Value for Lived Experience of PWD as Contributor to Dementia Friendly Community

Current draft of my oral presentation at Australia

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Focus on Essential Priorities

My ability to make a difference pre-diagnosis, and ability to make a difference post-diagnosis are very different. In the very-big-picture of what differences I can make while living on earth, I would pick the much larger differences with my post-diagnosis life. In the really big picture I can effect my main goal of demonstrating Truthful Loving Kindness much better post-diagnosis. Maybe not in my lifetime, but I will write as long as possible … and eventually the PWD voice will be recognized as very valuable asset for those who have relationship of any kind with a PWD. And that is a big deal to me because relationships make life worth living.

Harry’s Lantern on the Dementia Trail

This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.

PWD Experience as Resource for Dementia Professionals

Tru here. 2014 was the year I realized that, in an ideal world, the collective lived experience of Persons With Dementia (PWD) would be a rich resource for dementia professionals (or any person) dealing with PWD.  2014 is the year I began hallucinations, and then began Aricept prescription. Aricept much improved my hallucinations, recognition of […]