Reading Clocks

Tru here.

Again, i can only speak for myself, but i suspect i am not the only individual with dementia symptoms who understands analog clocks (with numbers on round face) better than digital clocks (with only numbers).  i also suspect there will be progressively less of us NEEDING analog clock during coming decades and century, simply because i think digital clocks are used almost exclusively now; analog clocks dont seem to be needed and are “old fashioned”.

When i started school, all clocks were analog.
Clock pictures were all a happy round face with two hands.
That has changed with the years, to where most folks understand both analog and digital clocks.
But i think SOME schools may have mostly abandoned teaching time with concept of analog clocks.

Last week my computer needed upgrade to Windows 10, and
one of the things lost was the analog clock widget on my desktop.
…  Now i discovered i am having much more problems with time.
.

Digital clocks require ability to subtract, and
ability to keep in mind that we are working with 60 minutes as a complete unit;
not divisions of 10 or 100 as is customary.
… But i am losing those abilities.

.
… For ME;
i need to see that there is “this much” space before the long hand gets to the top of the hour.
i need to see that there is “this much” space before both hands are at the top of the clock and it is naptime.
i need to see that there is “this much” space before the short hand gets to the bottom of the hour, and night arrives.

—  ***  —

LINKS:
1) The issue of clocks in schools >> https://www.cbsnews.com/news/u-k-schools-getting-rid-of-analog-clocks-because-teens-cannot-tell-time/ ;
2) Microsoft has retired the feature in newer releases of Windows. Gadgets could be exploited to harm your computer, access your computer’s files, show you objectionable content, or change their behavior at any time. An attacker could even use a gadget to take complete control of your PC.  >> https://support.microsoft.com/en-us/help/13787/gadgets-have-been-discontinued ;
2) Found an analog clock app, but don’t know whether it is “safe” (carries any spyware, etc.)  >> https://analog.onlineclock.net/simple/

—  ***  —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 23, Thursday: DAA Discussion topic “Addressing Dementia as a Dis-Ability”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday; ADI Conference 2020: Alheimer’s Disease International is holding this year’s conference in Singapore, and it begins March 19.  >> https://adi2020.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 20Jan2020. Tags are: Alzheimers, Clock, Dementia, Organization, PLwD, Time, Strategy, symptom.

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Change in Lighting Needs

Tru here.

SunLight is very important to me.
i designed this house for maximum benefit of daylight.
All exterior walls have loads of windows, and doors are clear glass, along with a glass-enclosed wrap-around porch,
… but, until dementia symptoms arrived, at night i needed it very dark.

Before dementia symptoms i needed it very dark at night, but
now, because of nocturnal hallucinations,
i NEED to orient soon as possible when waking up.

Sometimes the hallucination-environment is super-imposed over my bedroom environment,
so need a bit of light to orient
— but not too intense that i cannot return to sleep.
(Interferes with melatonin secretion.)

Hope is to return to sleep — but not return to the ultra-vivid scary environment of my dreams.
With dim lighting i can recognize familiar shapes and items in bedroom or living room,
so it reduces likelihood of these things being incorporated into dreams
during this nether-time between sleep and wakefulness.

Minimum of 2 side lamps (wall sconces) on each wall, in each room of the house.
Each of these Lamps hold a 7-watt bulb, or are higher wattage but gold/orange in color.
Having multiple low-wattage lamps helps eliminate shadows that can be mis-interpreted as part of an illusion.

“Even dim light can interfere with a person’s circadian rhythm and melatonin secretion.
A mere eight lux—a level of brightness exceeded by most table lamps and about twice that of a night light—has an effect,
notes Stephen Lockley, a Harvard sleep researcher. ” (per Harvard Health Publishing * — see article in Links below).

.

On 15 Sep 2014, Victoria L. Dunckley M.D., of Psychology Today, wrote:
“The healthiest light is sunlight or candlelight, followed by incandescent, then halogen, then LEDs, then CFLs.
I recommend that parents of children with psychiatric, neurological, learning, or chronic medical conditions
switch out all CFLs in the home for incandescent or halogen bulbs.”  (CFL is Compact Fluorescent Light * see article in Links below).

.

When evening arrives, the side lamps go on throughout the house.
Overhead lighting is turned off an hour or two before bed, to encourage a feeling of sleepiness.

((Another change is that i am No longer able to use flashlight; creates dis-orientation for balance, and i will fall. See Link at base of entry.))

Links:

This entry in video form >> https://youtu.be/g7epZpNqPVc ;

* >> https://truthfulkindness.com/2019/10/31/lrnd-power-outage/ ;
* >> https://www.health.harvard.edu/staying-healthy/blue-light-has-a-dark-side ;
* >> https://www.psychologytoday.com/us/blog/mental-wealth/201409/why-cfls-arent-such-bright-idea .

PS: it is difficult to understand how very long it takes me to write these days. began this entry 18Jun2018, and worked on it again 07Sep2018.  Spent 4 more hours on it 09Jan2019, then made some revisions, and created a graphic, but still cannot understand what i am reading well enough to know if it makes sense, so husband helped me finalize it on 12Jan2020.
.
.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 16, Thursday: DAA Discussion topic “Pros & Cons of Humor for PLWD”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia.  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”.  >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit.  The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference.  regarding Fronto-Temporal Degeneration.  Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 13Jan2020.  Tags are: Alzheimers, Dementia, Lewy Body, Lighting, PLwD, Sleep, Strategy, symptom.

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Verbal Greetings

Hello.  Tru here.

Holidays, New Year, and in fact every day that has social interaction is full of greetings.

1. Greetings can be very confusing;
if you are really just saying “Hello” … then please just say “HELLO” (or Good Morning, etc),
instead of confusing me by asking a question (ie: How are you)
then being frustrated when i take your time by answering it.

2.  Please don’t ask me “How have you been Lately?” (Yesterday is gone, so How should i know?)
That question first brings frustration, because reinforces the fact that i have no idea how i have been (in the past).
Then i must translate to a question that i DO have ability to answer, such as
How are you feeling (right now)?”, or “How are you today?” 😀

3.  If you ASK a question, then
be prepared for fact that it will probably take more than a few moments to compose words
translating my feelings into words.

4.  If you ASK how i am doing, then
do not be offended or embarrassed by the nitty gritty that i might not be doing well at all !
i am not asking for pity or “Woe is me, send me a pity-party”.
There must be truth for meaningful relationship,
and i am trying to uphold my portion
of what i hope is, or will become, a relationship
(even if it is a very brief relationship).
If i am doing great, then that is probably what i will say,
along with some of the highlights.
If life is skating from one catastrophe to another,
then that is probably what i will say, along with some of the highlights.

5.  * i am not a good conversationalist any more.
After answering your question, most likely i will be at a loss to continue the conversation.
It’s not that i am not interested or don’t enjoy your company
… i just have a difficult time transitioning into more ideas and social graces.
So please do not be offended if the conversation has elephant-sized pregnant pauses on my part.
Plenty of things that we could talk about, but i will probably not think of them,
… so the ball is in your court to keep the conversation going.

.

Links:

This entry in video form at >> https://youtu.be/lJriC971MdQ .
Part 1 >> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ .

Vids:

“Dementia Chats” on 14Mar2017  https://youtu.be/ldWJnMyjtEE & 12Dec2017  https://youtu.be/QJQqJU23-4c  .


* Husband added last paragraph (#5) but i recognize its accuracy.  Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright ©Truthful L. Kindness 2020Jan06. Tags: conversation, dementia, dementia relationship tips, greeting, PLwD, relationship .

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My Blog during 2010s

Tru here.

2019 is ending.  This week ends the 2010’s … and begins the 2020’s.  Sooooo …

Purpose for blog has been therapy and advocacy;
as personal therapy for my own frustrations,
and to help professionals, family, and friends better understand symptoms,
and assist in brainstorming possible strategies.

My most viewed blog entries each year have been:
.

2014

2014 was https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/

.

… and “Brilliant Scattered Conversation” at https://truthfulkindness.com/2014/09/29/my-thoughts/ .

.

2015

2015 was https://truthfulkindness.com/2015/07/07/feeling-left-out-with-dementia-symptoms/

.

… and “Self-Identity” at https://truthfulkindness.com/2015/06/07/self-identity-am-i-still-me/ .

.

2016

2016 was https://truthfulkindness.com/2016/01/26/import-communication-pwd/

.

… and “Where am i” at  https://truthfulkindness.com/2016/05/08/first-time-of-where-am-i/ .

.

2017

2017 was https://truthfulkindness.com/2017/01/25/film-review-for-alzheimers-every-minute-counts/

.

… and “Hallucinatins” at https://truthfulkindness.com/2017/06/01/hallucinations-forgetting/ .

.

2018

2018 was https://truthfulkindness.com/2018/04/09/bad-day-indicators-suggestions/

.

… and “to Neurologists” at https://truthfulkindness.com/2018/05/01/2-neurologists/ .

.

2019

2019 was “Context of Appearance” at https://truthfulkindness.com/2019/05/27/context-appearance/

.

and “Floating Words” at  https://truthfulkindness.com/2018/12/31/floating-words/ .

  —  ***  —

Began this Blog project July 2014.  With this entry, i have posted 215 blog “entries” and 310 “pages” dealing with dementia issues (plus 80 pages on personal things like Family History and Memoirs). Over 300 of those pages have been with contributions from others.  See https://truthfulkindness.com/index-persons-with-dementia-pwd/ and https://truthfulkindness.com/dementia-success-stories/ .

Someday, i hope that Professionals, Family, and friends of those with dementia will discover the value from Lived Experience stories about symptoms and strategies — then application of that information can help in relationships and task execution for so many aspects of life.

Best wishes for 2020 … for ALL of us !!!

Other Links:  About my Blog at https://truthfulkindness.com/about/about-blog-mailroom/ .

..
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright ©Truthful L. Kindness 2019Dec30. Tags: Best, blog, dementia, PLwD .

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Recent Additions 2019Dec 16

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

—  ***  —

My infections are finally clearing up, so i have a bit more energy.
These are pages recently added on my website:

.

Harry Urban “It’s NOT okay” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/not-okay/

.

… And added in my Spiritual Journal section is

“Prayer IS Action” >> https://truthfulkindness.com/about/life-other/spiritual/prayer-action/

.

Index for Other Contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/ ;

Index for Spiritual Journal is here >> https://truthfulkindness.com/about/life-other/spiritual/ ;
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 06Dec2019. Tags.

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Recent Additions 2019Dec 1

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

I have had a lot happening this year, so have not shared as much from others;
it all just takes ENERGY … but sometimes there are jewels too important to let slide.

A jewel recently added to my blogsite is from:

Jennifer Bute on difference between hallucination, Visual Misrepresentation and Visual Misinterpretations, at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/night-illusions/

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

  —  ***  —

… and Family History:

. Kilroy/McNeel/Beaton Line at https://truthfulkindness.com/about/life-other/family-history-index/r-u-beaton/

.

Petrin Line at https://truthfulkindness.com/about/life-other/family-history-index/swedish-farm-name/

.

Frey/Spencer/McMinn Line at https://truthfulkindness.com/about/life-other/family-history-index/sgt-a-patterson/

Index for other pages on FamHist here >> https://truthfulkindness.com/about/life-other/family-history-index/

.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 06Dec2019. Tags.

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Partner Praise

Some folks are astounded at how much i invest on Dementia Awareness.

The only way i can invest this huge amount of time and energy on dementia issues is with enablement from my husband/care-partner.

He is retired from full-time work, but has a part-time job, plus caring for me.

Husband does all the cooking, cleaning, finances, shopping, etc. … plus functioning as my back-up brain and back-up care for my animals (an important factor in their well-being since i often forget whether they have been fed/watered/put away).  Even tho i have notes on the doors to remind me, he often needs to remind me to wash my hands after handling the chickens.

Since my protein blend is such a big part of keeping my blood sugar consistent throughout the day, he mixes dry ingredients in 2-gallon container, then every week he creates the concentrated liquid for my protein – chocolate-coffee drink.
My control-area of kitchen is small because my kitchen responsibilities are minimal;
i dilute my protein drink to half strength (multiple times during the day),
i cook 1 Tbsp oats every day (in microwave),
and i re-heat foods that husband has cooked.

.

Cleaning is often a huge problem for me, because i do not remember where i have cleaned and what still needs done.  i try to keep  very strong self-discipline, but with dementia symptoms that is not always an asset.  Husband left for work one day with me washing the kitchen floor — when he returned i was still on hands and knees washing the kitchen floor – with painful body and tears of frustration because i knew that at least some areas of floor must be tremendously clean after all these hours, but could not remember where i washed and where i did not wash yet.  That was the last time i did any washing of floors.  I wash my own dishes, but he says i get dirty water on the clean dishes.  (I dont — but that is what HE thinks, LOL.)  I often break dishes when trying to put them away, so then we have glass all over the floor.  etc.

.

In earlier years i was the one responsible for finances, but since i no longer understand numerical concepts, he needed to take that over entirely. I began forgetting simple driving instructions (like how to make the car go backward), so husband drives me everywhere i need to go.

.

i still prepare my weekly pill-packs, but he runs oversight, making sure i remember to put clean towel under the processing area, wash my hands, etc.  If i am interrupted during task, he helps me figure out how to resume/finish the task.

.

his Part-time job (6hrs/week) is very flexible, allowing me to come to work with him on “bad” days, and allowing great time flexibility.  But the income is important for funds to travel for family needs, and when we have time for fun.
… also it usually allows him time away from me, doing his own thing.

.

Husband enables me to invest most of my time and energy in dementia awareness and advocacy.  If HE was not available to compensate for my dys-Abilities, then i would have no time or energy for dementia issues.  … So i try to make sure he gets a bit of “time off” also.    It is a partnership dance.  Even during the times when our “dancing” is just me moving my feet while he holds me up — we are still moving together.  (This photo is obviously not me, but i have no pictures of us dancing.)

“Effective Listening for Partnership” at https://truthfulkindness.com/2019/06/10/effective-listening-partner/ ;

“Service User” at https://truthfulkindness.com/2014/07/24/service-user/ ;

.
.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 12, Tuesday: Next Dementia Chats with Lori LaBey will be November 12.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 14, Thursday: DAA Discussion topic “Navigating thru Doctors”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 27/28 Wednesday: DAI November Webinar on “Beyond BPSD” with Al Power MD.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/events/dai-webinars/

 

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 11Nov2019. Began this blog entry 09Mar2019 then added 6 more hours invested on Nov10.  Tags are: caregiver, dance, dementia, Living with Dementia, partnership, PLwD, relationship

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Learned from Power Outage

Tru here on Thursday.  Today was our 6th day with no electrical power — and with my progressing symptoms i have new complications.  So this is what i learned.

Portable battery pack for cell phone was crucial during this power outage, in order to provide good family communication for any surprise needs.  Mine is made by Anker >> https://smile.amazon.com/gp/product/B00X5RV14Y/

In our town of ~7,000 ppl we had only one restaurant that was operating during the power outage, and only one grocery store.  That grocery store supplied breakfast buffet each morning during the power outage.  Do your research, and find out what local suppliers (including fuel suppliers) have a generator.

Since our 1932 Wedgewood stove runs on propane, we didnt need to worry about cooking, and we now have a fine wood stove to keep the house warm.  But life is calmer with a hot or cold drink in your hand, so suggest a couple high-quality Thermos bottles.  Get filled from neighbor, restaurant, or grocery store that has alternative power.  For me, my symptoms are better with hot chocolate, (But i am sure that is completely power-of-suggestion, LOL.)  Power outage can also be an excellent excuse to introduce yourself to the neighbors.  Our thermos keeps hot things hot for 36 hours.

Remember to eat and drink.  Blood-sugar fluctuations will definitely increase dementia symptoms, so are to be avoided if at all possible.  i keep some gluten-free, low-sugar, high-protein energy bars on hand for between meals, along with packets of low-sugar hot chocolate, and instant oatmeal.  This week, during the day that husband was gone, i forgot and used my normal gluten-free extra-thick oats — it didn’t work.  Then i forgot to drain the water that did not absorb into the oats before i added the milk.  … Not wonderfully appetizing, but keeps blood sugar from crashing.

… and the main issue was LIGHT:
A) My evening symptoms are more difficult when everything is different.  Many of my coping strategies do not work with different circumstances.
B) Discovered a moving Light (such as FlashLight) is VERY disorienting for me; shadows are constantly changing and my balance goes out the window.
C) Unless generator is on, then camping Lanterns and candles need set out in different areas of our house, or i will fall. (remember to set candles in fire-proof dishes on a fire-proof support).
D) Then we get to deal with the shadows from the Lanterns and flickering flame.
E) Discovered new challenge; our particular camping Lantern now triggers almost continual sound hallucinations for me.  One minute hallucinations are rap music (which i dont like), then DJ-narration, then moaning like a ghost, … and on and on for hours.
F) NEED to set up music i enjoy in a mode that i can be listening anytime Lantern is running.  i know there is a way to do that on my cell phone, but need to consider loss of battery power on cell phone also.  Need to find portable CD player that can play my comfort music when there is no electrical power.

i repeat my closing statement from what i wrote four years ago: This is just a lesson in WHY people say “be careful” and “be safe” when unusual circumstances occur. It is not that our family was not well-prepared for storm and loss of electrical power; it is simply that habit and schedule are important safety elements in dementia patient’s ability to complete activities of daily living. In unusual circumstances habit and schedule are interrupted.  https://truthfulkindness.com/2015/02/09/danger-of-unusual-circumstance-storm/

.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 7, Thursday: DAA Discussion topic “Dementia and HUMOR”, hosted by Chuck McClatchey. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 12, Tuesday: Next Dementia Chats with Lori LaBey will be November 12.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 14, Thursday: DAA Discussion topic “Navigating thru Doctors”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Nov 27/28 Wednesday: DAI November Webinar on “Beyond BPSD” with Al Power MD.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/events/dai-webinars/

 

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 31Oct2019. Tags are: dementia, emergency, Lighting, Living with Dementia, PLwD, preparedness, strategy, symptom

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Verbal Comprehension Strategies Part 3

Tru here.

A fully-understood conversation means i grasp the important parts AND the other person is comfortable that they got their point across.
The outline below seems to help ME.

—  ***  —

Last year i posted >>  https://truthfulkindness.com/2018/12/31/floating-words/ .
My challenges with verbal comprehension have continued and intensified.

… So husband and i have some current coping strategies, but we are definitely hoping more strategies will show up soon.

1) As discussed in Part 1, conversation needs to be: a) slow, b) clearly enunciated, and c) within sight, while d) watching for body language.  Also e) eliminate as much distraction as possible .
These strategies are covered in more detail here >> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ .

2) Longer PAUSE between sentences, and eliminating any un-necessary phrases, are two strategies becoming even more crucial.  Remember i am most likely to understand first bit of statement and last bit of statement, so including anything in the middle is counter-productive;
it clouds my understanding of what the subject is.

3) Try to make your first sentence a very short “subject” sentence.  This is similar to the “subject” heading in eMail format, and tells me where to find context for your words in my brain storage.  WAIT for any clarifying statements, until i have fully-registered your primary statement.  Otherwise i am still trying to register your statement, at the same time as i am trying to figure out how your words modifies that statement,
… so ALL of it is lost.

4) Sometimes a simple note or picture can make the topic much clearer.  Best-case scenario is BOTH note and short conversation.
Using more than one sensory system in conversation is almost always a helpful thing.
While telling me he was leaving, husband handed me this note: “Taco Bell for lunch with grandson … then taking grandson home.  i will return by 4:30”.  i had audio, visual, and textural input because i also had a note in my hand.  Plus … In a few minutes, when i have forgotten where he went, hopefully i will see the note.

5) Graphics almost always help.  We have discovered that Potential for future misunderstandings is almost always minimized by including pictures, maps, etc.  We were in the car and husband asked about upstairs wainscoting (lower-wall-coverings).  In less than a minute we decided the topic needed to wait until we were in the location, with paper and pencil.  Then we can both better understand each other, and there will be pieces contributed by both of us … and verified by looking at the paper.  When i feel that changes were made without my input … the paper shows my input.  We both initial the paper and file in construction folder.
Sometimes he will have me initial calendar items, which are then posted on fridge door.
It has taken a while to adjust to this process, but i think it is much better for our family dynamics
… at THIS particular stage of decline.
(In Later stages, i imagine this process could create more problems than it would solve.)

As Listed above,
Part 1 was initial suggestions
>> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ ;
Part 2 was intensification of symptoms
>> https://truthfulkindness.com/2018/12/31/floating-words/
… and this is Part 3

. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

THIS WEEK,
along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.

 

Oct 22, Tuesday: Next Dementia Chats with Lori LaBey will be October 22.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 23 Wednesday: DAI October Webinar on “Assistance Dogs for Dementia”.
Date/Time and more information is available here
>> https://www.dementiaallianceinternational.org/october-webinar-assistance-dogs-for-dementia/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 24, Thursday: DAA Discussion topic “Finding Purpose”, hosted by JohnRichard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19
>> https://teepasnow.com/pac-annual-conference/ .
.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 21Oct2019. Tags are: communication, conversation, dementia, Living with Dementia, PLwD, relationship, strategy, verbal comprehension ..

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Autumn with Dementia Mentors

Tru here.

—  ***  —

i feel priveleged to be part of the Dementia Mentors’ projects, and helping as Assistant Administrator.

  https://www.dementiamentors.org/

—  ***  —

Lots going on in our Dementia Mentors projects Lately;
We have a new group gathering during the week,
new personalized Mentor teams in the works,
new videos from several members,

… and also considering ideas for a Dementia Mentors’ COOKING booklet.

—  ***  —

NEW MEETING for Memory Café:

We have had several members ask for an additional Memory Café meeting.
Having an addition Café meeting time allows us to keep our groups personal and cozy.
We now have at least 7 gatherings for Persons with Dementia every week,
and an average of 33 meetings per month.

Wonderful to visit with my friends — in our Living Rooms, or kitchen,
… or with Laptop in back yard, LOL.

Please join us if you have the chance.
If you send me a message i can add you to the FaceBook notification list;
this way you will not miss a single smile, laugh, or tear.

—  ***  —

NEW MENTOR TEAMS:

We try to avoid having a Memory Café group chat turn into individual mentoring.
(One-on-one mentoring is the option for a member to speak longer time periods,
without needing to worry about sharing the time with everyone else,
because it is usually only 2 people.)

In general,
individual mentoring is also the appropriate option for more intensely personal topics
like some of the sex or hygiene questions.
Sometimes these questions can still be appropriate in a very-small group,
but few of our groups are small now.
We range from 5 members … to over a dozen members in group chat at any one time.

Individual Mentoring is an ideal opportunity to begin processing the grief and super-high emotions
that almost always accompany a dementia diagnosis.
Grief is a process,
and so is the learning curve for finding strategies to live happily in everyday life AFTER diagnosis
… and adjusting to the continually-changing “new-normal” of our life NOW.

—  ***  —

Dementia Mentors’ VIDEOS:

Elmarie Janse van Rensburg of South Africa gives us helpful tips on staying alone for short periods of time when living with dementia, at https://vimeo.com/showcase/3464118/video/362831539 .

Tim Perkins talks about dealing with apathy after diagnosis with dementia, at https://vimeo.com/showcase/3464118/video/363359890 .

Anne Miller talks about how certain things she has found help her … and playing music is one.  https://vimeo.com/showcase/3464118/video/364850226 .

Our Video Archive is here https://vimeo.com/showcase/3464118 .

—  ***  —

COOKING Booklet:

We are thinking of basic COOKING suggestions (hope to include some from the wonderful Barry Pankhurst), plus specific recipes used by our members.  So far we have volunteers for: Egg tortilla, 3-ingredient Muffins, Special Spicy Sauce, Snickerdoodles, Cobbler, BourbonBalls, and Home-Made Eggnog.   Heads-up to look for this … hoping by the end of 2019, but no promises.

—  ***  —

i feel priveleged to be part of the Dementia Mentors’ projects, and helping as Assistant Administrator.

  https://www.dementiamentors.org/

—  ***  —

. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

THIS WEEK,
along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.

Thursday Oct 17 will be another DAA Discussion. Topic will be “Financial Impact of Dementia”, hosted by Laurie Scherrer. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page >> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

… and LATER in October
you might want to clear your calendar for :

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

Oct 22, Tuesday: Next Dementia Chats with Lori LaBey will be October 22.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 23 Wednesday: DAI October Webinar on “Assistance Dogs for Dementia”.
Date/Time and more information is available here >> https://www.dementiaallianceinternational.org/october-webinar-assistance-dogs-for-dementia/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 24, Thursday: DAA Discussion topic “Finding Purpose”, with John-Richard (JR) as Host..

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19
>> https://teepasnow.com/pac-annual-conference/ .
.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 14Oct2019. Tags are: advocacy, blog, dementia, Dementia Mentors, Living with Dementia, PLwD, relationship .

MyFreeCopyright.com Registered & Protected

 

 

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