Returned home Thursday from 2018 American Academy of Neurology annual meeting. Above film was our Dementia Action Alliance video entry for the 2018 Neuro Film Festival, now shared at https://youtu.be/kTPTCPaWD6M
Unfortunately was not able to be part of presentation panel, but my friends Robert Bowles, Laurie Scherrer, Brian LeBlanc, and Mr & Mrs Driver did a wonderful job. Spending time with them, and my friend Danny Potts, made for some very special days.
This was in case i had the opportunity for briefly speaking to neurologists at the meeting:
DO avoid “prescribed disengagement”
(great term Kate Swaffer came up with)
Care partner is important in big picture, but I am your patient.
Learn communication strategies from persons living with dementia (because in this case we are the experts).
Each person is different, but for me and many others, primary strategies are:
2) … Changing train of thought takes extra time for me, so also pause between thoughts, so that I can change channels and keep up.
3) … Communicate with words, body language and/or graphics.
4) … Meet my eyes and speak directly with me.
2) NON-PHARM along with pharmacological ideas for management of grief, added stress, and whichever combination of dementia symptoms patient might encounter on this path.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.
Conversation Tips >> https://truthfulkindness.com/2014/12/12/suggestions-understand-audio-communication-dementia-symptoms/
Kate Swaffer’s blog on topic of “Prescribed Disengagement” >> https://kateswaffer.com/2014/01/20/re-investing-in-life-after-a-diagnosis-of-dementia/
Suggested in pkg at Dx >> https://truthfulkindness.com/2018/02/19/still-my-life/
Dementia Mentors >> https://www.dementiamentors.org/
Dementia Alliance International >> https://www.dementiaallianceinternational.org/
Dementia Action Alliance >> https://daanow.org/
Top recommended PLwD blogs, websites, & groups >> https://truthfulkindness.com/links/plwd-blog-2018-rec/
For reference (pulled from my 2018 Google Calendar): We arrived Air B&B noon 19Apr. AAN Brain Fair began for us at 9am on 20Apr2018. Hard Rock Cafe with group at 2pm 21Apr2018. Lunch with Debra Cherry in JapanTown 22Apr2018. Panel Presentation was Monday 23Apr2018. No note on when we left.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-04/30. Tags are: communication, dementia, neurology, PLwD, strategy, symptom.
Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year
THANK YOU for sharing
LikeLiked by 1 person
… and thank YOU for sharing, Debbie. 😀
This is great Tru!!! B
On Tue, May 1, 2018 at 7:02 AM Truthful Loving Kindness wrote:
> truthfulkindness posted: “. https://youtu.be/kTPTCPaWD6M Tru here. > Returned home Thursday from 2018 American Academy of Neurology annual > meeting. Above film was our Dementia Action Alliance video entry for the > 2018 Neuro Film Festival, now shared at https://youtu.be/kTPTC” >
LikeLiked by 1 person
Thanks, Brian 😀
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