I still think term ‘sufferer’ gives teaching opportunity to say; “Did you realize this term has such a wide variety of usage meaning that it is currently polarizing the PWD and ‘care’ sector?”
Hoping to clarify my blog from earlier this week, and maybe eliminate some misunderstandings. … In order for the “suffer” vocabulary change to succeed in goals, I think we need to come up with some method of communicating what people are seeing now as the “small print” — the details which are sometimes un-written … but creating huge mis-understandings.
I have been admonished by more than one person; told that it is inappropriate for me to use the term “suffering” in connection with my dementia symptoms … but … Each of us SHOULD be allowed to describe our dementia symptom experiences, and describe them without fear of reprisal for the sake of political-correctness.
My ability to make a difference pre-diagnosis, and ability to make a difference post-diagnosis are very different. In the very-big-picture of what differences I can make while living on earth, I would pick the much larger differences with my post-diagnosis life. In the really big picture I can effect my main goal of demonstrating Truthful Loving Kindness much better post-diagnosis. Maybe not in my lifetime, but I will write as long as possible … and eventually the PWD voice will be recognized as very valuable asset for those who have relationship of any kind with a PWD. And that is a big deal to me because relationships make life worth living.