Tru here. Since there has recently been hot debate about who has the right to call themselves “PWD” (Persons With Dementia); in what level of diagnosis is necessary to wear this label, and how often patient must be re-examined in order to retain the label — and ALSO Medical vocabulary changes — that I am beginning to eliminate the “PWD” label from by own vocabulary.
I will NOT go to each one of my friends who have dementia symptoms with the need to discuss diagnosis issues, especially with the recent changes in terminology and definitions. Instead I will attempt to change my own phrasing, titles, and pictures, in both blog and newsletter, with efforts to minimize misunderstandings. But this will take time, so please show patience, but also do not be surprised at the changes.
Splintered doctor opinions have no place in the sharing from lived experience of SYMPTOMS.
So that is how I shall try to remember to phrase it; Persons With Dementia SYMPTOMS.
So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience. Thank you so very much for your generosity of letting the public into your private world ! My hope is that your words can be applied to help and encourage other patients, care-partners, and professionals.
… New page from Cecil Ristow with his PCA Presentation at:
… New page from David Kramer with first installment of “FAQ” regarding his diagnosis at:
… New page with my favorites from Harry Urban’s blog at:
… New page from Janet Pitts regarding her presentation in Geneva at:
… Two new pages from Kevin Smiley at:
… New page from Max McCormick with her fairy garden project at
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