I’ve been working quietly on something for a long time now. Not a single post, not a single story—but something larger that has been slowly forming underneath all the writing.
This is the beginning of that project.
Thanks for asking opinion of Persons Living with Dementia symptoms
membership is not needed to access document
i think this would be good in packet for newly diagnosed.
Listed alphabetical by subject: Art, Diagnosis, Relationships, & Stigma These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects. (I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from those with diagnosis of Mild Cognitive […]
I am sorry; thought I posted some of this long ago, but then discovered it was still unfinished in “draft” status, because I apparently made some huge mistakes. It took me until now to correct mistakes and finish. Listed alphabetical by subject: Advocacy, Art, Brain function, Craft, Importance of Patient-Perspective, Photography, Prose, Update
Link to Susan Suchan’s speech at 2014 Tulsa, Oklahoma Alzheimer’s Walk: https://www.youtube.com/watch?v=CQSXM5JHBlU . Transcript below: It is wonderful to see you all here today, thank you. I want to tell you a little bit about my personal story. About eight years ago I lost my sense of smell. I nearly burned my house down because I […]
… I knew this day was inevitable …
