Check out 500

Tru here.
My focus needs to be elsewhere for July.
You will probably NOT see me on FaceBook, and probably no new blog entries during the month of July.
Other folks have filled in for Dementia Mentors’ responsibilities, and i am doing other things this month.

i have scheduled many personal tasks for remainder of this year;
hoping to consolidate my 20 years of Family History research by the beginning of 2020,
and considering my “Legacy” in some other areas of Life.

.

… but that does not mean there will nothing to read at this website  …

.

in five years of effort i now have over 500 blogs with first-person dementia perspective;
200 from myself and 300 from others.

Check them out:
My Top Dozen >>https://truthfulkindness.com/2019/03/18/dozen-2019/  ;
My Most Crucial >> https://truthfulkindness.com/category/important/crucial/ ;
Other Contributors >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

. .

SCHEDULE:

Hope to have more family time during the next six weeks, so i may skip some blog weeks.
THIS WEEK, along with daily Dementia Mentors’ video chats,
(see https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.
Thurs DAA Discussions
.
DAA Discussion cancelled for 4th of July.   Go here to get the Link for this week >> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*.  .  .*.  .  .*.  .  .*.  .  .*.  .  .*.  .  .*.

Next Dementia Chats with Lori LaBey will be July 9. This is twice-monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience.  2nd and 4th Tuesday each month.  Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

Teepa Snow’s next video Zoom, “Lets Talk”, open to all persons with dementia, will be held Tuesday JULY 23. Requires prior registration: “Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group.” Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help. That is what i needed to do, and so glad Teepa Snow provides a helper for this process. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

i hope to attend Teepa Snow’s conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 01Jul2019. Tags are: blog, dementia, Living with Dementia, PLwD, .

MyFreeCopyright.com Registered & Protected

 

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Chapter Published

Tru here.
Have now received my copy of our book “Dementia-Friendly Worship:
A MultiFaith Handbook for Chaplains, Clergy, and Faith Communities”.
This book is designed to give practical help to faith leaders,
in developing services and creating dementia-friendly faith communities.

i am one of 45 authors included in this book.
My chapter, “Anchor Me”, is included in Section 2:
“Voices of Persons Living with Dementia”.
This section includes authors
Rev. Dr Cynthia Huling Hummel,
Greg O’Brien,
Daisy Duarte,
Jim Gulley,
and myself.

The book has a wonderful intro by Daniel C. Potts, MD .

Unfortunately my reading comprehension is not up to understanding much of the book,
(including my own chapter)
but i am pleased to be included in this project.

You might like to share this title with YOUR spiritual Leader;

> https://www.amazon.com/Dementia-Friendly-Worship-Multifaith-Chaplains-Communities/dp/1785926659/

 

Full disclosure: This is a project of Faith United Against Alzheimer’s.
As one of the authors, my only remuneration is a free copy of the book,
which i received earlier this month.

.

 

.

SCHEDULE:

Hope to have more family time during the next six weeks, so i may skip some blog weeks.
THIS WEEK along with daily Dementia Mentors’ video chats, i may (or may NOT) join

.

Dementia Mentors: https://www.dementiamentors.org/ .

.

Tue 25 June: Dementia Chats with Lori LaBey. This is twice-monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience.
Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .
.
Thurs 27 June: DAA Discussions
.
JohnRichard (JR) Pagan will host Dementia Discussions tomorrow on topic
“Keeping the House Well Lit & Organized“, June 27.
Persons with Dementia and Care-Partners are welcome to participate
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.

Also dont forget upcoming conferences below
(which i will NOT be attending as i have no funding):
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

Teepa Snow’s next video Zoom, “Lets Talk”, open to all persons with dementia, will be held Tuesday July 23. Requires prior registration. Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group. Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help. That is what i needed to do, and so glad Teepa Snow provides a helper for this process. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

i hope to attend Teepa Snow’s conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 24Jun2019. Tags are: book, dementia, Dementia-Friendly Worship, Living with Dementia, PLwD, publishing, .

MyFreeCopyright.com Registered & Protected

 

Computer Complications

Tru here.

Computer Administrative stuff is just getting much more complicated for me lately.
Complications with getting into Zoom video meetings,
Complications with compiling the info needed for my various tasks.

Sometimes i am asked what my days are like.
i have often given samples of complications in hygiene, sleeping, etc,
but today thought i would describe my daily “work”.

i am Administrative Assistant for Dementia Mentors, which has certain online and computer-based tasks.
My personal Advocacy project (along with blogging) is Dementia Symptom Perspectives;
i gather projects from Persons Living with Dementia
(often abbreviated PLwD, but in other contexts can also mean Persons Living with DysAbility).
i share those projects in various social media,
hoping they can increase understanding
and perhaps trigger strategy-search with care-partners and professionals.
i use the FaceBook page of Dementia Symptom Perspectives for FB sharing,
but also use it as my holding area until i get time to add each project to my spreadsheet of Links.
(A spreadsheet is like a computerized “Ledger” sheet or columnar pad.)
(See >> https://truthfulkindness.com/2016/03/01/pwd-matrix-topics-201510/ )

and today, i am trying to transfer from my “off-work” hobby of Family History.

i currently have way too many windows open, counting online Links, documents and spreadsheets. 
I kept opening Links, hoping for the key that would fit the puzzle to make them all work together.
All these windows hold pieces for current project,
but cannot pull all the concepts together in order to make sense of them,
so that i can save the information appropriately and close the windows.

And when i return to the desk after food, bathroom-break, chicken-care, (and especially sleeping, LOL),
my brain is like a clean slate, and i have extremely difficult time remembering even what the project is about,
and why i have all these windows open.

i try to use a document to track my actions, so that i can recover my thoughts,
but usually not very successful at chosing words that make much sense to me after a “project blink”.

i opened most of these Links 3 DAYS ago.
Took most of the next day trying to recover my thoughts and
was able to work constructively an hour or two of that day before bed.
The next day NOTHING was achieved
– unable to pull together any of the strings of thought that go with these many computer windows.
They have now been open 3 DAYS.
i have numerous Advocacy tasks that are important, so must get these windows off my desktop,
and i am despairing of ever pulling together these concepts
— but it is important !!!

i have not found this info collected anywhere,
and TOGETHER, i think it says …
i forget what i think it says, but something important about this ancestor or string of ancestors.

so today i will just copy all these Links into my General Family History document in a List, and give up for a week or so.

So on to the next task for the beginning week, and …

Cannot remember names of my friends (Persons Living with Dementia, or PLwD),
so that i can find their projects to share on Dementia Symptom Perspectives.

It might help to review my list with hundreds of FaceBook/Twitter friends living with dementia
(yes, i have a spreadsheet for that, LOL)
in order to find the specific name i am searching for.
But i realize it will take a lot of time searching for the bell of recognition.

However, today i cannot even remember how to find that PLwD matrix,
in order to begin the task of finding the Lady that sometimes writes on the intersection of dementia symptoms and faith.
If i could find my matrix then maybe i could search the term … what is that ??
i just had it …
Quaker !

Gave up and was telling Guy about the problem when her name occured to me; Shelagh.

But this matrix is crucial; it has a half-dozen “sheets” containing important information for Dementia Mentors,
(along with my Dementia Symptom Perspectives data
with thousands of PLwD project Links i have been collecting for the past 5yrs).
i have made the decision to work with half-dozen “sheets” for different topics — on one file,
so that i have less files to keep track of,
but now cannot even find that one file.

I have Dewey Decimal, so is it in 363 for Social Problems/Dementia Organizations/DSP, or 616 for Medical Problems/Dementia/Ppl with Dementia, or maybe 800s with Authors ?  i need to just make a desktop Link for this matrix and couple other files i use over and over again during the week … but then i am afraid i will forget how to use Dewey Decimal System, so lose access to my years of work in other areas.

Finally found matrix, and found her name in my matrix.  Her blog is https://fizzyhammers.com/ .
Horay.
Now that the day has been spent trying to find stuff,
i have finished my first (5 minute ?!!) task,
— in about 6 hours.

Life is just so VERY much more complicated and time-consuming with dementia symptoms.
.

SCHEDULE:

Hope to have more family time during the next six weeks, so i may skip some blog weeks.
THIS WEEK along with daily Dementia Mentors’ video chats, i may (or may NOT) join

.
Thurs DAA Discussions
.
No DAA Discussion this week due to conference …

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

Teepa Snow’s next video Zoom, “Lets Talk”, open to all persons with dementia, will be held Tuesday July 23.  Requires prior registration.  Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group. Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help. That is what i needed to do, and so glad Teepa Snow provides a helper for this process. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

i hope to attend Teepa Snow’s conference November 17-19 >> https://teepasnow.com/pac-annual-conference/ .

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 17Jun2019. Tags are: computer, confusion, dementia, Living with Dementia, PLwD, symptoms, technology.

MyFreeCopyright.com Registered & Protected

 

Effective Listening for Partnership

Tru here with A crucial conversation between my husband and myself, showing he was Listening (and APPLYING what he heard):

We were talking, but i was unable to process the conversation.
When he took a breath i held my hand out
and stopped his flow of words.

.

i told my husband that
all I understood were the first phrase of the paragraph
and the last phrase of the paragraph.
so all the sentences in the middle might just as well have been said
“blah blah blah.”

.

He quit talking.
He took me in his arms,
and after a moment he said,

.

“Okay, Look at me.
Are you listening?”

i nodded.

“I love you …
blah blah blah
… forever.”

((Sigh))

Then the waiting tears fell.
It is okay to cry.
Now I can pick myself up and move on.

.
.
.

This was part of a blog entry several years ago,
but with our anniversary
thought it was worth separating for a blog entry of its own.

EFFECTIVE Listening is crucial to good partnering (of any type).

.

SCHEDULE:

THIS WEEK along with daily Dementia Mentors’ video chats, i may (or may NOT) join
.
Tue 11 June: Dementia Chats with Lori LaBey. This is twice-monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .
.
Thurs 13 June: DAA Discussions
.
This week’s topic is “Traveling Tips”. It will be hosted by Laurie Scherrer at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time. These discussions are free and open to both persons with dementia and care-partners. >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

i hope to attend Teepa Snow’s conference in November, so keep an eye out for that.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 10Jun2019. Tags are: dementia, Living with Dementia, partnership, PLwD, symptoms.

MyFreeCopyright.com Registered & Protected

 

i am Probably Asleep

Tru here on Saturday.
It has been three years since i have had one of these “events”

Sometimes begins with muscle weakness then moves to nausea etc,
but today’s Began about 10am,
with that feeling of time displacement that i associate with immediacy of brain problems.

You know on sci-Fi films,
when they show just a few moments of time displacement delay?

You are behind yourself, blurred, trying to catch up.
That is what it felt like for me.
Then muscle weakness and nausea followed within about 30seconds.
I didnt find my baby aspirin, but took the full aspirin sitting on countertop.

.*.

Truthfully i have few memories of the past 6 hours.
i know husband (Guy) brought me a cup of soup at some point,
and i ate a little bit before falling asleep again.
i know another time i walked a few feet to the bathroom
and almost didn’t make it due muscle weakness and nausea.
Then went back to sleep again.

i can only call it an “event”,
because even tho i have mild-to-moderate cerebro-vascular disease
doctors have not confirmed that these are small strokes.
They have extensively tested for seizures over the years, but not confirmed that either.
… so i just call it an “event” until we have more conclusions.

October 2016 i had an “event” during the last steps of the last walk i took by myself.
I was on return from the Harbor; it hit when i was almost to the door.
Got in the door and maneuvered to the couch.
We had company at the time, and they walked inside from outdoors.
i tried to tell husband what happened
but no sound came out, and folks were busy talking … so no one noticed.
i tried a couple times more, then fell sleep.
That’s Life.

Yes; i have tried going to hospital a few of the times,
but by the time i am actually seen they cannot really tell me anything.
They test and test and test, but never really any results.
Hospital visit means no rest;
cannot sleep in the waiting room, and too cold to sleep in Emergency Room.
That means the first full day of opportunity for brain cell renewal is Lost.
So unless blatant “stroke” symptoms like slurred speech or paralysis,
i just sleep and sleep and sleep.

.

After these events my walker is imperative (even inside the house),
as balance and muscle strength can be very unreliable for a few days.

After these events i sleep and sleep and sleep some more.
i figure cell renewal is only possible in sleep,
so any sleep after an “event” is a free ticket for better brain health.

I sleep as much as possible afterward,
usually sleeping almost the full first day and much of the next few days.
Often takes about a week of extra sleep
before i do not feel the need for extra sleep
(other than my standard late-morning-to-noon nap).

So you still wont see me much on FaceBook or other webinars, etc.

If i am not online … then i am probably asleep.

Sunday morning:  Slept total 18 hours yesterday; 10 hours during the day plus 8 hours at night.  Able to maneuver without walker this morning, but will not attempt doing outside chores.  Looking back over my notes from 2016 (when i had about 6 “events”) reminds me to keep the walker REALLY close for a few days, and delay any “exercise” for about a week.  Made some revisions to what i wrote, above, and i am headed back to bed.

So, even tho i am not online much this week, want to remind that You are important to me.

..

SCHEDULE:

THIS WEEK along with daily Dementia Mentors’ video chats, i may (or may NOT) join

DAA Discussions on Thursday.
This week’s topic is “Dementia Friendly & Dementia Friends Initiatives”. It will be hosted by Mike Belleville (with expert Tammy Pozerycki) at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time. These discussions are free and open to both persons with dementia and care-partners. See you there ! >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

i hope to attend Teepa Snow’s conference in November, so keep an eye out for that.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 02Jun2019. Tags are: dementia, Living with Dementia, PLwD, sleep, stroke, symptoms, vascular.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Context of Appearance

Tru here.
How many teachers have reiterated the importance of context context CONTEXT ?

But since almost 20 years ago i am constantly losing context;
Losing the context of time.
Losing the context of placement or location.
Losing the context of words.

… and losing the context of appearance
(because i expect to see you the way you looked when i was younger).

There is a strange car in the driveway.

i know what our car looks like,
because we bought it just before we married.
We have two matching big blue vans,
and the car now in the driveway is not ours !

i have misplaced the newer context of what i see
… and i dont know where to find it.

.

Because i have dealt with this symptom for years now,
i know that i will not recognize any cars in driveway … and that is okay.
i know i will not recognize my husband in the morning … and that is okay.
i know that person in the mirror does not look like me … and that is okay.

.

if i do not recognize the way you look today,
that does not mean you as a person are not important to me.
For me, I still recognize the sound of your voice.
.
For 20years (before my brain began decline)
you almost always wore a State Parks uniform and hat.
You are now retired and no longer wear a uniform to work.
Your hair and beard are now white.
And we live in a different house.

But
You discovered green pants were needed.
You found and bought green pants
And sometimes i need a hat covering your head
in order for me to recognize the way you look.

… and that is okay.
because you are VERY important in my life !!!


.
THANK you for investing the time and energy in
Learning more about the situation,
then finding strategies
so that i can continue to recognize you,
my husband.

..

SCHEDULE:

THIS WEEK along with daily Dementia Mentors’ video chats, i plan to join

Tue 28 May: Dementia Chats with Lori LaBey.  This is twice-monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience.  Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

Wed 29 May: Teepa Snow “Let’s Talk” is scheduled Wed. May 29: Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group. Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help. That is what i needed to do, and so glad Teepa Snow provides a helper for this process. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

29/30 May: Dementia Alliance International (DAI) Meeting of the Miinds webinar is scheduled with Neurologist Daniel Potts on Wed/Thurs May 29/30 >> https://www.dementiaallianceinternational.org/may-webinar-learnings-from-patients-and-families-by-dr-daniel-potts/ .

DAA Discussions on Thursday.
This week’s topic is “Hallucinations & Visual Perception”. It will be hosted by Chuck McClatchey at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time. These discussions are free and open to both persons with dementia and care-partners. See you there ! >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

But i DO plan to attend Teepa Snow’s conference in November, so keep an eye out for that.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 27May2019. Tags are:  dementia, family, Living with Dementia, memory, PLwD, recognizing family, relationship, symptoms.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Two weeks OFF

Tru here.

I have now returned from two weeks OFF dementia advocacy.
This entry may not be real helpful since it has no strategies;
more of a journal update.

BALANCE is crucial.
Dementia Advocacy is full-time job for me,
and this two weeks has been needed for balance.

My time has been filled with animal-care, self-care, family history, and Dementia Mentors’ video chats;
No social media, No blog, etc.

.

My need for time-off started with “Gimpy”.
One of the baby Jersey Giant chicks consistently required more care than the other five.
He/she laid down on its side a lot.  Within 2 weeks often had its left leg sticking out sideways from his body, then both legs quit working entirely.
The veterinarian said it was probably consequence of incubation time while still inside the egg, and would not improve, but chick was not in pain.
Then both legs stuck out sideways.
Last week his wing quit working and we did the very hard thing;
a new bare spot under the tree where our pets are buried, and Gimpy is no longer with us.

Now one-month old, the Baby chicks are looking like scruffy miniature emu.
Their fur is gone in splotches where feather shafts are beginning to stick thru.
Their personalities are strongly showing.

Jumping “Jack” is still the leader; most athletic, most protective and most adventurous. His elastic ankle-band is yellow for high energy.
Orange-banded “Goober” likes to play with my service-dog Hero
(and this morning Hero climbed up on the couch so he could drop his octopus toy into their box for the Baby chicks to play with).
Then there is “Indy” (short for Independence, with a red band),
Long-stockings has a purple band.  (“Sox” likes to stretch a leg then look at it a bit … and maybe give it a scratch or two while it is extended.)
And the littlest is “Sally”.  Oddly, she is the chick with most feathers right now.

.

Will be spending two weeks with Mom in July, working on Family History.
Jump-started family history during these 2weeks.
dna tools at GEDmatch have been beyond me for a couple years.
Now mostly giving up on understanding both that and tools at Family Tree dna.
But Ancestry dna has wonderful tool in Beta-stage, and it is a joy to work with.
Becoming a game-changer for my ability to continue using dna as a tool for Family History research.
Happy Lady.

.

SCHEDULE:

THIS  WEEK along with daily Dementia Mentors’ video chats, i plan to join
DAA Discussions on Thursday.
This week’s topic is “Loosing Sense of Time/Reading Time”.  It will be hosted by Laurie Scherrer at 10am Pacific Time, 11 Mtn, Noon Central, and 1pm Eastern Time.  These discussions are free and open to both persons with dementia and care-partners.  See you there ! >> https://daanow.org/our-initiatives/connect-and-engage-with-others/dementia-discussions/ .

… and later in May:

29 May: Teepa Snow “Let’s Talk” is next scheduled Wed. May 29:  Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group.  Can be kind-of frustrating working with the registration process, but if you get stuck there is a phone number of someone to help.  That is what i needed to do, and so glad Teepa Snow provides a helper for this process.  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

29/30 May: Dementia Alliance International (DAI) Meeting of the Miinds webinar is scheduled with Neurologist Daniel Potts on Wed/Thurs May 29/30 >> https://www.dementiaallianceinternational.org/may-webinar-learnings-from-patients-and-families-by-dr-daniel-potts/ .

Also dont forget upcoming conferences below (which i will NOT be attending as i have no funding):
Jun 20-22: DAA conference in Atlanta GA on June 20-22 >> https://daanow.org and
Jun 24-26: LewyBody LBDA conference in LasVegas June 24-26 >
> http://www.clevelandclinicmeded.com/live/courses/lewy-body-dementia/ .

But i DO plan to attend Teepa Snow’s conference in November, so keep an eye out for that.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 20Apr2019. Tags are: balance, dementia, Living with Dementia, PLwD.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Loss of Filter in Conversation

Tru here.

As i have said before;
For me,
relationships make life worth living.
… but during past years i am in constant tension during relationship interactions.

Moving deeper to the underlying meaning of words in conversation,
taking into consideration the experiences/context of speaker (or writer)
… and then keeping all of that context in mind DURING the interactions
was natural and a flowing part of being
me.

But
conversation now requires copious amounts of energy.
THEN
add the factor of a failing “filter”.

Filter separates what we dont want in a given situation or container, etc,
in order to keep INAPPROPRIATE things separate,
while joining together APPROPRIATE items, thoughts, etc.

.

Loss of filters;
having troubles with blurting out whatever enters my brain
— without thinking about circumstances and appropriateness.
In past few years do not stop to consider background and history of others,
because i am losing the ability to stop the impulse.

Failing FILTER for what is appropriate in given situation,
and to remember context of the past
in whatever current event (which often modifies emotions)
is just about my top concern for my own brain decline.
it is scary !
so you are NOT alone, my friends !!!

.

Perhaps another element is FORGETTING context.
i dont know whether i learned this information in a “private” conversation or context.
Dont remember sources for hardly anything unless written down
-then where do i find the written information ?.

In the past,
i think people would have said i was “thoughtful”.
Now, well … not so much.
Must look in other places to see my kindness characteristic,
because i am losing the thought-ability for “thoughtful”
LOL.

i may blurt out Too Much Information and embarrass you … or me.
Many times i have decided there are things i should keep to myself
… and then i discover i have said them,
about me or about others.
If it enters the brain it goes out the mouth.

worry about blabbing inappropriate information in public forum.
So i am losing sleep because i am also dreaming about it.
ugggh !!

Husband has tried stopping me mid-sentence when he realizes i am sharing inappropriately,
but usually by that time so much is out that i might as well finish.

Failing FILTER for what is appropriate,
and to remember context of the past in whatever current event
(which often modifies emotions)
is just about my top concern for my own brain decline.
it is scary !
so you are NOT alone, my friends !!!

Would love to suggest strategies
… but really this is one area that nothing has worked for me.
My one suggestion is do NOT drop relationships as preventative
(unless you are holding secrets of national security, LOL)
If you drop relationships
then you both lose right to start with.
The other person/persons may consider your symptoms
and actually give you grace
in the occassions when you lose your filter.

However,
maybe this entry can help someone from feeling they are the only one in this particular struggle.
Or maybe it can help someone in relationship with a person with dementia.
At any rate, thought i would write it down.

.

.*.

Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

” the only secrets I know I can keep … are the ones I forget”

>> https://truthfulkindness.com/2014/10/20/privacy-secrets-and-dementia-symptoms/

 

 

“if you don’t want me to spill the beans … don’t put them in the pot”.

>> https://truthfulkindness.com/2015/01/26/hole-in-my-self-control/

 

.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 08Apr2019.  Free-to-Edit photo by Shilo at PixArt >> https://picsart.com/i/image-i-hope-you-are-having-a-beautiful-day-my-friends-279495074001201 .  Tags are: communication, conversation, dementia, filter, Living with Dementia, PLwD, verbal, relationship.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

Recent Pages Apr2019b

Tru here. …

Pages recently added to my blogsite are from:

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

 

Crucial entry from KimJoy Ovard “Roller-Coaster of Primary Progressive Aphasia” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/roller-coaster/

.

Opening FaceBook group for DSP Prayer >> https://truthfulkindness.com/about/dsp-fb/dsp-prayer/;

.

Sgt Andrew Patterson, Scottish Immigrant >> https://truthfulkindness.com/about/life-other/family-history-index/sgt-a-patterson/

.

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

FamHist Index >> https://truthfulkindness.com/about/life-other/family-history-index/

Spiritual Journal >> https://truthfulkindness.com/about/life-other/spiritual/

.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

Recent Pages Apr2019a

Tru here. …

Pages recently added to my blogsite are from:

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

 

KimJoy Ovard “Intro” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/intro/

.

Video of “Chippewa Song” >> https://truthfulkindness.com/about/life-other/family-history-index/chippewa-song/ ;

.

Keto-Potato Soup >> https://truthfulkindness.com/about/life-other/food-recipes/keto-potato-soup/

.

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

FamHist Index >> https://truthfulkindness.com/about/life-other/family-history-index/

Food >> https://truthfulkindness.com/about/life-other/food-recipes/ ;

.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown.

MyFreeCopyright.com Registered & Protected

UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

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