Vocabulary

“Dementia Symptom Perspectives” Contributions from other Persons With Dementia symptoms:
Mary Radnofsky, PhD,
with diagnosis of Subcortical Leukoencephalopathy .

2018 March 26 VOCABULARY – TRYING TO FIND THE RIGHT WORDS?
DEMENTIA IS A “COGNITIVE DISABILITY”

Although usage varies across the world, we try to respect each group’s wishes as to how they wish to be called. People with dementia (a condition that develops in adulthood) have a “cognitive disability.” By contrast, people who are born with or develop a neurological impairment in childhood up to age 18, (e.g. Down’s Syndrome) have an: “intellectual disability” or “mental disability.”

THE TERM, “DEMENTIA” INCLUDES MANY DISEASES

“Dementia” is an umbrella term for a condition that can result from brain trauma or degenerative neurological diseases, (some inherited, others of unknown origin) that lead to cognitive impairment or change. These include but are not limited to Alzheimer’s Disease, Fronto-Temporal Dementia, Vascular Dementia, Lewy Body Disease, Leukodystrophies, Mild Cognitive Impairment and others.

This entry was originally on Mary’s FaceBook page here >>  https://www.facebook.com/oncehumanforeverhuman/posts/1283534671790794

2018 March 26 THE ROLE OF THE UNITED NATIONS (UN) in HUMAN RIGHTS
As you learned in school, the United Nations (UN) has two basic roles: 1) Peacekeeping, and 2) Economic and Social Development. Intersecting both roles, the UN’s original Universal Declaration of Human Rights was established in 1948. It was followed by other treaties (called “Conventions”) on Economic, Social, Civil, and Cultural Rights.
The “Convention on the Rights of Persons with Disabilities” (CRPD), was adopted by the UN in December 2006, has now been ratified by 177 countries. It ensures that all nations safeguard the human rights of persons with disabilities, by holding governments to both a moral standard and international law in promoting and protecting those rights. The CRPD is the first Convention to be co-written by the people it is designed to benefit, as 17 of its 18 members are persons with disabilities.
The US Congress has still not ratified the CRPD, even though we participated in its drafting and even though President Barak Obama signed it, which commits us to its general principles, which are, in very broad strokes, as follows:
a) Respect for the inherent dignity, individual autonomy, (including freedom of choice) and independence of persons,
b) Non-discrimination,
c) Full and effective participation and inclusion in society,
d) Respect for difference and acceptance of persons with disabilities as part of human diversity and humanity,
e) Equality of opportunity,
f) Accessibility,
g) Equality between men and women,
h) Respect for the evolving capacities of children with disabilities, and to preserve their identities.

This entry was originally on Mary’s FaceBook page here >>   https://www.facebook.com/oncehumanforeverhuman/posts/1283512501793011

2018 March 27 UN CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES (CRPD)

Article 1 – Purpose: To promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity… and effective participation in society on an equal basis with others.

Once Human Forever Human I’ve summarized the first article of the CRPD to show that governments are responsible not only for ensuring our freedom and safety, but also for promoting and protecting our human right to remain a dignified part of the socio-cultural environments, communities, and relationships in which we choose to live – even if we have dementia. So how do you want to live your life? Where? Doing what? And with whom?

This entry was originally on Mary’s FaceBook page here >>  https://www.facebook.com/oncehumanforeverhuman/posts/1283988141745447

These entries are from Mary’s public FaceBook page “Once Human Forever Human” >> https://www.facebook.com/oncehumanforeverhuman/ .

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