… from Michael Woods & my Memoirs
I appreciate the efforts to highlight need of funding BUT they need to compensate now by providing equally impressive film on possibilities for quality of life after diagnosis.
Document your favorite movies and shows, but I think it VERY important to include why they are your favorites; what significance does this film have with your history and person ?
Kate Swaffer comment got me thinking about quotes to live by, which motivated these thoughts about living in the moment.
“Okay Tru, accept what is … (for these next few minutes) then focus on what IS possible, get out of the pity-party ditch and get started doing it !!”
I do not feel that the “best” of my grandmother was gone in her later stages. Her context was gone. The ability to delay gratification was gone. The ability to even know what she wanted or who she was … was gone. But her visceral response to life was NOT gone. Having my grandmother as a Dementia Mentor (even if only in my memory), has been a tremendous source of hope and example. In my final days I hope the same can be said of me.
How many of our own children, grandchildren, or others watching us now, will be dealing with these same symptoms in future years?
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
Tru here. Nocturnal Leg/Foot Cramps (probably related to Lewy Body Dementia and Parkinson’s) Here it comes again; not childbirth labor, but very similar contractions. Here it comes again. Wake up! Wake up! Tension increasing. Leg tightening. Foot turning. Quick! Stretch heel DOWN before it gets worse! Tension increasing. Leg twisting. Toes curling. Quick! Stretch toes UP […]