Apologize that it has been so long since I posted an update from my friends. These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects. (I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from […]
My main project was to crochet a collar and set of cuffs for Autumn/Winter.
In my definitions, dementia does not have ability to change the “person”, but can highly influence the “perspective” and perceived “personality”, due to brain systems of energy, transportation, and storage, along with loss of context in ALL categories of life, and the influence on mental health issues like hallucinations, and delusions. Sadly, I think loss of relationships is another frequent cause of personality change in dementia, especially if patient is repeatedly refreshed on the death of loved ones who are not yet dead in the patient’s “perceived reality” (in contrast to “consensus reality” where everyone else lives).
Don’t know what is coming, but I am listening and applying this “premonition” to prepare for change, in that I am going to back up from my tremendous outflow of energy and time output to online dementia issues.
I do not feel that the “best” of my grandmother was gone in her later stages. Her context was gone. The ability to delay gratification was gone. The ability to even know what she wanted or who she was … was gone. But her visceral response to life was NOT gone. Having my grandmother as a Dementia Mentor (even if only in my memory), has been a tremendous source of hope and example. In my final days I hope the same can be said of me.
New page from Cecil Ristow with “Going Along – or Getting Out”, New page from Dianne White with “Looking Normal”, New page with descriptive photography from Gord Settle; “Preventing Loss of Focus”, Two pages of excerpts from blog of Harry Urban, and New page from Myrna Norman with “Walk a Step in My Shoes” (written for Dementia Mentors). My hope is that your perspectives can be applied to help and encourage
other patients, care-partners, and professionals.