Importance of Communication with PWD

Be willing to invest NOW in learning communication skills for the later stages, so that you can more easily discern the language spoken in the “fading” communications of late-stage dementia … because relationships are what make life worth living.

DRT: Yield to communication priorities; PWD “suffering” terminology

I have been admonished by more than one person; told that it is inappropriate for me to use the term “suffering” in connection with my dementia symptoms … but … Each of us SHOULD be allowed to describe our dementia symptom experiences, and describe them without fear of reprisal for the sake of political-correctness.

Feeling Left Out with Dementia Symptoms

I was asked to think about what phrases and actions leave Persons With Dementia symptoms feeling left out. … Includes: Phrases that exaggerate my symptoms, Phrases that minimize (invalidate) my symptoms, Phrases that ignore my symptoms, Phrases that minimize (or ignore) my life-expectations, Actions that exaggerate my symptoms, Actions that ignore my symptoms, and Actions that exaggerate my “different-ness” or “alone-ness”.

All of these situations involve showing respect, embracing who the person is, and meeting them at their varied ability levels (because some aspects of abilities are still very high, and some quite low).