This is transcript and video Link for second of four quadrants from my speech.
Kate Swaffer comment got me thinking about quotes to live by, which motivated these thoughts about living in the moment.
This year’s changes in Holiday celebration.
My spiritual perspectives have changed dramatically in past ten years, but memories of WHY I myself made those changes are growing dim. Why do I no longer celebrate the special days that my loved ones celebrate? … Soon I suspect you will again find me enjoying those activities, because my theological understanding is going backward in time, as well as all my other memories.
I do not feel that the “best” of my grandmother was gone in her later stages. Her context was gone. The ability to delay gratification was gone. The ability to even know what she wanted or who she was … was gone. But her visceral response to life was NOT gone. Having my grandmother as a Dementia Mentor (even if only in my memory), has been a tremendous source of hope and example. In my final days I hope the same can be said of me.
How many of our own children, grandchildren, or others watching us now, will be dealing with these same symptoms in future years? What can I do now in order to ensure they are positive productive lessons instead of bitterness and fear?
My ability to make a difference pre-diagnosis, and ability to make a difference post-diagnosis are very different. In the very-big-picture of what differences I can make while living on earth, I would pick the much larger differences with my post-diagnosis life. In the really big picture I can effect my main goal of demonstrating Truthful Loving Kindness much better post-diagnosis. Maybe not in my lifetime, but I will write as long as possible … and eventually the PWD voice will be recognized as very valuable asset for those who have relationship of any kind with a PWD. And that is a big deal to me because relationships make life worth living.
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
“What is your hope?” “What gives you ability to keep on keeping on, despite knowing what the future holds?” … (( My personal motivation statement ))
Tru here. I have a couple dementia friends feeling desperately helpless, desperately scared, and unwilling to impose this life onto their loved ones who are willing to be their “care-givers”. Maybe you are feeling desperate too. Some have said they rely on my positive “sunshine” and I have a message to you: My “sunshine” is […]