.Tru here, with my favorite Links on diagnosis issues.
Many folks seem to think each doctor is some sort of a god;
that if the doctor says a diagnosis has changed, then your condition has changed from yesterday (when you did not have a diagnosis yet).
i disagree, — but most doctors TRY to be very current on the KNOWN information in their specialty,
… and process of diagnosis can be very helpful for guidance as to what strategies are most likely to help continue your abilities at their best possible level, and which strategies will probably not help. Sometimes (like with Lewy Body) diagnosis can warn us of possibly-dangerous medications that we are likely to have severe problems with.
Diagnosis for dementia-related issues varies wildly, by type, doctor, etc.
Lately diagnosis is very much driven by testing results, scans, and aspects that can be MEASURED.
Some types of dementia show on scans — but some do not show on scans.
Some types of dementia have wildly-fluctuating symptoms that play hide-and-seek. …
and so many variables can impact how dementia LOOKS
— like prior IQ, prior time spent pursuing NEW avenues of thought and with NEW avenues in the brain
… creating a cognitive cushion that makes everything LOOK better than it really is, because that brain is in the habit of re-routing new signals, so the damage does not easily show in cognitive testing.
Process of evaluation — and RE-evaluation of diagnosis is EXTREMELY stressful, and i wish others could realize that impact.
Here are my current favorite Links on diagnosis issues. If you find a broken Link, please let me know that it does not work.
!! Remember, Links are in colored text, not the pictures !!
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are in colored text, NOT the pictures.
by Dementia Mentors’ members; 18-min video at https://vimeo.com/157521323 ;
by retired Dr Jennifer Bute 3-min video at https://vimeo.com/36955489 ;
Denial of Dementia Symptoms (1-hr video) by Dementia Chats’ panelists at https://youtu.be/COfRxVM4kiE ;
Diagnosis and Doctors (1-hr video) by Dementia Chats’ panelists at https://youtu.be/6xUZCbZYYSM ;
“Dis-Arming the Diagnosis”. intrvw w Jim Butler at https://www.beingpatient.com/disarming-the-diagnosis-jim-butler-on-achieving-peace-of-mind-after-alzheimers-diagnosis/ ;
“Dont Wait” by 5-min video by Richard Taylor PhD at https://vimeo.com/95505507 ;
Imagine a Different (diagnosis process) by George Rook at https://georgerook51.wordpress.com/2015/01/13/imagine-a-different-world/ ;
“Let Diagnosis Sink in” 2-min video by Chris Roberts at https://vimeo.com/92972498 ;
“LIVING with Dementia” by Harry Urban at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/living-dementia/ ;
“Numbness” 3-min video by Gill at https://vimeo.com/93783154 ;
“Surviving Diagnosis” 7-min video by Laurie Scherrer at https://vimeo.com/139466793 ;
“To Neurologists” by Truthful Kindness at https://truthfulkindness.com/2018/05/01/2-neurologists/ ;
“Questioning Diagnosis” 1-hr video by Dementia Chats’ panelists at https://youtu.be/7dLamK1MakM ;
not PLwD: “Helping Patients …” from Dr Daniel Potts and others at https://practicalneurology.com/articles/2018-june/helping-patients-with-dementia-and-caregivers-live-well ;
not PLwD: “Getting Proper Diagnosis” 7-min video from Teepa Snow at https://youtu.be/61dQDIuueyQ ;
Links with info on specific Types of Dementia at https://truthfulkindness.com/about/d-info/ .
INDEX Links for Sx at https://truthfulkindness.com/about/d-info/links-sx-strategies/ .
This page published 02Apr2021. Tags: alzheimers, dementia, diagnosis, FrontoTemporal, Lewy Body, person with dementia, PLwD, Vascular