DSS- Michael in South Carolina

Dementia Success Stories:
“How we made a difference for self and those around us AFTER diagnosis”

A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)

  1. Label:  Michael
  2. Previous Occupation:   International Marketing Manager (Chem. Eng) with GE/ Started and operated a successful restaurant chain/ College and Technical Professor for Culinary Arts and Restaurant Management
  3. Location:  Hilton Head Island, SC
  4. Diagnosed:   Oct 2014 at 55 years of age. 
  5. Diagnosed Oct 2014 with MCI and possible EOAD
  6. Time for diagnosis:  Still awaiting further testing to confirm EOAD
  7. Type:  EOAD with possible Parkinsons  (at this time)
  8. Since diagnosis (what one or more action, success, or accomplishment do you take pride in?):  Learning as much about this disease as possible.  Had taken care of parents with the disease for 5 years prior to Dad’s passing just 5 months before my diagnosis.  Feel that all things happen for a reason, so hoping to educate others on how to live with the disease and how to care for those that have it.  Co-started an online support group for people with dementia  “Living Healthy With EOAD” .  Involved daily with other support groups.  Eating healthy.  Using coconut oil and seeing success with speech. 
  9. (What do you wish your Primary Physician knew about dementia?):  My primary is pretty good, although he has very little understanding about EOAD.  Seems almost “fearful” of making any changes without my neurologist.
  10. (What do you wish your specialist Physician knew about dementia?):  Neurologist isn’t properly educated in this field.  Has access to Clinical trials but doesn’t have all the information as needed.  Seems to want to “dismiss” EOAD even though I have the symptoms because of my age and “still able to dress myself”. 
  11. (What do you wish your family knew about dementia … about you?):  Terribly miss my parents and sister.  Have one remaining sister but she doesn’t believe it.  Have 6 children 19 – 30.  Multi-racial adopted family (1 biological).  Most are understanding but live too far away and are too involved in their own lives to be of any real support.  My partner, Mike of 10 years is very supportive as is my ex-wife.  Both are understanding.  We all truly believe that we WILL see improvements is out lifetime for this disease.  Early diagnosis is critical!!!
  12. (Date?):  3/6/15

 …

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