Partner Praise

Husband enables me to invest most of my time and energy in dementia awareness and advocacy. It is a partnership dance.

PWD Experience as Resource for Dementia Professionals

Tru here. 2014 was the year I realized that, in an ideal world, the collective lived experience of Persons With Dementia (PWD) would be a rich resource for dementia professionals (or any person) dealing with PWD.  2014 is the year I began hallucinations, and then began Aricept prescription. Aricept much improved my hallucinations, recognition of […]

Service User

Tru here. Discussion of terminology for care is a hot-topic all the way around. These are my personal thoughts regarding the term “service user”: In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature of the term. We are the “user”, “consumer”, etc. Our care […]

Desperate with Dementia

Tru here. I have a couple dementia friends feeling desperately helpless, desperately scared, and unwilling to impose this life onto their loved ones who are willing to be their “care-givers”.  Maybe you are feeling desperate too.  Some have said they rely on my positive “sunshine” and I have a message to you: My “sunshine” is […]