by Myrna Norman for Dementia Mentors, in August 2015
Walk a Step in my Shoes
Sometimes I get pissed off with caregivers and think it would be nice for them to go away on respite.
It seems to me that most caregivers believe that if they tell us over and over
what button to push on the computer
we will remember.
Stand by for a mind bending moment.
Many of us cannot remember and
although we explain that to our caregivers they just can’t fathom that.
Many housekeeping duties, which we used to do, are left undone and
although we can’t complain because look at all the things our caregivers do for us,
it drives some of us crazy.
It is a misnomer that we, are not aware of daily happenings,
most of us are.
I truly believed that as I progressed in this disease
that my brain would not take in ‘the little things’
but I am mistaken.
Each new personally negative event, comes and slaps us like a piece of overcooked spaghetti.
The sickness remains even after the spaghetti noodle is removed.
How the hell can we not know that we are incogtinent
– just seems totally unbelievable
but folks it is happening to me now.
Walk a step in my shoes—truth is you cannot.
It was hard when first diagnosed and is even harder now because
the untruths then are now the truths.
Please acknowledge and empathize with us.
We need your love.
Index for Myrna’s writing in this blogspace is at https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/ ;
Index for Other Persons Living with Dementia is at https://truthfulkindness.com/index-persons-with-dementia-pwd/ ;
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