Dementia Success Stories:
“How we made a difference for self and those around us AFTER diagnosis”
A dementia brain-storming project by participants of PWD Perspective newsletter
Compiled and edited by Truthful L. Kindness (yes it is legal name)
- Sincerely Cecil
- Previous/current occupation(s?): …Military Police Law Enforcement Supervisor USAF Ret. Special Education Teacher/ High School and Night Hospice Nurse 17 years each
- Nation, & state if desired: …Washington State USA
- Age at tentative diagnosis: …57
- Year of diagnosis: …2012
- How long for definitive diagnosis: …4years
- Type of dementia: …. Posterior Cortical Atrophy
- Since diagnosis, what one or more action, success, or accomplishment do you take pride in? Adjusting to Impred vision, Re-teaching personal skills to include personal care, household tasks, quilting, crochet and calligraphy.
- What do you wish your primary Physician knew about dementia? … about you? …” I have dementia but dementia doesn’t have me. ” Quote from my friend Jan W. who is also a PCA sufferer. I have found that I can still do things, but I have to do them differently and finding new ways can take a while!
- What do you wish your specialist Physician knew about dementia? … about you? … I have my reasoning, I have my judgment it’s just up, down, right left, inside, outside and hot and cold that are all messed up.
- What do you wish your family knew about dementia? … about you?… I’m still me, and I remember everything – even though I lose my speech, my vision and my ability follow quantities and numbers or do things safely, it doesn’t mean I’m not here anymore. The thing is they don’t know how much time I’ve got left but their best guess is about a few more years. I’d just as soon not waste them.
- Date (2015 March 8)
Cecil: “We all have become medicine for each other …
I … like to help people grasping at straws
’cause I got a wide collection of the best ones that work really good”
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