Two weeks OFF

Tru here.

I have now returned from two weeks OFF dementia advocacy.
This entry may not be real helpful since it has no strategies;
more of a journal update.

BALANCE is crucial.
Dementia Advocacy is full-time job for me,
and this two weeks has been needed for balance.

My time has been filled with animal-care, self-care, family history, and Dementia Mentors’ video chats;
No social media, No blog, etc.

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My need for time-off started with “Gimpy”.
One of the baby Jersey Giant chicks consistently required more care than the other five.
He/she laid down on its side a lot.  Within 2 weeks often had its left leg sticking out sideways from his body, then both legs quit working entirely.
The veterinarian said it was probably consequence of incubation time while still inside the egg, and would not improve, but chick was not in pain.
Then both legs stuck out sideways.
Last week his wing quit working and we did the very hard thing;
a new bare spot under the tree where our pets are buried, and Gimpy is no longer with us.

Now one-month old, the Baby chicks are looking like scruffy miniature emu.
Their fur is gone in splotches where feather shafts are beginning to stick thru.
Their personalities are strongly showing.

Jumping “Jack” is still the leader; most athletic, most protective and most adventurous. His elastic ankle-band is yellow for high energy.
Orange-banded “Goober” likes to play with my service-dog Hero
(and this morning Hero climbed up on the couch so he could drop his octopus toy into their box for the Baby chicks to play with).
Then there is “Indy” (short for Independence, with a red band),
Long-stockings has a purple band.  (“Sox” likes to stretch a leg then look at it a bit … and maybe give it a scratch or two while it is extended.)
And the littlest is “Sally”.  Oddly, she is the chick with most feathers right now.

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Will be spending two weeks with Mom in July, working on Family History.
Jump-started family history during these 2weeks.
dna tools at GEDmatch have been beyond me for a couple years.
Now mostly giving up on understanding both that and tools at Family Tree dna.
But Ancestry dna has wonderful tool in Beta-stage, and it is a joy to work with.
Becoming a game-changer for my ability to continue using dna as a tool for Family History research.
Happy Lady.

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SCHEDULE:

THIS  WEEK along with daily Dementia Mentors’ video chats, i plan to join
DAA Discussions on Thursday.
This week’s topic is “Loosing Sense of Time/Reading Time”.  It will be hosted by Laurie Scherrer at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time.  These discussions are free and open to both persons with dementia and care-partners.  See you there ! >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .

… and later in May:

29 May: Teepa Snow “Let’s Talk” is next scheduled Wed. May 29:  Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group.  Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help.  That is what i needed to do, and so glad Teepa Snow provides a helper for this process.  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

29/30 May: Dementia Alliance International (DAI) Meeting of the Miinds webinar is scheduled with Neurologist Daniel Potts on Wed/Thurs May 29/30 >> https://www.dementiaallianceinternational.org/may-webinar-learnings-from-patients-and-families-by-dr-daniel-potts/ .

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

But i DO plan to attend Teepa Snow’s conference in November, so keep an eye out for that.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 20Apr2019. Tags are: balance, dementia, Living with Dementia, PLwD.

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UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

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Loss of Filter in Conversation

Tru here.

As i have said before;
For me,
relationships make life worth living.
… but during past years i am in constant tension during relationship interactions.

Moving deeper to the underlying meaning of words in conversation,
taking into consideration the experiences/context of speaker (or writer)
… and then keeping all of that context in mind DURING the interactions
was natural and a flowing part of being
me.

But
conversation now requires copious amounts of energy.
THEN
add the factor of a failing “filter”.

Filter separates what we dont want in a given situation or container, etc,
in order to keep INAPPROPRIATE things separate,
while joining together APPROPRIATE items, thoughts, etc.

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Loss of filters;
having troubles with blurting out whatever enters my brain
— without thinking about circumstances and appropriateness.
In past few years do not stop to consider background and history of others,
because i am losing the ability to stop the impulse.

Failing FILTER for what is appropriate in given situation,
and to remember context of the past
in whatever current event (which often modifies emotions)
is just about my top concern for my own brain decline.
it is scary !
so you are NOT alone, my friends !!!

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Perhaps another element is FORGETTING context.
i dont know whether i learned this information in a “private” conversation or context.
Dont remember sources for hardly anything unless written down
-then where do i find the written information ?.

In the past,
i think people would have said i was “thoughtful”.
Now, well … not so much.
Must look in other places to see my kindness characteristic,
because i am losing the thought-ability for “thoughtful”
LOL.

i may blurt out Too Much Information and embarrass you … or me.
Many times i have decided there are things i should keep to myself
… and then i discover i have said them,
about me or about others.
If it enters the brain it goes out the mouth.

worry about blabbing inappropriate information in public forum.
So i am losing sleep because i am also dreaming about it.
ugggh !!

Husband has tried stopping me mid-sentence when he realizes i am sharing inappropriately,
but usually by that time so much is out that i might as well finish.

Failing FILTER for what is appropriate,
and to remember context of the past in whatever current event
(which often modifies emotions)
is just about my top concern for my own brain decline.
it is scary !
so you are NOT alone, my friends !!!

Would love to suggest strategies
… but really this is one area that nothing has worked for me.
My one suggestion is do NOT drop relationships as preventative
(unless you are holding secrets of national security, LOL)
If you drop relationships
then you both lose right to start with.
The other person/persons may consider your symptoms
and actually give you grace
in the occassions when you lose your filter.

However,
maybe this entry can help someone from feeling they are the only one in this particular struggle.
Or maybe it can help someone in relationship with a person with dementia.
At any rate, thought i would write it down.

.

.*.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

” the only secrets I know I can keep … are the ones I forget”

>> https://truthfulkindness.com/2014/10/20/privacy-secrets-and-dementia-symptoms/

 

 

“if you don’t want me to spill the beans … don’t put them in the pot”.

>> https://truthfulkindness.com/2015/01/26/hole-in-my-self-control/

 

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 08Apr2019.  Free-to-Edit photo by Shilo at PixArt >> https://picsart.com/i/image-i-hope-you-are-having-a-beautiful-day-my-friends-279495074001201 .  Tags are: communication, conversation, dementia, filter, Living with Dementia, PLwD, verbal, relationship.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Recent Pages Apr2019b

Tru here. …

Pages recently added to my blogsite are from:

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

 

Crucial entry from KimJoy Ovard “Roller-Coaster of Primary Progressive Aphasia” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/roller-coaster/

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Opening FaceBook group for DSP Prayer >> https://truthfulkindness.com/about/dsp-fb/dsp-prayer/;

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Sgt Andrew Patterson, Scottish Immigrant >> https://truthfulkindness.com/about/life-other/family-history-index/sgt-a-patterson/

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Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

FamHist Index >> https://truthfulkindness.com/about/life-other/family-history-index/

Spiritual Journal >> https://truthfulkindness.com/about/life-other/spiritual/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

Recent Pages Apr2019a

Tru here. …

Pages recently added to my blogsite are from:

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

 

KimJoy Ovard “Intro” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/intro/

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Video of “Chippewa Song” >> https://truthfulkindness.com/about/life-other/family-history-index/chippewa-song/ ;

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Keto-Potato Soup >> https://truthfulkindness.com/about/life-other/food-recipes/keto-potato-soup/

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Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

FamHist Index >> https://truthfulkindness.com/about/life-other/family-history-index/

Food >> https://truthfulkindness.com/about/life-other/food-recipes/ ;

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

Pictures as Words

Tru here.


Some may have noticed that in social media i frequently use pictures now, instead of words,
and i am not the only one.
i think my verbal abilities are just declining much faster than my visual processing skills
(or even my photoShop skills, LOL).

as most know, composing words is much more time-consuming for me now.
A blog entry has increased to usually between 6 and 12 hours.
Having problems even composing brief replies to my dementia friends on social media.

.

i know i want to say something.
i want to give verbal hug, or tell them they are not alone,
in a way that shows i understand how they are feeling.
… but i cannot find words.

.

If husband is home then i will call him over and ask for his help composing the words.
if husband is not home, i now have quite a selection of pictures i have put together.
I try to find the picture that matches my feelings best, and just send the picture.
Or i might take the opportunity, and spend an hour or two composing a new picture.
(Sometimes even more time; husband says “very seldom less time”, LOL)

Whether in personal conversation, or textual conversation,
with increasing frequency, i cannot understand OR compile words;
Need pictures to understand what is said
… and need pictures to “speak my mind”.

But i have noticed that i am not the only one;
my dementia friends frequently just send a picture.
No words, just a picture of an animal or flowers, etc.
That shows i am not alone in this challenge ((smile)).

Started this entry,
then found i had already started another entry with the same title.
i suspect this is how i began my selection of pictures.  So also attaching it here.
(hmmm; began this entry with 3hrs on 01Feb2019, then worked on it 4 other days,
but now no idea what entry i am talking about here,
or what pictures i am talking about attaching).
Gonna leave this paragraph as “trigger” for possible future remembrance.

.*.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Importance of Communication of various types >> https://truthfulkindness.com/2016/01/26/import-communication-pwd/ ;

My New Normal >> https://truthfulkindness.com/2014/07/26/my-new-normal/ ;

Tab/Communication >> https://truthfulkindness.com/?s=communication ;

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 08Apr2019. Tags are: communication, dementia, pictures, PLwD, verbal, visual, words, writing.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Rose Tyson, Dementia Bully

Naming the Shamer.

in my opinion,
there is a huge vulnerability in sharing our thoughts online, so we must have hard shell to deflect criticism.

Regardless of my efforts to retain a positive attitude and attempts to find worthy topics to discuss on my blog,
every time i receive one of these letters Blaming and Shaming,
i find myself spending an hour or two in re-evaluation.

Yes; this person is obviously a Bully, but that doesn’t necessarily mean they are always wrong in their conclusions.

PERHAPS she is right.

Despite my efforts to share from others, is this blog really self-promoting ?

Perhaps i really DON’T really have anything valuable to add to the conversation.

.
Obviously some folks feel that my blog is un-helpful and demeaning.
Is it worth the effort to write and SHARE my thoughts ?
Does it really assist folks now, or will it assist folks in the future ?

Is blogging really worth it ??

Online Bullying is becoming so prevalent that i have decided to begin naming names.
Rose was one of the first … and is also the most recent.

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Rose Tyson (rose83616) began her negative comments with 8 paragraphs on 28 Apr 2015.
Excerpts are:
“I see no formal educational credentials that give credence to your right to speak as a dementia expert. …
I see only a self-serving opportunist. …
You are a pathetic panderer of
ego stroking,
a fraudulent attention seeker
.

Please, take your little cut and paste newsletter, ((she is referring to Dementia Symptom Perspectives))
your self-promoting personal blogging
and go find another cause to support.
You do not belong in a population of truly ill people.
You demean the purpose of DAI.” ((Dementia Alliance International))
— Rose Tyson on 28Apr2015.

Rose obviously still feels the same, as most recent from Rose
(now slightly different eMail since she leaves out one of the 6s, with rose8316)
are excerpts from 03Dec2018 (re my friendship with Susan Suchan)
“Seriously? You have to make Susan all about you?
Let me share something with you….you will never be in the same class as Susan or Dena.
Please stop trying to make people think you were their closest friend.

They walked the walk….you simply talk with no substantive knowledge about dementia.”
— Rose Tyson on 03Dec2018

(above is a treasured photo of Susan and me)

12 Dec 2018
… My guess is that you are mentally ill … Schizophrenia …”
— Rose Tyson 12Dec2018

and 25 March 2019
“… You add nothing new in terms of research or insight.

You have nothing to add …”
— Rose Tyson 25Mar2019

.

.*.

Several times i have mentioned conclusions from long-term psychological evaluation by medical doctor specializing in Psychology.
No; will NOT share doctor’s name to have her add it to the list of others she drags thru the mud in her latest rant.

Despite my efforts at positive perspective,
Rants like these usually undermine my confidence (and so writing abilities) for a time .
Rants like these discourage others who may wish to blog or share their conclusions or tips.
… This is the true dis-service for those with dementia, MCI, their core support persons, and others who would lend a hand
— or an encouraging word at appropriate times.

.

The collective knowledge
and caring spirit
of those who write and share their experiences
should not need to face this vicious criticism
for speaking their truth.

When i realize there is nothing positive in continued relationship with a Bully,
i regularly copy/paste to my “Negative Comments” file,
but then delete.
— i do not wish to get my friends agitated by trying to “protect” me …
and totally distract from the point of each specific blog entry.
That would be counter-productive.

For those wishing to start or continue blog-writing,
YOU are shining stars in the universe,
and i applaud your efforts.

— but watch out for the bullies (like Rose Tyson).
— Tru

.*.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Harry’s entry on Bullying >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/cyber-bullies/

Kate Swaffer >>  https://kateswaffer.com/2015/05/09/not-suffering-bullies/

Index of Other Contributors >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

List of other Bloggers >> https://truthfulkindness.com/links/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Mar31. Tags are: blog, bullying, dementia, PLwD, social media, writing.

MyFreeCopyright.com Registered & Protected

((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs.  To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective.  Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.  i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

FaceBook Friends (FaceBook Strategies 2)

Tru here with second of two (2) FaceBook items regarding FaceBook Strategies:

.

This is speaking directly to my FaceBook friends living with dementia,
regarding FaceBook “FRIEND” status.

When someone asks for FaceBook (FB) “friend” status
and you see my name as mutual friend
that does NOT insure you will enjoy having them as a “friend”.
it does NOT mean they will be Truthful, Loving, or Kind.

However it DOES mean there is a good chance they said they are living with some type of dementia,
or a smaller chance they are a fellow dementia advocate as care-partner or professional.

i have many FB “friends” who are full of anger and bitterness.  At times they can reflect that in hateful comments.
Also, many MANY folks have simultaneous conditions going on, — sometimes psychological conditions.
So my primary purpose for using FaceBook “notifications” tool is in order to by-pass FaceBook “news Feed”
( where many of the hate-ful comments and pictures are viewed ).
“Notifications” are very seldom forwarding what someone else says or other folk’s pictures.
Mostly it is pictures or words directly from my FaceBook “friend”.
That does not eliminate viewing the anger and bitterness, but it minimizes seeing it … as Long as i avoid FB “news Feed”.

Don’t get me wrong; i also have many FB friends who are very supportive, truthful, loving, and kind.

i am just saying, do NOT approve a “friend” request just because i am mutual FB friend.  Check them out.

.

We need to be careful about who we accept for our FaceBook “friends”.
i get close to 3 FaceBook “friend” requests per day.
I probably accept 2 FaceBook “friend” requests per WEEK.

No matter how many “mutual friends” there are, i send them a private message with the following:

“”Tru here.
Thanks for offer of FB “friend” status.
Are YOU a fellow person living with dementia symptoms … or where do i know you from ?””

i do NOT add as FB friend until they answer me, regardless of how many mutual friends we have.

When they answer with talk about my picture, or just wanting to “get to know” me ( which is most of them )
i delete most — and report them to FB as Scam.
Sometimes i can see that i do not want that person as “friend” from pictures on their personal page,
or if male and ALL their FB friends are female.
Most of the others, I suggest we can keep in contact at Dementia Symptom Perspectives’ FB page & send Link.
The few who tell me they are living with dementia, those i seriously consider.

.

!!! Gotta be careful ,
and dementia symptoms strongly impact how many folks we can keep track of, on and off FaceBook !!!

Part 1 >> https://truthfulkindness.com/2019/03/22/facebook-strategies-1/

.*.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Mar18. Tags are: dementia, peer group, PLwD, social media, strategy, symptom, time.

MyFreeCopyright.com Registered & Protected

((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs.  To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective.  Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.  i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

FaceBook Strategies Part 1

Tru here.

TIME spent with FaceBook

Last week’s FaceBook crash taught me a lesson.

No local gatherings for Persons Living with Dementia in our little town, and i seldom leave the house.
So my primary contact for other folks who live with dementia symptoms is on social media and social media groups
( like Dementia Mentors, Living Healthy with Early Onset Dementia, and DAI Support Page ).

Peer contact is extremely important, but …

My FaceBook time has recently increased another notch
and need to find more tools
or self-imposed restrictions on time spent.

Even tho i do not use FB ( FaceBook ) “news Feed”
( so current use is limited to responding from FB notifications )
time investment has increased from 6-8hrs/day
to 6-10hrs/day
( except for Saturday when notifications are “off” ).
By the time you allow extra time fudge-factor for dementia symptoms in every little thing for personal care,
plus 6-10hrs every week for blog,
that does not leave much of the week for personal/family life.

Reviewed my FB “Close Friends” list and moved 7ppl off from total of 495 “Close Friends” on FaceBook.
But dont want to remove family or those with dementia.
With about 10 exceptions that is everyone in my close friend listing
(and i average 2 new friends living with dementia per week)

Twitter is really difficult for me, so already placed limit of under 1hr/day for Twitter & Linked In.
Only a few friends use those services exclusively (do not use FaceBook), but i do not want to miss out on contact with those few.

.

Will now be limiting my time following FaceBook friends and FB texting “Groups”
to only 3hrs Tuesdays and Thursdays,
(usually takes 3hrs to clear my “inbox” from social media overnight)
Then normal full days on Mondays, Wednesdays, and Fridays.
i realize that means i will miss a lot on Tues, Thurs, Sat and Sun,
and also not reliably see some of the entries that would be so very nice to share on Dementia Symptom Perspectives.
But i need stricter time limitations.

Any suggestions of other tools for managing FB ???

.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Part 2 >> https://truthfulkindness.com/2019/03/25/facebook-friends/

Change >> https://truthfulkindness.com/2018/10/08/change-facebook-pgs/

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My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Mar18. Hands on graphic were sourced from Geralt/Pixabay, & fanciful Logo inside sourced from “Cool Edits”/PicsArt.  Both are free-to-edit.  Tags are: dementia, peer group, PLwD, social media, strategy, symptom, time.

MyFreeCopyright.com Registered & Protected

((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs.  To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective.  Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.  i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

Top Dozen

Tru here.

UPDATE:
To my surprise,
AFTER HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs,

then AFTER announcing it publically on March 18,
ten days later they decided against including writers with Mild Cognitive Impairment,
and removed this blog from their listing, leaving only one first-person perspective.
Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.
i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.
>> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

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Want to thank readers of this blog.  It is an honor that you would spend your time to read my words.

My actual Blog “anniversary” won’t be for several more months, but today HealthLine’s annual “Best Blogs” announcement was published >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year.
In contrast to some of the other “Best” Lists, this is not a popularity contest;
each year, Healthline recognizes “candid and powerful blogs that capture a wide range of perspectives on Alzheimer’s disease.”

As it has been the past five years,
Listed among the top 12 Alzheimer Blogs for 2019 is my own blog; http://www.truthfulkindness.com.

This gives me an excuse to publish my own List of
my 12 blog entries that i consider most crucial:

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First off, I have written specifically to medical professionals here >> https://truthfulkindness.com/2018/05/01/2-neurologists/

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Next, Noticed during past 5yrs that my friends Living with dementia, and those on various “support” teams do not necessarily agree on which entries are most crucial.
The three blogs that my PLwD friends most talked about and shared (saying they wished their friends/family would read) are:

#1 : Time & Energy Consumption >> https://truthfulkindness.com/2015/07/20/time-energy-consumption-dementia-symptoms/

#2: Distorted Decision Making >> https://truthfulkindness.com/2014/09/09/distorted-decision-making-in-kitchen/

#3: Learned 2016 >> https://truthfulkindness.com/2016/12/31/2016-my-dementia-symptoms/

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As author, i think my most crucial blog entries are on Communication & Relationships:

Importance of Communication of various types >> https://truthfulkindness.com/2016/01/26/import-communication-pwd/

Written communication:

My New Normal >> https://truthfulkindness.com/2014/07/26/my-new-normal/

Text Format >> https://truthfulkindness.com/2019/03/04/text-format-dementia/

Audio Communication:

ECT= Environment, Content, & Timing >> https://truthfulkindness.com/2014/12/12/suggestions-understand-audio-communication-dementia-symptoms/

No Meaning >> https://truthfulkindness.com/2016/09/06/no-meaning-for-words/

Floating Words >> https://truthfulkindness.com/2018/12/31/floating-words/

Non-Verbal Communication:

Anchor Me >> https://truthfulkindness.com/2014/11/07/hold-hand-anchor-me/

And effect at end-of-day >> https://truthfulkindness.com/2019/02/11/altered-afternoon-relationships/

Decided to make it a “Baker’s Dozen” and include one more Link for relationships:
Hole in Self-Control >> https://truthfulkindness.com/2015/01/26/hole-in-my-self-control/

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Which blogs are YOUR favorites ???

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HlthLine > https://www.healthline.com/health/alzheimers-disease has quote “candid and powerful blogs that capture a wide range of perspectives on Alzheimer’s disease.”

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/

.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2019Mar18. Starscape above was totally created by myself 29Sep2014.  Tags are: alzheimers, award, blog, communication, dementia, HealthLine, PLwD, Truthful Loving Kindness.

MyFreeCopyright.com Registered & Protected

UPDATE:  ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs.  To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective.  Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.  i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

Recent Pages March 2019a

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

Pages recently added to my blogsite are from:

Ron Coleman on TECHNOLOGY >> https://truthfulkindness.com/index-persons-with-dementia-pwd/ron-coleman/tech-strategy/

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and a personal page in Family History:

Celtic Roots >> https://truthfulkindness.com/about/life-other/family-history-index/celtic-roots/

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

FamHist Index >> https://truthfulkindness.com/about/life-other/family-history-index/

.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness March 12, 2019. Tags are: dementia, PLwD, strategy, symptom.

MyFreeCopyright.com Registered & Protected

((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs.  To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective.  Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019.  i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

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