May Pages by others with Dementia Symptoms

616 Blog 20150529a 3in150ppi 

Tru here.  Since there has recently been hot debate about who has the right to call themselves “PWD” (Persons With Dementia); in what level of diagnosis is necessary to wear this label, and how often patient must be re-examined in order to retain the label  — and ALSO Medical vocabulary changes — that I am beginning to eliminate the “PWD” label from by own vocabulary.

I will NOT go to each one of my friends who have dementia symptoms with the need to discuss diagnosis issues, especially with the recent changes in terminology and definitions.  Instead I will attempt to change my own phrasing, titles, and pictures, in both blog and newsletter, with efforts to minimize misunderstandings.  But this will take time, so please show patience, but also do not be surprised at the changes.

Splintered doctor opinions have no place in the sharing from lived experience of SYMPTOMS.
So that is how I shall try to remember to phrase it; Persons With Dementia SYMPTOMS.

So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience.  Thank you so very much for your generosity of letting the public into your private world !  My hope is that your words can be applied to help and encourage other patients, care-partners, and professionals.

616 CecilRistow PCA Pic3a 2in200ppi … New page from Cecil Ristow with his PCA Presentation at:

616 DavidKramer 20150524a 2in200ppi …  New page from David Kramer with first installment of “FAQ” regarding his diagnosis at:

616 HarryUrban pic 201505  …  New page with my favorites from Harry Urban’s blog at:

616 JanPitts Pic wPermssn 20150525  …  New page from Janet Pitts regarding her presentation in Geneva at:

616 KevinSmiley 20150526a 2in200ppi  …  Two new pages from Kevin Smiley at:

616 MaxMcC 20150519a 2in200ppi  …  New page from Max McCormick with her fairy garden project at

* Admin issues: SHARE dementia awareness thru buttons below.  Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned.  If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome).  If there is an advertisement below, I have no control over what is shown.  Full legal name Truthful Loving Kindness copyright on 2015-05/29. Registered & Protected

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