I still think term ‘sufferer’ gives teaching opportunity to say; “Did you realize this term has such a wide variety of usage meaning that it is currently polarizing the PWD and ‘care’ sector?”
Be willing to invest NOW in learning communication skills for the later stages, so that you can more easily discern the language spoken in the “fading” communications of late-stage dementia … because relationships are what make life worth living.
Dementia Relationship Tip: For me, there is no such thing as BACKGROUND noise.
… getting ready for the day can consume much more time and energy than we or our loved ones are prepared for …
We all change – but we do not become a different person. The facets of our character are differently reflected with the changing phases, abilities, frustrations, angers and fears, but we are at our basic essence the SAME person – with different aspects emphasized.
Due to some recent events, my lack of confirmation for dementia diagnosis has become an issue.
Thought I would re-post my previous blog on the subject, just to make sure there are no current misunderstandings (and for my many new friends). Current status is STILL pending. Have had two specialist appointments in past 4 months, and 2 more appointments are currently scheduled.
A discussion of my own goals … while living with dementia symptoms.
This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.
Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?
This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !
Like many other dementia symptoms, I think smell hallucinations can be a tremendous distraction to thought; whether productive conversation or other types of thought. Another aspect of concern is safety. When I smell “burning” several times per day, I automatically discount my sensory credibility. If something was truly burning, I would not know it unless I noticed smoke, heat, or fire.
Truthful Loving Kindness 