Tru here: The feeling of being surrounded by people — but people so very DIFFERENT than I — is loneliness … in a crowd of loved ones. I APPEAR to be just my normal self. No huge changes are visible. All changes are beneath the surface. You do not see change in my actions so […]
Tru Here. Everyone has different hot-button terminology. I don’t have a problem with “suffering” terminology, and a lot of the other words. But I cringe every time I see the words “service user” or “consumer”. In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature […]
I realize this is just beginning stages and no sense in wasting too much time for focus of loss.
But also important to recognize loss, and endure the grief process, in order to best appreciate the time remaining.
Today has been one of those days. … Losing every enjoyed activity and losing memory of every loved one – in excruciating increments.
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)