Category Archives: Symptoms

The Symptom No One Mentions; Runny Nose

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Some symptoms arrive with names and checklists. Others you only learn by living them. For me, one of those has been a persistent, watery runny nose—present for years, yet rarely mentioned in discussions of Lewy body dementia. When paired with unpredictable night sweating, a pattern begins to emerge: not random nuisances, but signs of an autonomic system that no longer regulates quietly in the background. Sometimes the body is speaking clearly. It is the categories that are still catching up.

When the Clock Changes but the Body Doesn’t

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Sometimes one hour is not just one hour; Routines are part of the safety architecture of the day. *** This year’s shift to Daylight Saving Time seems to be hitting me harder than usual.

Creating is How i Remain

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Art is not decoration.
It is a load-bearing wall.

When language thins,
structure remains.

Creating is how I remain.
(Read more at TruthfulKindness.com)

Living with Lewy Body Dementia Symptoms: Understanding REM Sleep Behavior Disorder Dreams 2026a

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This entry highlights the connection between Lewy Body Dementia and dreams of REM Sleep Behavior Disorder, including its personal impact and clinical context. The summary covers the prevalence, some of the symptoms, emotional effects, and treatment approaches

A Decade Later: the Power of Online Dementia communities

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Ai short summary: This entry updates readers on the importance of online peer groups for people living with dementia. These platforms, like Facebook and Zoom, help form connections, reduce stress, and give access to collective wisdom and support. The post also discusses the positives and negatives of mixed groups of people with dementia and care partners, and highlights several advocacy organizations worth exploring.