PWD Norman McNamara September 2015

616 Norrms pic 20150915 Posted August 10, 2015

LIVING or Existing with Lewy Body`s ?? ,,,,,,,,,,, Please share

Opening my eyes after another long dark night I just knew it had been a bad one. The horrific memories of the night before came flooding back like a river bursting its banks, the horrors of people being hurt in the most awful way, being trapped in a burning building a mile high and the building swaying side to side, children, and “MY” Children fleeing from an invisible evil force a my legs turned to lead as I try to protect them, screaming out into the night in a high pitched voice, one I cannot repeat whilst awake, and I have tried, but worst of all, thrashing and fighting whilst the love of my life tries to put a pillow between us to stop any harm coming to both of us

Welcome to not my world, but OUR WORLD …………………
This doesn’t include the hallucinations where I run through the house, fighting and screaming at who I have called “The Shadow Man” as he taunts me, goads me and hangs over me like a cloak of evil, destroying my mind slowly and trying to drive me insane, whilst all the time my “Angel Elaine” follows me through the house, watching me, making sure I don’t hurt myself if possible and being there for me when my hallucinations stop and I stand there staring into space as if nothing’s happened and no idea where I am or how I got there.

When does this happen?? Some nights? Most nights Once a week?? Yes to all of the above questions, there is no pattern to this, no rhyme or reason, it JUST Happens. Every presentation I do I always say I have no idea how Elaine or any of you wonderful carers survive, but, THANK GOD YOU DO , because if you didn’t ???

“”SHUDDER “”” It doesn’t bear thinking about

Norrms, Diagnosed with dementia aged 50, just 7 years ago, have Lewy Body’s disease dementia, and so very grateful to each and every carer out there
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Above is with permission, from Norman McNamara

* Admin issues: SHARE dementia awareness thru buttons below. If interested in receiving notice of future blog postings there is a “follow” button in the upper left corner (MS Explorer) or lower right (Safari and Chrome). Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If there is an advertisement below, I have no control over what is shown. — Copyright exclusively by Norman McNamara on 2015-08/10   (( but if there is underlining, it is Truthful’s doing in order to easily find quotes in the future )).  Tags:  lewy body, Norman McNamara, terrors

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