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i think this would be good in packet for newly diagnosed.
Listed alphabetical by subject: Art, Diagnosis, Relationships, & Stigma These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects. (I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from those with diagnosis of Mild Cognitive […]
I am sorry; thought I posted some of this long ago, but then discovered it was still unfinished in “draft” status, because I apparently made some huge mistakes. It took me until now to correct mistakes and finish. Listed alphabetical by subject: Advocacy, Art, Brain function, Craft, Importance of Patient-Perspective, Photography, Prose, Update
Link to Susan Suchan’s speech at 2014 Tulsa, Oklahoma Alzheimer’s Walk: https://www.youtube.com/watch?v=CQSXM5JHBlU . Transcript below: It is wonderful to see you all here today, thank you. I want to tell you a little bit about my personal story. About eight years ago I lost my sense of smell. I nearly burned my house down because I […]
Tru here. 2013-01/24 Decision time has arrived. I knew this day was inevitable when my doctor gave the “dementia” diagnosis six months ago, at age 54. It’s not like I don’t know what to expect because I saw this disease path first with Mom’s paternal grandmother, and then with her mother. But … I thought […]