Dementia Success Stories:
“How we made a difference for self and those around us AFTER diagnosis”

A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)

1. Nickname – Mrs.Professor …
2. Previous/current occupation(s?):Translator in 7 languages in the medical field …
3. Nation, & state if desired: German / Germany…
4. Age at tentative diagnosis: 53 years …
5. Year of diagnosis: 54 years…
6. How long for definitive diagnosis: 1 year…
7. Type of dementia: LBD….
8. Since diagnosis, what one or more action, success, or accomplishment do you take pride in?

• Wrote 2 books – my 3 book will be launched Oct.2015
• Have about 30 lectures on dementia in front of big audience (even 1000 people)
• Present in talk-shows to change improve the awareness about the different faces of dementia
• The Chair of the European Working Group of pwd
• Board member of AE (Alzheimer Europe)
• Ambassador of Purple Angel
• Commitment Award in the field of dementia /awarded by German Government

9.  What do you wish your primary Physician knew about dementia? … about you? …
He should treat and see me holistic not only reduced to my brain deficiency
He should offer non-pharmacological approach, too
He should know about the symptoms possible at younger age

10. What do you wish your specialist Physician knew about dementia? … about you? …
-He should be up-to-date with research in dementia field
-He should offer non-pharmacological approach, too
-He should know about the symptoms possible at younger age

11. What do you wish your family knew about dementia? … about you?…
Should get powerful messages for themselves to better cope with my condition
Should help me be independent as long as possible
Should know better about the changes in my personality due to dementia

12. Date (Year-Mo-Date)…23.03.2015

If transcribed, then by whom? By my son Jens Rohra….

Helga is on the Board of Dementia Alliance International,
and an active Dementia Mentor.

…

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