KimJoy Intro

Contributions from other Persons Living with Dementia symptoms:  KimJoy Ovard,

with PPA-type of Fronto-Temporal Dementia and Lewy Body Dementia.

INTRO  .

excerpts from 30Dec2018:

One day a stranger moved in,
inside me
…it took control…

that stranger is dementia,
no one can evict it, cure it, slow it down.
Can’t even reason with it.

No I didn’t give it permission, nor does it pay rent,
it just is my constant roommate here inside me..
sadly it is in control, I am not anymore,
everyday it takes a little more of me and it doesn’t give anything fun back..

sooooo quietly I wake in the mornings
wondering what I will give up this day

…today I have talked to myself about accepting incontinence,
yep
how bout you think about being 55 and your gonna need diapers,
humiliating huh,
so is needing a cane, not driving, not talking right,

 

only two months ago I only lost a word or two
but now …

I can’t form words due to muscles going away,
……hmmmmmmm

so use your cane,
eat softer foods,

you and Blake start learning a language you both understand, hand signals etc
in case you go mute

…hmmmm

I am trapped inside
alive
and can’t get out

…so I fight to be me,

I try to cope with the humiliating things,
diapers that are coming,
I cope with the losses,
the things I don’t get to do anymore like driving, being alone, working,
so many tiny things that make each of us who we are.

So like the saying
live like your dying,
well each of us are,
but I am living inside myself
with my killer
and I can’t win this fight.

I don’t mean to ramble,
I don’t ask for sympathy,

I just use my words to help myself cope
…it’s scary and lonly inside here.

I am not giving up
I just am coping,
planning how to be sure my family’s ok,
pretending to have the courage for what’s next

…I ask each of you reading my ramblings to be kind to others

for like me they might just be treading water
and you might be their life preserver….

— KimJoy Ovard, 30Dec2018

Full context here >> https://www.facebook.com/photo.php?fbid=10156533989075546&set=a.10150926080225546&type=3&permPage=1

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KimJoy’s index page is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/

KimJoy’s next page will be Roller-Coaster of Primary Progressive Aphasia >>

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Explanatory page for varieties of FTD (including PPA) at >> https://www.nia.nih.gov/health/types-frontotemporal-disorders

Explanatory page for Fronto-Temporal Dementia is here >> http://www.theaftd.org/life-with-ftd/newly-diagnosed

Explanatory page for Lewy Body Dementia is here >> https://www.lbda.org/learn_about_lbd

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You can follow KimJoy Ovard on Instagram >> https://www.instagram.com/kimovard/

You can follow KimJoy Ovard onFaceBook >> https://www.facebook.com/kim.ovard

Contributions from other PLwD are indexed here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. Above items are Copyright exclusively by KimJoy Ovard © 30Dec2018, but if there are font changes i probably added them to make it easier to find later. I may have also added paragraph and line breaks, to make reading easier for those with dementia.  KimJoy Ovard’s final approval on this finished page was 22Apr2019 via FaceBook PM. Tags are: dementia, KimJoy Ovard, PLwD, PPA, primary progressive aphasia, symptom.

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UPDATE: ((Previously, i had a notice here at base of each entry with announcement and Logo for HealthLine 2019 Best Alz Blogs. To my surprise, after HealthLine contacted me in January with fact that i was included in 2019 Best Alz Blogs, then announcing it publically on March 18, ten days later they decided against including writers with Mild Cognitive Impairment, and removed this blog from their listing, leaving only one first-person perspective. Now i am deleting each of those announcements of my inclusion on HealthLine Best Alz Blogs for 2019. i hope they soon decide to include at least one other first-person perspective in their “Best Alzheimers Blogs”.)) >> https://www.healthline.com/health/alzheimers-disease/best-blogs-of-the-year

 

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