Stigma or Respect
One of our daughters regularly reminds us that it may be a slower process but it is almost always better to give alternatives, redirect, or to … turn the behavior upside-down and request the OPPOSITE behavior.
One of our daughters regularly reminds us that it may be a slower process but it is almost always better to give alternatives, redirect, or to … turn the behavior upside-down and request the OPPOSITE behavior.
SUMMARY: Erase/re-write skills are malfunctioning, so I am poor at task-transition. Suggest pre-planning with steps involved. While project is on-going, whenever a change in task or physical location is going to take place, verbally state “Now (my name) we are going to change task/location …” … then pause before instructions for next step. … *** … *** … *** … DETAIL […]
Be willing to invest NOW in learning communication skills for the later stages, so that you can more easily discern the language spoken in the “fading” communications of late-stage dementia … because relationships are what make life worth living.
Hoping to clarify my blog from earlier this week, and maybe eliminate some misunderstandings. … In order for the “suffer” vocabulary change to succeed in goals, I think we need to come up with some method of communicating what people are seeing now as the “small print” — the details which are sometimes un-written … but creating huge mis-understandings.
I have been admonished by more than one person; told that it is inappropriate for me to use the term “suffering” in connection with my dementia symptoms … but … Each of us SHOULD be allowed to describe our dementia symptom experiences, and describe them without fear of reprisal for the sake of political-correctness.
“Music is Connection (despite dementia symptoms): to myself, to others, and to the unseen rhythms connecting each living entity.”
Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?
This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !
Conversation Tips: My problem with communication is once I lose track, everything after that starts to crumble. The following suggestions may help me stay on track and participate in conversations at least in this early stage. … Environment, Content, and Timing. … These efforts took approximately 25hrs in six days to complete written portion, in order to begin graphic.
Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
Tru here. In the last year or so I don’t communicate one-on-one very well. It has become strained and costs a lot of energy. A common dementia symptom is my sound-processing disorder; trying to unscramble numerous connected sounds into words, sentences and thought sequences, in order to understand what someone is telling me costs me […]