DSS- Barry Pankhurst MIBB

616 Stories BarryPankhurst pic color 2in100ppi

Dementia Success Stories:
“How we made a difference for self and those around us AFTER diagnosis”

A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)

    1. Label: Barry Pankhurst MIBB
    2. Occupation: I was A Master Baker and Confectioner specializing in Cake Decoration, and Bakery training and products specialist to the Middle and Far East countries  
    3. Location: British ‘but’ now living in Indonesia for the past 17 years
    4. Age at tentative diagnosis: … 58 years old
    5. Year of diagnosis: … 2005
    6. How long for definitive diagnosis: over the past 10 years Diagnoses confirmed 3 times
    7. Type of dementia:  (Mixed Dementia) Alzheimer’s, LBD and Parkinson’s disease
    8. Since diagnosis: Starting my own dementia related website (www.facesofdementia.co.uk) writing and publishing two books about how the illness affects me:(Faces of Dementia) Poetic thoughts within Alzheimer’s)    (Life’s Paradise Lost My Alzheimer’s Pathway)
    9. What do you wish your primary Physician knew about dementia?  I am very fortunate as I have an excellent Neurologist doctor
    10.  What do you wish your specialist Physician knew about dementia?  I am very fortunate as I have an excellent Neurologist doctor who I have been seeing since the beginning of my diagnoses  
    11. What do you wish your family knew about dementia?  hear-in lies a big problem as my Indonesian family had not even heard about Dementia/ Alzheimer’s until I was diagnosed, neither do we have any Alzheimer’s society or any lines of support so I had to educate the family myself and also act as support for my dear wife, in a nutshell where we live in Indonesia we are in an utterly go it alone situation
    12.  Date (Year-Mo-Date)… 24 March 2015

Barry is very active in Dementia Mentors


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