Living in the Moment during 2017

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Tru here.
Kate Swaffer comment got me thinking about quotes to live by, which motivated these thoughts about living in the moment.

“TAKE ACTION on the fact that there are no erase and re-write buttons for your moments.

We can only live one moment at a time, so …

REMEMBER the past moments with fondness, and
ANTICIPATE the future moments enough to prepare,
… but don’t tackle tomorrow until it arrives.

TAKE SOME TIME.

ANALYZE to put your priorities into words you can live by.
CREATE something that will remind you frequently of those words, and
LIVE each moment in light of those priorities.
Only then are you best enabled to fully
APPRECIATE each moment while you are living it.

BUILD on the negative moments, as well as the positive ones.
Because the negative moments can either make or break you.

… TAKE ACTION on the fact that there are no erase and re-write buttons for your life.”
– TLK 2017-01/12

My perspective on adult life and moments probably began with toddlerhood and being told that the best way to prepare for being a Mommy was to ANALYZE behavior and actions of my own parents, neighbors and friends, and think about what works and what does not work in parenthood and early childhood education for life. Then, when I was 12 years old my father was diagnosed with cancer and given 2% chance of life. That changed my own priorities and first brought analysis of “What really counts in life?” >> “What really counts in my own life?”.  At 18 years old I was mis-diagnosed with a terminal disease. (I inherited fibromyalgia, and then first acquired several tick-borne diseases that year, after cutting trail for US Forest Service. At that time little was known about Lyme Disease and accompanying tick-borne co-infections from nature’s “dirty needle”, so it is now no surprise that I received a misdiagnosis.) This misdiagnosis created need to quickly take a look at my life at 18 years old. Analyze, prioritize, and put those priorities into action in order to live each moment that I still had, weighing my actions and thoughts by those priorities. Then I needed to find what work-arounds would help me continue living each moment to my fullest. So, most of my entire adult life has been lived with this perspective (except when I forgot or decided other needs were more important for the moment, LOL).

So I began with more vague set of life priorities and goals, which have become further clarified with each breathtaking discovery of who I was created to be, both genetically and environmentally. Each wonderful moment told me who I was in setting my priorities, and each terrible disaster further clarified it.

Naming has incredible meaning. When I was 50 years old, I took action on those priorities in a nomenclature way, and legally changed my name to reflect the English meaning for three Hebrew words, “chesed v’emet”. Now, when I hear my name, I am reminded of my priorities; what I want the sum of my life to reflect. How I achieve that differs in each moment, with the opportunities life’s circumstances bring … but “Truthful Loving Kindness” is what I most WANT to be – at my most basic core; “chesed” loving-kindness in the most truthful reliable way possible.

I wonder …
When I die, will my friends and acquaintances look back at my life and see “Truthful Loving Kindness” in each moment of my life … even after dementia symptoms peel back the onion to my most basic core (with all its human weaknesses)? I have made plenty of mistakes, and even spent several years with letting my area of weakness determine too much of my actions. Life has no re-write button, so what will the moments of 2017 show?

What will the moments of TODAY show? Right now, I will tackle the moments of noon on January 12, 2017. I will remember the past moments to make the best results, prepare as much as possible for the coming years, but LIVE this hour, this minute … and this moment.

 

Related LINKS:
819BMPB 2001 Willow Tree only 4in100ppi

 

Focus on Essentials at https://truthfulkindness.com/2015/02/24/dementia-change-priority-pathways/ ;


819 Blog 20150618a 11in080ppi

 

Self-Identity; Am I Still Me?  at https://truthfulkindness.com/2015/06/07/self-identity-am-i-still-me/ ;

819 Blog 20160126b commun 3in100ppi

 

Importance of Communication with PWD at https://truthfulkindness.com/2016/01/26/import-communication-pwd/ ;

 

819 blog 20150910b 4in150ppi

 

My philosophy on Personhood at https://truthfulkindness.com/2015/09/11/my-philosophy-on-personhood-and-dementia-person-personality-perspective/ ;

819 Blog 20150406 Perth 1a 3in130ppi

 

Value for Lived Experience of PWD at https://truthfulkindness.com/2015/04/06/value-for-lived-experience-of-pwd-as-contributor-to-dementia-friendly-community/ ;

 

616 blog 20150623Leona 3in150ppi

 

Impact of PWD Example at https://truthfulkindness.com/2015/06/23/impact-example-respond/ ;

 

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Time and Energy at https://truthfulkindness.com/2015/07/20/time-energy-consumption-dementia-symptoms/ ;

 

819 blog Grmy 20150901a 4in150ppi

 

Best-of PWD at https://truthfulkindness.com/2015/09/01/best-of-person-with-dementia-pwd-gone/ ;

 

lion-clock-courag-20161223-copy

 

Minute at a Time at https://truthfulkindness.com/2016/12/23/min-at-time/

 

 

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2017-01/12. Search terms: dementia, priorities, identity, quote, moment.

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Learned During 2016, for dealing with my own dementia symptoms

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SUMMARY:
(There can be many similarities in dementia symptoms, depending on type of dementia.
But remember that every individual’s swiss-cheese holes can be different.
These are discoveries applicable for ME this year,
so it is possible they might be helpful for someone else.)

Communication/ Relationships:
Strategies for when both husband and daughter away from house.
Names are a temporary adaptation, for people, animals, and objects. So find adaptations.
Set time limits for each visit, whether at my home or yours.
Relationship with various belief systems may revert to earlier status.
Effective communication can be a stigma-preventative.

Arts:
My music can be either individual instrument or voice, but rarely both together.
Playing “pentatonic” instrument can be almost addictive for me.
Even tho no longer ability to do certain crafts, seeing those supplies still triggers my creativity.
Find strategies to complete or embellish “borderline” projects.
When low abilities, watching movies is limited to oft-repeated shows, or scenery with no words.

Medical:
Tiny strokes can carry a blessing of learning how to best prepare for next step of progression.
Various purchases I have found helpful

 

Below is the DETAIL for above summary:

Communication/ Relationships:

  • Strategies for when both husband and daughter away from house.

1). If both husband and adult daughter gone (to work, etc) for more than a couple hours, I have call-in system.  If I do not call/text assigned person on the hour every hour, then they will attempt to call me.  If they cannot contact me then someone will drive over to physically check on me.
2). Son bought chalk-board for entryway, so I can remind myself of where husband has gone and when he will return.
3). Husband has bought his first-ever cell-phone this year, so that I can call him when needed.
4). Daughter posts schedule for her and grandsons on the fridge, so that we minimize scheduling problems.

  • Recently discovered more problems with names. Name REPRESENTS identity – it is not the identity itself, so do not panic.

1). Went thru all the red tape and $500 to legally change my name nine years ago, on my 50th birthday. Now sometimes I am not responding until I am called by my birth name of Belinda or my nickname Bindy.
2). I named my new Service Dog trainee “Partner”, but do not remember his name and call him “Hero” (my first SrvDog) – so now quit trying to remember new name and he is “Hero Partner”.
3). Sometimes not understanding the verbal selections for foods. These are the times that I will need a “cheat” book of pictures for what the standard side-dishes look like, because I may not recognize the words for “french fries”, “hash browns”, etc.
4). Since I often do not recognize husband in social environment, dog has been trained to find him.

  • Whether at my home or yours, one hour must be the time limit for visits, or consequences are too severe for balance beam of cost vs benefit in the visit !! Maybe I should make a sign for entryway.
  • Decorating “Christmas” tree stands large in my emotional context of family memories, and since I am repeatedly asking why I cannot have one, I decided to resume it despite knowing that I have theological “reasons” for quitting the tradition.
  • I think that communication is primary pivot-point for all the major topics surrounding the “dementia” issue today, one of which is stigma. Suggest we change the conversation from how can we “avoid” stigma for Persons With Dementia … into how can we ENCOURAGE respect for Persons With Dementia? Preventing or resolving these issues requires effective communication between persons who have dementia, and persons who do not have dementia. Too often folks do not realize communication is possible, then they need to learn tools to maximize the possibilities.

 

Arts:

  • Sound distortion has progressed to the point that I may enjoy ONE or at the most two vintage songs on my Favorites list. I can never handle music simultaneously with movement or talking from other people.  I can seldom handle music with more than one instrument, so enjoy a cappella and solo instrumental most.
  • Because the notes in the Pentatonic scale all harmonize with one another, there are no wrong notes. This year my husband gifted me with a Hapi Drum. The tone is similar to singing bowls or musical bells; another soothing pentatonic instrument to go with my lap harp, which has also been revised to a pentatonic scale.
  • Creating makes me feel alive, so I want to THINK that I can do sewing and stuff for as long as possible (even after I am not really capable of doing it).  At this point, My tremors have become too severe to do any kind of painting, or mixing for designing fragrances, without help. My memory for the beginning process of crochet has become poor enough that I now often need help with the cast-on process of new project. We bought sewing machine early 2016 … which has never been used. … and I do not feel bad about it, because seeing it there is HELPFUL for my health !! Even if I never have another day that I both have time and am capable of using it.
  • I have a box for almost-complete projects, and projects that only need embellishment. This is for when I need to craft, but do not have much capabilities available. One element of this box is rather “empty” coloring pictures, that I can fill with zentangle patterns … THEN color. This creates a picture that is more entirely by me, because I created much of the design inside the very open picture which I started with. An example of “Zentangle” is included in the Links.
  • Film: Flashbacks, sub-plots, and multiple characters make it difficult for me to enjoy movies and shows, unless I have seen them many times. So on my cognitively highest-connecting days I will be adventurous and try new movies and shows, in order to get a larger listing of options for lower days when I need a repeat performance in order to enjoy watching TV. On my worst days, I enjoy scenery with music, or the webcam at Monterey Bay Aquarium. (See link in listings at bottom of entry).

 

Medical:

  • Tiny strokes have given me an opportunity to prepare for symptom progression in a gradual way.  Compensation strategies and projects previously assigned to “the week after” gradually become integrated into my “new normal”, then new lower-level strategies/projects need to be found for during the week after an event.
  • Because phone reminders are too numerous to be constructive, have resorted to alarm clock for sleep meds
  • Cooking times chart on microwave, but problem remembering to use cooking glove (and HOW to use potholder, when scrambled). Had used pre-measured motel coffee packets & motel-sized coffee pot. Now using Toddy Cold-Brew Coffee which means nothing hot to maneuver.
  • We use blue-lid storage containers now for foods which meet my dietary restrictions, foods that do not meet those dietary restrictions have red lid. Cupboard doors removed in section of kitchen that holds supplies I use. (In son’s house, he painted cupboard doors with chalkboard paint, and that might be an option at earlier stages. It no longer works for me.)
  • …. Non-spill mug for me (16oz Aladdin Insulated Plastic Mug $11 Amazon)
  • Walker tray, so that when I am unsteady and need walker in house, I can carry things with me. (Yunga Tart Walker Tray on Amazon for $21.50)
  • EZ Laces No-tie, reflective, elastic shoe laces ($8 on Amazon).
  • Lots of wonderful night lights 😀
  • Fender Musician Series Ear Plugs – only the bullet-type work for my ears with extra-small canals ($7/pair on Amazon)
  • White Stag Women’s comfort-waist pull-on pant ($17 Amazon)
  • BSN Syntha-6 Isolate PROTEIN powder drink – Ice Cream flavor ($30/24 srvgs Amazon.

Remember:

Every aspect of life has a balance beam of cost vs benefit, and must be analyzed according to individual priorities of life. – Truthful L. Kindness 2016-12/30

 

LINKS:
https://truthfulkindness.com/2016/11/30/symptom-progression-strategies-2016-dec/ ;
https://truthfulkindness.com/2016/01/26/import-communication-pwd/ ;
http://hubaisms.com/2015/08/05/some-things-you-might-do-before-you-have-cognitivedecline-mindmap/ ;
https://truthfulkindness.com/2016/03/29/stigma-or-respect/  ;
Arts LINKS:
http://www.montereybayaquarium.org/animals-and-experiences/live-web-cams/open-sea-cam
MUSIC:
https://truthfulkindness.com/2015/08/25/music-is-connection-dementia-symptoms ;
https://hapidrum.co/hapi-drum-mini  ;
https://www.amazon.com/Mid-East-Nevel-Harp-with-Case/dp/B001D1WZ12  ;
https://www.youtube.com/watch?v=aub51qOyGtQ&feature=youtu.be  ;

ZENTANGLE: examples: https://truthfulkindness.files.wordpress.com/2014/10/20130723-zt-copy.jpg ;
Zentangle patterns: http://tanglepatterns.com/ & https://www.pinterest.com/tkindness/7454-doodles-n-tangles/ ;
Zentangle OPEN patterns2fill: https://www.pinterest.com/tkindness/745-open4-zentangle/  ;

Graphic: This “2016” frame by Sandy Hunter, specifically designed for filling with Zentangles.
Then I picked patterns for each digit of “2016” at http://www.tanglepatterns.com/
“2” filled with “CloudFall” by Linda Farmer (this pattern is almost too complicated for me);
“0” filled with “Pixioze” by Margaret Bremner, from design on hotel carpet;
“1” filled with multiple patterns;
“6” filled with “Florz” pattern by Marie Thomas

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-12/31 with 20hrs invested. Search terms: dementia, strategy, communication, arts, relationship.

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This Holiday Season Context of History and Symptoms

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As little girls, others played with their Barbie dolls.  Instead, I created my index cards of historical and Biblical events.   I love history; history of words and history of events.   So I guess it is only natural that I devoted about 10 years of my life to Family History.

So, for me the Holiday Season is very wrapped up in Family memories, context in ancient scriptures, AND Family History.  My holiday season begins with ThanksGiving, and stretches thru to the twelfth night of Christmas, January 6.   So, while many of my friends have removed their holiday decorations by now, for me this is the middle of the Chanukkah/Christmas season.

This year’s changes in Holiday celebration.

  • Eight years ago, I began worship in the Jewish “Reconstructionist” tradition (but, for me including quite a few beliefs from Messianic, Chabad, and mystic Kabbalah). I remember that I have a theological reason, but when I ask why I quit having a tree, I forget the answer within a few minutes. I really enjoy the colored lights, ornaments, and tinsel, so with my extra tummy pain and fatigue from Lyme treatment this year, decided I would now resume the tradition of a tree.  This is my first Christmas Tree in almost 10 years (a German tradition, so it is in honor of my German paternal grandmother, Florence Michaelis). Since she used a plastic tree in later years, my grandmother often kept her Christmas decorations up until Candlemas on February 2, which was not surprising given both her parents were from Germany.   Then she sometimes switched ornaments and tree was full of Valentines for February. One year, the first day of March she replaced the Valentines with stuffed birds set inside nests she found prior years, and put her tree away the end of April, LOL. I especially enjoy the memory from the one year my workaholic father was home for decorating the tree. That year I was 11 years old, shortly before his cancer diagnosis, and he was too sick to work. We sang Carols as he lay on the couch, looking in the eyes of each one of us individually as he handed us each ornament. … So a decorated tree stands large in my emotional context of family memories, and I decided to resume it despite my theological “reasons” for quitting the tradition. This year, our tree ornaments will be removed and the tree will be taken to the porch for eventual re-potting … on the 12th day of Christmas; January 6.
  • I am trying to find holiday songs in a form I can still enjoy despite dementia symptom of sound distortion – so looking for either solo instrumentals, or acapella voice.
  • Since our children have become adults, we mostly quit giving holiday gifts – except for our young grandsons. But this year, during weekly Family Chat with Harry’s dementia Forget-Me-Not group, husband gave me a gift; a mini HAPI pentatonic drum. This has vibrating tongues of steel creating notes of sound, arranged so that each note is surrounded only by notes that are musically compatible with that individual note. The tone is similar to singing bowls or musical bells; another soothing pentatonic instrument to go with my lap harp.
  • As my dementia symptoms have progressed, so has my intolerance for noise and bodies around me. So, while a few years ago I could enjoy longer visits from loved ones, this year I discovered need to have visits limited to less than one hour, and fewer people. Must make restriction despite mutual enjoyment of spending time together, otherwise consequences are too great. I expect that time restriction will continue to increase as my symptoms progress.

 

LINKS:

819 blog 20151214a spiritl 4in50ppiLast year’s Holiday update:  https://truthfulkindness.com/2015/12/15/spiritual-journey-dementia-symptoms/

Drum: www.hapitones.com  & demo at https://www.youtube.com/watch?v=cKdesbJiz0M

12 Days: https://en.wikipedia.org/wiki/Twelve_Days_of_Christmas

 

OTHER by PWD:

Laurie Scherrer: https://dementiadaze.com/2016/11/29/dementia-christmas-tree-analogy/

Kathleen Anduze: https://vimeo.com/193966991

George Rook: https://georgerook51.wordpress.com/2015/12/15/boing-boing-boing/

George Huba: https://hubaisms.com/2015/11/24/dementia-and-big-family-holidays-mindmaps-on-the-enjoyment-of-all/

Judy: https://www.facebook.com/208968049513072/photos/a.209532316123312.1073741828.208968049513072/216031178806759/?type=3

Jean Lyon: https://www.facebook.com/truthful.kindness/posts/10205052286285391

Myself: https://truthfulkindness.com/2015/12/22/drt-background-noise-2015-12/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-12/27. Search terms: dementia, holiday, Christmas, celebration.

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A Minute at a Time

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Tru here.  7:30am.  This entry started out as a FaceBook update, and turned into a blog entry.
Started this latest bout of Lyme treatment 10 days ago (on Friday the 13th).  My tummy is now queasy more and more of the day.
Today I feel horrid … and have not even started my day.  Since it is the day before holiday activities begin, today promises to be one of those with strong challenges even if I did not have concentration complicated by neurons too “busy” by dealing with pain signals to carry my thoughts.  … and even if my thoughts were clear and not complicated by dementia symptoms of various kinds.
Ugggh ! It is one of those weeks that is not a day at a time, but an hour or a minute at a time.
“Okay Tru, accept what is … (for these next few minutes) then >> focus on what IS possible, get out of the pity-party ditch and get started doing it !!”
Getting STARTED on days (or even hours / minutes) like this, without the debilitating platitudes of denial, is one of those times I will accept the “Courage” award.  It is now almost 8:30.  Starting graphic for this blog entry, and at 9am or 10am, YOU get the award, because maybe my challenges will have decreased by then … okay?  LOL  😀  — Tru
(Found free coloring pic at http://www.momjunction.com., then with photoshop I added the clock from my desktop.   Later in the day, when I am too debilitated to tackle any of my projects, I will add some doodles to my lion clock, and color it.)

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-12/23. Search terms: courage, pain, pity, discouragement, dementia.

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I Soak

Tru here.  After several prior bouts with tick-borne diseases of Lyme and Babesia, due to another exposure i am now going thru the extra fatigue and nausea from Lyme treatment AGAIN.

When life gets overwhelming, i soak.

… i soak my aches & pains … in the spiritual water of prayer communication (different than just request, with many periods of no words; where i am just soaking up the feelings).

… i soak my dry worries … in the refreshing water of meditation (since meditation and worry are two sides of the same coin).

… i soak the discouraging aspects from my day … in the encouraging awareness of blessings.

…  and WHILE i am doing these things,  i soak my moments … with the soothing (yet invigorating) touch of warm water and personalized fragrance, carressing each cell of my body.

I SOAK, then i drain the dirty water; I drain away my pains, worries, and discouragements … leaving my soul and body soothed, refreshed, and smelling like me again.

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As you can see from photo, husband has already invested many hours in sanding, staining, and putting water-resistant finish on doorsills, window sills, wainscoting,  and special planks under the tub.  Woodwork is not quite finished enough to add the chair rail, edgings, and handrails, but …

Son’s visit during Thanksgiving holiday gave an assistant for my husband to help move our clawfoot tub around, hook up the plumbing, and arrange for me to use it.  So i no longer need to climb stairs in order to soak.  Happy Lady for Thanksgiving blessings !

 

I plan to make a poster of these thoughts, to remind me how much i enjoy bath time.  (Because sometimes each one of us can get stuck in the ditch, and postpone or neglect the important things of life — such as renewal.)

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-12/20. Search terms: renewal, encouragement, Lyme, dementiaMyFreeCopyright.com Registered & Protected

Symptom Progression and Strategies 2016 December

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Tru here.   I realize it has been a month since I have last written a blog.  There is a good reason these have been less frequent;  Doctor and I just call them “events”, but current theory is that I am having tiny strokes.  This is supported by my MRI, and part of my current diagnosis is “mild to moderate cerebrovascular disease”.

First event was probably mid-February 1999 (year before they first pulled my driver’s license and awarded me permanent physical and cognitive disability).  Most recent was about 10 days ago.
Frequency has slowly progressed from every few years, to every year, to every few months … then every month, and now three events in six weeks (every two weeks).  Consistently, after each event I experience almost a week of dramatic fatigue and more severe cognitive symptoms.  So currently I am at 50% of “my new normal”; one week on … then one week off.  The day after an event I will sleep almost 24hrs, then need progressively less sleep every day until I am back to my normal sleep needs in about a week.
So some compensation strategies have been needed:

ALONE:  If both husband and adult daughter gone (to work, etc) I have call-in system.  If I do not call/text assigned person on the hour every hour, then they will attempt to call me.  If they cannot contact me then someone will drive over to physically check on me.

CLOTHING:  During the week after an event, I am more likely to have problems dressing.  I find my tool of adding a heart with permanent ink on top back of my underwear, and yarn loop on top back of all my turtlenecks really comes in handy, because I have a more difficult time orienting the piece of clothing to how it belongs on my body.  These things tell me where the top back is for each piece of clothing (and make it easier to hang on the hook night before).  At this point in progression, once I correctly orient where the clothes fit on me, I can get them on myself.  During that week, we need to be really diligent about leaving wardrobe doors open so I can see the hook where I hang my clothes for the upcoming day, and my drawers are always left open in step-over fashion, making my underwear, socks, etc visible in the various drawers of my antique wardrobe.

CRAFTING:  I don’t try beginning a new crochet project during the week after an event, because I often forget how to “cast-on” during that time.  Instead I will work on projects that I have already started.  During my “normal” days, I am very busy with family and advocacy projects, or with more detailed craft projects such as frilly crochet collars or gifts of fragrance, but during the week after an event I am incapable of my more complicated projects, so then I indulge some of my more time-consuming projects like Zentangle and coloring.  I can add Zentangle-doodles to coloring sheets that I have printed on thick paper (like VERY simple basic shapes of blank coffee cups or gingerbread house frame) then color embellished Zentangle projects that I created.  One crochet project for “later” is a bought black open-work lacy crochet jacket, which I have embellished with light purple crochet ruffles along the edges of front, neck and sleeves, only leaving a bits of it unfinished in various places … so that I can feel the accomplishment of finishing a beautiful project, even tho I would not have capability at that stage if it was not mostly done.

FILM:  Absolutely no movies or TV that are “new-to-me” are comprehensible at all, during the week after an event, but I enjoy scenery film and after the first day or two I will enjoy oft-repeated movies (for me, including Ice Age series and John Carter of Mars — since my husband and I spent hours reading Edgar Rice Burroughs or Louis L’Amour aloud to each other during years gone by — or one of the classics such as My Fair Lady).  So, since my frequency increase has made me more aware of need, I am trying to watch more movies during my “good” week, in order to have greater library available of often-washed shows during the week when my advocacy abilities are very low; when I have much more time available.  Need to find some of the Louis L’Amour movies on disk for my library, and some of the other classics — and maybe some with ballroom dancing, or sea turtles.

MUSIC:  My largest music change is that during the week after an event is when I will most frequently want my “Nevel” lap harp (which I have removed notes F and B from, creating a pentatonic instrument, see my video).  I can never handle music simultaneously with movement or talking from other people.  I can seldom handle music with more than one instrument.  I enjoy a cappella and solo instrumental most.  Even tho in my younger years I greatly enjoyed some of the more raucous groups like The Doors, etc, I can never enjoy them now — instead of sympathizing with the driving need in me (which still exists LOL) it intensifies my confusion and frustration.  During my best cognitive days I can sometimes handle symphony orchestra, but rarely for more than one or two songs.

READING:  The first few days after an event I cannot register any more than a sentence or two before words no longer make sentences but are only stand-alone entities … then things improve to my “normal” reading level (of ~5th grade comprehension) in about a week.  The last of that week, I will begin enjoying books that I have frequently read in the past.

TRAINING of Service Dog:  This on-again and off-again process has created huge complications in training of my 4-month-old service dog trainee, “Partner”.  Largest problem has been his terrifically high energy level at this age, creating need of physical activities to work off that energy in order to calm down and learn task.  So I have been working on getting him comfortable with the … walking machine (always forget name of it — one of my brain’s swiss-cheese holes).  So far, Partner will walk on it when the machine is off, and walk next to it when the motor is running … but not walk on it when on.

WALKING:  One of the events last month was during my mile walk along the ocean cliff (1/4 mile from our home).  I was using canes and developed weakness in left arm and left leg, nausea, and dizziness.  So I no longer go on walks alone … period.  I now use walker instead of canes when someone accompanies me on walks.  During the week after events, consistently discovered very unwise to walk half mile even 5 days after event, and when walking in the yard I have too often gotten trapped by moments of either extreme fatigue or simply too scrambled to move with coordination, so during that first week I no longer even move chickens to or from chicken house without checking in (both before & after) with someone either in the house or on the phone.  So about 8 days after event I will walk half-mile, and increase length of walk in increments (to avoid increased leg/foot cramps).  Since event frequency became every-other-week, my longest walk was 1.5 miles at 13 days after event.

WORDS:  Much more frequent problems in understanding meanings of spoken words during week after an event.  These are the times that I will need a “cheat” book of pictures for what the standard side-dishes will look like, because I may not recognize the words for “french fries”, “hash browns”, etc.

 

  • MIXED  BLESSING:  Looking back, I can see that a good majority of my “first-time” symptoms have been during the week after an event, so now new symptoms are not all that surprising.  Also, this process has given me an opportunity to prepare for symptom progression in a gradual way.  Compensation strategies and projects previously assigned to “the week after” gradually become integrated into my “new normal”, and new lower-level strategies/projects need to be found for during the week after an event.

Note:  I think this last event (about 10 days ago) hit my brain in an emotional area.  I am basically a very content and stable person, with few dramatic emotional swings.  My brain is one of the ones that has low need for serotonin, since it requires less of the chemical for me to “feel good” (and in fact, what many brains would see as exciting in a positive way, my brain perceives as negatively stressful).  But I did not even notice any of my usual physical symptoms during this last event.  I just began having wide emotional swings and went into the week of symptoms that FOLLOW each event.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-11/30. Search terms: changes, dementia, symptoms, stroke, strategy

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Fragrance Craft and my “Nose”

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Tru here.  Two years ago today, I wrote about “Arts ‘n Crafts with Dementia Symptoms”, so today’s topic is kind-of apropos.  Yes; I am still active in craft work, but, like with everything else, it requires constant changes and new work-arounds, due to progression of symptoms.

I realize my “nose” is going away, but newest loss is emphasized these past two weeks in my fragrance craft.

Discovered I have COMPLETELY lost the receptor for scent of sandalwood.  Just smells like nothing.  Rarely smelled “nothing” before — except when receptor goes out.  No scent at all!  When I opened the bag of spoiled meat, could not even smell the plastic from plastic bag — but the fumes practically knocked my sister over and she told me I needed to talk to doctor about it.  I really don’t mind losing the scent of spoiled meat, but losing scents for various essential oils for my own fragrance ?!  … ugggh!  Sandalwood, and I forget what else, but another bottle had absolutely no scent also; nothing — not even the plastic from stopper.  …  UGGGH !!!

…  *  …

For many years, I have combined essential oils to make fragrances for self and family (then added them to personal items like deodorant spray, shampoo, lotion, etc).  The last batch that I made for myself just ran out, and my previous bottle of aged patchouli oil had run out, so I opened my “new” bottle, which I had now aged 13 years.  Should have been wondrously woody and deep … but it was eight ounces of DISAPPOINTMENT.  The vendor has now gone out of business, and maybe this was inferior product; using leaves lower on the plant, or not taking the needed time to properly dry the leaves, because the patchouli never developed that deep amber buttery bass that I associate with aged patchouli.  It just smells like a floral (no deep sexy woods).  Of course this is much better than fresh patchouli, which I hate, but definitely not the base scent for my usual fragrance (( sad face )).  And I do not have more than 10 years to age more patchouli from a different vendor, so that’s the way it goes.  If I still had receptors for sandalwood then maybe I would increase sandalwood to compensate.  Instead I suppose I will delete sandalwood from my fragrance, and increase the vanilla beans.  Could also increase synthetic dark musk as compensation.  It will not be the same as usual … but then neither am I, so maybe it’s time for change.  Since I am losing the deep sexy note from patchouli, along with the woody note from sandalwood, decided to switch lighter and try synthetic baby powder note instead.  With my balance complications, I am no longer rappelling alongside waterfalls or rafting thru the rivers, LOL !

 

“Tru” 2016 fragrance:

Essential oils by priority amount: Rose, Patchouli (aged >10yrs), Lavender, (teeny tiny bit of: YlangYlang, Orange, and Lemon) then add aged Frankincense.

Waiting for Oakmoss I ordered (altho new restrictions make oakmoss absolute more precious, and must be at low concentration for use on skin).  Have never used it but great anticipation, especially since my patchouli fell thru and Sandalwood not really an option.  Roman chamomile is another that does not age well, so cannot keep on hand, but if I can find some that does not cost an arm and a leg, would like to add a few drops of that also.

Add synthetics: Dark Musk, Baby Powder and seasonal (Autumn/Winter= apple, cranberry, and gingerbread), (Spring/Summer= raspberry, blackBerry, and coconut).

Add Vanilla Beans split lengthwise into bottle while it “blends” for six weeks.

Links:  2 years ago https://truthfulkindness.com/2014/10/28/arts-crafts-dementia-cooking/
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-10/28. Search terms: changes, craft, dementia, olfactory, symptoms

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1-week progress with Service Dog Puppy

 

20160924-playdate-1stday-by-mlgp-3in100ppiTru here.  Best time to begin training for a Service Dog candidate is 7 weeks of age (altho that is younger age than many reputable breeders are willing to separate mother and puppy).  Husband and I drove to pick up “Partner” Labra-Doodle at 8-weeks-old, and this photo was taken on his first day with us.  Had him one week now, so he is currently 9 weeks of age.

At seven weeks, it is said that the single best “test” of Service Dog trainability, is voluntary retrieve.  At eight weeks, Partner brought the item back four times out of four, for first try at the command.  You might say I was encouraged and excited !!  If puppy does not retrieve item, that does not mean he will not be good candidate, but if he DOES retrieve item, then chances are very high that puppy is highly motivated to partnership thinking with a human.

In one week, Partner’s single most important response is that he has learned importance of voice words.  Like most species, dogs have an intricate
language, but voice is not primary language —  body language is primary communication.  So learning that voice with words are primary communication is a very VERY big deal.  After one week of work, Partner now responds pretty well to his name and the command “potty”.  Not completely reliable on them, but I do not expect total reliability at this age or stage of training.  Began new command of “sit” a few days ago, and he is learning that well also.  Since he sits so often now, newest command is “RELEASE”, saying that most recent command has now finished.  My hand signal for “RELEASE” is a hand sweeping from myself outward in an arc.

At this age, command of “Potty” and name are just simply the easiest to teach.  Any time he is in process of pottying, we repeat “Good POTTY” in a high, up-beat happy tone.   To start with, I only used the POTTY word while he was in process of executing the command (or the term becomes meaningless).  Now that he is beginning to understand, have added “Lets go POTTY” when leaving the doorway, and the encouragement/reinforcement of stating “Good POTTY” while he is going.

For hand signal, I usually snap my fingers or pat my hip when giving name command (depending on circumstances and how well sound will carry).  Have yet to add hand sign for command of “Potty”, but it will be American Sign Language symbol for “restroom” (since that is what our family has used for many years, and I can remember it easily).

Since my husband was counselor at school for the deaf, and family has used small bits thru the years when communicating with full mouth or across a busy room, hand commands for our family dogs have traditionally been a mix of “standard” dog-training commands, and American Sign Language.

One of the next commands introduced will be “LOOK” with two of my fingers pressing immediately below my eyes.  This is an important command for training time.  The other will be “STAY” (which I first introduced a few minutes ago).

Associated Links:

SrvDog 20160816a 3in100ppi

Choosing a Dementia Service-Assistance Dog at https://truthfulkindness.com/2016/08/16/choosing-a-dementia-service-assistance-dog/

 

 

Joan Froling’s notes for Temperament Testing at http://www.iaadp.org/temperament.html ;

Tracey Martin’s suggestions re puppy prospects at http://www.psychdogpartners.org/resources/getting-a-dog/pick-puppy-service-dog-prospect ;

For past 20yrs, I have used basic ideas from Teamwork “Top Dog” series for training at http://www.activedogs.com/product/89/teamwork-service-dog-training-dvd/ ;

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-10/03 with 2hrs on text. Search terms: dementia, Service Dog, training.  Photo copyright my niece Miriam on 2016-09/24.

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No Meaning for Words

blog 20160906 fries copy

The waitress spoke;  “Thank you, Ma’am.  Do you want french-fries, hash browns, or onion rings to go with your meal?”  … But I could not bring up memory concept for any option but onion rings, and that was just round crunchy things that I knew I could not have.  The other words had no meaning.

Newest challenge is lack of word recognition when spoken.  Words flow over me and around me, but I do not recognize them.  In conversation, or giving selection at restaurant, I recognize the word with sensation of deja-vu, knowing that I should have a concept to go with the word, but no picture, flavor, or memory appears to match the word.  Need to bring pictures  when ordering from menu, for times when I cannot recognize some of the basic food words.  I discover that when this happens too much in conversation, I just kind-of check out.

 

Detail:

Tru here.  FINDING words has been a problem for a long time.  Lack of reading comprehension has been a problem for a long time.  But not having a memory concept for familiar words is a new challenge.  Twice this week, husband needed to show me what french-fries were, and the other options to go with meal.  He used pictures on the menu.

Prior to this week, Most of my word recognition problems in conversation have been related to speed, accent, and delivery of words spoken.  And I don’t think this is a common problem amongst my friends, so it has me stumped.  Now I am discovering that even if the word is spoken slowly, with pauses to let my brain catch up, I am still not remembering meaning for familiar words spoken by my friends and family.  I think it has been happening for a while, but only realizing it now that it is getting worse.  In conversation, words flow over me and around me, but I am unable to find any concept to match the words, lose the train of thought … and drift away.

The words are familiar and I know I should have a concept to go with them, but nothing is coming … and the person just keeps talking and I am left further behind.  Hoping they will say something that I can again catch a thread for what we are talking about, I will usually desperately continue to listen for a while.  And yes; there is the gathering sensation of desperation.  If this is a close friend, and a private conversation, then after short while I will say something like, “I have no idea what we are talking about, can we try again?”  If that doesn’t work I will say, “I am not getting this topic, we need to talk about something else.”  If there are more than 2 or 3 people involved, then I think desperation gives way to despair … and I just mentally check out.

 

Related Links:

819 Blog commun ECT 5in200ppi

https://truthfulkindness.com/2014/12/12/suggestions-understand-audio-communication-dementia-symptoms/

 

my thots 20140929 a4in300ppi

 

https://truthfulkindness.com/2014/09/29/my-thoughts/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-09/06 with 2hrs on text plus 1.5hrs on graphic. Search terms: dementia, MCI, aphasia, conversation.

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Choosing a Dementia Service-Assistance Dog

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SUMMARY:

TASKS : 1 = Disoriented at home or public place >> Center >> Redirect >> “Find” husband; 2 = Disoriented during daily walk >> “Find” home; 3? = Balance-Assist;  4? = reminder to stop before crossing road while on daily walks;  5? = cardiac-alert for stroke; 6? = prevent convulsions from blood-sugar crash by meal reminder;  7? = smoke-sensor when away from home (vs smell-hallucination).

TRNG: Self-train.

AGE indicator: under 3 years old

SIZE indicators:  25-60 pounds, if decide to go for “balance-assist”, then goal will be 60-80lbs;  (Newfies are well over 100lbs, & that is way too much)

PERSONALITY indicators: fit description of “Partner”, promising candidate for Canine Good Citizen certification, focus on human partner;

BREED:  Prefer Poodle or Retriever mix.

PROVISIONS for dog safety and care: husband is back-up for feeding and all needed care for my dog;

PROFESSIONALS to consult: Veterinarian; med team (fam Dr, specialists); major places spend time (place of worship & businesses) >> “What is your policy for srv-assistance dogs during training stage?”

.

…  DETAIL:

Tru here.  What are my qualifications for this subject?  I owned dogs all my life, then trained & was handler for two wheelchair assistance-service dogs over span of 15 years.  I gave public presentations on Service Dog issues during those years, and for two years I represented service dog handlers at the County level.

When considering “Service” (or “Assistance”) Dog issues, usually the first topic that needs discussed is tasks.  If I truly NEED a service-assistance dog, then what other tasks can/should be done by my dog?  By definition, a “Service Dog” must be executing trained tasks that will mitigate my own identified dis-abilities.  Places of business do not have the right to ask what my dis-abilities are, but they DO have the right to ask what tasks the dog is trained for that will mitigate those dis-abilities.  So what should those tasks be? (What exactly does the dog DO that increases my independence?)  My primary task has already been pre-determined, as that was the need which led me to seek another Service Dog.

TASKS (in order of priority):
1! = When I become disoriented at home or public place (not recognizing husband at restaurant or shopping, like happened during June, July, and August – Link #1 below, or disoriented at home like happened in bathroom during May – Link #2 below) >> dog’s task is to: “Center” and Redirect patient (psych task) >> “Find” and lead me to husband or whomever is providing “care”. (This is a “memory” task since I am not recognizing who he is or where I am at);
2! = When I become disoriented during daily walk >> dog’s task is to: “Find” and lead me home. (This is a “memory” task);
3? = IF I decide to go for a larger dog, then third priority would be balance-assist (“mobility” task); including “brace” to assist standing from sitting position, and probably walking harness while walking (instead of current canes or walker).
4? = IF I decide to go for a larger dog, reminder to stop before crossing road while on daily walks would be very important (discovered I no longer think of stopping, so important task in order to retain independence).  Solitary walks are also one of my major responses to stress, so want to retain that independence as long as possible.;
5? = cardiac-alert >> Response…  for stroke (“medical alert”) see Link #3 below.  This task can be tailored if skill exists, but currently no way to “teach” it to dog that does not have the innate ability.  We don’t know what caused them, but my first service dog, Hero, could always predict my periods of extreme fatigue 30 minutes ahead of time, even notifying me from the other side of chlorinated pool and getting me out in time to get dressed and get to bus stop before I could not hold on to his lead.  ;
6? = prevent convulsions from blood-sugar crash by meal reminders every 2hrs (“memory” task).  There are diabetic dogs, (which would come under “medical alert” category) but training that task is said to require high food drive, and that is something I wish to avoid;
7? = smoke-sensor when away from home (I usually assume any smell of smoke is a hallucination, so for me smell is useless as a warning);

Note that I do not believe in depending on a dog to prevent me “wandering” (when I get to that stage) — altho the dog’s behavior might be helpful.  See Link #4 below by Joan Froling.

TRAINING: Service dogs for dementia tasks are available to be trained by several organizations, but none are local, and I would prefer to go with my own standards and procedures anyway.  I self-trained two wheelchair service dogs in past, and with my dementia symptoms, I cannot afford to wait long for beginning the process, so I will be finding dog (probably as a “rescue” … but possibly as young pup from breeder) and self-training this dog also.  My primary training techniques are from the “Top Dog” series called “Teamwork” (for dis-abled persons to train their own Service Dog tasks).  Link #5 below.  Advantage of breeder would be more knowledge of medical and temperament backgrounds for parents and grandparents.

AGE:  Needs to be either a puppy or a young dog (prefer under 2yrs old, but up to 3yrs if ideal candidate in other aspects).  With my dementia symptoms house-training will be much more difficult, so prefer past that stage of puppyhood if possible.  Trade-off: young puppy easier to train tasks and stronger bond, but if young adult, then trainer is better able to ascertain joint integrity and better able to guess whether their personality will enjoy life as a Service Dog.  Hero was rescue at 2.5yrs with ideal temperament for Service Dog, in contrast Blessing was young puppy from reputable breeder … she was extremely smart, but her temperament would have been more suited to an athlete than having a heart for service or partnership.

SIZE:  For balance-assist task, I prefer a dog that has half the weight of handler, or more.  So IF I go for larger dog, 60-80lbs would be target weight, with height approximately 26″ at shoulder.  If I do not request mobility assistance from the dog partner, this allows me to search for a smaller dog, who will easily fit in front of my airplane seat and under the restaurant table.  However, walking 10 miles a week in this pet-heavy community, I need a dog who will avoid triggering prey drive in larger dogs.  I also need dog who is heavy enough to give momentum when leading me on “Find” command.  I think anything larger than 25 lbs and less than 60 lbs would be ideal for “smaller” dog.  Dog needs to be light enough weight that husband and I can handle their care during later years of dog’s life, so cannot have another Newfoundland.

PERSONALITY:  Looking for a dog who will fit the description of “Partner”.  One who is not timid, but more motivated to please human partner than motivated by food or other canine peers.  One who will be (of course) interested in canine peers, but MORE interested in what his human partner is doing — unless the human is not doing or saying anything.  One who is active and would enjoy walks of 10 miles per week, but by adulthood will be satisfied to sit quietly during my meetings several times a day.  We live in semi-rural area where walks will include many different ages and types of animals and people.  Like me, many will have mobility issues.  Dogs, cats, squirrels, ravens, turkeys, horses and deer are not uncommon, along with possible issues such as skateboards.  Deer often bed down in side yard of our house, and I have pet chickens (who will be on other side of fence until or unless dog shows that it will not be a problem).   Personally, I need to avoid strong prey drive in my own Service Dog candidate, and would also like to avoid strong food-drive because I want it to be mostly driven by desire to please or (like Hero was) desire to meet a need in the humans around him.  Hero was known for discovering the needs in multiple humans around him, and arranging it where he could meet those needs (check out his story at link bottom of page).  Generally, for Service Dog candidate selection you want to avoid any “shy-sharp” tendencies, snappiness, anxiety, or over-protective bent.  Good question for part of that aspect would be, “How hard do you think it would be to train this dog for “Canine Good Citizen” certificate?  Ideally, the dog will ENJOY the gift of giving service, just as some humans enjoy giving service.  Some dogs have ability to train as Service-Assistance dog, but do not enjoy the role.  Those animals need to be pets instead of put in situation as Service-Assistance dog.

BREED:  Poodle was the first breed known to be used as service dog (guide dog for blind in 1600s — see Link #6 below), and Retriever mixes are currently best known for Service-Assistance Dog characteristics, but many breeds can be successful with the right circumstances.  Many breeds have been so thoughtlessly poorly-bred, that it can be difficult to find promising Service-Dog candidate.  Since I am currently looking at dog from a “Rescue” organization, must keep in mind that the dog’s history is always a possible issue with any rescue dog.  Because of that, I do not want a mix with breeds that are known for possible aggression, over-protection, anxiety or dominance issues.  Joan Froling has written an article on breed selection for SrvDog, found at Link #7 below.  My first copy of the 1980’s book, “The Right Dog for You” by Daniel F. Tortora PhD was used so much that it completely fell apart and is held together with large clamps, so we now have a second copy for loaning to others.  Link #8.   My Newf Hero was the ideal Service Dog, but I now need a lighter-weight breed, so prefer a larger poodle or somewhat-smaller retriever mix when getting a dog from rescue organization.  Link #9.  For many folks, length of coat would not be an issue (except for care-maintenance) but for me it is.  Since I no longer NEED a large dog, a smaller dog can be groomed locally, and with my personality, it will be much easier for a dog with a “fluffy” coat to get my attention when I am disoriented and confused.  In fact, even as a toddler I have been very drawn to poodle breed, so that is probably the breed mix which will be most successful at getting my attention for tasks of “Center” and “Redirect”.

PROVISIONS for dog safety and care: husband is back-up for feeding and all needed care for my dog;  Despite 15yrs with cognitive impairment, my dementia symptoms are definitely progressing, but still progressing very slowly with my IQ still “above normal”, so expect another 10yrs productivity before I hit severe symptoms when my dog will be solely under care of my husband.  Currently most of the training and care will be by me.  I trained two newfoundland service dogs for wheelchair assistance, and represented service dog handlers at County level for two years, so this is not an insurmountable obstacle.  The problem is that, just like my hunger impulse no longer works properly, back-ups need to be in place for feeding and other aspects of care.  Since I do not remember whether animals have been fed, watered, and where they are (unless I can see them) back-up for their care is crucially important !!

PROFESSIONALS: Have now discussed above options and factors with local Veterinarian and medical team (family doctor & specialists).  When traveling in air, may need letter from doctor saying you require service dog assistance, and stating what assistance tasks will mitigate your dis-ability.  Then, since by Federal ADA law every public area must admit fully trained Service Dogs, but each place of business can decide whether trainees are admissible, I need to visit the major places where I spend time (place of worship & businesses), asking “What is your policy for admittance of service-assistance dogs during training stage?”  See Link #10 for ADA Business Brief on Service Animals

 

LINKS:
1. Disorientation to person (husband) at https://truthfulkindness.com/2016/08/09/are-you-my-husband/ ;
2. Disorientation to place (home bathroom) at https://truthfulkindness.com/2016/05/08/first-time-of-where-am-i/ ;
3. Example of Cardiac-Alert at http://www.anythingpawsable.com/cardiac-alert-dog-saves-handler-from-stroke/#.V7Jk2p9TFaQ ;
4.  SrvDogs and dementia “wandering” article by Joan Froling at http://www.sterlingservicedogs.org/Articles/WhatCaregiversNeedtoKnow/tabid/82/Default.aspx ;
5. Teamwork “Top Dog” series for training at http://www.activedogs.com/product/89/teamwork-service-dog-training-dvd/ ;
6. Poodle SrvDog Hist at http://www.poodlehistory.org/PGUIDE1.HTM ;
7. Preliminary thoughts for Service Dog Breed (again by Joan Froling) at http://www.iaadp.org/breed.html ;
8. Book “Right Dog for You” by Daniel F. Tortora PhD at https://www.amazon.com/Right-Dog-You-Personality-Life-style/dp/B000Q938AY/ref=sr_1_1?s=books&ie=UTF8&qid=1471328639&sr=1-1 ;
9. Memorial for Hero the Service Dog at http://tribute.perfectmemorials.com/hero-service-dog ;  10.
ADA Business Brief re SrvDogs at https://www.ada.gov/svcanimb.htm ;

Good suggestions and Links for picking service dog prospects are at http://www.psychdogpartners.org/resources/getting-a-dog

My 3-part series in March of 2015: https://truthfulkindness.com/2015/03/03/animals-dementia-symptoms-1/; https://truthfulkindness.com/2015/03/10/animals-and-dementia-symptoms-part2/ ; & https://truthfulkindness.com/2015/03/15/animals-and-dementia-symptoms-part3/ ;
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright 2016-08/16.  Search terms: dementia, disorientation, memory, assistance dog, service dog.

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