Tru here. Joseph Curl’s editorial in Washington Times of Sunday, July 20, 2014 is titled, “The politics of death and dying” and discusses the issue of dementia. http://www.washingtontimes.com/news/2014/jul/20/curl-the-politics-of-death-and-dying/#comment-1513965074. My response, posted July 30, 2014, is below: Like many other dementia patients (those of us still able to read and write), I am offended by the […]
Recognize, grieve, … and continue writing.
Tru here. Discussion of terminology for care is a hot-topic all the way around. These are my personal thoughts regarding the term “service user”: In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature of the term. We are the “user”, “consumer”, etc. Our care […]
Tru here. I have a couple dementia friends feeling desperately helpless, desperately scared, and unwilling to impose this life onto their loved ones who are willing to be their “care-givers”. Maybe you are feeling desperate too. Some have said they rely on my positive “sunshine” and I have a message to you: My “sunshine” is […]
Tru here. I have dementia. My productive time and energy is becoming progressively limited. As a dementia patient I must prioritize my activities. I am not feeling sorry for myself — I am being pro-active. My abilities are dwindling because my brain is dying. How much of the important things can I fit into my […]
Tru here. Hold My Hand and ANCHOR ME Maybe I am drifting, … or maybe connecting and connected to a great mass. … I don’t know. Maybe … instead of a being of objectivity, analyzing what I observe, I am somehow becoming intimately connected with it; … no longer the observer but instead a tiny […]
Tru here. Nocturnal Leg/Foot Cramps (probably related to Lewy Body Dementia and Parkinson’s) Here it comes again; not childbirth labor, but very similar contractions. Here it comes again. Wake up! Wake up! Tension increasing. Leg tightening. Foot turning. Quick! Stretch heel DOWN before it gets worse! Tension increasing. Leg twisting. Toes curling. Quick! Stretch toes UP […]
I don’t know how dementia can be a blessing, but I believe that for ME it is. I have done enough research on it that I understand it is not a purely enjoyable condition, but I know the giver. … Yes; somehow this condition is not a condemnation but a gift. And I anticipate the blessings it will give my life, as well as the cost.
Tru here. THOUGHTS: Where is my legacy? What true difference have I made in the world? … Did my ancestors feel this deep sense of failure? WHAT is my legacy? From my parents and grandparents I inherited the values of unswerving honesty and deep kindness; … transparent loving-kindness, always while giving the glory to our […]
Tru here. 2013-01/24 Decision time has arrived. I knew this day was inevitable when my doctor gave the “dementia” diagnosis six months ago, at age 54. It’s not like I don’t know what to expect because I saw this disease path first with Mom’s paternal grandmother, and then with her mother. But … I thought […]