Dementia Symptom Perspectives’ FB Page

Dementia Symptom Perspectives’ FaceBook page is:
Your one-stop
for writing or other projects by persons with dementia symptoms.
This is a very PUBLIC page;
designed to share perspective of those with dementia
… to those with whom that perspective might be helpful.

. (Page Link at the bottom of this blog entry)

Dementia Symptom Perspectives’ FaceBook page was begun by Truthful Kindness, but is now cooperative effort by several persons who have dementia symptoms. It is exclusively for writing, art, hobby, and other projects by persons with dementia symptoms (including those with diagnosis of Mild Cognitive Impairment as well as standard “dementia” diagnosis like Alzheimers, Lewy Body Dementia, Fronto-Temporal Dementia, Vascular Dementia and almost 100 lesser-known types of dementia). It may occasionally have entries where spiritual or political aspects of life interact with the dementia aspects of life, but this is not ABOUT either of those aspects. No proselytizing of any type (political, spiritual or otherwise) will be permitted.

Page is open to alternative viewpoints, but they must be respectful. Comments from both Persons With Dementia symptoms and those without symptoms are welcomed only IF shared with respect and compassion. If we cannot build each other up, at least we will NOT tear each other down.

This page was begun by Truthful Kindness, but is now cooperative effort by several persons who have dementia symptoms. It is exclusively for writing, art, hobby, and other projects by persons with dementia symptoms (including those with diagnosis of Mild Cognitive Impairment as well as standard “dementia” diagnosis like Alzheimers, Lewy Body Dementia, Fronto-Temporal Dementia, Vascular Dementia and almost 100 lesser-known types of dementia).
It may occasionally have entries where spiritual or political aspects of life interact with the dementia aspects of life, but this is not ABOUT either of those aspects. No proselytizing of any type (political, spiritual or otherwise) will be permitted.

I no longer have abilities needed to issue the Perspectives newsletter, but I continue to use this page as a setup tool for my matrix on PWD projects.
I prefer not to duplicate other pages or groups who are already very good at what they do. These are suggested OTHER Groups:

  1. Page/Dementia Info: Unless containing a personal interview project with Persons With Dementia symptoms, this page will not have “news” or other items like that. For that I highly suggest Chris Roberts’ FaceBook page of “Dementia Information”.
  2. Support Groups/vid/PWD+: For video-chat support groups to those persons with dementia symptoms (again including MCI) I suggest ” Dementia Mentors ” >> https://www.dementiamentors.org/ . I believe that at least one of Dementia Alliance International’s video-chat support groups also includes those with MCI diagnosis. DAI >> https://www.dementiaallianceinternational.org/
  3. Support Groups/txt/PWD+: FaceBook Text support groups for those persons with dementia (including MCI) are available from “Dementia Mentors”, and “Living Healthy with Early Onset”, along with “Early-Stage Alzheimers” by PWD John Sandblom.
  4. Support Groups/vid/ mixed: For video-chat support groups including both PWD and support/assistance persons there are both Harry Urban’s Friday “Forget-Me-Not Memory Café” and “Dementia Mentors’ Thursday night Memory Café.
  5. Support Groups/txt/ mixed: For support groups including both PWD and support/assistance persons there are many groups within Harry Urban’s “Forget-Me-Not” umbrella of FaceBook groups (including separate groups for some of the standard dementia types like Lewy Body and Vascular and even separate hobby groups). There is also a group begun by PWD Rick Phelps called “Memory People”, Karen Francis has “Caregiver Comfy Chair” and Sheryl Whitman suggested “Ask Those Diagnosed with FTD”. Norm Mac started “Dementia Aware”.,and others.
  6. Advocacy Groups: For PWD advocacy issues suggest DAI or DAA.  DAI is Dementia Alliance International” (but Dx of MCI is not currently included in membership) >> https://www.dementiaallianceinternational.org/ . DAA is Dementia Action Alliance, and different nations have different webpages for their group.  USA group is here >> https://daanow.org/ .  Generalized dementia advocacy issues suggest PWD Norm Mac’s ” The Purple Angel”.
  7. Collaboration Group: Current Mission Statement for group “Dementia Knowledge Exchange” is “Sharing knowledge and collaborating between people with dementia symptoms and people involved in the dementia world”, if that is what you are looking for.

 

Yes, my full legal name REALLY is Truthful Loving Kindness. My personal FaceBook page is found under the name “Truthful Kindness” .
**
(This “About Dementia Symptom Perspectives” is also posted as a pinned entry on the page itself.)
.

DSP Page is here >> https://www.facebook.com/dementia.symptom.perspectives/ .  Look forward to seeing you there ((smile)).

Announcement DSP Prayer >> https://truthfulkindness.com/about/dsp-fb/dsp-prayer/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. Copyright © by Truthful L. Kindness on 28Apr2019. Tags are: dementia, Dementia Symptom Perspectives, FaceBook, Living with Dementia, PLwD, social media.

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UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, … ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

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