Designing the Way Through
Some days, the next step disappears. Not confusion—just nothing where “next” should be. So I follow a sheet that remembers for me.
Category Archives: Symptoms
When the Window DoesNot Open
For almost a month now, it has felt as though there is a damper over my “normal” abilities. …
Caterwumpus
Today everything is caterwumpas. When the world doesn’t quite line up the way it is supposed to.
Headache and Dementia
Headaches are not considered a defining symptom of most dementias, yet many people living with dementia describe them. This article explores what medical research currently knows, what remains uncertain, and what we can learn by listening carefully to lived experience.
The Rotating Weather of Lewy
Yesterday was bubbly with excitement. One of those rare bright days where ideas move quickly, possibilities feel open, and the mind feels almost light again.
More Than One Thing Can Be True
Lately i have been thinking about why paintings sometimes communicate things that words cannot.
The Symptom No One Mentions; Runny Nose
Some symptoms arrive with names and checklists. Others you only learn by living them. For me, one of those has been a persistent, watery runny nose—present for years, yet rarely mentioned in discussions of Lewy body dementia. When paired with unpredictable night sweating, a pattern begins to emerge: not random nuisances, but signs of an autonomic system that no longer regulates quietly in the background. Sometimes the body is speaking clearly. It is the categories that are still catching up.
When the Clock Changes but the Body Doesn’t
Sometimes one hour is not just one hour; Routines are part of the safety architecture of the day. *** This year’s shift to Daylight Saving Time seems to be hitting me harder than usual.
Creating is How i Remain
Art is not decoration.
It is a load-bearing wall.
When language thins,
structure remains.
Creating is how I remain.
(Read more at TruthfulKindness.com)
Living with Lewy Body Dementia Symptoms: Understanding REM Sleep Behavior Disorder Dreams 2026a
This entry highlights the connection between Lewy Body Dementia and dreams of REM Sleep Behavior Disorder, including its personal impact and clinical context. The summary covers the prevalence, some of the symptoms, emotional effects, and treatment approaches
