Winter HOLIDAYS are arriving, usually involving celebrations with family and friends, which can be very dis-orienting for us living with dementia symptoms.
My dementia symptoms continually progress, but they progress very slowly. Progression is so slow that family and friends do not see a need for change on their part. So they ignore the changes as much as possible and simply continue to love me. It is a wonderful thing to continue to show me love and wish to spend time with me but the changes are happening whether you wish to acknowledge them or not.
Probably the largest contribution you could make to assist with the symptom of my confusion during these holidays is to understand the crucial effect of “background” noise, and my need for an equal time in a “quiet” place. Personally i need quiet alone time before and after each short spurt of time gathering with a few family and friends.
… The second is understanding effect for loss of routine.
Sleeping time and routine to prepare for bed.
Eating time and routine
Dressing time and routine
Location of my supplies in fridge and bathroom.
For further detail see the following:
“Danger of Unusual Circumstances” (Written by Tru) at https://truthfulkindness.com/2015/02/09/danger-of-unusual-circumstance-storm/;
“Mix up my Routine = Mix up Me,” written by Laurie Scherrer at http://dementiadaze.com/2015/03/02/mix-up-my-routine-mix-up-me/;
“Routine, Routine, Routine”, written by Silverfox at http://parkblog-silverfox.blogspot.com/2015/09/routine-routine-routine.html;
“Getting Back to Normal??” written by George Rook at https://georgerook51.wordpress.com/2015/08/22/getting-back-to-normal/;
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current clinical diagnosis is Mild Cognitive Impairment. Text for this page took 1 hour over 3 days, but graphic required 14 hours. Tags: alzheimers, dementia, holiday, person with dementia, PLwD, relationship, routine, symptoms . S&S: holiday .
MCI is not always dementia related. Please do not mislead the public that MCI equals dementia. MCI is an umbrella of symptoms indicating issues in the body and not all relate to dementia. How long have you had dementia symptoms? If more than 3-5 years, you should have a solid dementia diagnosis by now. It sounds like, given your history with Lyme disease, that you have a chronic Lyme disease syndrome…..not true dementia.
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