The Latest Cure

???

???.???

Tru here.
How can any credible claim be made from a very tiny study (8 people with Alzheimers) ???

Today it is electromagnetic therapy for Alzheimers.
Last week it was a diet for all kinds of dementia.
The month before, there was another behavior-cure-all for dementia.

All of these build not only dissatisfaction with our current “new normal”,
but misunderstandings among family and friends.
Friends think — and sometimes actually SAY,
“There is a cure,
so obviously you CHOOSE to continue dementia symptoms.”
ugggh !!!

.*. . .*. . .*.

Some of my friends are getting excited about
a head cap that emits electromagnetic waves in specific frequencies.

For six months
i tried a head cap that emits electromagnetic waves in specific frequencies
… seven years ago.

My treatment had absolutely no results
except output of time and money
… because of course none of it is covered by insurance.

But little is truly known
on what causes the VARIOUS types of the Alzheimers-type of dementia,
which itself is one of more than 100 known types of dementia.
Along with the fact that (if i recall)
more than half the autopsied “Alzheimers” brains
actually had more than one type of dementia.
(but cannot find the study i am thinking of — in past 5yrs).

So,
realistic possibility of improvement or “cure” of the disease itself
is probably in the distant future.

Unfortunately, when we get excited and invest family time and funds,
then we get depressed when nothing happens.
It is an “equal and opposite reaction”.
Not only is depression a concern,
but If we pursue This solution and That solution
… then we are left with no more money.
.
No more money for the family to get care-partner assistance
… or relief for their own needs.
Have seen this with some of my friends with other diseases.
Bankrupt families
living on the street because they spent all their funds on the “possibilities”.

If you allow yourself to get your emotions wound up in hope for improvement or a cure,
it can become a never-ending sewer of failure.

I think the medical community is still too far away from the necessary knowledge,
for improvement or cure to be our hope.

For those of us currently experiencing dementia symptoms,
This generation must HOPE in our QUALITY of life and learning coping STRATEGIES,
… and hope in FELLOWSHIP and UNDERSTANDING during the journey.

… at least that is my own personal opinion.
But I have lost acquaintances from discussion of this topic
(not the same acquaintances that are now street-people due to the cost, of course).

For ME, electromagnetic pulse therapy was not helpful,
but there could have been many mitigating factors;

  1. a) some -including neurologist- have theorized a slowly-progressing-type of Alzheimers for my cognitive decline, but my most prominent symptoms are definitely vascular and Lewy Body types of symptoms.  Electromagnetic pulse therapy may be completely non-effective for those types of dementia.
  2. b) when i tried electromagnetic pulse about 7 years ago, i think the specific beneficial settings were just “guess and go”.  Settings are probably much more precise 7 years later.
  3. c) the setting strength needed is probably much more precise 7 years later.

.
All the little bits of knowledge contribute … over time.
WONDERFUL that folks are willing to invest time in small research studies
(this particular study had 8 persons with Alzheimers participating)
and it looks like 7 of the 8 people with dementia feel they are benefitting from the treatment.

These small research studies of various aspects contribute greatly to the knowledge base
that will eventually discover what causes the various types of Alzheimers,
and lead to the needed “cure”.

… Small research studies just need time to “percolate”,
and find some of the successful strategies,
then turn into larger research studies,
which in turn ALSO need time to “percolate”
and develop into constructive bits of certain knowledge
… which can contribute in a larger way toward finding the “cure”.

.

In the meantime, i just wish journalists would be more careful in their headlines.

“Alzheimer’s memory loss reversed by new head device using electromagnetic waves”
is inappropriate heading;
it leads to inaccurate conclusions
… and FALSE hope that a “cure” has been found NOW.
>> https://medicalxpress.com/news/2019-09-alzheimer-memory-loss-reversed-device.html .

“Magnetic pulse to head could improve memory of dementia sufferers”
is a bit more accurate than first heading i read,
but would be much better with added phrase
“Magnetic pulse to head could LEAD to new discoveries for Persons with Dementia“.
>> https://www.telegraph.co.uk/news/science/science-news/11061614/Magnetic-pulse-to-head-could-improve-memory-of-dementia-sufferers.html .

“Head device reduces memory loss in 7 out of 8 people”
would have been much better as
“Head device reduces memory loss in 7 out of the 8 people in study trial
>> https://www.medicalnewstoday.com/articles/326401.php?fbclid=IwAR2VBaDTVKoQrSB9M8SIXzLXj_cQYkaDJvz0B1p-NyMvQstm-nixISoIq9s

.

Today it is electromagnetic therapy for Alzheimers.
Last week it was a diet for all kinds of dementia.
The month before, there was another behavior-cure-all for dementia.

All of these build not only dissatisfaction with our current “new normal”,
but misunderstandings among family and friends.
Friends think — and sometimes actually SAY,
“There is a cure,
so obviously you CHOOSE to continue dementia symptoms.”
ugggh !!!

.*. . .*. . .*.

.
Let us keep reality in sight when forming journalism titles, okay ?
Personally, i think that “Cure”-mongering can be just as destructive as fear-mongering.
Both distort reality in unhealthy ways.
.
Notes:
A]] a “Monger” is a seller; a dealer in a specific commodity.
These are selling a “cure” … or just more subscriptions.
B]] “(if i recall) more than half the autopsied “Alzheimers” brains
actually had more than one type of dementia.”
… if YOU know where to find Link for this study, please send me the Link.
Thank you.
. .

.*. . .*. . .*.  SCHEDULE:  .*. . .*. . .*.

THIS WEEK,
along with daily Dementia Mentors’ video chats,
(see https://www.dementiamentors.org/ )
i may (or may NOT) join the following:

.

Oct 10, Thursday, will be Teepa Snow’s next video Zoom, “Lets Talk”, open to all persons with dementia, will be held Thursday OCT 10. Time is (one hour duration) beginning 9:30am Pacific Time, 10:30 Mtn, 11:30 Central, 12:30 Eastern time.  5:30pm London, and 7:30 Germany and South Africa.  Requires prior registration: “Free webinar session for anyone living with dementia who would like to share ideas, concerns, experiences, partner issues or successes. The topics will be determined by the group.”
Registration process has now been simplified.
Let me know, and will put you in contact with Teepa Snow’s helper for this process.
>> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Thurs DAA Discussion will conflict with Teepa Snow Zoom this month.

Thursday Oct 10 will be another DAA Discussion. Topic will be “Driving Alternatives”, hosted by Chuck McClatchey. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 7pm South Africa. Link to join is in left column at this page >> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

… and LATER in October
you might want to clear your calendar for :

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

Oct 22, Tuesday: Next Dementia Chats with Lori LaBey will be October 22.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Oct 23 Wednesday: DAI October Webinar on “Assistance Dogs for Dementia”. 
Date/Time and more information is available here >> https://www.dementiaallianceinternational.org/october-webinar-assistance-dogs-for-dementia/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Teepa Snow will hold her first conference November 17-19
>> https://teepasnow.com/pac-annual-conference/ .
.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 07Oct2019, with almost 12hrs invested. Tags are: blog, communication, cure, dementia, Living with Dementia, PLwD, relationship .

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One thought on “The Latest Cure

  1. Pingback: In the Blogs – October 2019 – When The Fog Lifts

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