Anhedonia & Dementia

.This entry is written by Truthful Loving Kindness (yes, that is my full legal name) for publishing at http://www.truthfulkindness.com ,
so PLEASE address any questions or comments to that website, regardless of which website shows these words. 

In Greek, “anhedonia” literally translates to “without pleasure”, or Loss-of-Pleasure. 
Loss of pleasure sensations are often ASSUMED to be caused from depression, but this is not necessarily the cause.

Neuroimaging shared by the University of Sydney in 2021 compare the differences in  grey matter intensity decreases for anhedonia, apathy and depression.  These are each separate conditions … that sometimes have a lot of overlap  (see Link at the bottom of this article, just before “Further Research”. 

Personal Experience:  

i have been experiencing lack of feel-good stuff. Those sensations have decreased in frequency and intensity over the past three or four years — but recently this symptom is much more to my notice, because instead of just decreased pleasure, experiences that brought me great pleasure in the past … now bring absolutely no pleasure except “second-hand” pleasure.

i still get pleasure, but it is more a “second-hand” pleasure, or “logical” pleasure;
i appreciate the dog’s excitement when i play with him;
his wagging tail, and enthusiasm to spend time with me shows me that i am important to him. 
the sight of my husband’s smile when he opens his arms to hug me gives me pleasure, it reminds me that i am important to him. 
Smiles of others give me pleasure, because i am glad they are feeling good. 
i still smile a lot; i think that action is partially a healthy CHOICE — and partially just habit, LOL.

i dont get “pleasure” from the wood fire in Living Room,
but i definitely get “comfort” from the sight sound and warmth that have been associated with “home” my entire life. 
i still get comfort from expressing myself
(not so much speaking aloud with words, but from writing and art, then having those projects well-received). 
Helping others gives me comfort, with my purpose in life of reflecting “Truthful Loving Kindness”.

Very glad that my system does not seem to REQUIRE a lot of feel-good stuff or “excitement” (which is common for those who get their energy from being alone and introspective thought, rather than getting their energy from being with others).

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.Dementia Types and Anhedonia:

Fronto-Temporal type dementia and lack of feel-good stuff is linked at:
2021 study says Neuroimaging revealed symptoms of anhedonia were marked by atrophy in the frontal and striatal brain areas of those with FTD.”  .>> https://neurosciencenews.com/anhedonia-ftd-18217/ .

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Vascular-type dementia:  
Post-Stroke Anhedonia is discussed at https://pubmed.ncbi.nlm.nih.gov/25678790/ , where they state, “Our findings suggest that anhedonia in stroke patients is associated with the volume of stroke lesion in the parahippocampal gyrus and with dysfunction of the hypothalamic-pituitary-adrenal axis.”

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Lewy-Bodies: 
Lewy Body Dementia is associated with a depletion of certain neurotransmitters in the brain. These are: Dopamine (the feel-good neurotransmitter that also helps transmit signals controlling muscle movement) and Acetylcholine (This neurotransmitter does its work in the parts of the brain responsible for memory, thinking and processing). See  >>  https://www.hopkinsmedicine.org/…/dementia-with-lewy…

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Alzheimers-type:
https://pubmed.ncbi.nlm.nih.gov/25678790/ says in 2015, “The presence of the symptom of anhedonia without a major depressive disorder was associated with a six-times higher risk of conversion to AD in individuals with MCI.”
https://www.mdpi.com/1660-4601/18/4/1370/htm says in 2021 “our study suggests that anhedonia, independent of a mood disorder, is a probable psychopathological risk factor of AD.”

Profound Loss of Pleasure Related to Early-Onset Dementia

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Further Research:

‘Anhedonia is a condition in which the capacity of pleasure is partially or completely lost,
and it refers to both a personality trait, and a “state symptom” in various neuropsychiatric and physical disorders.
It has a putative neural substrate,
originating in the dopaminergic mesolimbic and mesocortical reward circuit.’ 
Above definition is in introduction of book “Anhedonia; a Comprehensive Handbook, Volume 1” published 2014 by Springer (ISBN# 9401785910).

I have gathered that several brain areas may be involved with anhedonia;
the prefrontal cortex,
the amygdala,
the striatum,
the insula, and
basal ganglia (nucleus accumbens). 

Several neurotransmitters seem to also have a relationship with anhedonia;
reduced dopamine expression (which would probably be the aspect involved with Lewy Bodies) and
GABA (which is an inhibitory neurotransmitter),
glutamate (an excitatory neurotransmitter), and
serotonin (traditionally known for relationship with “depression”)

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There are two primary types of anhedonia; “social anhedonia” and “physical anhedonia”.  Description below is found at https://thepsychologygroup.com/anhedonia/ .

Social anhedonia refers to “… Difficulty or inability to experience pleasure from interacting with others or of being in social settings. For example, a person may find it difficult to enjoy being with others and have little motivation to engage in or seek out social situations. This can also contribute to experiencing emotional detachment and difficulty in building intimacy and/or emotionally connecting with others.”  ((Personal note: This is different from being “shy” or “introverted.))

Physical anhedonia refers to “… Difficulty or inability to experience pleasure from sensory or physical experiences like eating, touching, sex, or movement (e.g., physical activities, hobbies). For example, a person may not feel pleasure from being hugged or eating a meal they used to enjoy.”  

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… and you might want to check out the Links gathered for Dementia Symptoms and Strategies (alphabetized) at https://truthfulkindness.com/about/d-info/links-sx-strategies/.

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* Admin issues:

SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. 
Text Copyright © Truthful L. Kindness on 07Feb2022.  Digital Painting “Anhedonia and Dementia copyright by Truthful Kindness on 05Feb2022.  Procreate “Liquid” project on iPad using Apple Pencil and brushes by NurMiftah, then put it thru iColorama “raise” process to better show the brushstrokes..
i dont mind re-posting of things i write, but if you re-post then i expect you to make it clear this is NOT written by you. My authorship as Truthful Kindness (my legal name) must be clearly identified, and provide very prominent Link to my website so that questions and comments can be addressed to ME personally at http://www.truthfulkindness.com . .
Tags: alzheimers, anhedonia, dementia, frontoTemporal, Lewy Body, mood, person living with dementia, pleasure, PLwD, symptoms, vascular .  S&S categ: mood .

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Re-Visiting Entries and January Pages Shared

This entry is written by Truthful Loving Kindness (yes, that is my full legal name) for publishing at http://www.truthfulkindness.com , so PLEASE address any questions or comments to that website, regardless of which website shows these words. 
This particular entry is a couple announcements AND Links for pages posted in January.

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January 20220113//embedr.flickr.com/assets/client-code.js

Clicking on the picture above will take you to HiRes copy of this “January” digital Painting at my Flickr Acct.  From there, you can see details on how i created the painting, and if you click on picture, you can see greater detail of the painting itself.  https://flic.kr/p/2mX7chm .

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Announcing:

Since July 2014, this blogsite now holds almost 300 blog entries from me, and more than 400 blog “pages” from myself or my friends with dementia, regarding symptoms and strategies.  (That is not counting Family History and Memoir pages.)

i have gathered Links for specific dementia symptoms and strategies (which i frequently revise) at >> https://truthfulkindness.com/about/d-info/links-sx-strategies/ .

Arts and Crafts pages by me are indexed (with frequent revisions) at >> https://truthfulkindness.com/about/life-other/arts-crafts/ .

My folder for blog entries i consider most crucial is at https://truthfulkindness.com/category/important/crucial/ .

…  so my supply of NEW topics has dwindled considerably.

i have decided to revisit some of the blog entries and pages that i consider most crucial (from myself and others) on my “front page”. 
The first words of each entry will clarify if this new entry is simply from the “Archives” or if it is a “Revision of Topic”. 
May or may not include update or relevant details, when i renew entries from archives. 
Even thinking about maybe adding a video version for some of the blog entries.

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ALSO: 
i dont mind re-posting of things i write,
but i expect you to make it clear this is NOT written by you. 
My authorship as Truthful Kindness (my legal name) must be clearly identified,
and provide very prominent Link to my website so that questions and comments can be addressed to ME personally at http://www.truthfulkindness.com !!!

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Pages From FRIENDS:


from retired Dr Jennifer Bute; “USE Negative Emotions” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/neg-emotns/ .

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Arts & Crafts Pages:

Crown of Hearts//embedr.flickr.com/assets/client-code.js “Crown of Hearts” re two digital paintings … and why i made them. Page is at >> https://truthfulkindness.com/about/life-other/arts-crafts/crown-hearts/ .

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Anticipation: 

Currently working on a blog entry about symptom of anhedonia (inability to feel “pleasure”) .  Hope to have it finished sometime in February.

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. 
Text Copyright © Truthful L. Kindness on 31Jan2022.  Digital Painting copyright by Truthful Kindness on 13Jan2022. HiRes is on Flickr. Procreate “Liquid” project on iPad using Apple Pencil and Alaina Jensen Brushes for Acrylic Pour. Invested 2 full days in this picture, then put it thru iColorama “raise” process to better show the brushstrokes..
i dont mind re-posting of things i write, but i expect you to make it clear this is NOT written by you. My authorship as Truthful Kindness (my legal name) must be clearly identified, and provide very prominent Link to my website so that questions and comments can be addressed to ME personally at http://www.truthfulkindness.com . .
Tags: na .  S&S categ: na .

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Swallowed Pointy Packaging of Pill

Last year’s holiday star was for my friend Harry Urban, and showed my enjoyment of embroidery.
This year’s star shows six sharp “pointy” points.
The hard plastic i swallowed had only three pointty points, but at almost 1″ square, that was way too much for my throat.

DecStar20211207//embedr.flickr.com/assets/client-code.js
December Star 2021; Clicking on the picture above will take you to HiRes copy of this digital Painting at my Flickr Acct.  From there, if you click on picture, you can see greater detail. >> https://www.flickr.com/photos/194191353@N04/51737390637/in/dateposted-public/ .

.Tru here.

i am NOT stupid !
Instead dementia symptoms interfere, and sometimes we make decisions that show we are not thinking thru our actions very well.
Behaviors that can carry heavy consequences, but ….
Cause and Effect sometimes just do not connect.

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Excitement here for the past few days;
*. Abt 8pm on last Friday evening, Dec 3,  I swallowed pill, complete with moisture-proof, clear hard plastic shipping container (almost 1′ square with 3 very sharp “points”), and shiny pull-off “cover”.
Spent Friday night in emergency room, with several too many x-rays trying to specify location of the almost 1” piece of very “pointy” hard plastic.
Medical people were sure it was foil so it would show up nicely in x-ray, but husband theorized that the flimsy cover was not foil but instead Mylar.
After 6hrs of failure they finally followed his suggestion and put the sample pill in its shipping packet (Boniva for next month osteoporosis) on the machine.
What they saw was very different from what they were expecting. So instead they gave my throat a CT scan and found the piece of pointy plastic.
The chunk was too large to remove in our small-town hospital, so I got medi-flight to a city about 2-1/2 hours drive (closer to more advanced “civilization”). Removed the hard plastic by 4pm  Saturday (((20 hours with that moisture-proof pack in my throat))) and Santa Rosa hospital discharged me about 5pm.  We got a motel and drove home on Sunday.
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(Below is December Star for 2020)

Identify Cause and Strategies.
So, the point is to ask “What STRATEGIES can we put in place to avoid this happening again?”

  1. Do not put pill in my pill holder until it has all extraneous material removed (wrapper, shipping container, etc).
  2. Pills go into larger container BEFORE i swallow them, which forces me to actually LOOK at the pills before i put them in my mouth.
  3. Since we had let our medi-Flight/ambulance MEMBERSHIP lapse, this cost will be tremendous (even with insurance).  We now have re-instated our very-reasonably priced medi-Flight and ambulance annual membership for the future.
  4. Make sure we have grab-quick documents: Medical proof of insurance, medication Rx List, Power-of-Attorney for Health, etc

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UPDATE: i needed an extension on antibiotics, and hope that within the next week my throat will begin healing enough to handle something other than very soft blender-foods.  … And we have now seen the cost for my helicopter ride (which is unbelievably high before insurance contributions – the cost of buying a house in fact !).  Praying that insurance pays most of these various costs for all the many many services provided during this emergency.

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LINKS:

Disconnect for Cause/Effect by Truthful Kindness at >> https://truthfulkindness.com/2014/12/28/recent-disconnect-from-understanding-source-of-dissatisfaction/ ;

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 10Dec2021.  Star picture by Truthful Kindness finished 07Dec2021.  Holly picture by Truthful Kindness finished 09Dec2021. Tags: behavior, cause and effect, confused, dementia, food, medication, person living with dementia, PLwD, strategy, symptoms .  S&S categ: confusion, food, medication.

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October Pages

Tru here.

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HarvstCelebratn 29Oct2021
//embedr.flickr.com/assets/client-code.js
. Above art project is by Truthful Kindness on 29Oct2021, titled “Harvest Celebration” and saved at >> https://www.flickr.com/photos/194191353@N04/51644908611/ .  (if you click on the picture it takes you to the full-size version.)

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Sometimes it can be difficult to understand the difference between blog “entries” on WordPress, and the WordPress concept of “pages”.  A blog PAGE is not automatically shared to eMail of those on subscription program; instead it goes under one of the tabs in the header.

Along with this month’s only blog “entry” (which was Winds of Change at https://truthfulkindness.com/2021/10/27/winds-change/ , the following “Pages” were added under the various categories.    — Now discovered i forgot to share “pages” in past recent months, so this this includes July thru Oct.

!!  Remember, Links are in colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are in colored text, NOT the pictures.

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Memorial:  Paulan Gordon’s LEGACY at >> https://truthfulkindness.com/memoriam/paulan-gordon-legacy/ .

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Jennifer Bute with “Misinterpretation or Hallucination” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/misinterpretation-hallucination/ .

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Art:

Harp of my Heart is at >> https://truthfulkindness.com/about/life-other/arts-crafts/harp-heart/ .

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Family History:

(Petrin ancestor)POW died 280yrs ago at >> https://truthfulkindness.com/about/life-other/family-history-index/pow-280/

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(Frey<Pate ancestor) Jeremiah Pate Guarding Lead Mines in War for Independence at >> https://truthfulkindness.com/about/life-other/family-history-index/jeremiah-pate-lead-mines/

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(Spencer<Morgan ancestor) William Morgan captured during French and Indian War at >> https://truthfulkindness.com/about/life-other/family-history-index/morgan-french-indian-war/ .

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 31Oct2021.  “Harvest Celebration” picture by Truthful Kindness finished 29Oct2021. digital art for “alcohol painting” using ProCreate “liquify” and “distort” tools.  Tags: na.  S&S categ: na.

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Winds of Change

Tru here.

Yes, we recently had a big storm on Northern California coast, but that is actually not my topic this week.

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Alcohol 20211015b//embedr.flickr.com/assets/client-code.js

Saved at Flickr >> https://www.flickr.com/photos/194191353@N04/51595202371 .

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It seems change is the one un-deniable constant in our world; some things take a lo-o-o-n-g time to change … but change they do, especially with progressing dementia symptoms.  So it makes sense to be prepared for various types of change.

i have Cerebro-Vascular disease, and in addition to one in in July, i had three “events” (that we suspect were either silent strokes or mini-strokes) in during August;
08Jul2021,
09Aug2021,
26Aug2021 and
31Aug2021.
First i want to mention that the doctor did follow-up tests this year, and none of these tests show evidence of stroke-type event (altho none of the tests were right away, and some of them were not able to be scheduled until three weeks AFTER the last of the events). 
… But several things have changed;
in past years when i had an “event” i would have more fatigue, greater confusion, etc for about one week, but then i returned to my current “normal”. 
…  This year’s events triggered more than a month of extra fatigue and confusion.

Lasting change is probably just more results of my slow cognitive decline. 
My tremors have intensified, and that is creating greater complications with maneuvering medication, cell phone, etc.  Told husband that i am probably at the end of being able to fill my own weekly pill dispenser.
As i wrote last month, i am now getting hair tangled in my fingers, and need help with bath and shampoo. 
i need the walker MOST days in the house now (instead of occasionally) and i no longer go outside to care for chickens unless someone is with me.

….  No big suggestions for new strategies, except for keeping progression in mind, so that it is not so much of a shock, and so that you have the tools on hand to deal with the new symptoms.

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More difficult getting interested in story, whether in book or on video.  i start them … and then give up. 
Personally i am finding myself much more interested in art and craft projects right now.

((see below))

Alcohol 20210818//embedr.flickr.com/assets/client-code.js

First try at digital art for “alcohol painting” technique, using ProCreate application. 18Aug2021.  Saved on Flickr at >> https://www.flickr.com/photos/194191353@N04/51593576796 .

and …

Alcohol 20211011c//embedr.flickr.com/assets/client-code.js

Second try at digital art for “alcohol painting” using ProCreate application. 11Oct2021 . Did the basic background, then picked what i wanted to emphasize and outlined it, then painted light layer of green over everything EXCEPT what i wanted to emphasize, and added shadow around it.  Saved at Flickr at >> https://www.flickr.com/photos/194191353@N04/51592933032 .

LINKS:

Overwhelming Fatigue

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You might want to check out my collection of Links for Symptoms and Strategies at >> https://truthfulkindness.com/about/d-info/links-sx-strategies/ .

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 25Oct2021.  “Winds of Change” picture by Truthful Kindness finished 15Oct2021. digital art for “alcohol painting” using ProCreate “liquify” and “distort” tools. Then added my Sand Swirl tangle pattern. 15Oct2021.  Tags: change, dementia, person with dementia, PLwD, progression, symptoms, vascular.  S&S categ: na.

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Shampoo Strategies with Dementia Progression

Tru here.

Until this summer, i have been able to bathe and shampoo my hair by myself,
with the assistance of setting the bottles to one side, and then transferring each bottle to the other side when i finish using it,
so i can SEE that the step or procedure has been completed, and there is no need to repeat and repeat.
(See suggestions in the hygiene section of “Links for symptoms and strategies” at https://truthfulkindness.com/about/d-info/links-sx-strategies/ ).

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Bath and shampoo takes high toll on thought process and physical abilities. 
Must conserve my energy until the bath, then not expect any important thinking or rational conversation until the next day

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New change;
first we discovered that i was not getting my hair thoroughly rinsed. 
Husband needed to rinse my hair and wash the back of my neck and the parts of body that i could not see

(anything i cannot see does not exist, LOL)

with added confusion and lack of cooperation with my finger dexterity,
i now also need help with soaping process,   
otherwise my hair winds around my fingers and i cannot get my fingers untangled. 

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First my husband and i washed my hair every-other-week, and on the alternate weeks he took me to Hair Company for shampoo. 
Now we have it much better as routine, so i only go for “professional” shampoo once a month. 
With my husband’s help, an added benefit is that the bath and shampoo does not consume quite as much energy; still consumes LOTS of energy, but not quite ALL the energy for a day. 

Also, dressing can consume much energy so
i do not try to dress on days for bath and shampoo;
i just pull on a zip-up lounge robe, with clean lounge robe afterwards until bedtime.

It was hard to accept that this change was needed, but i always feel more like ME with long hair,
and I would rather these adaptations than to cut my hair short — since i know this process was just “waiting in the wings” to be necessary even if i DID cut my hair. 
I know further changes will be needed in the future, but feel better now that hair care has been calendared appropriately.

Links:

“Links for symptoms and strategies” at https://truthfulkindness.com/about/d-info/links-sx-strategies/ .

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness started this article 06Aug2021 and finished on 30Sep2021.  Blooming Bubbles Picture by Truthful Kindness finished 29Sep2021 with 9 hrs invested .   Tags: alzheimers, bath, dementia, hygiene, person with dementia, PLwD, shampoo, strategy,  symptoms, . #dementia #shampoo.  S&S categ: hygiene

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Re-Heated Taste

Tru here.

My Taste sensations are much stronger if the food is freshly cooked (and not re-heated).  i no longer taste foods that have been pre-cooked. it is all cardboard; sometimes sweet cardboard or salty cardboard … but cardboard.

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We have plenty of foods for me in the freezer, ready for re-heating since i need to eat every two hours for my blood sugar. 
In the past they tasted good … but now they are taste-less.

I WISH this article was about making leftover foods delicious, but for ME taste has strongly changed. 

Like so many other aspects of life,
cognitive decline impacts how we perceive the world and its sensory input.
The Brain determines how we perceive our senses:
… what we touch,
… what we see,
… what we hear,
… what we smell,
… and what we TASTE;
the brain also determines how we perceive the food and drink we put in our mouth (the taste perceptions).

Discovered that i can still taste some foods, but only if they are either raw or freshly-cooked.  Instead of ONE raisin, i now need several raisins at a time, un-diluted by other foods.  i no longer taste the raisins in my oatmeal, so i leave them out of my cereal and just pop a few into my mouth.

More likely to taste sauces than primary food (ketchup, ranch dressing, jam, etc).  Adding EXTRA salt, sugar, catsup, pepper, etc does not seem to be helpful at THIS time, and using these additions excessively may be adverse to existing health conditions.

i can taste the chicken when it comes off the grill (not much, and not always) but now never has chicken taste when cooled, cut-up, and re-heated for use in recipe.  Then it creates nice texture and needed protein, but never taste.

Once in a while i can taste burgers, but only when they are freshly cooked.  Especially do not taste hamburger that has cooled then been re-used in recipe.

So, since i dont taste re-heated foods, my supply in the freezer is not used near as much.  Actually, i am beginning to just drink a lot more of my protein drink. (Even tho i no longer taste much of the flavors in my chocolate/coffee protein drink, i really like the piping-hot or frosty-cold temperature and the creamy texture.).

The key now seems to be fresh or freshly-prepared foods with noticeable texture — texture not necessarily in big chunks, but small, crunchy, easy-to-swallow bits (not puree) create interest despite lack of taste.

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Blog only  MONTHLY instead of weekly:

Due to sciatica, i have been mostly in “Laying” position during July, and it has forced some realizations. 
1) My blog is now seven years old.  I have written 290 posts on various symptoms and strategies dealing with my own dementia symptoms, so there is not a lot of “new” things for ME to say on dementia until i experience new symptoms … or further symptom advancement brings new aspects and new strategies to focus. 
2)  Further cognitive loss, and, considering that factor, spending three days a week on dementia issues and connecting with dementia friends does not allow enough time to “finish” my Family History project. 
3)  Blog entries now AVERAGE 8 hours investment per entry.  Plan to change schedule and only focus one day per week on dementia issues and connecting with friends, hoping to share one blog entry per MONTH (instead of one weekly as i had been doing).  

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 08Aug2021, and “LeftOvers” picture from WikiCommons.  Coffee-Chocolate pic was taken by us several years ago .  Tags, alzheimers, dementia, eating, food, person with dementia, PLwD, strategy, symptoms, taste..  S&S categ: Food

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Overwhelming Fatigue

Tru here.

Again, no obvious “stroke” symptoms; no slurred speech or paralysis, etc.  … (at least nothing i remember).

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Complications are that i have been in rather a lot of stress due to sciatica pain, then i noticed the extreme fatigue that often follows what i personally call “an event”. 
Husband says i was “woozie” the night before, but i have no memory of that evening.  As usual after an “event”, i slept about 8 hours during the next day, and about 4 hours during the following day, with the daytime fatigue less and less in the next days, returning to my personal “normal” within about a week.  Will work on this article in short installments over the next four days, then publish.

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i have cerebroVascular disease. 
Had six “events” during 2016 (three of them within 6 weeks), and another string of events in 2019, so these symptoms are not a new experience.
Unfortunately, the few times i have shown muscle weakness or speech difficulty with an “event”, i was not able to get to the hospital while these symptoms were still showing.
So the three times i have gone to hospital for this, they have been unable to tell me if it was stroke or really any productive information — only “yes it MAY have been slight stroke, but we can only tell you that you have no “brain bleed.”  ugggh !!!

Now, unless i show obvious continuing stroke symptoms, i PERSONALLY do not bother with a trip to hospital (which deprives my brain of renewing sleep).  Instead i chew an extra baby aspirin and go to bed.  For a week or so I keep my walker extra-handy, and husband does all the walking around outside caring for chickens (where there are frequent fall risks and need to be carrying buckets with food and water).

If i go to the hospital then i sacrifice first day of sleep to renew my brain cells, because hospital waiting area has no area to lay down,
… so i cannot stay awake, but neither can i really sleep scrunched down in the chair with my neck flopped over, with all the sounds that go with hospital waiting area. 

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i am sure that IF i was showing obvious stroke symptoms when i was seen at hospital, then i would have been quickly examined and given a bed, but so far that has not happened for me.

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Nice easy listing for Heart Attack and Stroke Symptoms at https://www.heart.org/en/about-us/heart-attack-and-stroke-symptoms ;

Stroke symptoms are  B.E.  F.A.S.T.
Balance ? 
Eyes ?
Face Drooping ? 
Arm Weakness ? 
Speech Difficulty ?
Time to call 9.1.1.

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B.E.  F.A.S.T !!!

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2019 string >> https://truthfulkindness.com/2019/06/02/i-am-probably-asleep/

2016 string of “events” >> https://truthfulkindness.com/2016/04/03/wont-be-around-much/

Mayo Clinic info on Vascular Dementia is at >> https://www.mayoclinic.org/diseases-conditions/vascular-dementia/symptoms-causes/syc-20378793

… suspect slight stroke 08Jul2021pm and another three “events” during August.

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 18Jul2021, and “Fatigue” picture by Truthful Kindness finished 14Jul2021. .   Tags, cerebrovascular disease, dementia, fatigue, mini, person with dementia, PLwD, stroke, symptoms, TIA, vascular. #dementia #vascular.  S&S categ: na

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Can’t Hear Myself Think

Tru here on 30Jun2021.

Crying this morning. 

Thought there was no reason for my tears,
but then i realized the tinnitus (ringing in my ears) was so loud i could not hear myself think.

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i grew up near Multnomah Falls, and the Lodge restaurant was my first “real” job. 
This noise in my head sounds like the roar of a large waterfall;
the confusion overwhelms every other awareness.

My strategy tools of speaking out loud, reminding myself what task i am trying to do, or what i am trying to find … don’t work.

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Not all folks with dementia symptoms have tinnitus or other types of auditory hallucinations, but i think it is more prevalent in that population.

Tinnitus has been a problem for me since early in the process of cognitive decline (2004). 
It has been discussed with my doctor and i have done plenty of research.  including a link at bottom of this article. 

No; ear plugs do not help since the source of sound is damage inside the brain. 
Ear plugs just make the sound appear even LOUDER !!!

It is a comfort to remember that some days are just really LOUD, and other days are more manageable. 
— Gotta keep things in perspective 

LINKS:

Thinking Aloud >> https://truthfulkindness.com/2020/02/24/thinking-aloud-short-term-memory/

More info about Tinnitus at >> https://truthfulkindness.com/2018/12/11/tinnitus/ ;

.* Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.  Text Copyright © Truthful L. Kindness on 30Jun2021 .  Hearing image by Geralt on PixaBay and crying image by Conmongt on PixaBay. Tags, alzheimers, crying, confused, focus, dementia, noise, person with dementia, PLwD, symptoms, think, tinnitus, weep . #dementia #focus.  S&S categ: confusion, noise, tinnitus

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June Pages

.Tru here …  Extra challenges this month, so only two extra “pages” added on my website this month (in addition to my weekly Blog Entries).

 !!  Remember, Links are in colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are in colored text, NOT the pictures.

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Scott Drevs writes about communication difficulties at https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/written-vs-spoken-communication/

Floor as Family Art Project at >> https://truthfulkindness.com/bnp/part-3/bnp-3d-2012-u/floor-family-art/ ;

“June Blsm” picture by Truthful Kindness to look like embroidery. Spent 9 hours on outline then Finished with 8 additional hours on 28Jun2021.

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