I am beginning to eliminate the “PWD” label from by own vocabulary.
I will NOT go to each one of my friends who have dementia symptoms with the need to discuss diagnosis issues, especially with the recent changes is terminology and definitions. Instead I will attempt to change my own phrasing, titles, and pictures, in both blog and newsletter, with efforts to minimize misunderstandings. But this will take time, so please show patience, but also do not be surprised at the changes.
So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience: Cecil Ristow, David Kramer, Harry Urban, Janet Pitts, Kevin Smiley and Max McCormick. Thank you so very much for your generosity of letting the public into your private world ! My hope is that your words can be applied to help and encourage other patients, care-partners, and professionals.
Tru here. Recently returned from three weeks of overnight stays at various places, and I was asked for suggestions. Flooring: Highest priority was carpeting. Most places we stayed did not create feeling of disorientation from pattern of the carpet, but one place did. Every time I stepped out of the door to our room I was […]
Due to some recent events, my lack of confirmation for dementia diagnosis has become an issue.
Thought I would re-post my previous blog on the subject, just to make sure there are no current misunderstandings (and for my many new friends). Current status is STILL pending. Have had two specialist appointments in past 4 months, and 2 more appointments are currently scheduled.
Tru here. Hope to get computer from shop sometime this week. Until then limping along without my FaceBook friends. So here is this week’s entry (without photo for now) kind-of unrelated to dementia symptoms, but when I sat down with pen this is what came out because this is what I am thinking about. Newfoundland […]