Dementia Friends – What They Have Given Me
There are people who walk beside you for a season,
and there are people who change the way you understand the path itself.
There are people who walk beside you for a season,
and there are people who change the way you understand the path itself.
Lately i have been thinking about why paintings sometimes communicate things that words cannot.
Some symptoms arrive with names and checklists. Others you only learn by living them. For me, one of those has been a persistent, watery runny nose—present for years, yet rarely mentioned in discussions of Lewy body dementia. When paired with unpredictable night sweating, a pattern begins to emerge: not random nuisances, but signs of an autonomic system that no longer regulates quietly in the background. Sometimes the body is speaking clearly. It is the categories that are still catching up.
What I see in dementia peer groups is not the loss of intelligence, but its transformation. Ideas move between people—shifting, softening, connecting—until what no one could solve alone becomes something we can carry together. This painting of a circle is not about completeness, but about relationship: an intelligence made not of certainty, but of shared, adaptive, and deeply human ways of knowing.
Ai short summary: This entry updates readers on the importance of online peer groups for people living with dementia. These platforms, like Facebook and Zoom, help form connections, reduce stress, and give access to collective wisdom and support. The post also discusses the positives and negatives of mixed groups of people with dementia and care partners, and highlights several advocacy organizations worth exploring.
After nearly three years away from blogging, Truthful Loving Kindness has resumed writing due to a regained access to blog administration. Despite cognitive decline, the blog has garnered significant views. Improvements in personal health and ongoing construction projects are highlighted, along with a focus on maintaining hope while managing dementia.
Sometimes, a day arrives when it is okay to let go of self-expectations and behaviors that we had chosen with our fully-reasoning brain; returning to traditions from younger, less complicated time of life without guilt.
Toileting issues of Color, Lighting, Recognition, and Hand-Coordination.
When finding a gift for a person living with dementia, often one of the thoughts is a “helpful” gift. Of course choosing a “helpful” gift is very dependent on several factors. …
… Loads of things can go wrong after a cognitive event, so requires close supervision during first few days …