Designing the Way Through
Some days, the next step disappears. Not confusion—just nothing where “next” should be. So I follow a sheet that remembers for me.
Category Archives: Journal
When the Window DoesNot Open
For almost a month now, it has felt as though there is a damper over my “normal” abilities. …
Caterwumpus
Today everything is caterwumpas. When the world doesn’t quite line up the way it is supposed to.
Missing TeaBag
I measured the juice correctly. I got the microwave time right. I remembered the sweetener. I was feeling pretty darn competent. Then I tasted it. 😂
When the Window Closes
There are days when I can feel my capacity narrowing. Not always in an obvious way. Sometimes I am still doing things. I am still answering people, reading, writing, participating in conversations, even accomplishing things I had intended to do. But underneath it all, something is becoming harder.
The Rotating Weather of Lewy
Yesterday was bubbly with excitement. One of those rare bright days where ideas move quickly, possibilities feel open, and the mind feels almost light again.
Dementia Friends – What They Have Given Me
There are people who walk beside you for a season,
and there are people who change the way you understand the path itself.
More Than One Thing Can Be True
Lately i have been thinking about why paintings sometimes communicate things that words cannot.
Project Launch — The Changing Mind & Brain: Inside & Between
I’ve been working quietly on something for a long time now. Not a single post, not a single story—but something larger that has been slowly forming underneath all the writing.
This is the beginning of that project.
The Symptom No One Mentions; Runny Nose
Some symptoms arrive with names and checklists. Others you only learn by living them. For me, one of those has been a persistent, watery runny nose—present for years, yet rarely mentioned in discussions of Lewy body dementia. When paired with unpredictable night sweating, a pattern begins to emerge: not random nuisances, but signs of an autonomic system that no longer regulates quietly in the background. Sometimes the body is speaking clearly. It is the categories that are still catching up.
