In My Shoes

 by Myrna Norman for Dementia Mentors, in August 2015

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Walk a Step in my Shoes

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Sometimes I get pissed off with caregivers and think it would be nice for them to go away on respite.
It seems to me that most caregivers believe that if they tell us over and over
what button to push on the computer
we will remember.

Stand by for a mind bending moment.
Many of us cannot remember and
although we explain that to our caregivers they just can’t fathom that.

Many housekeeping duties, which we used to do, are left undone and
although we can’t complain because look at all the things our caregivers do for us,
it drives some of us crazy.

It is a misnomer that we, are not aware of daily happenings,
most of us are.

I truly believed that as I progressed in this disease
that my brain would not take in ‘the little things’
but I am mistaken.

Each new personally negative event, comes and slaps us like a piece of overcooked spaghetti.
The sickness remains even after the spaghetti noodle is removed.

How the hell can we not know that we are incogtinent
– just seems totally unbelievable
but folks it is happening to me now.

Walk a step in my shoes—truth is you cannot.
It was hard when first diagnosed and is even harder now because
the untruths then are now the truths.

Please acknowledge and empathize with us.
We need your love.

Myrna Norman

616 Myrna pic wish 20150816a 4in100ppi

Index for Myrna’s writing in this blogspace is at https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/ ;

Index for Other Persons Living with Dementia is at https://truthfulkindness.com/index-persons-with-dementia-pwd/ ;

. * Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  If you have a WordPress account, Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © exclusively by Myrna Norman in late July 2015 for Dementia Mentors.  Original is at https://www.dementiamentors.org/writings-from-dementia.html  (now archived at https://nebula.wsimg.com/44f3a0d96f9e927ab019c6dba669d0b4?AccessKeyId=7ED3906130DE8A3AD619&disposition=0&alloworigin=1 )

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2 thoughts on “In My Shoes

  1. Pingback: August 2015 Pages by others with Dementia Symptoms | Truthful Loving Kindness

  2. Hello Myrna,
    Wanted to let you know that your article is included in the dementia “Symptom Perspectives” monthly links tonight, September 30, 2015
    https://paper.li/f-1408973778
    I would like to thank you for sharing your lived experience. My hope is that these words and projects can become valuable resources for change in relationships, treatment, and policies.
    Much thanks,
    Tru

    Like

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