Dementia Success Stories:
“How we made a difference for self and those around us AFTER diagnosis”
A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)
- Label: Truthful L. Kindness
- Previous/current occupation(s?): Office Mgr, Secretary, & Mother
- Nation, & state if desired: USA, California
- Age at tentative diagnosis: 54yrs old
- Year of diagnosis: 2012
- How long for definitive diagnosis: still pending at UC Davis
- Type of dementia, if known: probable LewyBody Dementia
- Since diagnosis, what one or more action, success, or accomplishment do you take pride in? VERY involved in efforts to get value-recognition for voice and lived-experiences of Persons With Dementia (PWD) within dementia-professions: A) Involved with Dementia Alliance International’s video projects and Speaker’s Bureau -including oral presentation in ADI Conference of 2015; B) Involved with Dementia Mentors’ basic projects including two instructional videos, a poster and the weekly memory café groups; C) Editor for monthly newsletter “PWD Perspective”, which is a gathering of many links from projects of Persons With Dementia (PWD) and making available in a one-stop format online; D) Editor for this booklet “PWD Dementia Success Stories” available online and in hard-copy format; E) Blog my lived experiences with dementia symptoms at www.truthfulkindness.com, for dementia awareness efforts; F) Purple Angel dementia-ambassador and would love to begin efforts on the hospital wristband project -which was the very first project that caught my interest after diagnosis; G) Basic relationship-enhancement projects and dementia awareness among family and friends including things like writing my own memoirs; H) Various arts such as zentangles, crafts such as crochet & sewing, and music efforts including new instrument of Nevel Harp; I) Daily exercise of at least one mile per day.
- What do you wish your primary Physician knew about dementia? Wish better understanding of Younger-onset dementia and awareness of online peer opportunities for PWD groups.
- What do you wish your specialist Physician knew about dementia? Confident current specialist has competent understanding of LewyBody & Younger Onset, but deeply wish the last specialist had that understanding.
- What do you wish your family knew about dementia? Wish they were motivated to learn more coping techniques now, (before they see the NEED) while I can see it happening and get confidence that my future relationships are more secure from unnecessary misunderstandings.
- Date: 2015, Jan 17
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