New in Apr

Tru here.

Remember that LINK is not in picture, but at text below the picture !

New Pages in my website are:

Others: “Why Cant You Hear Me” by Norrms at  https://truthfulkindness.com/index-persons-with-dementia-pwd/norman-mcnamara/hear-me/ .

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Crafts: “Emoji Me” at https://truthfulkindness.com/about/life-other/arts-crafts/emoji-me/

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FamHist: Uncle Gillies at Culloden >> https://truthfulkindness.com/about/life-other/family-history-index/gillies-culloden/

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— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join some of the following during this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

21 April, Tuesday; DAA Drop-in with Dr Susan is on Tuesdays:  While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays  at https://zoom.us/j/4567882023  (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

22 Apr, Wed: Dementia Mentors’ members will be offered new Wednesday-night guided meditation series.  (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members only.  https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

23 Apr, Thursday: DAA Discussion topic ““DAA Work Groups””, hosted by Paulan Gordon, with experts Karen Love & J. Pinkowitz. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

24 Apr, Friday: DAA Faith Hope and Love; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times.  Fridays at https://zoom.us/j/4567882023  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

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.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.pdf of calendar is available at Schdl202005May 20200421  .  Left room for writing times in YOUR time zone, after you print calendar.

.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

28 Apr, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .  ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

29 Apr, Wednesday: DAI Meeting of the Minds “Using Montessori-Inspired Principles to Radically improve engagement for Residents and Staff” with Dr Cameron Camp and Gary Johnson.  ((1.5hrs beginning 2pm Pacific Time, 3pm Mtn, 4pm Central, 5pm Eastern time, 10pm London and 11pm South Africa.))  More info at https://www.dementiaallianceinternational.org/events/dai-webinars/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

30 Apr, Thursday: DAA Discussion topic ““Social Security Disability””, hosted by JR (John-Richard) Pagan, with expert John Tucker. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

6 May, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 19Apr2020. Tags are: .

MyFreeCopyright.com Registered & Protected

 

 

New Zoom Opportunities

Tru here.

With cancellation of many life events due to virus restrictions, there are also quite a few NEW opportunities to participate and connect thru Zoom video.

HOWEVER,
i think it may be time to verify that we all have contact info for each other, as much as possible.

As a result of the “stay-at-home” procedures now in effect,
more people are using various video chat platforms.
This just proves what a wonderful tool these platforms are,
to stay connected with others.

We would like to invite you to renew your connections with Dementia Mentors, etc, on our Zoom chats.

There may be temporary complications
until these video chat platforms can adjust to tremendously higher volume of participants.

But … join … connect … participate.
Get encouraged and encourage others !!!

Looking forward to seeing you around the web.

.

Dementia Mentors

Join Dementia Mentors from “contact” button at https://www.dementiamentors.org/ .

.

DAA (Dementia Action Alliance) has added two more weekly Zoom discussions, making discussions now available on Tuesdays, Thursdays, AND Fridays.

Tuesdays: “Drop-in with Dr Susan” is on Tuesdays:  While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays  at https://zoom.us/j/4567882023  (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

Thursdays: Our weekly “DAA Dementia Discussions” group is designed as an educational platform for people living with dementia and/or care partners to socialize while acquiring knowledge on many aspects of dementia life. Thursdays at https://zoom.us/j/4567882023  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

Fridays: “Faith Hope and Love”; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times.  Fridays at https://zoom.us/j/4567882023  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.

Alzheimers Speaks has 4th Tuesdays for “Dementia Chats”, but now added Fridays.

4th Tuesdays: “Dementia Chats”: This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Lasts 1.5 hours.  Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 . ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

Fridays: “The Coronavirus has impacted all of our lives and continues to shift and change daily. I have decided to do a weekly zoom show focusing on the Covid 19 which will highlight how individuals, companies and cities are adapting to our “New Normal.” If you are interested in being a formal guest on one of these shows please reach out to me. I invite you to join the conversation. For right now I am looking at doing these on Fridays.” — Lori LaBey.  (( Fridays at 11am Pacific Time, 12 noon Mtn, 1pm Central, 2pm Eastern, 7pm UK, and 8pm South Africa )).

.
— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join some of the following during this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

31 March, Tuesday; DAA Drop-in with Dr Susan is on Tuesdays:  While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays  at https://zoom.us/j/4567882023  (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

1 Apr, Wed: Dementia Mentors’ members will be offered new Wednesday-night guided meditation series.  (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members only.  https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

2 Apr, Thursday: Dementia Mentors’ members have opportunity to attend Christian Cafe, video gathering with Prayer. (1st and 3rd Thursdays of each month at 9am Pacific Time, 10 Mtn, 11am Central, 12 noon Eastern, 5pm UK, and 6pm South Africa). Members only.  https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

2 Apr, Thursday: DAA Discussion topic ““You Don’t look like you have dementia””, hosted by John-Richard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

3 Apr, Friday: DAA Faith Hope and Love; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times.  Fridays at https://zoom.us/j/4567882023  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

3 Apr, Friday: Alzheimers Speaks; COVID-19: how individuals, companies and cities are adapting to our “New Normal.” If you are interested in being a formal guest on one of these shows please reach out to me. I invite you to join the conversation. For right now I am looking at doing these on Fridays.” — Lori LaBey.  (( Fridays at 11am Pacific Time, 12 noon Mtn, 1pm Central, 2pm Eastern, 7pm UK, and 8pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

8 Apr, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia on Wed. Apr 8  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .  (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

9 Apr, Thursday: DAA Discussion topic ““Hobbies to keep us grounded/skills””, hosted by Mike Belleville. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

17 Apr CANCELLED: Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/Some credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

27 Apr, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .  ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

 


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 30Mar2020. Tags are: alzheimers, communication, connection, CoronaVirus, dementia, PLwD, relationship, strategy, Zoom.

MyFreeCopyright.com Registered & Protected

 

 

March 2020

Tru here.

Spent much of last week-end and this week-end trying to source our family supplies.
Since we live rather out-of-the-way (almost 2hours from the nearest Walmart, LOL) we have always bought our supplies in bulk,
but now many of those bulk supplies are not available at our usual vendors.
So must search for other providers.

With cancellation of events for virus, there are also quite a few NEW opportunities to participate thru Zoom video,
so they will be discussed in additional entry Later this week.

.

Meanwhile these are some of the recent pages added on my blog.  Remember to click colored text NOT the picture:

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Dementia: from retired Dr Jennifer Bute >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/dementia-coronavirus/ ;

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FamHist: Rollo the Viking >> https://truthfulkindness.com/about/life-other/family-history-index/rollo-the-viking/ ;

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Arts: ZenDoodles March2020 >> https://truthfulkindness.com/about/life-other/arts-crafts/zen-mar2020/ .

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Schedule will be included in additional entry Later this week.

 

Stay Connected Despite CoronaVirus Restrictions

As Charles Dickens wrote (1859):
“It was the best of times, it was the worst of times.
… It was the winter of despair. … It was the spring of hope” (from Tale of Two Cities).

So, shall we give up hope … or shall we look forward ?
Do we crawl into a hole of isolation … or use media tools to stay connected ?

Tru here.

Like everywhere else in the world right now, CoronaVirus is a big topic among my friends.

Personally, i always try to focus on the possibilities.
i think the latest recommendations emphasize benefits of Video communication
… and benefits of social networks like FaceBook and Twitter.

With video tools like Zoom and Skype, we can visit from “safety” of our Living Room.
Sample of video Zoom (but with music background added) is here >> https://vimeo.com/showcase/3464118/video/264048358 .

Here are some other suggestions from a couple friends:

LauraMarie says BREATHE (13 Mar 2020)

My hope is families will take this time to become closer.
To return to activities like cooking together, conversations and gaming together.
Talking with each other instead of AT each other or arguing.
Sitting on the porch enjoying nature is still ok.

It is my hope that instead of complaining, we find the good.
Turn the negatives into positives.
This is just a season.
Make some rice and a pot of yummy beans.
When movies become boring, pull out the board games.
Actually have conversations and get to know your people again.

Most of all, show patience, mercy and Grace to each other.

When you want to fuss and yell, take a moment to breathe.
Choose your battles.
Perhaps instead of fussing, simply ask again.

Treat others as you WOULD WANT to or prefer to be treated.

Find a way to enjoy this time.
; https://www.facebook.com/therealLauraMarie/posts/10158718127411874

.

Need for TOUCH
Harry Urban says (11 Mar 2020)

I often speak of the fear of the unknown concerning dementia, but it does not compare with the fear of the coronavirus. …

… we are being told not to have any physical contacts with the people we love,
no holding hands or touching someone’s cheek to give them comfort.

Meetings are discouraged to discuss our fears
and total isolation is encouraged.
Will we be able to dismiss the lessons we are learning
after the coronavirus fears calm … and ((when)) we can go to the store and buy a roll of toilet paper or hand sanitizer again.

The fears are real, but it is up to you how to handle them.
Don’t forget about us living with dementia after the coronavirus diminishes …  >> https://www.facebook.com/harry.urban1/posts/2885342774819726

….

Alzheimers Speaks Announcement:

How Is Covid 19 Affecting You And Those You Care For With Dementia?
Let’s talk about your feelings, fears, plans and ideas!

Lori La Bey is excited to facilitate this important conversation and as usual wants to hear the voices of those living with dementia, families caring for them as well as professionals and businesses supporting dementia care.

Alzheimer’s Speaks was built with a foundation of giving voice to all and helping people feel comfortable discussing tough issues in a respectful way.
We hope you will join the conversation!
Alzheimer’s Speaks Radio will be Live via Zoom this Tuesday, March 17th 11am Pacific time, 12 noon Mtn, 1pm Central, 2pm Eastern time, 6pm London, 8pm South Africa, … and March 18 in Australia . Link to join is #465951797 , at https://zoom.us/j/465951797

DAA Announcement:

Coronavirus – Impact and strategies for people living with dementia.
We would like to hold a couple special Dementia Discussions to generally discuss the Impact of the Coronavirus.

As people are scared and routines are being totally changed, and perhaps loved ones out of work, we believe there is a need for an open discussion on how people living with dementia are impacted and how we are coping. As well as a need to lend support and share coping strategies.

Our first discussion will be on Thursday, March 19th at 1pm Eastern Time. We would like to encourage people from all countries and all dementia groups to unite to support each other.

DR. Al Power will be joining this discussion to help answer questions and provide some encouragement. We are not preparing any questions before hand, just letting people talk and try to lend a compassionate hand. We will be recording the discussion to share on social media platforms.

In order to accommodate more people, a second Dementia Discussion will be the next day, Friday March 20th at 6pm Eastern time.

Dementia Action Alliance (daanow.org) invites people living with any form of dementia to join this Dementia Discussion at  10am Pacific time, 11 Mtn, 12 noon Central, 1pm Eastern time, 5pm UK, and 7pm South Africa. The Discussion will last one hour. An additional discussion will be 3pm Pacific time, 4pm Mtn, 5pm Central, 6pm Eastern time … and 10pm UK.  Learn tips from others and share your thoughts as we discuss ways to make life easier for people living with dementia and/or care partners.

The below link will connect you to our free video chat – all you need is a phone, tablet, or computer with a camera.
https://zoom.us/j/4567882023

Please share this with other people who you think may be interested.

Hope to see you there!

.— *** —

LINKS:

i think Dr. Daniel Potts says it well >> https://danielcpotts.wordpress.com/2020/03/18/social-distancing/ ;
page from retired Dr Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/dementia-coronavirus/ ;
DAA interview with Al Power now available here >> https://youtu.be/AInBAV7uba0 ; ;
Michael Ellenbogen and i participated in 17 March Alzheimers Speaks Radio project (video) on this topic, shared here >> https://youtu.be/3ZUo4pB5gfA ;
and Harry Urban’s index page is https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/ .

.— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 17, Tuesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia has been re-scheduled from March 19 to March 17. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

Mar 17, Alzheimers Speaks Radio (video Chat) : See discussion above.

Mar 19, Thursday: DAA Discussion (see above).

Mar 20, Friday: DAA Discussion (see above).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

.*. . .*. . .*. . .*. . .*. . .*. . .*.

POSTPONED from Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.htmlSome credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

UPDATE: NIH Dementia Care & Caregiving Summit March 24-25 to be Videocast Only !!!  Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summitSome credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

CANCELLED: Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/Some credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.

 


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 16Mar2020. Tags are: alzheimers, communication, connection, CoronaVirus, Dementia, PLwD, relationship, Strategy.

MyFreeCopyright.com Registered & Protected

 

 

Let it Flow

Tru here.

Lately my concentration is extra-scattered and short-term memory has been even poorer than usual.
As grandson would say, my “Rememberer” is more broken than usual.

Needed to add item to calendar.
picked up my cell phone, but by the time i opened it i forgot why (even with no interuptions).
So i went back to what i was doing and remembered,
but by the time i opened cell phone i again forgot why.
Left cell phone open in my hand for minutes and finally remembered
— but by that time the power had turned itself off.
By the time i got cell phone “on”, had again forgotten what app i needed to open.
Gave up.
Later, realized that was why i thought i had added something to my calendar — because i remembered it so many times — but apparently never actually got it done.
growl snarl.

Tried to write blog three times this week
… each time discovering that i wrote about strategy of thinking aloud two weeks ago.
it is DONE … but i keep forgetting that i wrote it.
Started it earlier last week,
and again this morning.
Started it AGAIN after nap.
i am glad that each time i discovered that i have already written on it before i invested too many hours, but growl snarl ;
i hate wasting time !

… and it is amazing how many times a day that i turn to my husband and say
“can you help me find the words;
this and such is going on, and i want to say this and such,
but i want to say it in just a few words or just a couple sentences.”
… and he often finds the perfect words for what i was trying to say.

… but by the same token,
how many times a day is my husband talking, and i must tell him
“you know, i don’t understand anything you are telling me.
What is the topic ?
Now can you use different words and try again?
… or simply “I’m sorry, but you are speaking with building blocks, and i cannot keep the first part of conversation in my head long enough to understand second part, or third part.
So i am lost.

… and often, lately, we have needed to give up on communicating certain ideas
… because they are just beyond my abilities right now.

So switching gears and starting a new project — Posters.
(Posters don’t require words, LOL.)

This week is just sharing a past project, but lately art seems to be flowing better for me than words.  … so guess what i am doing ;
😃 Art ((smile)) 😃.😃

.

This week was (ZenTangle) Art, with Beads for my friend’s birthday >> https://truthfulkindness.com/about/life-other/arts-crafts/zen-mar2020/

.

Poster >> https://truthfulkindness.com/posters/not-stupid-poster/ , shared with this address >> https://truthfulkindness.files.wordpress.com/2014/09/my-thots-20140929-a4in300ppi.jpg

;

.

Spiritual >> https://truthfulkindness.com/about/life-other/spiritual/jew-id/ ;

.

Bits n Pieces (Spencer’s Birthday Poem) >> https://truthfulkindness.com/bnp/part-2/2c/srp-bday-poem1982/ ;

.

.— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 12, Thursday: DAA Discussion topic “Medicare Basics and Finding Assistance”, with expert Jo Murphy, hosted by Paulan Gordon. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

POSTPONED from Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.htmlSome credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

UPDATE: NIH Dementia Care & Caregiving Summit March 24-25 to be Videocast Only !!!  Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summitSome credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

CANCELLED: Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/Some credit card companies have travel insurance clauses in their policy agreement.  If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 9Mar2020. Tags are: art, craft, Dementia, memory, PLwD, Strategy, Symptom.

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Thinking Aloud as Strategy for Short-Term Memory Challenges

Tru here.

Been extra-aware of my habit for talking to myself (aloud) lately,
because it has become as issue with my spouse:

“Are you talking to me?
“Do you need me to stop what i am doing EVERY time you speak?”
“I dont know how to tell when you need me to listen.”
“I dont want you to think i dont pay attention or that i am not listening to you,
so i need to find a way to know when you are talking to ME … and not talking to yourself.”

So now, even tho i have great difficulty remembering,
i must remember to get my spouse’s attention before i speak to him.

—  ***  —

Having much more difficulty with my short-term memory lately.
Speaking to myself, aloud,
has become a very useful tool for me to keep track of what i am doing,
whether moving around in the house, or in tasks at my desk.

What time is it?
Open file for chat attendees.
Mark Julie as attendee.
Mark Michelle as attendee.
Save file for chat attendees.
What day does Guy host?
…. and even
“after i finish moving chickens i need to go potty”, LOL !

If i am thinking or doing, then words are coming out of my mouth,
to reinforce my short-term memory.

Suggestion; Tell yourself (aloud) … then tell yourself again.

—  ***  —  Technical Excerpts  —  ***  —

“A study by Dr. Christopher Atkin for Nottingham Trent University which found participants talking through complex tasks were far better at problem-solving. In fact, participants in this study made 78 percent fewer mistakes than participants asked to complete tasks by working things out in their heads. Thinking out loud focuses your attention and improves concentration facilitating enhanced problem-solving.” (above excerpt from “5 Surprising Benefits of Thinking Aloud Backed by Science” at Link listed end of blog entry, also Linked the study referrenced in article. Christopher Atkin is PhD specializing in learning and memory.)  I dont think these participants were correlated with any issues with cognitive ability, but it makes sense that it would also be beneficial for those of us who have problems with short-term memory.

—  ***  —

Per Wiki “Echoic Memory”: Echoic memory is the sensory memory that register specific to auditory information (sounds). Once an auditory stimulus is heard, it is stored in memory so that it can be processed and understood.
[1] Unlike visual memory, in which our eyes can scan the stimuli over and over, the auditory stimuli cannot be scanned over and over. Since echoic memories are heard once, they are stored for slightly longer periods of time than iconic memories (visual memories).
[2] Auditory stimuli are received by the ear one at a time before they can be processed and understood. For instance, hearing the radio is very different from reading a magazine. A person can only hear the radio once at a given time, while the magazine can be read over and over again. It can be said that the echoic memory is like a “holding tank” concept, because a sound is unprocessed (or held back) until the following sound is heard, and only then can it be made meaningful.
[3] This particular sensory store is capable of storing large amounts of auditory information that is only retained for a short period of time (3–4 seconds). This echoic sound resonates in the mind and is replayed for this brief amount of time shortly after being heard. …
Auditory sensory memory has been found to be stored in the primary auditory cortex contralateral to the ear of presentation.[13] This echoic memory storage involves several different brain areas, due to the different processes it is involved in. The majority of brain regions involved are located in the prefrontal cortex (PFC) as this is where the executive control is located … (from Wiki “Echoic Memory”, see Links below).

—  ***  —  Links for Further Research:  —  ***  —

https://en.wikipedia.org/wiki/Echoic_memory ;
https://en.wikipedia.org/wiki/Auditory_cortex ;
https://human-memory.net/wernickes-area/ ;
https://www.learning-mind.com/thinking-aloud-benefits/ and study at
https://www.researchgate.net/publication/327721605_The_phenomenological_influence_of_inner_speech_on_executive_functions ;

.— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 25, Tuesday: Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb. 26, Wednesday: DAI Meeting of the Minds webinar on “Clowning and Dementia” >> https://www.eventbrite.com/e/dai-meeting-of-the-minds-webinar-clowning-and-dementia-february-2627-2020-tickets-93716860653  . (noon Pacific Time)

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY . (3am my time, so definitely will not be attending, LOL)

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 20, Thursday: DAA Discussion topic “Bathing and Hygiene”, with expert Teepa Snow, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 24Feb2020. Invested 8hrs over 2days.  Tags are: conversation, Dementia, inner speech, memory, PLwD, Relationship, Self-Talk, Strategy, Symptom, think aloud.

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Tru’s Art Month

Tru here.
i know it has been too long since i last wrote, but lately most tasks are just not “sticking” to have any productive effort.
That means communication with my husband is haywire,
but it also means un-productive writing about the complications and strategies for those haywire communications.

Past couple weeks arts and crafts are flowing, but little other than those two things.
i am messing up everything (including taking meds at the wrong times).
… but when i think of a friend i am thinking in terms of colors, lines, and shapes.

So i will go with the flow.

Some other time,
will write about crocheting “Collar Bibs”.
will write about making valentine cards for 2020 (which is finished for this year)
… but my mind is already occupied with ideas for next year.
Handmade cards take a long time,
so it is good that i am already coming up with ideas 12 months ahead, LOL.

(spoiler ahead) This year thinking i will make cards based on each friend’s name in art.
Like this one which i started for my husband seven years ago (and never gave to him).

.

Meanwhile, here is a page i posted in “Life”  >> https://truthfulkindness.com/about/life-other/arts-crafts/

.

— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 20, Thursday: DAA Discussion topic “Finding Solutions to Challenges”, hosted by Laurie Scherrer. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 25, Tuesday: Next Dementia Chats with Lori LaBey will be February 25.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 17Feb2020. Tags are: arts, communication, crafts, Dementia, PLwD, .

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Hallucination Types

Tru here,
Recently asked about hallucinations.
My super-simple explanation is that, when primary cause is dementia,
hallucinations are NOT like day-dreams or night-dreams.
They are day-or-night REALITY:

“Reality” shows have become a popular thing, but is it “reality”?
We see commercials, rewind to get a missed comment, etc.
It is not reality.
You didn’t feel the pain of an animal bite, you didn’t feel the cold of the winter storm, or rain on the face.
Hallucinations give you all this and more.

.

Hallucinations are not unusual in later stages of most dementias, but are often seen earlier in dementia with “Lewy Bodies” (LBD).  See Links at base of article.

Part 1: What does a hallucination feel like?

Think of our sensory perceptions as internal traffic-control mechanism for the brain.
i suspect most of us have seen disaster (or terrorist) movies where the traffic signals (green-yellow-red traffic lights) are no longer synchronized for safe traffic patterns.
This causes accidents, confusion of control-authorities, fear among population, and loss of ability to respond to emergencies.
When we are in the middle of this disaster,
our years of trusting and reliance on well-functioning “traffic signals” of our pre-dementia minds makes it almost impossible to separate ourselves from this unfolding chaos.

In the same way, our reliance on what we see, hear, smell, touch, and taste determines our reality,
… but now we are receiving false signals.

It is VERY difficult to accept someone else’s “reality” as more accurate than our own;
to somehow convince ourselves the smoke we smell, the sounds we hear, etc … are not really there.

This IS real;
my nose tells me something is smoldering.
My ears tell me a sound IS happening.
My eyes tell me that bird is sitting on the kitchen floor.

So who do i believe?  What is reliable ?!!!
a) my own senses?
b) my friend with their words of comfort?
c) my service dog’s non-reaction to the smoldering smell, sounds on the porch, or bird on kitchen floor?
Who can i really trust with my REALITY (and safety) ??

.

.

1)  For ME, one thing that is NOT helpful is to say “it’s okay; dont worry”.
Hummmmph; YOU may be “okay”.
You are not the one being told that someone else’s reality is real … and YOUR reality is false (unreliable).
No; that is definitely NOT okay.

2) At this stage, the service dog is one of my most helpful tools.
His signals provide reality-check without emotional involvement (unless there IS a bird on the kitchen floor, LOL).
But have not trained him to tell me if bugs are really on my hand, or if a radio is playing (cannot train for infinite possibilities);
3) so i must rely on sensory perception from a TRUSTED person for that
4) — the challenge is then to set aside my own perceptions, and accept their reality as higher priority than my own reality.
5) Have thought it might help to have them take photo (my tremors prevent clear photos); theorize photo would help, but i have not yet remembered to try it, in midst of an hallucination.

.

Must suggest that when i am in later stages, much better for folks to enter my own reality, and just go with the hallucination.
Trying to convince me that what i perceive is false will probably make me feel like i am accused of being a fake
… and if you succeed; that my whole world is fake … including YOU !!!

 

.

Part 2

Hallucination is like theatre of the mind;
More real than Pana-Vision.  Better than 360-surround-sound.
With no tell-tale camera-man in sight.

We are all fairly certain that the T-Rex is not going to jump off the movie screen.  The alien robot cannot truly reach us with their disintegrator rays.
… so from the safety of your home theatre, many can enjoy the distorted reality without fear of direct involvement.
When we experience the reality from our Theatre of the Mind, we do not have any context beyond our hallucination;
it IS real !!

Please be aware, i may need someone to sit with me;
giving me the reassurance that i am safe when this cerebral theater closes down.
Talking me thru it, talking me out of it;
demanding that i “get a grip”, ignoring my own reality and re-entering YOUR reality,
is not as simple as clicking your heels three times (Wizard of Oz).

 

According to Wiki, “A hallucination is a perception in the absence of external stimulus that has qualities of real perception. Hallucinations are vivid, substantial, and are perceived to be located in external objective space.” (See LINKS).

Michigan Medicine (U of M) calls it miswiring; “The mind often plays tricks on people with dementia as brain cells degenerate.
Their brains often distort their senses to make them think they are seeing, hearing, feeling, smelling or experiencing something that isn’t really there.”
(See Links; UofM and “Sound Hallucinations”).

Sound

For ME,
My Sound (auditory) hallucinations began 2008 as complications from 31 years untreated Lyme Disease.
Lyme specialist gave me very simplified explanation.
He said that my sound hallucinations –for ME at that time — were caused by brain inflammation pushing on the sound-processing section of my brain.
Sounds from my past (hymns etc) were re-enacted in my current sensory experience.
So i am experiencing the sounds in real-time
… but actual sounds were received from ear to brain at some time in the past, and stored in audio memory.

Infections of various types (Tick-Borne Diseases, Bladder infection, etc) can trigger hallucinations even without general cognitive decline,
… or intensify the problems in someone who has dementia symptoms.

.

Smell

Smell (olfactory) hallucinations came next for me, probably in 2012 or 2013.
Asked among my friends a couple years ago, and
the most frequent SMELL hallucination (for me AND my friends) is something hot and dangerous;
the smell of a hot burner, or frayed electrical cord … smoldering.
Other varieties can be the smell of farts, poop, etc.
But smell hallucinations can also be pleasant; once or twice i have had
the smell of new-mown grass — in cold winter, in the bedroom, shut up under the covers.  LOL.
(See Links; “Smell Hallucinations”)

.

Sight

In “Complex Visual Hallucinations; Clinical and Neurobiological Insights” Manford and Andermann summarized three pathophysiologic causes for complex visual hallucinations;
“The first mechanism involves irritation (e.g., seizure activity) of cortical centers responsible for visual processing.
Irritation of the primary visual cortex (Brodmann’s area 17) causes simple elementary visual hallucinations,
while irritation of the visual association cortices (Brodmann’s areas 18 and 19) causes more complex visual hallucinations.
These data are supported by both electroencephalographic (EEG) recordings and direct stimulation experiments.”  .
(See Links; NCBI).

i have seldom experienced sight hallucinations, but on those few occasions, they have almost always been bugs; bugs on my skin, skin of grandsons, skin of dog, or bedroom floor.  i dont think i have had a daytime sight hallucination in several years (unless i just ignored then forgot, LOL).  Retired Dr Jennifer Bute wrote about one of her visual hallucinations here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/hallucination-goat/ .

.

Touch

i dont think i have ever experienced a hallucination of touch sensation.

.

Taste

i dont think i have ever experienced a hallucination of taste sensation.

Nocturnal

Another Type of hallucination that i rarely see listed is “Nocturnal Hallucination”.
These have also become less frequent for me.
((… or maybe not, LOL; Husband says i mentioned one last week.))
Some folks call these “night terrors”, but i think there is a difference.
Cannot remember where, but i read night terrors have only 1 or 2 episodes per night,
but these events are over and over and over again during the night, creating strong avoidance of sleep.
These are extremely vivid; more real that daytime reality, and often have a repeating nature to them
… in that i often return to the same environment when i fall back asleep,
perhaps with a new set of characters, but usually same environment.

More from me here >> https://truthfulkindness.com/2016/01/19/impact-terrors-dreams/ .
Retired Dr Jennifer Bute writes about nocturnal hallucinations while staying away from “home” here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/nocturnal-hallucinations/
… and writes about the differences between illusion and hallucination here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/night-illusions/ .

.

More LINKS:
LBDA >> https://www.lbda.org/go/symptoms-0 ;
Wiki >> https://en.wikipedia.org/wiki/Hallucination ;
UofM >> https://healthblog.uofmhealth.org/brain-health/illusions-hallucinations-and-delusions-how-to-spot-dementia-symptoms ;
Sound Hallucinations >> https://truthfulkindness.com/2018/12/11/tinnitus/ ;
Smell Hallucinations > https://truthfulkindness.com/2015/01/19/smell-hallucinations-dementia/ ;
NCBI >> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2660156/ ;
… and another one from me >> https://truthfulkindness.com/2017/06/01/hallucinations-forgetting/

— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 30, Thursday: DAA Discussion topic “Downsizing and Moving”, with guest speaker Gregg Herb, and hosted by Laurie Scherrer. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday; ADI Conference 2020: Alheimer’s Disease International is holding this year’s conference in Singapore, and it begins March 19. >> https://adi2020.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 26Jan2020 with 22hrs invested. Tags are: Alzheimers, audio, Dementia, Hallucinations, Lewy Body, nocturnal, olfactory, PLwD, sight, smell, sound, Strategy, symptom, tips, visual.

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Reading Clocks

Tru here.

Again, i can only speak for myself, but i suspect i am not the only individual with dementia symptoms who understands analog clocks (with numbers on round face) better than digital clocks (with only numbers).  i also suspect there will be progressively less of us NEEDING analog clock during coming decades and century, simply because i think digital clocks are used almost exclusively now; analog clocks dont seem to be needed and are “old fashioned”.

When i started school, all clocks were analog.
Clock pictures were all a happy round face with two hands.
That has changed with the years, to where most folks understand both analog and digital clocks.
But i think SOME schools may have mostly abandoned teaching time with concept of analog clocks.

Last week my computer needed upgrade to Windows 10, and
one of the things lost was the analog clock widget on my desktop.
…  Now i discovered i am having much more problems with time.
.

Digital clocks require ability to subtract, and
ability to keep in mind that we are working with 60 minutes as a complete unit;
not divisions of 10 or 100 as is customary.
… But i am losing those abilities.

.
… For ME;
i need to see that there is “this much” space before the long hand gets to the top of the hour.
i need to see that there is “this much” space before both hands are at the top of the clock and it is naptime.
i need to see that there is “this much” space before the short hand gets to the bottom of the hour, and night arrives.

—  ***  —

LINKS:
1) The issue of clocks in schools >> https://www.cbsnews.com/news/u-k-schools-getting-rid-of-analog-clocks-because-teens-cannot-tell-time/ ;
2) Microsoft has retired the feature in newer releases of Windows. Gadgets could be exploited to harm your computer, access your computer’s files, show you objectionable content, or change their behavior at any time. An attacker could even use a gadget to take complete control of your PC.  >> https://support.microsoft.com/en-us/help/13787/gadgets-have-been-discontinued ;
2) Found an analog clock app, but don’t know whether it is “safe” (carries any spyware, etc.)  >> https://analog.onlineclock.net/simple/

—  ***  —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 23, Thursday: DAA Discussion topic “Addressing Dementia as a Dis-Ability”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia. >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”. >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 19, Thursday; ADI Conference 2020: Alheimer’s Disease International is holding this year’s conference in Singapore, and it begins March 19.  >> https://adi2020.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit. The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 20Jan2020. Tags are: Alzheimers, Clock, Dementia, Organization, PLwD, Time, Strategy, symptom.

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Change in Lighting Needs

Tru here.

SunLight is very important to me.
i designed this house for maximum benefit of daylight.
All exterior walls have loads of windows, and doors are clear glass, along with a glass-enclosed wrap-around porch,
… but, until dementia symptoms arrived, at night i needed it very dark.

Before dementia symptoms i needed it very dark at night, but
now, because of nocturnal hallucinations,
i NEED to orient soon as possible when waking up.

Sometimes the hallucination-environment is super-imposed over my bedroom environment,
so need a bit of light to orient
— but not too intense that i cannot return to sleep.
(Interferes with melatonin secretion.)

Hope is to return to sleep — but not return to the ultra-vivid scary environment of my dreams.
With dim lighting i can recognize familiar shapes and items in bedroom or living room,
so it reduces likelihood of these things being incorporated into dreams
during this nether-time between sleep and wakefulness.

Minimum of 2 side lamps (wall sconces) on each wall, in each room of the house.
Each of these Lamps hold a 7-watt bulb, or are higher wattage but gold/orange in color.
Having multiple low-wattage lamps helps eliminate shadows that can be mis-interpreted as part of an illusion.

“Even dim light can interfere with a person’s circadian rhythm and melatonin secretion.
A mere eight lux—a level of brightness exceeded by most table lamps and about twice that of a night light—has an effect,
notes Stephen Lockley, a Harvard sleep researcher. ” (per Harvard Health Publishing * — see article in Links below).

.

On 15 Sep 2014, Victoria L. Dunckley M.D., of Psychology Today, wrote:
“The healthiest light is sunlight or candlelight, followed by incandescent, then halogen, then LEDs, then CFLs.
I recommend that parents of children with psychiatric, neurological, learning, or chronic medical conditions
switch out all CFLs in the home for incandescent or halogen bulbs.”  (CFL is Compact Fluorescent Light * see article in Links below).

.

When evening arrives, the side lamps go on throughout the house.
Overhead lighting is turned off an hour or two before bed, to encourage a feeling of sleepiness.

((Another change is that i am No longer able to use flashlight; creates dis-orientation for balance, and i will fall. See Link at base of entry.))

Links:

This entry in video form >> https://youtu.be/g7epZpNqPVc ;

* >> https://truthfulkindness.com/2019/10/31/lrnd-power-outage/ ;
* >> https://www.health.harvard.edu/staying-healthy/blue-light-has-a-dark-side ;
* >> https://www.psychologytoday.com/us/blog/mental-wealth/201409/why-cfls-arent-such-bright-idea .

PS: it is difficult to understand how very long it takes me to write these days. began this entry 18Jun2018, and worked on it again 07Sep2018.  Spent 4 more hours on it 09Jan2019, then made some revisions, and created a graphic, but still cannot understand what i am reading well enough to know if it makes sense, so husband helped me finalize it on 12Jan2020.
.
.. .

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join the following this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 16, Thursday: DAA Discussion topic “Pros & Cons of Humor for PLWD”, hosted by Diana Blackwelder. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Jan 28, Tuesday: Next Dementia Chats with Lori LaBey will be January 28.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 12, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia.  >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Feb 27, Thursday: DAI and ADI joint webinar “Dementia and Rights; from principles to practice”.  >> https://youtu.be/nzdbi966plY .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 23, Sunday: Annual PPA Conference: Held annually by the Northwestern University Mesulam Center for Cognitive Neurology and Alzheimer’s Disease, the PPA Conference offers education and support for persons living with primary progressive aphasia (PPA), their families, and professionals. This year’s conference will focus on communication and connection. >> https://www.brain.northwestern.edu/about/events/ppaconf/index.html .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mar 24-25, Mon-Tue: 2020 Dementia Care Summit.  The National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and private sector organizations. The goal of the Summit is to bring together individuals with varying backgrounds to identify techniques that can be used to improve care, services, and supports of persons diagnosed with dementia and their care partners. The primary anticipated outcome of the 2020 meeting is to bring about recommendations for research priorities to inform federal agencies, foundations, and private sector organizations. >> https://www.nia.nih.gov/2020-dementia-care-summit .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Apr 17, Friday: 2020 AFTD Annual Education Conference.  regarding Fronto-Temporal Degeneration.  Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.
.*. . .*. . .*. . .*. . .*. . .*. . .*.


* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 13Jan2020.  Tags are: Alzheimers, Dementia, Lewy Body, Lighting, PLwD, Sleep, Strategy, symptom.

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