Perspective of HOPE

Posted on January 21, 2019 by truthfulkindness

What creates HOPE in your life ???

How can you create PATHS to fulfill that hope?

What SUSTAINS that hope in your life ??

Tru here.

Webster’s Dictionary says hope (as a transitive verb) is
1. to desire with expectation of obtainment or fulfillment ,&
2. to expect with confidence .

In my life, regardless of the struggles during any individual day,
HOPE is a necessary part of that day.
Hope is crucial to retaining enthusiasm for life during that day.

Hope is an ACTIVE process of keeping my life in a positive frame of reference.

…

Like too many others, there has been a lot of violence in my family’s experiences. So …

To keep a larger perspective
it is crucially important to have a note of “HOPE”
in each movie i finish,
in each book i finish,
and in each song i listen to.

If the movie, book, or song seems to lack hope, i quickly drop it; i do not finish it.
And only those items which convey a strong note of hope (in some manner) are retained in my library.

I try to spend more time with friends who look at life with hope,
than time with friends who no longer have hope in their perspective.
… Otherwise the relationship drain becomes too costly for myself.

I have no desire to lose motivation for life,
so i strive to keep hope in each part of EVERY day.
I cannot afford to lose sight of hope in my perspective.

I think most people’s lives are filled with
astonishing abilities AND dys-Abilities (usually unrecognized & un-addressed),
… joy AND sadness,
… exhilaration AND suffering,
But too often we do not recognize those conditions in the folks around us,
because the avenues of their experiences do not match our own.
We only see and experience our own events,
so that becomes our context.

First time i read Stephen Covey’s “7 Habits of Highly Effective People” was about a decade before my dementia symptoms became noticable. Actually, as one of my most-frequently-read (and written-in) secular books, eventually, i copied each page and put in 3-hole binder. i forget the title of chapter, but one of the chapters gave instructions to visualize your own funeral;
Ideally, what would you like to hear there, about your “fulfilled” life ?

This was my major tool for determining what my own “fulfilled” life would look like.
My own purpose (or HOPE) in life is
to reflect Truthful Loving Kindness in my life and interactions;
written and oral, spoken and un-spoken, public and intimately intensely personal,
and finally (but crucially important) … seen and unseen.

So my “hope” is for opportunities to fulfil that goal in various ways.

i can only control myself,
so i strive to become informed in how i can best reflect Truthful Loving Kindness
to myself and others,
because relationships are what make life worth living.
i prioritize my time, funds, and energy with that goal as very high priority.

Dementia symptoms change the pathways for that goal, but make absolutely no change on goal itself

.*.

Above is my own answer to the preface questions. So …

What creates true hope in YOUR life ???

How can you create paths to FULFILL that hope? And …

What SUSTAINS that hope in your life ??

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

I am From … >> https://truthfulkindness.com/bnp/part-1/intro-from-tlk/

HOPE in Wiki >> https://en.wikipedia.org/wiki/Hope

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Jan21. Blog entry began 11Jan2019 and finished text on 21Jan2019. Tags are: dementia, goal, hope, perspective, PLwD, strategy.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Book Revw “Dementia from the Inside”

Posted on January 14, 2019 by truthfulkindness

SUMMARY

Insightful Book with “Inside Perspective”;

Tru here. I think “Dementia from the Inside” , written by Dr Jennifer Bute (with Louise Morse) is helpful for anyone open to Christian perspective who is involved in any way with Persons with Dementia.

Like many others who are now experiencing dementia symptoms, I wish that I could have had this “inside perspective” of more deeply understanding dementia symptoms, much much earlier. For me, understanding better could have enriched my relationships with two grandmothers who had dementia. Together we could have extended the time of verbal communication, as well as assisting with non-verbal communication.

That is a big part of why I write a blog, and here is an excellent BOOK to assist others in those relationships. An added impetus, for me, is better understanding a wonderful mentor for myself, Jennifer Bute. Looking forward to our next video chat, my friend. – Truthful Kindness.

.*. … .*. … .*. More Details on Book .*. … .*. … .*.

Tru here. I bought paperback version of this book thru publisher, then kindle version thru Amazon. Took a while to read it thru, but the book is broken into smaller sections, and i used Kindle tools to make it easier for me. Very VERY glad i invested funds, time and energy in this book. It is a treasure.

Perspective is key issue for how any person deals with dementia symptoms or diagnosis, so Jennifer begins her book with her own perspective; largely SPIRITUAL perspective.

We have not spoken of it much (or i have fogotten), but discovered both Jennifer and i have the unusual theory that as cognition becomes more limited, the person with dementia often becomes more aware of the spiritual realms of life. in this book, Jennifer speculates that this may happen because inhibitions or social assumptions are removed.

From the outset, we both saw our own cognitive decline as a gift from Creator. I wrote about it in 2012 >> https://truthfulkindness.com/2014/07/16/faith-dementia/ , and Jennifer mentions, “How we walk with God, our heart attitude, is what matters, not what we do for Him. My heart said, ‘Well Lord, here I am with Alzheimer’s: I accept this as an unexpected gift from you, an opportunity to understand dementia from the inside’.”

MeltDown is always difficult experience for both person living with dementia and those around that person during the event. Jennifer says, “There is always a reason why people with dementia have ‘meltdowns’. It could be sensory overload, tiredness or simply things becoming too much. Being in hospital is top of the list: it ticks all the boxes.” After listing seven situations that can precipitate her own meltdown, Jennifer says, “The meltdown behaviour of other people with dementia reflects how they were when they were little … whatever the behaviour, it reflects the vulnerability of a child.”

“If I’m confused, reassure me, but don’t overwhelm me with words — show me what I should do.” — Dr Jennifer Bute in “Dementia from the Inside”.

Enabling Speech is one of my favorite sections of this book, where Jennifer says, “I have found there are five main ways of helping those in the later stages of dementia to talk, when others assume they no longer can — it is such a joy! The key words here are music, singing, laughter, and parallel and convergent speech.” … and she goes on to describe the techniques.

Some other jewel-quotes from Jennifer’s book are:

“Each new difficulty is an opportunity to find new coping mechinisms.”

“If I don’t recognize you, please remind me who you are, and in what context I know you, and if necessary give me additional clues”

“If I look lost or bewildered, I probably am. Please help me … ”

“We pick up your mood, whether you are calm or agitated. (This is known as mirroring.)”

… and three Principles:
“1 There is always a reason why a person is behaving in a particular way.
2 When facts are forgotten, feelings remain.
3 Familiar patterns of behaviour continue. Knowing these principles can help explain puzzling behaviour and improve communications.”

This book clearly shows that there can be meaningful, joyful life WITH dementia, and gives suggestions of how to either live that life, or assist others in living that life. Wise investment of funds, time, and energy.

Jennifer’s index page on my blog is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Jan14 (altho Jennifer has copyright for all quotes on this page). Tags are: book, dementia, Jennifer Bute, PLwD, strategy, symptom.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Adaptations for Dressing

Posted on January 7, 2019 by truthfulkindness

Tru here on clothing.

At current stage, these adaptations work for my clothing needs:

Heart symbols on inside top back of most all clothing including underwear (but not socks or turtlenecks) in order to orient where the piece of clothing belongs on my body. Turtlenecks have a piece of yarn or ribbon inside back of neck, so they can be hung on a hook.

Underwear and socks always the same color and brand, minimizing frustration with finding matching socks, and routine is always the same for dressing. Background for writing date on underwear is here >> https://truthfulkindness.com/2017/10/23/dementia-underwear/

Leave wardrobe doors open, reminding me that I have clothes behind the doors. Leave drawers open on graduated basis for the same reason. This helps tremendously when setting out my clothes for the next day.

Clothes set out the night before, (draped over the pink tray on my walker). sometimes need assistance for which turtleneck (and possible overshirt) would be appropriate given schedule and weather forecast.

With few exceptions of travel in warmer locations, I only wear two kinds of tops; winter or summer turtleneck – often purple. sometimes with some kind of button-up vest, overshirt, sweater, or jacket . This keeps me in the routine. Tomorrow participating in recorded video chat for teaching purposes, so wearing purple turtleneck with flannel over-shirt.

For normal schedule, pants are all the same brand & item #; black jeans made by Lee, with elastic waistband. This only varies if i am traveling for family or speaking engagement. Unless special occasion i wear one of two pair of shoes. One pair is Mondays Wednesdays & Fridays … but the other pair is same brand, same model, just black instead of purple elastic ties. Those i wear on alternate days. So look at my cell phone to identify the day of the week and that is solved.

My clothing variety is anything worn over my turtleneck, and what i wear on my head. Often there is nothing worn over my turtleneck, and only a snood on my head. But i avoid time with a mirror, (looking at myself is uncomfortable because i dont remember getting older) and it doesn’t matter to my husband. i try to use a little more variety on the week-ends, when he spends more time at home.

Currently searching for extended “collar” patterns that are easily changed several times a day, since i seem to have a hole in my lip, LOL. Will share those later.

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My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness on 2019Jan07. Tags are: clothing, dementia, dressing, PLwD, strategy.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Floating Words

Posted on December 31, 2018 by truthfulkindness

Problems understanding spoken sentences (verbal comprehension):

Floating Words

Words float around and past me.

sometimes they splash against my body.

i hear them spoken.
i understand each word.

I reach for them,
but mostly they just float around me without joining;
without coalescing into concepts that i can grab, hold, and understand.

Sometimes i am able to grab a passing thought and hold it;
finally understanding,
responding to the speaker and building relationship …
… but then it is gone again.

Words float around and past me.

Sometimes i feel alone
… and require visuals or TOUCH.
— © Truthful Kindness
2018 Dec 11

“Hold My Hand to ANCHOR me” is another piece of prose, at this Link >> https://truthfulkindness.com/2014/11/07/hold-hand-anchor-me/

During 2018, this has gone from a rare occurance … to part of my “new normal”.
First experiences were very scary !!! They can also build huge relationship misunderstandings;
It is not that i am purposely “checking out” from conversation, i just cannot understand what is said.

Not just myself, but everyone in the relationship needs to:
Grieve the partial loss of another ability; another tool in our relationship toolbox. Accept that partial loss. Then strategize to make the best of remaining abilities for rich relationships as long as possible.

At this point,
1) give me some time and verbal comprehension may click back into place.
2) My visual processing is still good right now (even if reading comprehension is not), so try graphs, charts, and pictures of what you are talking about.
3) If not, i probably need a nap, because trying to understand words into concepts is a lot of work for me now.

.
Dec 2018, my guess is that 25-30% of my social time is spent with little understanding of concepts spoken. It is just disconnected words. Mostly i “read” tone of voice and face/body expression. Sometimes i just sit in video chat, watching everyone, and just BE with them even if i do not understand what is said. In those cases, it is embarrassing when asked a question, because i had been unable to follow the prior conversation, and now it will be obvious.
It is not that i don’t care, i am simply losing that ability.

Sometimes written is better (partially because i can read it over and over again) … and sometimes it is not.

♦ Everything changes ♦

Very thankful that i can still compose written concepts — even if i may not understand what i wrote, LOL.

Summary: Written comprehension has been compromised for years, but now verbal comprehension disabilities are a quickly-increasing part of my “new normal”.
Communication input is becoming strongly compromised, but written output of communication is still mostly intact, and i very much rely on that tool.
Family and others need to begin reading what i write, if they wish to retain close relationship.

Hold My Hand to ANCHOR me >> https://truthfulkindness.com/2014/11/07/hold-hand-anchor-me/

No Meanings for Words >> https://truthfulkindness.com/2016/09/06/no-meaning-for-words/

Importance >> https://truthfulkindness.com/2016/01/26/import-communication-pwd/

Strategies >> https://truthfulkindness.com/2017/08/14/strat-17sp1-psych/

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* Admin issues:
This is another entry that i needed considerable amount of help from my husband on both explanation & photo. Featured photo was taken with foam letters floating in pool at CV Starr Center, in Fort Bragg, CA. SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018Dec11. Tags are: communication, dementia, PLwD, relationship, symptom, verbal comprehension.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Tinnitus and other Auditory Hallucinations

Posted on December 11, 2018 by truthfulkindness

Tru here.
Auditory hallucinations (paracusia) are hearing sounds without auditory stimulus, and “tinnitus” is personal perception for sound of constant ringing, clicking, etc … without auditory stimulus. Many causes.

Not all folks with dementia symptoms have tinnitus or other types of auditory hallucinations, but i think it is more prevalent in that population.

TINNITUS

My tinnitus began about 14yrs ago (2004, after cognitive symptoms were showing in my processing speed and a few other areas, but not nearly as advanced as now).

some days it is louder than others. Sometimes it is a roar, and sometimes just a constant fuzz. Worst is when the tones fluctuate (like today). Fluctuating tones create more problems understanding when other folks talk.

In my first years with this constant sound, it was difficult to focus on anything other than the constant sound. i could not even sleep (and sleep is crucial to brain cell renewal). So recorded more than 24hrs of my favorite music/sounds, then bought a music player that would play many hrs of my recordings. After a couple years, i no longer needed the exterior sounds to sleep.

OTHER Auditory Hallucinations

Apparently tinnitus is considered a form of auditory hallucination, and may be more prevalent with Semantic Dementia (form of Fronto-Temporal Dementia). I had a couple auditory hallucinations before tinnitus became an issue – even before any cognitive dys-abilities were noticeable.

During 1994-1998 I was waking up on the floor, so husband built a fitted bar to hold me in the bed. I had two or three events of auditory hallucinations during those years. I heard muffled voices when there was no source, and in different locations (which are Lewy-Body-type symptoms). Checked for possible radio, etc, but no source for the sounds which lasted several minutes at a time, and sometimes multiple times in stretch of a couple hours. It was very scary. It was not until I was writing this blog entry that I realized those were my first auditory hallucinations.

Tinnitus began about 2004, and other auditory hallucinations began about 2007. I heard music and (again) muffled voices. Sometimes these occur pretty regularly, but I have not had an auditory hallucination for over a year now (unless I have forgotten them).

Since smell and then sight hallucinations developed (sometime after 2010) that relegated sound hallucinations to much lower priority in my attention, so mostly I successfully ignore them.

…

… Sound Dis-orientation >> https://truthfulkindness.com/2015/08/11/sound-disorientation-dementia-symptom/

News-Medical.net 2017Aug26: Tinnitus, a chronic ringing or buzzing in the ears, has eluded medical treatment and scientific understanding. A new study by University of Illinois researchers found that chronic tinnitus is associated with changes in certain networks in the brain, and furthermore, those changes cause the brain to stay more at attention and less at rest. … Using functional MRI to look for patterns across brain function and structure, the new study found that tinnitus is, in fact, in the hearers’ heads — in a region of the brain called the precuneus, to be precise. https://www.news-medical.net/news/20170826/Chronic-tinnitus-linked-to-changes-in-certain-brain-networks.aspx

Auditory hallucinations: Patients with semantic dementia commonly report tinnitus (an elementary auditory hallucination), linked to structural alterations in a fronto–temporo–subcortical network [5]; while hallucinations of ‘muffled’ sounds or voices are often reported by patients with Lewy body dementia, frank verbal hallucinations are uncommon and generally occur as a component of more complex, multimodal hallucinations [59]. In contrast, persistent musical hallucinations (typically comprising familiar, banal tunes) are relatively commonly reported in patients with Lewy body disease and less frequently, other dementias [60] … https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5065893/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018Dec11. Tags are: dementia, hallucinations, PLwD, strategy, symptom, tinnitus.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

When Stressed I WALK

Posted on December 10, 2018 by truthfulkindness

Tru here.

began when i was quite young. When words no longer work — i walk !!!

One of my first consequences of this was as teen. I took off, got lost, & search team found me early the next morning in the deep woods.

When words no longer work and i am under deep emotions such as anger, frustration, or embarassment.
I am consumed with need to leave.
It doesn’t matter where i am going,
but i must … GO !!!

.*.

In past few years i was able to use my canes, but now need my long-stride walker (kept on the porch), and i am gone.

Where i live, i dont think this will be a problem, because from our house i have never walked toward town. i walk toward the harbor. Only two houses between us and the harbor, and it leads to blacktopped-path that goes in a loop to the end of our penninsula. I can walk the loop twice or three times without leaving familiar territory. I walk off the energy generated from anger or frustration.

But realize that as my symptoms progress, it is important to document these quirks, and set guidelines to avoid future problems.

Let someone know where i am going.
Always carry locator (for me that is GPS on my cell phone, but for others might be another device).
Try to be consistent on where i go (always same walking path) so muscle memory can help my return trip.
If needed, i can walk the loop more than once.

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018 Dec 10. Tags are: dementia, PLwD, strategy, symptom, wandering.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

New Pages Nov 2018

Posted on November 26, 2018 by truthfulkindness

Tru here.

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Pages recently added to my blogsite are :

First page in new Memorial section is “Susan Suchan’s Legacy” >> https://truthfulkindness.com/memoriam/susan-suchan/

and another Family History page, in honor of 1st Thanksgiving celebration >> https://truthfulkindness.com/about/life-other/family-history-index/gov-bradford/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Glutened

Posted on November 13, 2018 by truthfulkindness

Tru here.

As mentioned this morning in Lori LaBey’s recorded “Dementia Chats” (see Link bottom of page) not all of our symptoms are caused from dementia issues.

Today i show evidence of gluten intake. SURPRISE !!! (but not a pleasant one).

Celiac Disease is an autoimmune reaction to the gluten protein. For me, that means i ingested anything from one very small crumb to several slices of something that contains some form of wheat, rye, or barley. Celiac disease is like an on/off switch in the gut. Once that switch in “on” there is no differentiation for amount of gluten intake. Gluten just happened in some amount needed to push the switch. Eating more gluten will not make the reaction more severe.

.*.

We have an entire body, and
with the overwhelming effects of dementia, we tend to blame everything on that aspect of life.
But every person is an entire person — with other aspects influencing the picture.

For me, those other aspects are numerous. Celiac Disease is an important one in the mix, and the probable-cause of several others. Even as an infant, i had great complications with baby cereal and all the other high-gluten baby foods from that era. Eventually my parents decided i just had a sensitive stomach … and lived with the various effects (including alternating constipation and diarrhea, headaches, and fatigue). i think many aspects of my health are more severe than necessary, due to all body systems developing under the added stress of minor malnutrition from undiagnosed celiac. An effect of the era when that type of knowledge was not well known yet. My brother’s malnutrition was much more noticable than mine, with distended stomach and liver disease even before any alcohol intake occurred (so he was always the designated driver, LOL) .

Finally received diagnosis as an adult. And now i know that one of my results from getting glutened (along with up to 2 weeks of extreme diarrhea, headaches, and fatigue) is declined cognitive abilities.

For me, the cognitive decline is
not severe,
not cumulative,
and once i go gluten-free again will return to prior cognitive levels within a week or two.

I very much enjoy mild gingerbread & Scotch shortbread during the holidays.

Gingerbread people, gingerbread houses, etc are almost the epitome of “holiday” (as shown by the fact that i made this poster earlier this week, without knowing i had probably ALREADY been glutened).

Soooo … My gluten switch has already been turned on, and the little intestinal villi are already temporarily flattened and unable to correctly bring nutrients into my system.
i might as well take advantage of the timing with holidays so close, and extend gluten intake 6 weeks until the end of the holidays.

My gluten reaction lasts almost 14 days, so the REACTION will probably still be in effect during Thanksgiving. I know 6 weeks is a long time, but it is oh-so-tempting to be able to eat the special hoiliday treats, and i just MIGHT say this is the time to consider the blessings of timing … and SPLURGE !!!

It might be worth the price. ((smile))

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Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Celiac (from Celiac.org) >> https://celiac.org/about-celiac-disease/what-is-celiac-disease/

2015 Celiac & Dementia >> Celiac com / Celiac and Dementia

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

“Dementia Chats” playlist is among other playlists here >> https://www.youtube.com/user/AlzheimersSpeaks/playlists

PS: Even tho i have now returned from two months “off” dementia advocacy, probably will not make huge effort to blog every week during November/December. I will be busy enjoying the holidays (and maybe not thinking nearly so well). ((smile))

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018Nov13. Tags are: celiac, comorbidity, decision, dementia, PLwD.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

My Time with DAA

Posted on November 5, 2018 by truthfulkindness

Tru here.

Thank you, DAA, (Dementia Action Alliance in USA) for opportunity of investing with this organization.

Feel good about time spent on Advisory Board of DAA >> https://truthfulkindness.com/2017/02/02/daa-dementia-action-alliance/

People i was involved with were helpful, kind, and thoughtful.
Projects i was involved with were helpful, and met goals of both DAA as an organization, and myself as a person.

.*.

2015 pdf publication “Words Mater: See ME not my dementia”
available for free download at >> https://daanow.org/resource-center/reports-papers-other-publications/

2016 pdf publication “Living with Dementia: Changing the Status Quo”
available for free download at >> https://daanow.org/resource-center/reports-papers-other-publications/

.*.

2017 “Re-Imagine Life with Dementia” conference, planning (including gathering PLwD artists), presenting, etc.
Vid of my presentation begins at 50minutes into this recording >> https://youtu.be/nZTCAlfg_Zg .
Wrote about the conference here >> https://truthfulkindness.com/2017/07/09/1st-daa-conf-usa2017/ .

.*.

2018 vid “Living Beyond Dementia” for US Neurology conference >> https://youtu.be/Hw20LNtwNGo , and attendance at that conference .
Wrote about it here >> https://truthfulkindness.com/2018/05/01/2-neurologists/

.*.

I enjoyed partcipation in the Advisory Council and also DAA sub-committees with their respective projects;
Conference Planning, Arts, Well-Being, Technology, etc.

But now it is time for me to do other things.

USA’s Dementia Action Alliance website is here >> https://daanow.org/ .

.*.

Glass fish from island of Murano was gift of Thanks from Dementia Action Alliance to me.
THANK you for the gift.
While living in Italy i had an older friend on island of Murano; an exceptional glass artist named Tino Gobbato.
i always enjoyed our conversations — and the wonderful glass creations in various stages of completion.
His “Baroque Chandelier” hangs over the antique table i inherited, and right now, the Murano fish sits on that table.

Thank you !

.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018 Nov 05. Tags are: DAA, dementia, Dementia Action Alliance, PLwD, Truthful Kindness.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Frustration from not connecting Cause and Effect

Posted on October 29, 2018 by truthfulkindness

Tru here with great frustration;

I did it again.

Messed things up because i did not thoroughly understand the fine print.

Started this entry four months ago, with only the note
“holes in our ability to connect cause and effect”.

Forget what triggered that short note. In this case i did not think thru to the possible result of my action.

In this case, i could not thoroghly understand what was written, but assumed that i understood motives of writer enough that it did not matter.

frustration … at MYSELF.

I am the one at fault.

at one time i was the one responsible for reviewing the fine print of contracts for a hazardous waste facility.
at another i was secretary to an attorney.
at one point i certainly had the ability to understand this simple document.

but even now i certainly know enough to WAIT until someone who has intact brain function can review document.

But i was excited and in a hurry. I did not think thru to results of my action.

uggggh!!!

There is a reason my name is no longer on the checkbook or bank accounts (except for one credit card which we keep a low limit for).
I (yes me) … I asked for those conditions because i recognized the financial dangers.

Now i messed up … again .

Okay … BREATHE … i tried a nap (with no success), but must pick myself up and … go outside and do some dog training, work on Family History … do SOMETHING on a different topic for a while. Everyone is defferent, for some folks eating might be soothing. A hot drink might be a good place for me to start.

hmmm ((smile)) even tho i have so many other things that NEED done, might be good time for my music … or a craft … or a long soak in the tub might be good.

But first, exercise and work out some of this energy from frustration, LOL .

Distorted Decision-Making >> https://truthfulkindness.com/2014/09/09/distorted-decision-making-in-kitchen/

Attitude of Gratitude >> https://truthfulkindness.com/2015/11/24/dst-grief-depression-attitude-of-gratitude/

i soak >> https://truthfulkindness.com/2016/12/20/i-soak/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Copyright © Truthful Loving Kindness on 25 Oct 2018. Tags are: cause and effect, dementia, discouragement, frustration, PLwD.

Winner of “20-Best” Alz Blogs since 2015, including current year >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Person with Dementia Symptoms

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