Dementia, Death, and Dying

Tru here. Joseph Curl’s editorial in Washington Times of Sunday, July 20, 2014 is titled, “The politics of death and dying” and discusses the issue of dementia. http://www.washingtontimes.com/news/2014/jul/20/curl-the-politics-of-death-and-dying/#comment-1513965074. My response, posted July 30, 2014, is below: Like many other dementia patients (those of us still able to read and write), I am offended by the […]

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Service User

Tru here. Discussion of terminology for care is a hot-topic all the way around. These are my personal thoughts regarding the term “service user”: In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature of the term. We are the “user”, “consumer”, etc. Our care […]

Desperate with Dementia

Tru here. I have a couple dementia friends feeling desperately helpless, desperately scared, and unwilling to impose this life onto their loved ones who are willing to be their “care-givers”.  Maybe you are feeling desperate too.  Some have said they rely on my positive “sunshine” and I have a message to you: My “sunshine” is […]

Please Further Investigate Dementia “News”

Tru here.  I have dementia. My productive time and energy is becoming progressively limited. As a dementia patient I must prioritize my activities. I am not feeling sorry for myself — I am being pro-active. My abilities are dwindling because my brain is dying. How much of the important things can I fit into my […]

Nocturnal Leg/Foot Spasms

Tru here.  Nocturnal Leg/Foot Spasms (probably related to Lewy Body Dementia and Parkinson’s) Here it comes again; not childbirth labor, but very similar contractions. Here it comes again. Wake up! Wake up! Tension increasing. Foot tightening. Foot twisting until inside of foot is straight up-and-down. Quick! Get foot FLAT and maybe it will improve! Tension increasing. […]

2011-11/15 Maybe I will write a book

Tru here. THOUGHTS: Where is my legacy? What true difference have I made in the world? … Did my ancestors feel this deep sense of failure? WHAT is my legacy? From my parents and grandparents I inherited the values of unswerving honesty and deep kindness; … transparent loving-kindness, always while giving the glory to our […]