LIVE LIFE TO THE FULLEST
LIKE NEVER BEFORE
The pictures above represent feelings and emotions that are controlled by the brain. How can any one have six different brains in one day. Enter my world of dementia. My dementia is of the Lewy body type.
Slow is defined as, “not moving or not able to move quickly. Happy is defined as, “cheerful”. Laughing is defined as “act of laughing”. Tired is defined as, “exhausted or weary”. Sizzled is defined as, ” making a hissing sound as in frying fat”. Fried is defined as, ” cooked by frying”. I have found that it is important to me to find compensating measures for each of these types of brain, especially, when all of them occur in the same day which is very common for me. I never know how long each brain type will last.
I wake up in the morning and find myself moving slow due to osteoarthritis and the vascular changes that are occurring in my hands and fingers. This represents my “slow” brain. Soon after awakening, I prepare a cup of coffee for my wife, orange juice for myself and a light breakfast. This propels into my “happy” brain for the day. My RPM’s are increasing by now, and I move into my “laughing” brain. Sometimes, this can be quite funny. My wife has told me that my personality is changing from minute-to-minute, day-to-day etc. Often when the “laughing” brain shows up, I breakout into giggling. I have never done this before, so my wife, tells me that she wants to video it, one day for future viewing. Maybe that will give someone a laugh, if she chooses to do that.
I move into my office about 9:00 AM most mornings to start my advocacy job. I cannot take too much time off from work because, I might lose my job. If I am not careful, I will move into my “TBS” brain (tired brain syndrome). I never have been one to back-off when I got tired, so I keep forging ahead. Next thing I know, I have moved into my “SBS” brain (sizzled brain syndrome). I never have been the brightest block in town so I do what I have always done, forge ahead relentlessly. At this point, I have a major problem. I have now entered the world of “FBS” brain (fried brain syndrome). YEP, that means FRIED! I can no longer function and my mind and body, shuts down.
Enter my compensatory measures. The work still needs to be done; but, I have learned to slow down, smell the roses, enjoy the ride and get some rest sooner rather than later. All in all, life is good, and I try to live it to the fullest.
©2015 Robert Bowles
((Originally posted 2015 March 12 at lbdlivingbeyonddiagnosis))
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