Links for Symptoms and Strategies

These Links explain about symptoms and suggest strategies.  This page is in constant change with Links added almost every week.

Most of these Links are projects from folks who have dementia symptoms themselves.
Links from those WITHOUT personal experience of dementia symptoms are clearly marked by “not PLwD” = NOT Person Living with Dementia symptoms.

For ME, first step in finding most-likely strategy is RESEARCH;
first step to find coping strategy is defining the problem.
So more information on Symptoms is an important part in search for strategy.

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Since this is a REFERENCE page, some Links are listed in up to three categories.
Current categories are: Activities, Afternoon/Evening (SunDowners), Anger, Apathy, Calendaring/Scheduling, Care-Partnering, Challenging Behavior, Children, Clothing/Dressing, Comfort, Communication /Conversation/Talk, Confusion/Dis-Orientation, Delusion, Depression, Diagnosis, Driving, End-of-Life, Exercise, Fear, Facility, Financial/Money, Food/Eating/Appetite, Grief/Loss, Hallucinations, Hobbies, Holidays, Home, Hope, Hygiene, Identity, Inflexibility, Legal issues, Living Alone, Medical issues, Medication, Memory/Recognition, Mentors, Mobility, Mood, Noise, Non-Verbal Communication, Numbers, Planning, Preferences, Purpose, Reading/Writing, Relationship, Routine, Sex, Sight/Vision, Sleep (rest/nap) Issues, Smell, Social Inter-Action, Spiritual Beliefs, Stages of Dementia, Swallowing/Throat, Talk, Technology, Therapy General, Therapy of Animals, Therapy of Music, Time, Time-Travel, Tinnitus, Touch, Travel, Visits, Wandering, zzz= uncategorized

!!  Remember, Links are on underLined colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

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Activities incl Productive, Leisure, Self-Care, and Rest/Restoration
(see categories for Exercise, Hobbies, Music, Planning, Purpose, Reading, Social, ) :

Activities for Future Normal by Truthful Kindness at https://truthfulkindness.com/2021/03/28/activities-future-normal/ ;

“Activities” (short video) by retired Dr Jennifer Bute at https://vimeo.com/116855729 ;

We are the Experts (short video) by Helga Rohra at https://vimeo.com/104856641 ;

Importance of Routine (short video) by Shawn Kelley at https://vimeo.com/269864522 ;

What you can do (short video) by Chris Roberts at https://vimeo.com/92974394 ;

vid on Advocacy by Janice Swink at https://vimeo.com/292944257 ;

not PLwD: “Why Activities Matter” 5-min video by Teepa Snow at https://youtu.be/OWheW1MR4Q8 ;

not PLwD:  “Activities” 15-min video by Teepa Snow at https://youtu.be/7Ek04qjT-xQ ;

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Afternoon & Evening (aka “SunDowning”):

Altered AfterNoon Relationships by Truthful Kindness at https://truthfulkindness.com/2019/02/11/altered-afternoon-relationships/ ;

“MeltDown” by Missy at https://truthfulkindness.com/index-persons-with-dementia-pwd/missy/meltdown/ .

“Sundowning” short vid by retired Dr Jennifer Bute at https://vimeo.com/229082836 ;

“Sundowning” by Karen Francis at https://truthfulkindness.com/2014/10/24/dementia-sundowning-concepts-from-karen-francis/ ;

not PLwD: Sundowning 4-min video by UCLA at https://youtu.be/kskiEKghjAE ;

??  not PLwD: “Time-of-Day” 15-min video by Teepa Snow at https://youtu.be/6AWoxhfvQkA ;

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Anger (please also see category for “mood”):

Alzheimer’s Anger by Missy at https://truthfulkindness.com/index-persons-with-dementia-pwd/missy/alzheimers-anger/ ;

Anger at interruption by Cindy Odell at https://ftdnoflowers.blogspot.com/2018/01/mood-swings-anger-and-frustration.html ;

Fear as Cause of Anger by Truthful Kindness at https://truthfulkindness.com/2021/01/31/fear-anger-dementia/ ;

“Inflammation Communication and feeling Tied up” by Truthful Kindness at https://truthfulkindness.com/2021/03/31/tied/ ;

Mike Belleville and Brian LeBlanc 45-min vid on anger, family, and relationships at https://youtu.be/psHl3gcnArU ;

UnControllable Fury by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/uncontrollable-fury/ ;

video (1-hr) by Dementia Chats’ panelists at https://youtu.be/7r1aD0CkgjY ;

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Art  =(please see categories for Communication and Hobbies)

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Apathy (also see category for “mood”):

“Apathy and Empathy” by Cindy Odell at https://ftdnoflowers.blogspot.com/2018/02/apathy-and-loss-of-empathy-strike-again.html ;

Grief and Apathy 1-hr video by Dementia Chats’ panelists at https://youtu.be/2dllBp7vz5I ;

“Lack of Self-Expression” by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/self-expression-trtl/ .

by Tim Perkins at https://vimeo.com/363359890 ;

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Calendaring/Scheduling:

Dates by retired Dr Jennifer Bute at https://vimeo.com/134314802 ;

“Scheduling” section of https://truthfulkindness.com/2021/03/28/activities-future-normal/ ;

Vid (1-hr) by Dementia Chats’ panelists at https://youtu.be/2R76DBLWM1k ;

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Care-Partnering;

by retired Dr Jennifer Bute at https://vimeo.com/116634591 ;

Care-Giver Focus by Truthful Kindness at https://truthfulkindness.com/2020/10/25/caregiver-focus/ ;

Effective Listening for PARTNERship by Truthful Kindness at https://truthfulkindness.com/2019/06/10/effective-listening-partner/ ;

Experts and Care-Partners 1-hr video by Dementia Chats’ panelists at https://youtu.be/WCD4QD0kcBs ;

Impact 1-hr video by Dementia Chats’ panelists at https://youtu.be/FNJS2RlPRIs ;

In-Home Care by Truthful Kindness at https://truthfulkindness.com/2021/06/27/in-hm-care/ ;

Partner Praise by Truthful Kindness at https://truthfulkindness.com/2019/11/11/partner-praise/ ;

“Sacrifice” 1-hr video by Dementia Chats’ panelists at https://youtu.be/V7dD5i9rSiw ;

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Challenging Behavior (Behaviors that Care-Partners find exceptionally CHALLENGING to their personal patience and abilities)

Asking to go Home by Truthful Kindness at https://truthfulkindness.com/2021/03/07/to-go-home/ ;

Behavior by retired Dr Jennifer Bute at https://vimeo.com/36956786 ;

Feelings by retired Dr Jennifer Bute at https://vimeo.com/166788379 ;

“I Couldn’t Speak” (aphasia) by Brian LeBlanc at http://www.caregiversupportandresources.com/aphasia-i-couldnt-speak/ ;

ReAssurance by retired Dr Jennifer Bute at https://vimeo.com/295749304 ;

Repeat Questions by Truthful Kindness at https://truthfulkindness.com/2021/02/21/repeat-questions/ ;

Therapeutic Fib by Truthful Kindness at https://truthfulkindness.com/2021/02/07/lying/ ;

TP and Dementia by Truthful Kindness at https://truthfulkindness.com/2021/02/28/tp-and-dementia/ ;

not PLwD: Calming Distress by Teepa Snow at https://youtu.be/qGqYaRhjxrM ;

not PLwD: “Challenging Behavior” by Teepa Snow at https://youtu.be/ZpXeefZ2jAM ;

not PLwD: “Looking for Children who are not there” by Teepa Snow at https://youtu.be/lG0DACOp2SY ;

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Children:

Book for children abt dementia by Anne Scott “Sizzling Bacon” (written from 10-year-old perspective) at https://smile.amazon.com/gp/product/B08NGTBSV4 ;

not PLwD:  Excellent book for children abt dementia “Why did Grandma put her Underwear in the Refrigerator” at https://smile.amazon.com/gp/product/B00DQG5QEU ;

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Clothing/Dressing:

Adaptations by Truthful Kindness at https://truthfulkindness.com/2019/01/07/adaptations-dressing/ ;

Bib-Collar as Strategy at https://truthfulkindness.com/2021/01/03/bib/ ;

Mask by Truthful Kindness at https://truthfulkindness.com/2020/08/16/mask-communication-id/ ;

Under-Wear by Truthful Kindness at https://truthfulkindness.com/2017/10/23/dementia-underwear/ ;

not PLwD: Assisting by Teepa Snow at https://youtu.be/Wn1OEfQt0ow ;

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Comfort = (also see category of therapy)

Asking to go Home by Truthful Kindness at Repeat Questions by Truthful Kindness at https://truthfulkindness.com/2021/02/21/repeat-questions/ ;

“A Pot and Dementia” by KimJoy Ovard at https://truthfulkindness.com/index-persons-with-dementia-pwd/kimjoy-ovard/pot-dementia/ .

Therapeutic Fib by Truthful Kindness at https://truthfulkindness.com/2021/02/07/lying/ ;

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Communication
(also see categories for “writing/reading”, and “non-verbal communication”):

Links about COMMUNICATION, including Conversation issues, Non-Verbal communication, Reading/Writing, and Terminology moved to https://truthfulkindness.com/about/d-info/links-sx-strategies/dementia-communication/ ;

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Confusion & Dis-Orientation:

“Constant Fog” by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/constant-fog/ ;

Disconnect for Cause/Effect by Truthful Kindness at https://truthfulkindness.com/2014/12/28/recent-disconnect-from-understanding-source-of-dissatisfaction/ ;

Frequent Toilet Trips (for best concentration) by Truthful Kindness at https://truthfulkindness.com/2021/06/13/frequent-toilet/ ;

Repeat Questions by Truthful Kindness at https://truthfulkindness.com/2021/02/21/repeat-questions/ ;

Thinking Aloud >> https://truthfulkindness.com/2020/02/24/thinking-aloud-short-term-memory/ ;

Where am i by Truthful Kindness at https://truthfulkindness.com/2016/05/08/first-time-of-where-am-i/ ;

“Worry” by Lauren U at https://teepasnow.com/blog/lauren-with-a-side-of-lewy/ ;

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Crafts = (see hobbies)

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Delusion
(A delusion is an unshakable belief in something untrue.
Can be a misinterpretation, illusion, or hallucination, so also check “Hallucination” category)

Misinterpretation or Hallucination >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/misinterpretation-hallucination/ ;

“Night illusions” on difference between hallucination, Visual Misrepresentation, and Visual Misinterpretations by retired doctor Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/night-illusions/

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Depression:

Awareness of Cognitive Decline at https://truthfulkindness.com/2020/11/06/cognitive-decline/ ;

Celebrate Success vs Despair by Truthful Kindness at https://truthfulkindness.com/2021/06/18/celebrate-success/ ;

“Dementia and Depression” by Karen Francis at https://vimeo.com/96957140 ;

Depression and Sadness 1-hr video by Dementia Chats’ panelists at https://youtu.be/-IvL5MJI5Kg ;

“it’s NOT okay” by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/not-okay/ ;

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Diagnosis:

Links about Dementia Diagnosis are now at https://truthfulkindness.com/about/d-info/links-sx-strategies/links-on-dementia-diagnosis-issues/ ;

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Driving (Please also see “travel” category)

Links about Driving with Dementia are now at https://truthfulkindness.com/about/d-info/links-sx-strategies/driving/ ;

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Emotions = (see category for “Mood”)

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End-of-Life:

by retired Dr Jennifer Bute at https://vimeo.com/116842307 ;

Gillian by Truthful Kindness at https://truthfulkindness.com/2014/08/20/gillian/ ;

Misty’s statement at https://truthfulkindness.com/2016/05/06/misty-stenslie/ ;

Vegetative State by Truthful Kindness at https://truthfulkindness.com/2018/08/20/vegetable-human/ ;

Why I want to Continue Fighting” by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/spiritual-sept-2015/ ;

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Exercise:

by Larry at https://vimeo.com/272975737 ;

by Laurie Scherrer at https://vimeo.com/135488948 ;

vid by Truthful Kindness at https://vimeo.com/102320840 ;

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Facility Care: Timing, Senior Living, Assisted Living, Memory Care:

Visit Facility by Robert Bowles at https://truthfulkindness.com/index-persons-with-dementia-pwd/robert-bowles-jr/visit-facility/ ;

not PLwD: 22-min vid with Teepa Snow on timing for moving to Facility Care at https://youtu.be/kelCreOoENE ;

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Fear:

Fear as Cause of Anger by Truthful Kindness at https://truthfulkindness.com/2021/01/31/fear-anger-dementia/ ;

Uncontrollable Fury by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/uncontrollable-fury/ ;

Fear of being a burden by retired doctor David Hilfiker at https://www.agingcare.com/Articles/On-Being-a-Burden-186064.htm ;

Fear from Clinical outlook and “prognosis” by Susan Suchan at https://alzauthors.com/2017/02/14/meet-blogger-susan-suchan-this-disease-does-not-come-with-an-instruction-manual/ ;

Not Afraid by Myrna Norman at https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/not-afraid/ ;

not PLwD: 5-min vid showing process of Fear to cooperation by Teepa Snow at https://youtu.be/xNznZ2MnV3I ;

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Filter (What is appropriate Language/Behavior):

“Living with FTD” by Andrew Garvey at https://vimeo.com/136838002 ;

Loss of Filter by Truthful Kindness at https://truthfulkindness.com/2019/05/06/filter-conversation/ ;

Self-Control by Truthful Kindness at https://truthfulkindness.com/2015/01/26/hole-in-my-self-control/ ;

“This Will be Me” by Myrna Norman at https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/this-will-be-me/ .

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Financial/Money:

“Money Control with Dementia” by Truthful Kindness at https://truthfulkindness.com/2021/04/18/money-dementia/ ;

not PLwD: “Dementia vs Credit Cards” by Gary Joseph LeBlanc at https://balance.hcr-manorcare.com/blog-posts/gary-j-leblanc-dementia-vs-credit-cards/ ;

not PLwD: “Dementia and Money” 3-min vid by Holly P. Donaldson, CFP at https://youtu.be/miZyDcZUpBE ;

not PLwD: “What to do if your Loved One with dementia keeps asking you for Money” 5-min vid by Dementia CareBlazers at https://youtu.be/x7bxCCK-gLk ((however, i have a problem with this video that the intro music continues after the speaker is talking, which makes it VERY difficult for PLwD to understand the words)).

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Focus (see symptom of “confusion”):

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Food, Eating, Appetite Changes:

Appetite by Barry Pankhurst at https://vimeo.com/134511890 ;

Food by retired Dr Jennifer Bute at https://vimeo.com/228789426 ;

Loss of Smell and Taste by Truthful Kindness at https://truthfulkindness.com/2021/05/23/loss-smells-taste/ ;

Re-Heated Taste by Truthful Kindness at https://truthfulkindness.com/2021/08/08/re-heated-taste/ ;

Sensory Challenges by Agnes Houston at https://youtu.be/U_L2107EweQ ;

Swallowing by Susan Suchan at https://vimeo.com/102324473 ;

“Taste and Appetite” by Greg O’Brien, 4-minute audio at https://www.npr.org/sections/health-shots/2015/07/25/425721231/when-alzheimers-steals-your-appetite-remember-to-laugh ;

Taste changes by Barry Pankhurst at https://vimeo.com/223481468 ;

not PLwD: Food-Prep together-time 5-min video by Teepa Snow at https://youtu.be/1TuKZqcPenA ;

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Grief & Loss:

Grief & Gratitude by Truthful Kindness at https://truthfulkindness.com/2015/11/24/dst-grief-depression-attitude-of-gratitude/ ;

Grief after death of our Dementia Friends video by Dementia Chats at https://youtu.be/2dllBp7vz5I ;

Melancholy by Truthful Kindness at https://truthfulkindness.com/2014/11/10/melancholy-day/ ;

Symptom Intensification by Truthful Kindness at https://truthfulkindness.com/2019/02/25/sx-grief-katie/ ;

Top Tip by Truthful Kindness at https://truthfulkindness.com/2017/04/21/pwd-grieve2accept-dx-purpose/ ;

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Hallucination:

by Robert Bowles at https://vimeo.com/97279256 ;

Impact of Nocturnal Hallucinations by Truthful Kindness at https://truthfulkindness.com/2016/01/19/impact-terrors-dreams/ ;

LBD Hallucinations by retired Dr Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/hallucination-goat/ ;

Misinterpretation or Hallucination >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/misinterpretation-hallucination/ ;

Smell Hallucinations by Truthful Kindness at https://truthfulkindness.com/2015/01/19/smell-hallucinations-dementia/ ;

Types by Truthful Kindness at https://truthfulkindness.com/2020/01/26/hallucination-types/ ;

vid by retired Dr Jennifer Bute at https://vimeo.com/228775116 ;

not PLwD: “Redirecting Hallucinations” by expert Teepa Snow at https://youtu.be/NOilnXafdTc ;

not PLwD: Webinar by LBDA (Lewy Body Dementia Assoc) at https://youtu.be/zGSS4qNaJH0 ;

Consensus Reality (vs Hallucination Reality) definition at https://en.wikipedia.org/wiki/Consensus_reality ;

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Hobbies (also see category for “activities”):

Artwork with Kathleen Anduze at  https://vimeo.com/134843730 ;

“Benefits of Arts” group chat project with DAA Arts and Alzheimers Speaks at https://youtu.be/zujj-IRW62Y ;

“Creativity” section at https://truthfulkindness.com/2021/03/28/activities-future-normal/ ;

Dementia Craftivists at https://youtu.be/-rjsQ0qLgSU ;

Gardening by Harry Urban at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/garden-2018may/ ;

Index page for Arts and Crafts by Truthful Kindness at https://truthfulkindness.com/about/life-other/arts-crafts/ ;

New Project by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/new-project/ ;

Painting by Mike Belleville at https://vimeo.com/264446906 ;

Photography by Gill at https://vimeo.com/93854586 ;

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Holiday Symptoms and Strategies:

Grief, Apathy, and Holiday Emotions 1-hr video by Dementia Chats’ panelists at https://youtu.be/2dllBp7vz5I ;

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Home:

“To Go Home” by Truthful Kindness at https://truthfulkindness.com/2021/03/07/to-go-home/ ;

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Hope;

Perspective of Hope by Truthful Kindness at https://truthfulkindness.com/2019/01/21/perspective-hope/ ;

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Humor  = (see category for “Laughter”)

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Hygiene:

This CATEGORY will be MOVING to SEPARATE PAGE in July 2021.

Barry Pankhurst at https://vimeo.com/136129044 ;

Bath / Shower Needed by Truthful Kindness at https://truthfulkindness.com/2021/03/21/bath-shower-needed/ ;

Bathing Tips by Marsha York at https://vimeo.com/217696833 ;

BathTub issues by Truthful Kindness at https://truthfulkindness.com/2015/01/11/time-priority-adjustment-bathtub-dementia-symptoms/ ;

Body Odor by Truthful Kindness at https://truthfulkindness.com/2018/03/26/sensor4-body-odor/ ;

!Crucial!  Feelings about wearing DIAPERS by Elmarie at https://beautifulmemories.video.blog/2021/05/05/the-morning-after/ ;

NEED Frequent Toilet Trips by Truthful Kindness at https://truthfulkindness.com/2021/06/13/frequent-toilet/ ;

Public RestRooms by Truthful Kindness at https://truthfulkindness.com/2018/03/19/public-restrooms/ ;

Susan Suchan at http://vimeo.com/111980741 ;

Toilet Paper by Truthful Kindness at https://truthfulkindness.com/2021/02/28/tp-and-dementia/ ;

Teeth by Truthful Kindness at https://truthfulkindness.com/2018/06/18/electric-toothbrush/ ;

not PLwD: “Wash Your Hands” by Teepa Snow at https://youtu.be/e7sHsQkkch0 ;

not PLwD:  Issue of Incontinence (first 30min of video) by Teepa Snow at https://youtu.be/kd26usrUtDI ;

Bathing Dilemmas by Gary Joseph LeBlanc at https://dementiaspotlightfoundation.org/bathing-dilemmas-and-dementia/ ;

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Identity:

Am i Still Me by Truthful Kindness at https://truthfulkindness.com/2015/06/07/self-identity-am-i-still-me/ ;

I’m Still Richard by Richard Taylor PhD at https://vimeo.com/95513323 ;

Never Lose Self-Identity by Paulan Gordon at https://vimeo.com/94797676 ;

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Inflexibility:

Frosty & Fragile by Truthful Kindness at https://truthfulkindness.com/2019/01/28/frosty-and-fragile/ ;

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Kitchen:

Adapting by Jennifer Bute at https://vimeo.com/105022828 ;

Decisions by Truthful Kindness at https://truthfulkindness.com/2014/09/09/distorted-decision-making-in-kitchen/ ;

Microwave by Truthful Kindness at https://truthfulkindness.com/2021/03/14/microwave-cup-runneth-over/ ;

not PLwD: Deirdre Thornton (w/Teepa Snow) at https://teepasnow.com/blog/do-you-see-what-i-see-small-changes-that-make-a-big-difference-in-the-kitchen-for-plwd/ ;

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Laughter:

April Laughter by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/april-laughter/ ;

Gotta Laugh by Mike Matherly at https://truthfulkindness.com/index-persons-with-dementia-pwd/mike-matherly/gotta-laugh-symptoms/ ;

Humor and Laughter 1-hr video by Dementia Chats’ panelists at https://youtu.be/Vt1t8bTAFgk ;

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Legal Issues:

“Advanced Directive” by Paulan Gordon at https://vimeo.com/105018587 ;

Applying for Financial Benefits by Diana Winoker at https://vimeo.com/99536905 ;

Legal & Domestic help by Diana Winoker at https://vimeo.com/106734150 ;

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Living Alone:

Alone for a Week by Truthful Kindness at https://truthfulkindness.com/2019/09/30/alone4week/ ;

by retired Dr Jennifer Bute at https://vimeo.com/166619784 ;

Living Single by Diana Winoker at https://vimeo.com/106734150 ;

Maria in Proj/intrvw/Teepa on topic of Living Alone at https://youtu.be/JiUfMMinPcU ;

Staying Alone by Elmarie in South Africa at https://vimeo.com/362831539 ;

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Medical Issues:

Doctor Visit by Cindy Odell at https://ftdnoflowers.blogspot.com/2021/01/why-do-doctors-not-understand.html ;

Inflammation by Truthful Kindness at https://truthfulkindness.com/2021/03/31/tied/ ;

Patient vs Doctor by Robert Bowles at https://vimeo.com/110058125 ;

“Surgery” by retired pharmacist Robert Bowles at https://vimeo.com/102426699 ;

to Specialists by Truthful Kindness at https://truthfulkindness.com/2018/05/01/2-neurologists/ ;

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Medication:

Organizing medication by retired Dr Jennifer Bute at https://vimeo.com/103639184 ;

Right Meds by Barry Pankhurst at https://vimeo.com/92727586 ;

Steroids by retired pharmacist Robert Bowles at https://vimeo.com/111342851 ;

not PLwD: Teepa Snow (1) at https://youtu.be/CT9dqYEIqbs … & (2) at https://youtu.be/drE_1nYa7Ao .

not PLwD: Aricept and Alzheimers by Being Patient at https://www.beingpatient.com/how-does-aricept-work-in-the-brain/ ;

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Memory & Recognition of Loved Ones:

Links moved to https://truthfulkindness.com/about/d-info/links-sx-strategies/memory-links/ ;

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Mentors:

“Harry’s Lantern” by Truthful Kindness at https://truthfulkindness.com/2015/02/02/harrys-lantern-dementia-trail/ ;

Dementia Mentors’ website at https://www.dementiamentors.org/ ;

Dementia Mentors in OUR Words by members at https://truthfulkindness.com/2020/09/27/dm-our-words/ ;

“Impact of Example” by Truthful Kindness at https://truthfulkindness.com/2015/06/23/impact-example-respond/ ;

Individual Mentors by Paulan Gordon at https://vimeo.com/415997686 ;

Tour of Dementia Mentors at https://vimeo.com/showcase/3464118/video/264048358 ;

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Mobility:

“Tar Pit” by Truthful Kindness at https://truthfulkindness.com/2017/05/29/walking-tar-pit/ ;

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Money = (see category for “Financial”)

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Mood
(also see Anger, Depression, Fear, Grief, Hope, Laughter, Spiritual, and Therapy);

“Extremes” by Missy at https://truthfulkindness.com/index-persons-with-dementia-pwd/missy/extremes/ ;

Fear as Cause of Anger by Truthful Kindness at https://truthfulkindness.com/2021/01/31/fear-anger-dementia/ ;

Inflammation Communication and all Tied up by Truthful Kindness at https://truthfulkindness.com/2021/03/31/tied/ ;

“Look for the Joy” by Theresa Montgomery at https://truthfulkindness.com/index-persons-with-dementia-pwd/theresa-montgomery/joy/ ;

Mood Swings by Barry Pankhurst at https://vimeo.com/103052638 ;

Partner Communication of Distress by Truthful Kindness at  https://truthfulkindness.com/2021/02/14/partner-distress/ ;

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Music = (see category for “Therapy of Music”)

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Noise:

BackGround Noise by Truthful Kindness at https://truthfulkindness.com/2015/12/22/drt-background-noise-2015-12/ ;

Sensory Challenges by Agnes Houston at https://youtu.be/U_L2107EweQ ;

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Non-Verbal Communication

Links about COMMUNICATION, including Non-Verbal communication, Conversation Issues, Reading/Writing, and Terminology at https://truthfulkindness.com/about/d-info/links-sx-strategies/dementia-communication/ ;

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Numbers:

Math Problems by Truthful Kindness at https://truthfulkindness.com/2015/10/27/symptom-math-problems/ ;

Partnership with Time by Truthful Kindness at https://truthfulkindness.com/2016/03/15/partnership-time/ ;

Weather Numbers by Truthful Kindness at https://truthfulkindness.com/2020/08/30/weather-forecast/ ;

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Planning (also see category of “Activities” and “Calendaring”):

Bad Day Indicators by Truthful Kindness at https://truthfulkindness.com/2018/04/09/bad-day-indicators-suggestions/ ;

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Preferences:

My Favorite Things by Truthful Kindness at https://truthfulkindness.com/about/about-me/favorites/ ;

not PLwD: Preferences & Thrive-to-Survive by Teepa Snow at https://youtu.be/dsYjMKBsYCk ;

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Purpose (also see category for “activities”):

Dont Lose Purpose by Richard Taylor PhD at https://vimeo.com/95509598 .

Finding Purpose by Robert Bowles at https://vimeo.com/105478829 ;

Inter-action between relationship and purpose by Lauren U at https://teepasnow.com/blog/lauren-with-a-side-of-lewy-8/ ;

not PLwD: “Meaningful Activities” by Teepa Snow at https://youtu.be/7Ek04qjT-xQ ;

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Reading & Writing

Links about COMMUNICATION, including Reading/Writing, Conversation issues, Non-Verbal communication, and Terminology at https://truthfulkindness.com/about/d-info/links-sx-strategies/dementia-communication/ ;

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Relationship
(also see category for “Care Partnering”, “Communication”, “Conversation”, and “Visits”):

Links for Dementia Relationships have been moved to >> https://truthfulkindness.com/about/d-info/links-sx-strategies/relationships/ ;

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Routine:

Adapting thru Routine (1-hr video) by Dementia Chats’ panelists at https://youtu.be/SH88Z6MbKGI ;

Importance of Routine by Shawn Kelley at https://vimeo.com/269864522 ;

Video (1-hr) by Dementia Chats’ panelists at https://youtu.be/2R76DBLWM1k ;

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Self-Identity = (see category for “Identity”)

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Sensory Changes  = (see categories for food, music, noise, sight, smell, touch):

.

Sex:

vid with retired Dr David Kramer at https://vimeo.com/135801398 ;

.

Sight / Vision:

Color as Strategy by Truthful Kindness at https://gloriousopportunity.org/dvd1.php ;

Colour by retired Dr Jennifer Bute at https://vimeo.com/228785408 ;

In the Dark by Paulan Gordon at https://vimeo.com/222917455 ;

Learned by Truthful Kindness at https://truthfulkindness.com/2019/10/31/lrnd-power-outage/ ;

Lighting Needs by Truthful Kindness at https://truthfulkindness.com/2020/01/13/change-lighting-needs/ ;

Sensory Challenges by Agnes Houston at https://youtu.be/U_L2107EweQ ;

vid by Norm McNamara at https://vimeo.com/108706946 ;

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Sleep (rest/nap) Issues:

Best Practices by Truthful Kindness at https://truthfulkindness.com/2016/03/23/sleep-problems-again/ ;

Effects by Barry Pankhurst at https://vimeo.com/139822659 ;

Insomnia by Truthful Kindness at https://vimeo.com/144269686 ;

“Need for Nap” by Truthful Kindness at https://truthfulkindness.com/2018/06/04/need4-nap/ ;

sleep and winter by Lauren U at https://teepasnow.com/blog/lauren-with-a-side-of-lewy-10/ ;

vid by Truthful Kindness at https://vimeo.com/144269686 ;

not PLwD: vid by UCLA at https://youtu.be/skgL6XzLqG8 ;

not PLwD: Webinar by LBDA (Lewy Body Dementia Assoc) at https://youtu.be/bnHQwduxGSA ;

.

Smell:

Body Odor by Truthful Kindness at https://truthfulkindness.com/2018/03/26/sensor4-body-odor/ ;

Loss of Smells and Taste by Truthful Kindness at https://truthfulkindness.com/2021/05/23/loss-smells-taste/ ;

Smell Hallucinations by Truthful Kindness at https://truthfulkindness.com/2015/01/19/smell-hallucinations-dementia/ ; and vid at https://vimeo.com/140180487 ;

Odor elimination is discussed in later section by Cindy Odell at https://ftdnoflowers.blogspot.com/2018/01/first-tribute-and-then-some-helpful.html ;

.

Social Interaction (see also category for “activities”):

by Helga Rohra at https://vimeo.com/97325112 ;

Calendar by Truthful Kindness at https://truthfulkindness.com/2020/04/21/adding-calendar/ ;

“Changes after Self-Isolation” >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/changes-isolation/ ;

Dementia Mentors in OUR Words by members at https://truthfulkindness.com/2020/09/27/dm-our-words/ ;

Introvert Needs by Truthful Kindness at https://truthfulkindness.com/2016/05/31/introvert-pwd-need-social-activity/ ;

Online Communities by Truthful Kindness at https://truthfulkindness.com/2014/08/20/online-dementia-communities/ ;

Social Media by Chris Roberts at https://vimeo.com/94379005 ;

.

Spiritual Beliefs in Context of Dementia:

Believe by Helga Rohra at https://vimeo.com/97325112 ;

Devotional Vids by Jennifer Bute at https://gloriousopportunity.org/dvd1.php ;

Devotions for facing Alzheimers with Faith by Paul Hornback at https://faithfulfoggyliving.wordpress.com ;

Keeping Faith by Peter Tullett at https://vimeo.com/263512162 ;

My Journey by Truthful Kindness at https://truthfulkindness.com/2015/12/15/spiritual-journey-dementia-symptoms/ ;

not PLwD: “Understanding” by Teepa Snow at https://youtu.be/1EGhhZdQ_ts ;

.

Stages of Dementia:

Awareness of Cognitive Decline by Truthful Kindness at https://truthfulkindness.com/2020/11/06/cognitive-decline/ ;

by Harry Urban at https://vimeo.com/98141630 ;

by Karen Francis at https://vimeo.com/96859832 ;

Stages and Inconsistencies by Truthful Kindness at https://truthfulkindness.com/2021/06/02/dementia-stages-and-inconsistencies/ ;

not PLwD but extremely interesting to possibly change the abuse/neglect that can be associated with the feelings of “It doesnt matter because my loved one is already gone and this is just an empty shell of a body”; from National Institutes of Health: “Paradoxical lucidity is the kind of phenomenon that can reshape our views of cognitive impairment and dementia if we can understand more about it. We may also expand our understanding about consciousness and personhood in people with dementia, which could affect the way we care for them.”  >> https://www.nia.nih.gov/research/blog/2019/09/exploring-unexpected-what-can-we-learn-lucidity-dementia .

.

Sundowning = (see category of “Afternoon/Evening”)

.

Swallowing and Throat (dysphagia):

Early Swallowing Problems by Truthful Kindness at https://truthfulkindness.com/2021/05/16/early-swallowing-problems/ ;

Let Swallowing begin by Cindy Odell at https://ftdnoflowers.blogspot.com/2015/07/let-swallowing-begin-please.html ;

Swallowing Tips by Susan Suchan at https://vimeo.com/102324473 ;

not PLwD: Being Patient at https://www.beingpatient.com/caregiver-help-eating-swallowing-dysphagia/ ;

.

Talk
(also see categories for “conversation”, “writing/reading”, and “non-verbal communication”):

Links about COMMUNICATION, Conversation, and Terminology at https://truthfulkindness.com/about/d-info/links-sx-strategies/dementia-communication/ ;

.

Taste (see “Food” category)

.

Technology strategies and symptoms:

Apps for Arts and Crafts by Truthful Kindness at https://truthfulkindness.com/about/life-other/arts-crafts/apps/ ;

Video by Dementia Chats’ panelists at https://youtu.be/q4fN88nhSjw ;

.

Terminology

Links about COMMUNICATION, including Terminology, Conversation issues, Non-Verbal communication, and Reading/Writing at https://truthfulkindness.com/about/d-info/links-sx-strategies/dementia-communication/ ;

.

Therapy (general): (also see categories for hobbies and preferrences)

Dolls by Janice Crich at https://vimeo.com/281972383 ;

Pets (1-hr video) by Dementia Chats’ panelists at https://youtu.be/CZ4lbW1y3Wc ;

Sunshine by Karen Francis at https://vimeo.com/101803169 ;

.

Therapy of Animals:

Chickens for Personal Therapy by Truthful Kindness at https://truthfulkindness.com/2020/04/27/chickens-for-personal-therapy/ ;

vid by Brian LeBlanc at https://vimeo.com/136122141 ;

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Therapy of Music (also see category of “Noise”):

Instrument by Anne Miller at https://vimeo.com/364850226 ;

Instrument by Truthful Kindness at https://vimeo.com/192204556 ;

Music is Connection by Truthful Kindness at https://truthfulkindness.com/2015/08/25/music-is-connection-dementia-symptoms/ ;

Music Therapy by Shawn Kelley at https://vimeo.com/262604476 ;

Preparing with Song by Michelle Montgomery at https://truthfulkindness.com/index-persons-with-dementia-pwd/michelle-montgomery/preparing-with-song/ ;

Retired Dr Jennifer Bute at https://vimeo.com/359732373 ;

.

Time:

Time & Energy by Truthful Kindness at https://truthfulkindness.com/2015/07/20/time-energy-consumption-dementia-symptoms/ ;

.

Time-Travel (see also category for “confusion”):

by retired Dr Jennifer Bute at https://vimeo.com/229082693 ;

Tinnitus:

Tinnitus by Truthful Kindness at https://truthfulkindness.com/2018/12/11/tinnitus/ ;

.

Touch:

Need for Touch by Harry Urban at https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/need-for-touch/ ;

Prose by Truthful Kindness at https://truthfulkindness.com/2014/11/07/hold-hand-anchor-me/ ;

Sensory Challenges by Agnes Houston at https://youtu.be/U_L2107EweQ ;

.

Travel:

by retired Dr Jennifer Bute at https://vimeo.com/295537692 ;

Effect of Travel by Harry Urban at https://vimeo.com/103148134 ;

Motels by Truthful Kindness at https://truthfulkindness.com/2015/05/25/symptom-problems-overnight-motel/ ;

Passenger Tips by Barry Pankhurst at https://vimeo.com/132949937 ;

Planning Travel by Paulan Gordon at https://vimeo.com/108706116 ;

Public RestRooms by Truthful Kindness at https://truthfulkindness.com/2018/03/19/public-restrooms/ ;

Public Transportation by Jennifer Bute at https://vimeo.com/103051353 ;

Tips by Diana Winoker at https://vimeo.com/110058660 ;

Vid (1-hr) by Dementia Chats’ panelists at https://youtu.be/WP3mPgJ_Scw ;

.

Visits (also see “communication”)

About Visits by Truthful Kindness at https://truthfulkindness.com/2021/04/11/about-visits/ ;

“Tommy’s Tips” at https://truthfulkindness.com/index-persons-with-dementia-pwd/tommy-dunne/4visits-2020/ .

non-PLwD: Teepa Snow has a YouTube series called “Making Visits Valuable” which i think is excellent.  at https://www.youtube.com/watch?v=sUgPm8RMa48&list=PL2E2lPBsUeBjA1Utglo8q6yANAijEf8cX ;

non-PLwD: Dr Daniel Potts (neurologist) has poem at https://danielcpotts.wordpress.com/2021/03/27/you-chose-to-listen/ ;

non-PLwD: DailyCaring at https://dailycaring.com/visiting-someone-with-alzheimers-dos-and-donts-for-visitors/ ;

.

“Wandering” issue (also see “exercise”):

“When Stressed” by Truthful Kindness at https://truthfulkindness.com/2018/12/10/stress-walk/ ;

“Where am i” by Truthful Kindness at https://truthfulkindness.com/2016/05/08/first-time-of-where-am-i/ ;

vid by retired Dr Jennifer Bute at https://vimeo.com/228780284 ;

not PLwD: vid by UCLA at https://youtu.be/Sw0yEB508mI ;

not PLwD: by MayoClinic at https://www.mayoclinic.org/healthy-lifestyle/caregivers/in-depth/alzheimers/art-20046222/ ;

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zzz = Uncategorized Misc:

Finding Balance and Joy 1-hr video by Dementia Chats’ panelists at https://youtu.be/b0KnqoX-zqM ;

Lack of Confidence by Lauren U at https://teepasnow.com/blog/lauren-with-a-side-of-lewy-7/ ;

Moving (1-hr video) by Dementia Chats’ panelists at https://youtu.be/sLoSlo-pvME ;

Pain Impact 1-hr video by Dementia Chats’ panelists at https://youtu.be/2TW9E1aHAW0 ;

.

Dementia Info Links is at https://truthfulkindness.com/about/d-info/ ;

YaY !!!  the DEEP project in UK has started a Dementia Tips website here >> https://dementiatip-share.org.uk/our-tips/ .

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Dont know how to do my classic ending with this new WordPress format.  Copyright by Truthful L. Kindness on 01Oct2020.  Began this on 15Sep2020 and published Fri 01Oct2020 with more than 37 hrs invested in this page … plus 25 hrs revision/additions after posting.  . Making separate pages for categories when there gets to be too many Links for any one category.

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