Library – Voices of People Living with Dementia

When I could no longer continue publishing the Dementia Symptom Perspectives Newsletter, I realized this library had become my own contribution toward sharing a wider perspective of people living with dementia.

This library is not intended to replace the work of these contributors. Rather, it is intended to help readers discover and continue learning from their voices, while those resources remain available and after some inevitably disappear over time.

Some pages in this library were created collaboratively with the original author and may represent the only remaining online record of their work. Others serve as pathways to resources that continue to exist elsewhere.


These are index pages for each contributor.  Many pages attached to some, and only one page attached on others.
Right-click on colored text and selecting “open in new tab”, will allow you to return to this tab easily when you finish.
Remember, Links are on colored text, not the pictures.

Anonymous at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/anonymous/ ;

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Andrew Garvey at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/andrew-garvey/ ;

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Barry Pankhurst >> https://truthfulkindness.com/index-persons-with-dementia-pwd/barry-pankhurst/ ;

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Cate Lau-Booth >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cate-l-b/ ;

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Cathy Mazzie >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cathy-mazzie/ ;

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Cecil Ristow >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cecil-ristow/ ;

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Cindy Odell >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cindy-odell/ ;

CJ Jaggers >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cj-jaggers/ ;

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Curry Whisenhunt >> https://truthfulkindness.com/index-persons-with-dementia-pwd/curry-whisenhunt// ;

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David Kramer >> https://truthfulkindness.com/index-persons-with-dementia-pwd/david-kramer/ ;

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Debbi Haughey >> https://truthfulkindness.com/index-persons-with-dementia-pwd/debbi-haughey/ ;

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Debbie Lawhorn >> https://truthfulkindness.com/index-persons-with-dementia-pwd/debbie-lawhorn/ ;

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Dena Dotson >> https://truthfulkindness.com/index-persons-with-dementia-pwd/dena-dotson/ ;

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Dianne White >> https://truthfulkindness.com/index-persons-with-dementia-pwd/dianne-white/ ;

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DonnaLynn Morin >> https://truthfulkindness.com/index-persons-with-dementia-pwd/donnalynn-morin/ ;

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Garry George Wilkes >> https://truthfulkindness.com/index-persons-with-dementia-pwd/garry-george-wilkes/ ;

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Gayle Harris >> https://truthfulkindness.com/index-persons-with-dementia-pwd/gayle-harris/ ;

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Gerald S Publicover >> https://truthfulkindness.com/index-persons-with-dementia-pwd/gerald-s-publicover/ ;

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Gord Settle >> https://truthfulkindness.com/index-persons-with-dementia-pwd/gord-settle/ ;

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Harry Urban >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/ ;

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Helga Rohra >> https://truthfulkindness.com/index-persons-with-dementia-pwd/helga-rohra/ ;

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Janet Pitts >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/janet-pitts/ ;

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Janice Crich >> https://truthfulkindness.com/index-persons-with-dementia-pwd/janice-crich/ ;

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Janice Swink >> https://truthfulkindness.com/index-persons-with-dementia-pwd/pages-by-janice-swink/ ;

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Jean Lyon >> https://truthfulkindness.com/index-persons-with-dementia-pwd/pages-from-jean-lyon/ ;

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Jennifer Bute >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/ ;

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Jim Pfefferkorn >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/jim-pfefferkorn/

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Joyce Stevens Mullins >> https://truthfulkindness.com/index-persons-with-dementia-pwd/joyce-stevens-mullins/ ;

.Judy Rogers Brinkley >> https://truthfulkindness.com/index-persons-with-dementia-pwd/judy-brinkley/

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Julie Star-Alexander >> https://truthfulkindness.com/index-persons-with-dementia-pwd/juli-star-alexander/ ;

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Karen Francis >> https://truthfulkindness.com/index-persons-with-dementia-pwd/karen-francis/ ;

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Kathleen Anduze >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/kathleen-anduze/ ;

.Keith E. Oliver >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/keith-oliver/ ;

.Kerry Kleinbergen >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kerry-p-kleinbergen/ ;

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Ken Howard >> https://truthfulkindness.com/index-persons-with-dementia-pwd/ken-howard/ ;

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Kevin Smiley >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/kevin-smiley/ ;

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KimJoy Ovard >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/ ;

.Lauren U >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/lauren-u/ ;

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Laurie Scherrer >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/laurie-scherrer/ ;

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LaVerne Belles >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/laverne-belles/ ;

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Linda Pendergrass >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/linda-pendergrass/ ;

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Lori Michaud >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/lori-michaud/ ;

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Marion James >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/marion-james/ ;

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Mary Radnofsky >> https://truthfulkindness.com/index-persons-with-dementia-pwd/mary-radnofsky/ ;

.Matthew Oliver >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/matthew-oliver/ ;

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Maureen Kessler >> https://truthfulkindness.com/index-persons-with-dementia-pwd/maureen-kessler/ ;

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Max McCormick (Dx now Functional Neurological Disorder) >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/max-mccormick/ ;

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Michael Ellenbogen >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/michael-ellenbogen/ ;

Michael Stempora >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/michael-stempora/ ;

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Michael Woods >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/michael-woods/ ;

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Michelle Montgomery >> https://truthfulkindness.com/index-persons-with-dementia-pwd/michelle-montgomery/ ;

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Mike Matherly >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/mike-matherly/ ;

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Missy at https://truthfulkindness.com/index-persons-with-dementia-pwd/missy/ ;

Myrna Norman >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/ ;

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Norman McNamara >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/norman-mcnamara/ ;

.Pamela Gray >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/pamela-gray/ ;

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Paulan Gordon >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/paulan-gordon/ ;

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Peter Berry >> https://truthfulkindness.com/index-persons-with-dementia-pwd/peter-berry/ ;

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Phyllis Cruden-Fehr >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/pcf/ ;

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Robert Bowles >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/ ;

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Ron Coleman >> https://truthfulkindness.com/index-persons-with-dementia-pwd/ron-coleman/ ;

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Scott Drevs >> https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/ ;

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Sherry Stunes >> https://truthfulkindness.com/index-persons-with-dementia-pwd/sherry-stunes/ ;

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SuMM >>  /

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Susan Suchan >> https://truthfulkindness.com/index-persons-with-dementia-pwd/susan-suchan/ ;

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Terri Gadal >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/terri-gadal/ ;

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Theresa Montgomery >> https://truthfulkindness.com/index-persons-with-dementia-pwd/theresa-montgomery/ ;

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Toby Heyworth >> https://truthfulkindness.com/index-persons-with-dementia-pwd/toby-heyworth/ ;

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Tommy Dunne >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/tommy-dunne/ ;

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Truthful Kindness >> https://truthfulkindness.com/ ;

ValerieBlumenthal >> https://truthfulkindness.com/index-persons-with-dementia-pwd/valerie-blumenthal/ ;

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Vicki Atkinson >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/vicki-atkinson/ ;

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Wendy Mitchell >> https://truthfulkindness.com/index-persons-with-dementia-pwd/pgs-wendy-mitchell/ ;

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Zel Caddey >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/zel-caddey/ ;

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* Admin Notes — This entry began … and is by Truthful Loving Kindness (my full legal name) for https://truthfulkindness.com/. For comments or questions, please use that website. The subscription box is now located at the bottom of each blog entry. i also write and publish under the shorter name Truthful Kindness. My current formal diagnosis remains at the stage of Mild Cognitive Impairment, although my Primary Care Physician and several other medical professionals consider it some form of dementia; my PCP records currently state “Dementia without behavioral disturbance, unspecified dementia type.” In recent years, my PCP, my husband/care-partner, and I have jointly decided to discontinue specialist consultations, as the distance and emotional strain of repeated evaluations are not worth the cost to my well-being. My symptoms most closely resemble Lewy Body and vascular dementia patterns; however, SPECT and PET imaging show the most significant brain changes in the temporal lobes, creating overlap with the logopenic variant of Primary Progressive Aphasia (PPA), a subtype within the frontotemporal dementia spectrum. Nothing in this blog is meant as medical, legal, or service dog advice; what I share here comes from lived experience—an attempt to design around decline and make daily life more workable—so please use your own judgment and consult professionals who understand your specific situation. Text Copyright © Truthful L. Kindness, 2014Dec24 and frequently updated. You can learn more about me under the “About Me” tab (note: that page is due for updating). Comments are welcome—please filter them through truthful loving kindness toward all concerned. As of 2026, I use ChatGPT as an editor, which improves readability and reduces the time I spend in the writing process. I do not mind re-posting of my work; however, if you do re-post, you must clearly indicate that the writing is not your own, prominently identify my authorship as Truthful Kindness, and include a clear link to my website so that questions and comments can be directed to me personally: at http://www.truthfulkindness.com.

*** tags: advocacy, alzheimers, dementia, dementia awareness, dementia resources, Dementia Symptom Perspectives, lived experience, PLwD, voices of dementia ;

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4 thoughts on “Library – Voices of People Living with Dementia

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