One of my strongest drives has always been analysis of self and my surroundings.
A natural extension of that has been documenting progress of my dementia symptoms and adaptive strategies used by myself and my friends — thus, this blog was born. Hope it can be of assistance to others. This particular entry is mostly addressed to care-partners for self, and secondary purpose is an EXAMPLE for others to compose an “About Me” statement either for self, or persons they are caring for. Obviously best achieved in EARLY stages of decline.
i think basic preferences and personality-profile type data can be helpful
to assure care-providers have easily-accessible data
to make sure strategies are tailored for individual needs,
and help explain background for some mid-to-late dementia “behaviors”.
My basic personality does not change,
but my current range of abilities and behaviors will change how that personality is PERCEIVED by others.
*** Truthful Loving Kindness:
Truthful Loving Kindness (aka Belinda before name-change) is an INTP.
She likes working mostly alone, in an unstructured environment
that allows plenty of time to be creatively involved
in the detailed research and development, and then the communication
of any project which involves a new or unique aspect of
information, values, behaviors, or personal relationships
that will have a visible result of encouraging or benefiting others.
Self-Descriptors: Stereotypical “Nerd”. Absent-Minded Abstract Thinker. Analytical. Inventive. Open-Minded. Quiet. Thoughtful (altho that ability is decreasing). Logical. Perfectionist. Strong need for Authenticity and Honesty. Crave being treated with RESPECT. Low-Maintenance as friend. Crave intellectual stimulation (but mostly when alone). also both “messy” and ultra-compartmentalized. Always been a self-motivated-starter, but with dementia symptoms that is strongly decreasing (i think largely due to lack of energy).
I am a creative editor; I am driven to collect, analyze, synthesize & distribute various things or ideas.
“Who Am I” revised 2022:
i think these factors can be crucial in care-from-others,
as i gradually lose the ability to care for self.
64yo. Live with husband/care-partner, “Hero-Pardner” LabraDoodle SrvDog, & pet chickens. Animal TOUCH is crucial to my well-being.
Life goal is to reflect Creator’s “Truthful Loving Kindness”; changing legal name reminds myself & others of that importance. (Hebrew = “Chesed v’ Emet”) Name change detail at https://truthfulkindness.com/bnp/part-3/2007-name-change/ .
Energy gained as Introvert. Spending time with others mostly uses energy, while energy is gained in time spent alone. (wrote about introversion & dementia at http://bit.ly/2lefzY0 )
Emotionally “constant”; strongly prefer decision-making from logic, rather than decision-making from emotions. I avoid emotional roller-coasters. Emotionally healthy per psychiatrist, with strong history of grief work and decision-making thru writing process. (ex = “Justice” at http://bit.ly/2liys7X ). Often misunderstood as cool, detached and emotionless. Instead my emotions are just as strong as others, just more underground and carefully managed. My emotions are not shown in some of the “expected” ways, which can be complication in relationships.
Relationally. being thought attractive is mostly inconsequential to me, but respect is crucial in my relationships. Uncomfortable with surface “small talk”, but enjoy in-depth conversations (in as much as that is possible with my decreasing ability to understand words and keep more than once piece of data in my mind at any one point of time). Low Boundaries; in my quest for deepening the conversation, i can be guilty of “Too Much Information”. in my efforts to get at the truth of a matter i can come across as overly-blunt. Because my mind is likely to drift during “fluffy” conversation, i focus intently on the person who is speaking and try to get as deep as possible into what they mean by the words, what i might have misinterpreted, what they feel, any logical aspects of cause-and-effect, etc. This can be a bit too intense for some folks. i work on giving validation and emotional support, but my natural inclination is to analyze what is happening and suggest practical strategies, which can be emotionally non-supportive. With my decreasing memory abilities i have big note beside me saying “VALIDATE !!!”.
Environmentally i need my space both “cozy” (which some perceive as “messy”) and (due to advancing dementia symptoms) ultra-organized with CLEAR containers for all the gadgets and tools that i use in my creative tasks. Please consider these factors >> https://truthfulkindness.com/2022/05/22/stability-landmarks/ . i appreciate it when even my tools reflect beauty in my personal style. But now i need more mobility-space due to use of walker in the house.
Spiritually; years of training in Biblical languages & Christian systematic theology, but currently worship in Reformed Judaism. https://tlk4spiritual.wordpress.com/intro/.
Physically active; exercised most every day of my life, walking 1-2 miles daily when disease complications allowed — but now i only use treadmill when health conditions allow. https://vimeo.com/102320840.
Activities; enjoy research/analysis, collecting/organizing, & creating anything (designed a two-story home with wrap-around porch, designed and sewed a travel dress that allows wearer to change clothes underneath with flexibility adapt to different temperatures and levels of formality in attire), systems of data-management, creating a book, theatre character, painting, etc). https://truthfulkindness.com/about/life-other/arts-crafts/ . A nearly insatiable appetite for generating ideas and theorizing – but then the interesting part is all done and i am not so good at actually putting those ideas into action, which creates an abundance of “mess” (unfinished projects). Enjoy reading (writing skills mostly intact but reading comprehension has dropped from University-level to approx. 5th grade), Reading better when i can accompany written words with simultaneous spoken words (currently use Kindle accompanied by Audible). When my cognitive abilities allow, very much enjoy Family History research, watching short YouTube vids on creative tasks, history in countries of ancestors, ancient history or archeology/paleontology, theology, biographies, anthropology, UFO/UAP, etc. Mostly do not try to watch fiction unless i have seen the movie multiple times — otherwise too many characters sub-plots, etc. Currently putting together binders of pics and poems similar to the old “Ideals” magazine, but with my favorite verses and pictures. Important to also check out “Favorites” >> https://truthfulkindness.com/about/about-me/favorites/ .
Diseases include Celiac, Lyme, Babesiosis, Osteoporosis, severe hypoglycemia, Fibromyalgia (FMS) & Mild Cognitive Impairment (MCI) with strong Lewy Body Dementia (LBD) symptoms and cerebro-vascular disease; Rx/Aricept began Jan 2014. Most recent blog on diagnosis issues at https://truthfulkindness.com/2015/05/18/re-blog-diagnosis/ .
Typology; INTP; my absent-minded-professor personality type, “The Thinker” is very rare for women (2%) often mis-understood as cool, detached and emotionless. But my emotions are just as strong as others, just more underground and carefully managed. My emotions are not shown in some of the “expected” ways. (“The Thinker” is rare and only 2% females). Because INTP women dont fit the social standards for women they can often be perceived as being “fake” or trying to get attention or stand out by “pretending” to have peculiar tastes. “Since your mind is a LOGIC machine, it often feels like your emotions are the monkey wrench that clogs up otherwise seamless functioning” >> https://introvertdear.com/news/intp-personality-signs/ . ******* Faction= crossover between abnegation & candor values, with strong erudite skills.
Politically; very tolerant conservative — mostly.
Artistically; Art style: whimsical art & Zentangle/Doodles, taught ballroom dance with parents, so enjoy any kind of dance but especially Ballroom or ballet, crochet/sewing, orchestra/soothing vocals, can no longer use my lap harp, but now i have a “Hapi” drum. >> https://truthfulkindness.com/about/life-other/arts-crafts/ .
Culturally; father spent early years on Chippewa Indian Reservation & I observe weekly Jewish “Shabbat” celebrations, etc. But mostly standard “American” melting-pot culture. Several ancestors on the “Mayflower”.
Architecture; our home (I designed & drew up all blueprints) is strong Craftsman style two-level, with wrap-around porch & lots of hand-made detail. (http://bit.ly/2jWQHyX )
Personal style is whimsically old-fashioned; love styles from the 1800s or early 1900s. We have Family antiques along with wood stove and cooking stove (cooking stove is mid 30s). usually wearing work suspenders or a long dress with apron, & I like hats, scarves, or merely a “snood” for head-covering (then i have designed fabric and crochet flowers to accessorize). Sometimes slight “steampunk” flavor, because I also love steam engines & technical stuff.
“Dementia Mentors”: Participant with https://www.dementiamentors.org/ ;
“Dementia Chats”; Expert Panelist at https://alzheimersspeaks.com/dementia-chats-webinar;
“Positive Approach to Care”; Consultant at https://teepasnow.com/ ;
“Dementia Action Alliance”; Partner in USA at https://daanow.org/ ;
Author: 1) No longer able to write every week, but Blog nearly every month regarding dementia Symptoms and Strategies >> http://www.truthfulkindness.com ;
2) Contributing Author for “Dementia-Friendly Worship” at https://www.amazon.com/Dementia-Friendly-Worship-Multifaith-Chaplains-Communities/dp/1785926659/;
Should add personal resume of past occupations (because i think that can sometimes also enter into cause for various behaviors in mid-to-late dementia) but have not done it yet.
“I am from facing pain, loss – and death – with truth AND dignity.
I am from facing love, joy – and life – with kindness AND honesty.”
Truthful Loving Kindness
(closing statements of my prose at https://truthfulkindness.com/bnp/part-1/intro-from-tlk/ )
i think establishing preference of personality-type is one of the most crucial steps for assistance in care-Partnering. Loads and Loads of websites offer “Free Personality Typing Tests”, but i am not strongly acquainted with any of them. Myers-Briggs personality preferences at https://www.myersbriggs.org/my-mbti-personality-type/mbti-basics/the-16-mbti-types.htm . (i like to say “preferences” rather than “type”, because it shows TENDENCIES rather than inflexibilities — usually, LOL). INTP preference is called “Rational Architect” in the Keirsey temperament types. More info at >> https://keirsey.com/temperament/rational-architect/ . This might be a helpful page >> https://personalityjunkie.com/typology-101/ .
Some folks think i need to include a photo so here it is:
Probably one of the most important pages about my dementia journey is here >>
About my Blog – Welcome to the MailRoom >> https://truthfulkindness.com/about/about-blog-mailroom/ ;
Link for OTHER Life issues >>
My Favorite Things at >> https://truthfulkindness.com/about/about-me/favorites/ .
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). copyright Truthful Loving Kindness on 2017-02/06. If there is an advertisement below, I have no control over what is shown. Tags: Belinda Petrin, identity, personhood, PLwD, truthful loving kindness, Truthful Kindness . Revised and checked Links 24July2022.