/5760491954071577/ .
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2023Jan02 has funeral and Graveside service. Videos at https://www.facebook.com/watch/live/?ref=watch_permalink&v=671047558138942 and https://www.facebook.com/watch/live/?ref=watch_permalink&v=942104396772526 .
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2023Jan03 has posting from Lewy Body Dementia Association (LBDA); “Robert Bowles, diagnosed with LBD in 2012, was an immense source of inspiration and support for many in the LBD community. Robert never let Lewy dim his light and encouraged others living with this disease to stay positive amidst their diagnosis, finding ways to advocate for and give back to the community with a passion that was unmatched, and utterly heartwarming. We are deeply saddened to hear of his passing but know that his memory will live on in all of us as we continue our fight against this terrible disease. ” — LBDA. … with some photos attached at https://www.facebook.com/LewyBodyDementia/posts/pfbid0DXKpxVnEdFvmdwu81rdfqtUHxnoss7htecfADkPZh4d4mQhSQmHSyQXjT8TpHFaLl .
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Memorial Fund: Ashley noted “”We asked in lieu of flowers that donations be made to help dad’s neurologist with his ongoing dementia related research. Dad’s mission in life these final 10+ years was to change the world of dementia—-to equip care partners, to show persons living with dementia that they still had purpose, and to one day help find a cure for dementia.
If you would like to give, the link is below. You can select ”In Memory” at the bottom and type in Robert Bowles. If you’d like us to be notified, there is a notification section also. You can list the following information there:
Judy Bowles
311 Jackson Avenue
Thomaston, GA 30286
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Robert’s Index for his entries shared in this this WebSpace are at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/ .
Began organizing these Links on 30Dec2022, and posting 30Jan2023, but i am sure there will be plenty of revisions.
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* Admin issues:
SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”. If you put your eMail address there you should get an eMail each time i write a blog entry. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** … If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but i have cerebrovascular disease and Lewy Body Dementia symptoms very slowly advancing. Current theory for cause of my dementia symptoms is over 30 years before diagnosis and treatment of Lyme and Babesia — plus probable nocturnal seizures. … ******* … Text Copyright © Truthful L. Kindness on 30Jan2023. Featured image (top image) is Digital Painting by Truthful Kindness Titled “Boundaries”. *** Two seizure-type cognitive events this week. This two photos of Robert Bowles and myself were taken by my husband at 2017 DAA conference … ******* … i dont mind re-posting of things i write, but if you re-post then i expect you to make it clear this is NOT written by you. My authorship as Truthful Kindness (my legal name) must be clearly identified, and provide very prominent Link to my website so that questions and comments can be addressed to ME personally at http://www.truthfulkindness.com . .
Tags: advocacy, dementia, dlb, legacy, lbd, lewy body, living with dementia, memorial, Robert Bowles, . Remember to add in Memoriam index.
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Truthful Loving Kindness 