Hallucination Types

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Tru here,
Recently asked about hallucinations.
My super-simple explanation is that, when primary cause is dementia,
hallucinations are NOT like day-dreams or night-dreams.
They are day-or-night REALITY:

“Reality” shows have become a popular thing, but is it “reality”?
We see commercials, rewind to get a missed comment, etc.
It is not reality.
You didn’t feel the pain of an animal bite, you didn’t feel the cold of the winter storm, or rain on the face.
Hallucinations give you all this and more.

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Hallucinations are not unusual in later stages of most dementias, but are often seen earlier in dementia with “Lewy Bodies” (LBD).  See Links at base of article.

Part 1: What does a hallucination feel like?

Think of our sensory perceptions as internal traffic-control mechanism for the brain.
i suspect most of us have seen disaster (or terrorist) movies where the traffic signals (green-yellow-red traffic lights) are no longer synchronized for safe traffic patterns.
This causes accidents, confusion of control-authorities, fear among population, and loss of ability to respond to emergencies.
When we are in the middle of this disaster,
our years of trusting and reliance on well-functioning “traffic signals” of our pre-dementia minds makes it almost impossible to separate ourselves from this unfolding chaos.

In the same way, our reliance on what we see, hear, smell, touch, and taste determines our reality,
… but now we are receiving false signals.

It is VERY difficult to accept someone else’s “reality” as more accurate than our own;
to somehow convince ourselves the smoke we smell, the sounds we hear, etc … are not really there.

This IS real;
my nose tells me something is smoldering.
My ears tell me a sound IS happening.
My eyes tell me that bird is sitting on the kitchen floor.

So who do i believe?  What is reliable ?!!!
a) my own senses?
b) my friend with their words of comfort?
c) my service dog’s non-reaction to the smoldering smell, sounds on the porch, or bird on kitchen floor?
… Who can i really trust with my REALITY (and safety) ??

.

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1)  For ME, one thing that is NOT helpful is to say “it’s okay; dont worry”.
Hummmmph; YOU may be “okay”.
You are not the one being told that someone else’s reality is real … and YOUR reality is false (unreliable).
No; that is definitely NOT okay.

2) At this stage, the service dog is one of my most helpful tools.
His signals provide reality-check without emotional involvement (unless there IS a bird on the kitchen floor, LOL).
But have not trained him to tell me if bugs are really on my hand, or if a radio is playing (cannot train for infinite possibilities);
3) so i must rely on sensory perception from a TRUSTED person for that
4) — the challenge is then to set aside my own perceptions, and accept their reality as higher priority than my own reality.
5) Have thought it might help to have them take photo (my tremors prevent clear photos); theorize photo would help, but i have not yet remembered to try it, in midst of an hallucination.

.

Must suggest that when i am in later stages, much better for folks to enter my own reality, and just go with the hallucination.
Trying to convince me that what i perceive is false will probably make me feel like i am accused of being a fake
… and if you succeed; that my whole world is fake … including YOU !!!

 

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Part 2

Hallucination is like theatre of the mind;
More real than Pana-Vision.  Better than 360-surround-sound.
With no tell-tale camera-man in sight.

We are all fairly certain that the T-Rex is not going to jump off the movie screen.  The alien robot cannot truly reach us with their disintegrator rays.
… so from the safety of your home theatre, many can enjoy the distorted reality without fear of direct involvement.
When we experience the reality from our Theatre of the Mind, we do not have any context beyond our hallucination;
it IS real !!

Please be aware, i may need someone to sit with me;
giving me the reassurance that i am safe when this cerebral theater closes down.
Talking me thru it, talking me out of it;
demanding that i “get a grip”, ignoring my own reality and re-entering YOUR reality,
is not as simple as clicking your heels three times (Wizard of Oz).

 

According to Wiki, “A hallucination is a perception in the absence of external stimulus that has qualities of real perception. Hallucinations are vivid, substantial, and are perceived to be located in external objective space.” (See LINKS).

Michigan Medicine (U of M) calls it miswiring; “The mind often plays tricks on people with dementia as brain cells degenerate.
Their brains often distort their senses to make them think they are seeing, hearing, feeling, smelling or experiencing something that isn’t really there.”
(See Links; UofM and “Sound Hallucinations”).

Sound

For ME,
My Sound (auditory) hallucinations began 2008 as complications from 31 years untreated Lyme Disease.
Lyme specialist gave me very simplified explanation.
He said that my sound hallucinations –for ME at that time — were caused by brain inflammation pushing on the sound-processing section of my brain.
Sounds from my past (hymns etc) were re-enacted in my current sensory experience.
So i am experiencing the sounds in real-time
… but actual sounds were received from ear to brain at some time in the past, and stored in audio memory.

Infections of various types (Tick-Borne Diseases, Bladder infection, etc) can trigger hallucinations even without general cognitive decline,
… or intensify the problems in someone who has dementia symptoms.

.

Smell

Smell (olfactory) hallucinations came next for me, probably in 2012 or 2013.
Asked among my friends a couple years ago, and
the most frequent SMELL hallucination (for me AND my friends) is something hot and dangerous;
the smell of a hot burner, or frayed electrical cord … smoldering.
Other varieties can be the smell of farts, poop, etc.
But smell hallucinations can also be pleasant; once or twice i have had
the smell of new-mown grass — in cold winter, in the bedroom, shut up under the covers.  LOL.
(See Links; “Smell Hallucinations”)

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Sight

In “Complex Visual Hallucinations; Clinical and Neurobiological Insights” Manford and Andermann summarized three pathophysiologic causes for complex visual hallucinations;
“The first mechanism involves irritation (e.g., seizure activity) of cortical centers responsible for visual processing.
Irritation of the primary visual cortex (Brodmann’s area 17) causes simple elementary visual hallucinations,
while irritation of the visual association cortices (Brodmann’s areas 18 and 19) causes more complex visual hallucinations.
These data are supported by both electroencephalographic (EEG) recordings and direct stimulation experiments.”  .
(See Links; NCBI).

i have seldom experienced sight hallucinations, but on those few occasions, they have almost always been bugs; bugs on my skin, skin of grandsons, skin of dog, or bedroom floor.  i dont think i have had a daytime sight hallucination in several years (unless i just ignored then forgot, LOL).  Retired Dr Jennifer Bute wrote about one of her visual hallucinations here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/hallucination-goat/ .

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Touch

i dont think i have ever experienced a hallucination of touch sensation.

.

Taste

i dont think i have ever experienced a hallucination of taste sensation.

Nocturnal

Another Type of hallucination that i rarely see listed is “Nocturnal Hallucination”.
These have also become less frequent for me.
((… or maybe not, LOL; Husband says i mentioned one last week.))
Some folks call these “night terrors”, but i think there is a difference.
Cannot remember where, but i read night terrors have only 1 or 2 episodes per night,
but these events are over and over and over again during the night, creating strong avoidance of sleep.
These are extremely vivid; more real that daytime reality, and often have a repeating nature to them
… in that i often return to the same environment when i fall back asleep,
perhaps with a new set of characters, but usually same environment.

More from me here >> https://truthfulkindness.com/2016/01/19/impact-terrors-dreams/ .
Retired Dr Jennifer Bute writes about nocturnal hallucinations while staying away from “home” here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/nocturnal-hallucinations/
… and writes about the differences between illusion and hallucination here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/night-illusions/ .

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More LINKS:
LBDA >> https://www.lbda.org/go/symptoms-0 ;
Wiki >> https://en.wikipedia.org/wiki/Hallucination ;
UofM >> https://healthblog.uofmhealth.org/brain-health/illusions-hallucinations-and-delusions-how-to-spot-dementia-symptoms ;
Sound Hallucinations >> https://truthfulkindness.com/2018/12/11/tinnitus/ ;
Smell Hallucinations > https://truthfulkindness.com/2015/01/19/smell-hallucinations-dementia/ ;
NCBI >> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2660156/ ;
… and another one from me >> https://truthfulkindness.com/2017/06/01/hallucinations-forgetting/

— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 30, Thursday: DAA Discussion topic “Downsizing and Moving”, with guest speaker Gregg Herb, and hosted by Laurie Scherrer. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday; ADI Conference 2020: Alheimer’s Disease International is holding this year’s conference in Singapore, and it begins March 19. >> https://adi2020.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 26Jan2020 with 22hrs invested. Tags are: Alzheimers, audio, Dementia, Hallucinations, Lewy Body, nocturnal, olfactory, PLwD, sight, smell, sound, Strategy, symptom, tips, visual.

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Reading Clocks

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Tru here.

Again, i can only speak for myself, but i suspect i am not the only individual with dementia symptoms who understands analog clocks (with numbers on round face) better than digital clocks (with only numbers).  i also suspect there will be progressively less of us NEEDING analog clock during coming decades and century, simply because i think digital clocks are used almost exclusively now; analog clocks dont seem to be needed and are “old fashioned”.

When i started school, all clocks were analog.
Clock pictures were all a happy round face with two hands.
That has changed with the years, to where most folks understand both analog and digital clocks.
But i think SOME schools may have mostly abandoned teaching time with concept of analog clocks.

Last week my computer needed upgrade to Windows 10, and
one of the things lost was the analog clock widget on my desktop.
…  Now i discovered i am having much more problems with time.
.

Digital clocks require ability to subtract, and
ability to keep in mind that we are working with 60 minutes as a complete unit;
not divisions of 10 or 100 as is customary.
… But i am losing those abilities.

.
… For ME;
i need to see that there is “this much” space before the long hand gets to the top of the hour.
i need to see that there is “this much” space before both hands are at the top of the clock and it is naptime.
i need to see that there is “this much” space before the short hand gets to the bottom of the hour, and night arrives.

—  ***  —

LINKS:
1) The issue of clocks in schools >> https://www.cbsnews.com/news/u-k-schools-getting-rid-of-analog-clocks-because-teens-cannot-tell-time/ ;
2) Microsoft has retired the feature in newer releases of Windows. Gadgets could be exploited to harm your computer, access your computer’s files, show you objectionable content, or change their behavior at any time. An attacker could even use a gadget to take complete control of your PC.  >> https://support.microsoft.com/en-us/help/13787/gadgets-have-been-discontinued ;
2) Found an analog clock app, but don’t know whether it is “safe” (carries any spyware, etc.)  >> https://analog.onlineclock.net/simple/

—  ***  —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 23, Thursday: DAA Discussion topic “Addressing Dementia as a Dis-Ability”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday; ADI Conference 2020: Alheimer’s Disease International is holding this year’s conference in Singapore, and it begins March 19.  >> https://adi2020.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 20Jan2020. Tags are: Alzheimers, Clock, Dementia, Organization, PLwD, Time, Strategy, symptom.

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Change in Lighting Needs

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Tru here.

SunLight is very important to me.
i designed this house for maximum benefit of daylight.
All exterior walls have loads of windows, and doors are clear glass, along with a glass-enclosed wrap-around porch,
… but, until dementia symptoms arrived, at night i needed it very dark.

Before dementia symptoms i needed it very dark at night, but
now, because of nocturnal hallucinations,
i NEED to orient soon as possible when waking up.

Sometimes the hallucination-environment is super-imposed over my bedroom environment,
so need a bit of light to orient
— but not too intense that i cannot return to sleep.
(Interferes with melatonin secretion.)

Hope is to return to sleep — but not return to the ultra-vivid scary environment of my dreams.
With dim lighting i can recognize familiar shapes and items in bedroom or living room,
so it reduces likelihood of these things being incorporated into dreams
during this nether-time between sleep and wakefulness.

Minimum of 2 side lamps (wall sconces) on each wall, in each room of the house.
Each of these Lamps hold a 7-watt bulb, or are higher wattage but gold/orange in color.
Having multiple low-wattage lamps helps eliminate shadows that can be mis-interpreted as part of an illusion.

“Even dim light can interfere with a person’s circadian rhythm and melatonin secretion.
A mere eight lux—a level of brightness exceeded by most table lamps and about twice that of a night light—has an effect,
notes Stephen Lockley, a Harvard sleep researcher. ” (per Harvard Health Publishing * — see article in Links below).

.

On 15 Sep 2014, Victoria L. Dunckley M.D., of Psychology Today, wrote:
“The healthiest light is sunlight or candlelight, followed by incandescent, then halogen, then LEDs, then CFLs.
I recommend that parents of children with psychiatric, neurological, learning, or chronic medical conditions
switch out all CFLs in the home for incandescent or halogen bulbs.”  (CFL is Compact Fluorescent Light * see article in Links below).

.

When evening arrives, the side lamps go on throughout the house.
Overhead lighting is turned off an hour or two before bed, to encourage a feeling of sleepiness.

((Another change is that i am No longer able to use flashlight; creates dis-orientation for balance, and i will fall. See Link at base of entry.))

Links:

This entry in video form >> https://youtu.be/g7epZpNqPVc ;

* >> https://truthfulkindness.com/2019/10/31/lrnd-power-outage/ ;
* >> https://www.health.harvard.edu/staying-healthy/blue-light-has-a-dark-side ;
* >> https://www.psychologytoday.com/us/blog/mental-wealth/201409/why-cfls-arent-such-bright-idea .

PS: it is difficult to understand how very long it takes me to write these days. began this entry 18Jun2018, and worked on it again 07Sep2018.  Spent 4 more hours on it 09Jan2019, then made some revisions, and created a graphic, but still cannot understand what i am reading well enough to know if it makes sense, so husband helped me finalize it on 12Jan2020.
.
.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 16, Thursday: DAA Discussion topic “Pros & Cons of Humor for PLWD”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia.  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”.  >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit.  The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference.  regarding Fronto-Temporal Degeneration.  Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 13Jan2020.  Tags are: Alzheimers, Dementia, Lewy Body, Lighting, PLwD, Sleep, Strategy, symptom.

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Verbal Greetings

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Hello.  Tru here.

Holidays, New Year, and in fact every day that has social interaction is full of greetings.

1. Greetings can be very confusing;
if you are really just saying “Hello” … then please just say “HELLO” (or Good Morning, etc),
instead of confusing me by asking a question (ie: How are you)
then being frustrated when i take your time by answering it.

2.  Please don’t ask me “How have you been Lately?” (Yesterday is gone, so How should i know?)
That question first brings frustration, because reinforces the fact that i have no idea how i have been (in the past).
Then i must translate to a question that i DO have ability to answer, such as
“How are you feeling (right now)?”, or “How are you today?” 😀

3.  If you ASK a question, then
be prepared for fact that it will probably take more than a few moments to compose words
translating my feelings into words.

4.  If you ASK how i am doing, then
do not be offended or embarrassed by the nitty gritty that i might not be doing well at all !
i am not asking for pity or “Woe is me, send me a pity-party”.
There must be truth for meaningful relationship,
and i am trying to uphold my portion
of what i hope is, or will become, a relationship
(even if it is a very brief relationship).
If i am doing great, then that is probably what i will say,
along with some of the highlights.
If life is skating from one catastrophe to another,
then that is probably what i will say, along with some of the highlights.

5.  * i am not a good conversationalist any more.
After answering your question, most likely i will be at a loss to continue the conversation.
It’s not that i am not interested or don’t enjoy your company
… i just have a difficult time transitioning into more ideas and social graces.
So please do not be offended if the conversation has elephant-sized pregnant pauses on my part.
Plenty of things that we could talk about, but i will probably not think of them,
… so the ball is in your court to keep the conversation going.

.

Links:

This entry in video form at >> https://youtu.be/lJriC971MdQ .
Part 1 >> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ .

Vids:

“Dementia Chats” on 14Mar2017  https://youtu.be/ldWJnMyjtEE & 12Dec2017  https://youtu.be/QJQqJU23-4c  .

…
* Husband added last paragraph (#5) but i recognize its accuracy.  Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright ©Truthful L. Kindness 2020Jan06. Tags: conversation, dementia, dementia relationship tips, greeting, PLwD, relationship .

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My Blog during 2010s

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Tru here.

2019 is ending.  This week ends the 2010’s … and begins the 2020’s.  Sooooo …

Purpose for blog has been therapy and advocacy;
as personal therapy for my own frustrations,
and to help professionals, family, and friends better understand symptoms,
and assist in brainstorming possible strategies.

My most viewed blog entries each year have been:
.

2014

2014 was https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/

.

… and “Brilliant Scattered Conversation” at https://truthfulkindness.com/2014/09/29/my-thoughts/ .

.

2015

2015 was https://truthfulkindness.com/2015/07/07/feeling-left-out-with-dementia-symptoms/

.

… and “Self-Identity” at https://truthfulkindness.com/2015/06/07/self-identity-am-i-still-me/ .

.

2016

2016 was https://truthfulkindness.com/2016/01/26/import-communication-pwd/

.

… and “Where am i” at  https://truthfulkindness.com/2016/05/08/first-time-of-where-am-i/ .

.

2017

2017 was https://truthfulkindness.com/2017/01/25/film-review-for-alzheimers-every-minute-counts/

.

… and “Hallucinatins” at https://truthfulkindness.com/2017/06/01/hallucinations-forgetting/ .

.

2018

2018 was https://truthfulkindness.com/2018/04/09/bad-day-indicators-suggestions/

.

… and “to Neurologists” at https://truthfulkindness.com/2018/05/01/2-neurologists/ .

.

2019

2019 was “Context of Appearance” at https://truthfulkindness.com/2019/05/27/context-appearance/

.

and “Floating Words” at  https://truthfulkindness.com/2018/12/31/floating-words/ .

  —  ***  —

Began this Blog project July 2014.  With this entry, i have posted 215 blog “entries” and 310 “pages” dealing with dementia issues (plus 80 pages on personal things like Family History and Memoirs). Over 300 of those pages have been with contributions from others.  See https://truthfulkindness.com/index-persons-with-dementia-pwd/ and https://truthfulkindness.com/dementia-success-stories/ .

Someday, i hope that Professionals, Family, and friends of those with dementia will discover the value from Lived Experience stories about symptoms and strategies — then application of that information can help in relationships and task execution for so many aspects of life.

Best wishes for 2020 … for ALL of us !!!

Other Links:  About my Blog at https://truthfulkindness.com/about/about-blog-mailroom/ .

..
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright ©Truthful L. Kindness 2019Dec30. Tags: Best, blog, dementia, PLwD .

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Recent Additions 2019Dec 16

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Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

—  ***  —

My infections are finally clearing up, so i have a bit more energy.
These are pages recently added on my website:

.

Harry Urban “It’s NOT okay” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/not-okay/

.

… And added in my Spiritual Journal section is

“Prayer IS Action” >> https://truthfulkindness.com/about/life-other/spiritual/prayer-action/

.

Index for Other Contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/ ;

Index for Spiritual Journal is here >> https://truthfulkindness.com/about/life-other/spiritual/ ;
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 06Dec2019. Tags.

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Recent Additions 2019Dec 1

Posted on by

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

I have had a lot happening this year, so have not shared as much from others;
it all just takes ENERGY … but sometimes there are jewels too important to let slide.

A jewel recently added to my blogsite is from:

Jennifer Bute on difference between hallucination, Visual Misrepresentation and Visual Misinterpretations, at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/night-illusions/

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

  —  ***  —

… and Family History:

. Kilroy/McNeel/Beaton Line at https://truthfulkindness.com/about/life-other/family-history-index/r-u-beaton/

.

Petrin Line at https://truthfulkindness.com/about/life-other/family-history-index/swedish-farm-name/

.

Frey/Spencer/McMinn Line at https://truthfulkindness.com/about/life-other/family-history-index/sgt-a-patterson/

Index for other pages on FamHist here >> https://truthfulkindness.com/about/life-other/family-history-index/

.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 06Dec2019. Tags.

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Partner Praise

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Some folks are astounded at how much i invest on Dementia Awareness.

The only way i can invest this huge amount of time and energy on dementia issues is with enablement from my husband/care-partner.

He is retired from full-time work, but has a part-time job, plus caring for me.

Husband does all the cooking, cleaning, finances, shopping, etc. … plus functioning as my back-up brain and back-up care for my animals (an important factor in their well-being since i often forget whether they have been fed/watered/put away).  Even tho i have notes on the doors to remind me, he often needs to remind me to wash my hands after handling the chickens.

Since my protein blend is such a big part of keeping my blood sugar consistent throughout the day, he mixes dry ingredients in 2-gallon container, then every week he creates the concentrated liquid for my protein – chocolate-coffee drink.
My control-area of kitchen is small because my kitchen responsibilities are minimal;
i dilute my protein drink to half strength (multiple times during the day),
i cook 1 Tbsp oats every day (in microwave),
and i re-heat foods that husband has cooked.

.

Cleaning is often a huge problem for me, because i do not remember where i have cleaned and what still needs done.  i try to keep  very strong self-discipline, but with dementia symptoms that is not always an asset.  Husband left for work one day with me washing the kitchen floor — when he returned i was still on hands and knees washing the kitchen floor – with painful body and tears of frustration because i knew that at least some areas of floor must be tremendously clean after all these hours, but could not remember where i washed and where i did not wash yet.  That was the last time i did any washing of floors.  I wash my own dishes, but he says i get dirty water on the clean dishes.  (I dont — but that is what HE thinks, LOL.)  I often break dishes when trying to put them away, so then we have glass all over the floor.  etc.

.

In earlier years i was the one responsible for finances, but since i no longer understand numerical concepts, he needed to take that over entirely. I began forgetting simple driving instructions (like how to make the car go backward), so husband drives me everywhere i need to go.

.

i still prepare my weekly pill-packs, but he runs oversight, making sure i remember to put clean towel under the processing area, wash my hands, etc.  If i am interrupted during task, he helps me figure out how to resume/finish the task.

.

his Part-time job (6hrs/week) is very flexible, allowing me to come to work with him on “bad” days, and allowing great time flexibility.  But the income is important for funds to travel for family needs, and when we have time for fun.
… also it usually allows him time away from me, doing his own thing.

.

Husband enables me to invest most of my time and energy in dementia awareness and advocacy.  If HE was not available to compensate for my dys-Abilities, then i would have no time or energy for dementia issues.  … So i try to make sure he gets a bit of “time off” also.    It is a partnership dance.  Even during the times when our “dancing” is just me moving my feet while he holds me up — we are still moving together.  (This photo is obviously not me, but i have no pictures of us dancing.)

“Effective Listening for Partnership” at https://truthfulkindness.com/2019/06/10/effective-listening-partner/ ;

“Service User” at https://truthfulkindness.com/2014/07/24/service-user/ ;

.
.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 12, Tuesday: Next Dementia Chats with Lori LaBey will be November 12.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 14, Thursday: DAA Discussion topic “Navigating thru Doctors”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 27/28 Wednesday: DAI November Webinar on “Beyond BPSD” with Al Power MD.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/events/dai-webinars/

 

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 11Nov2019. Began this blog entry 09Mar2019 then added 6 more hours invested on Nov10.  Tags are: caregiver, dance, dementia, Living with Dementia, partnership, PLwD, relationship

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Learned from Power Outage

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Tru here on Thursday.  Today was our 6th day with no electrical power — and with my progressing symptoms i have new complications.  So this is what i learned.

Portable battery pack for cell phone was crucial during this power outage, in order to provide good family communication for any surprise needs.  Mine is made by Anker >> https://smile.amazon.com/gp/product/B00X5RV14Y/

In our town of ~7,000 ppl we had only one restaurant that was operating during the power outage, and only one grocery store.  That grocery store supplied breakfast buffet each morning during the power outage.  Do your research, and find out what local suppliers (including fuel suppliers) have a generator.

Since our 1932 Wedgewood stove runs on propane, we didnt need to worry about cooking, and we now have a fine wood stove to keep the house warm.  But life is calmer with a hot or cold drink in your hand, so suggest a couple high-quality Thermos bottles.  Get filled from neighbor, restaurant, or grocery store that has alternative power.  For me, my symptoms are better with hot chocolate, (But i am sure that is completely power-of-suggestion, LOL.)  Power outage can also be an excellent excuse to introduce yourself to the neighbors.  Our thermos keeps hot things hot for 36 hours.

Remember to eat and drink.  Blood-sugar fluctuations will definitely increase dementia symptoms, so are to be avoided if at all possible.  i keep some gluten-free, low-sugar, high-protein energy bars on hand for between meals, along with packets of low-sugar hot chocolate, and instant oatmeal.  This week, during the day that husband was gone, i forgot and used my normal gluten-free extra-thick oats — it didn’t work.  Then i forgot to drain the water that did not absorb into the oats before i added the milk.  … Not wonderfully appetizing, but keeps blood sugar from crashing.

… and the main issue was LIGHT:
A) My evening symptoms are more difficult when everything is different.  Many of my coping strategies do not work with different circumstances.
B) Discovered a moving Light (such as FlashLight) is VERY disorienting for me; shadows are constantly changing and my balance goes out the window.
C) Unless generator is on, then camping Lanterns and candles need set out in different areas of our house, or i will fall. (remember to set candles in fire-proof dishes on a fire-proof support).
D) Then we get to deal with the shadows from the Lanterns and flickering flame.
E) Discovered new challenge; our particular camping Lantern now triggers almost continual sound hallucinations for me.  One minute hallucinations are rap music (which i dont like), then DJ-narration, then moaning like a ghost, … and on and on for hours.
F) NEED to set up music i enjoy in a mode that i can be listening anytime Lantern is running.  i know there is a way to do that on my cell phone, but need to consider loss of battery power on cell phone also.  Need to find portable CD player that can play my comfort music when there is no electrical power.

i repeat my closing statement from what i wrote four years ago: This is just a lesson in WHY people say “be careful” and “be safe” when unusual circumstances occur. It is not that our family was not well-prepared for storm and loss of electrical power; it is simply that habit and schedule are important safety elements in dementia patient’s ability to complete activities of daily living. In unusual circumstances habit and schedule are interrupted.  https://truthfulkindness.com/2015/02/09/danger-of-unusual-circumstance-storm/

.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:
.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 7, Thursday: DAA Discussion topic “Dementia and HUMOR”, hosted by Chuck McClatchey. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 12, Tuesday: Next Dementia Chats with Lori LaBey will be November 12.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 14, Thursday: DAA Discussion topic “Navigating thru Doctors”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 27/28 Wednesday: DAI November Webinar on “Beyond BPSD” with Al Power MD.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/events/dai-webinars/

 

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 31Oct2019. Tags are: dementia, emergency, Lighting, Living with Dementia, PLwD, preparedness, strategy, symptom

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Verbal Comprehension Strategies Part 3

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Tru here.

A fully-understood conversation means i grasp the important parts AND the other person is comfortable that they got their point across.
The outline below seems to help ME.

—  ***  —

Last year i posted >>  https://truthfulkindness.com/2018/12/31/floating-words/ .
My challenges with verbal comprehension have continued and intensified.

… So husband and i have some current coping strategies, but we are definitely hoping more strategies will show up soon.

1) As discussed in Part 1, conversation needs to be: a) slow, b) clearly enunciated, and c) within sight, while d) watching for body language.  Also e) eliminate as much distraction as possible .
These strategies are covered in more detail here >> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ .

2) Longer PAUSE between sentences, and eliminating any un-necessary phrases, are two strategies becoming even more crucial.  Remember i am most likely to understand first bit of statement and last bit of statement, so including anything in the middle is counter-productive;
it clouds my understanding of what the subject is.

3) Try to make your first sentence a very short “subject” sentence.  This is similar to the “subject” heading in eMail format, and tells me where to find context for your words in my brain storage.  WAIT for any clarifying statements, until i have fully-registered your primary statement.  Otherwise i am still trying to register your statement, at the same time as i am trying to figure out how your words modifies that statement,
… so ALL of it is lost.

4) Sometimes a simple note or picture can make the topic much clearer.  Best-case scenario is BOTH note and short conversation.
Using more than one sensory system in conversation is almost always a helpful thing.
While telling me he was leaving, husband handed me this note: “Taco Bell for lunch with grandson … then taking grandson home.  i will return by 4:30”.  i had audio, visual, and textural input because i also had a note in my hand.  Plus … In a few minutes, when i have forgotten where he went, hopefully i will see the note.

5) Graphics almost always help.  We have discovered that Potential for future misunderstandings is almost always minimized by including pictures, maps, etc.  We were in the car and husband asked about upstairs wainscoting (lower-wall-coverings).  In less than a minute we decided the topic needed to wait until we were in the location, with paper and pencil.  Then we can both better understand each other, and there will be pieces contributed by both of us … and verified by looking at the paper.  When i feel that changes were made without my input … the paper shows my input.  We both initial the paper and file in construction folder.
Sometimes he will have me initial calendar items, which are then posted on fridge door.
It has taken a while to adjust to this process, but i think it is much better for our family dynamics
… at THIS particular stage of decline.
(In Later stages, i imagine this process could create more problems than it would solve.)

As Listed above,
Part 1 was initial suggestions
>> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ ;
Part 2 was intensification of symptoms
>> https://truthfulkindness.com/2018/12/31/floating-words/
… and this is Part 3

. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

THIS WEEK,
along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:
.

 

Oct 22, Tuesday: Next Dementia Chats with Lori LaBey will be October 22.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 23 Wednesday: DAI October Webinar on “Assistance Dogs for Dementia”.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/october-webinar-assistance-dogs-for-dementia/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 24, Thursday: DAA Discussion topic “Finding Purpose”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19
>> https://teepasnow.com/pac-annual-conference/ .
.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 21Oct2019. Tags are: communication, conversation, dementia, Living with Dementia, PLwD, relationship, strategy, verbal comprehension ..

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