Is “Best” of Person With Dementia (PWD) GONE ?

I do not feel that the “best” of my grandmother was gone in her later stages. Her context was gone. The ability to delay gratification was gone. The ability to even know what she wanted or who she was … was gone. But her visceral response to life was NOT gone. Having my grandmother as a Dementia Mentor (even if only in my memory), has been a tremendous source of hope and example. In my final days I hope the same can be said of me.

Hold My Hand ‘n Anchor Me

Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)

Nocturnal Leg/Foot Spasms

Tru here.  Nocturnal Leg/Foot Spasms (probably related to Lewy Body Dementia and Parkinson’s) Here it comes again; not childbirth labor, but very similar contractions. Here it comes again. Wake up! Wake up! Tension increasing. Foot tightening. Foot twisting until inside of foot is straight up-and-down. Quick! Get foot FLAT and maybe it will improve! Tension increasing. […]