Continuing Communication is Crucial.
These are my favorite Links on Communication.
Thanks to Elmarie, George, Jennifer, Harry, Robert, Tommy, Myrna, Norrms, Paul
“Dementia Chats” panelists, DEEP contributors, and teacher Teepa Snow (who does not have dementia).
!! Remember, Links are on colored text, not the pictures !!
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish. These are in Alpha Order.
Remember, Links are on colored text, NOT the pictures.
CONVERSATION issues are addressed first on this page, then NON-VERBAL communication, READING/WRITING, and last is TERMINOLOGY.
Appearance of “Lying” by Truthful Kindness at https://truthfulkindness.com/2022/03/20/appearance-lying/ ;
Communication Part 1 of 3
by Truthful Kindness (Factors of Environment, Content, and Timing) at https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ ;
from DEEP project in UK (categories for phone, social media, technologies, and Zoom) here >> https://dementiatip-share.org.uk/our-tips/connecting-and-communicating/ ;
Communication with Doctor
by Robert Bowles at https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/pwd-commun-w-dr/ ;
by George Huba PhD at https://hubaisms.com/2015/12/10/at-a-loss-about-starting-a-conversation-with-a-person-with-dementia-try-this/ ;
“Changes after Self-Isolation” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/changes-isolation/ ;
by Barry Pankhurst at https://vimeo.com/102331291 ;
Erase & Re-Write
by Truthful Kindness at https://truthfulkindness.com/2016/02/15/drt-communication-erase-re-write/ ;
EXCELLENT 1-hr video on “How to Communicate”
by Dementia Chats’ panelists Bob Savage, Brian LeBlanc, Paulan Gordon, Michael Ellenbogen, Susan Suchan, Harry Urban, Laurie Scherrer, and Mary Howard Read at https://youtu.be/ldWJnMyjtEE ;
Filter in Conversation
by Truthful Kindness at https://truthfulkindness.com/2019/05/06/filter-conversation/ ;
by Truthful Kindness at https://truthfulkindness.com/2018/12/31/floating-words/ ; ;
Helping the person with dementia to speak
by retired doctor Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/helpg-pwd-speak/ ;
“I Couldn’t Speak” (aphasia)
by Brian LeBlanc at http://www.caregiversupportandresources.com/aphasia-i-couldnt-speak/ ;
Importance of Continued Communication
by Truthful Kindness at https://truthfulkindness.com/2016/01/26/import-communication-pwd/ ;
“Inflammation Communication and feeling Tied up”
by Truthful Kindness at https://truthfulkindness.com/2021/03/31/tied/ ;
Language of Music
Proj/intrvw with retired attorney Paul Livadary has 8-min vid at https://youtu.be/4abaiZZIqHU ;
by Truthful Kindness at https://truthfulkindness.com/2019/06/10/effective-listening-partner/ ;
Mask = no communication or identification
by Truthful Kindness at https://truthfulkindness.com/2020/08/16/mask-communication-id/ ;
“My Heart is Full”
by Myrna Norman at https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/jan-2015/ ;
Partner Communication of Distress
by Truthful Kindness at https://truthfulkindness.com/2021/02/14/partner-distress/ ;
by Truthful Kindness at https://truthfulkindness.com/2021/02/21/repeat-questions/ ;
“The Day I Lost It” by Robert Bowles at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/day-lost-it/ ;
by Truthful Kindness at https://truthfulkindness.com/2021/02/07/lying/ ;
Timing for Questions
by retired Dr Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/timing-questions/ ;
“Tips” 1-hr video
by Dementia Chats’ panelists by Mary Radnofsky, Scott Drevs, Michael Ellenbogen, Bob Savage, Harry Urban, Truthful Loving Kindness, and Brian LeBlanc at https://youtu.be/QJQqJU23-4c ;
from Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/communication-sept-2015/ ;
Tommy on Conversation
by Tommy Dunne at https://truthfulkindness.com/index-persons-with-dementia-pwd/tommy-dunne/on-conversation/ ;
“Why can’t you HEAR me?”
by Norman MacNamara at https://truthfulkindness.com/index-persons-with-dementia-pwd/norman-mcnamara/hear-me/ ;
by Truthful Kindness at https://truthfulkindness.com/2016/09/06/no-meaning-for-words/ ;
“Words” 7-min video
by retired doctor Jennifer Bute at https://vimeo.com/166953812 ;
Written vs Spoken communication
by Scott Drevs at https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/written-vs-spoken-communication/ ;
Note from ElMarie (Saro) on Family communication
“… They don’t understand that they don’t have to change who they are, but must adapt to the current situation as it happens.
I have a brain disease and my husband is not the young 21 anymore,
so you with the good still functioning brain will have to adapt.
Hopefully while gaining all the information that you need to handle the situation, …”
… “… cannot hear when more than one person talks at the same time …” .
((feels)) “… that she never has a say in anything.
Misconception…. she starts talking by interrupting …” .
Detail at >> https://beautifulmemories.video.blog/2021/12/18/to-change-or-to-adapt/ .
Note from Wendy Mitchell on “… the importance of TIME and PATIENCE.
We need time to think,
time to reply.
People tend to fill the silences which just confuse us more.
Don’t be afraid of silence,
we’re just thinking what to say, trying to put the words in the right order in our head.
So for this you need patience.”
Detail at >> https://whichmeamitoday.wordpress.com/2021/05/20/a-visit-from-yorkshire-ambulance/ .
not PLwD: “Language Skills” vid by Teepa Snow at https://youtu.be/0BlZF_4EKp4 ;
not PLwD: “Tell me about it” (more advanced stages) vid by Teepa Snow at https://youtu.be/AFKACRqNJFE ; and
not PLwD: “Communication” written by Teepa Snow at https://www.dementiamap.com/tips-better-dementia-communication/ .
Lingraphica video by Susan Suchan at https://vimeo.com/101768195 ;
“I Couldn’t Speak” (aphasia) by Brian LeBlanc at http://www.caregiversupportandresources.com/aphasia-i-couldnt-speak/ ;
Pictures as Words by Truthful Kindness at https://truthfulkindness.com/2019/04/08/pictures-words/ ;
Roller-Coaster of Primary Progressive Aphasia by KimJoy Ovard at https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/roller-coaster/ ;
Sign-Language by Laurie Scherrer at https://vimeo.com/114202753 ;
Tech Device vid by Susan Suchan at http://www.newson6.com/story/5e37821ad63bd92feda95ebc/fly-the-coop:-alzheimers-patient-fights-to-keep-communication-device ;
Reading & Writing
Library Card by Lauren U at https://teepasnow.com/blog/lauren-with-a-side-of-lewy-13/ ;
Reading Strategies by Truthful Kindness at https://truthfulkindness.com/2020/09/06/reading-strategies/ ;
“Stability and Landmarks” by Truthful Kindness at https://truthfulkindness.com/2022/05/22/stability-landmarks/ ;
Written Text Format by Truthful Kindness at https://truthfulkindness.com/2019/03/04/text-format-dementia/ ;
Written vs Spoken communication by Scott Drevs at https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/written-vs-spoken-communication/ ; ;
Writing by Truthful Kindness at https://truthfulkindness.com/2014/07/26/my-new-normal/ ;
TERMINOLOGY / Vocabulary
by Truthful Kindness at https://truthfulkindness.com/2014/11/17/consumer-terminology/ ;
Feeling Left Out
by Truthful Kindness at https://truthfulkindness.com/2015/07/07/feeling-left-out-with-dementia-symptoms/ ;
Language Guideline highlights by Kate Swaffer at https://kateswaffer.com/2014/09/10/day-10-dementia-awareness-month-language-guidelines-2014/ ;
“Living Well” with Dementia by Truthful Kindness at https://truthfulkindness.com/2022/03/13/living-well-with-dementia/ ;
Suffer/Suffering/Sufferer issues; part 1 of 3
by Truthful Kindness at https://truthfulkindness.com/2015/12/01/drt-yield-communication-priorities-pwd-suffering-terminology/ ;
USA Dementia Action Alliance document “Words Matter”;
i was one of several persons with dementia contributing in this document >> http://daanow.org/wp-content/uploads/2015/09/Living_Fully_with_Dementia-Words_Matter__9.9.2015.pdf in July 2015.
not PLwD: “Phrases”
by Teepa Snow at https://youtu.be/KKejCymVS2Q ;
(also see categories for other symptoms and strategies at https://truthfulkindness.com/about/d-info/links-sx-strategies/ .
Tags: alzheimers, communication, dementia, family, loved one, non verbal, person with dementia, PLwD, reading, relationship, talk, writing .