Tru here: The feeling of being surrounded by people — but people so very DIFFERENT than I — is loneliness … in a crowd of loved ones. I APPEAR to be just my normal self. No huge changes are visible. All changes are beneath the surface. You do not see change in my actions so […]
Tru Here. Everyone has different hot-button terminology. I don’t have a problem with “suffering” terminology, and a lot of the other words. But I cringe every time I see the words “service user” or “consumer”. In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature […]
I realize this is just beginning stages and no sense in wasting too much time for focus of loss.
But also important to recognize loss, and endure the grief process, in order to best appreciate the time remaining.
Today has been one of those days. … Losing every enjoyed activity and losing memory of every loved one – in excruciating increments.
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
“What is your hope?” “What gives you ability to keep on keeping on, despite knowing what the future holds?” … (( My personal motivation statement ))
Tru here. Example of my cooking prowess from day before yesterday: tried to cook a super simple recipe so what could go wrong? Cut finger (rather severely because picked up shears that cut bone) from tremors & poor estimate of finger placement when opening mix packet. Meanwhile knocked liquid to floor and made mess that was […]
Ideas about “Sundowning” from PWD Karen Francis, friend who worked with memory impaired before becoming impaired herself: What is Sundowning? SUNDOWNING – Sundowning is a phenomenon that is associated with increased confusion resulting in a variety of behaviors that you may not see other times of the day. It can happen with any form of […]
Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
Tru here. In the last year or so I don’t communicate one-on-one very well. It has become strained and costs a lot of energy. A common dementia symptom is my sound-processing disorder; trying to unscramble numerous connected sounds into words, sentences and thought sequences, in order to understand what someone is telling me costs me […]
No eloquence tonight … just pictures, which can be clicked on to enlarge. For those of us who craft, creating can be huge source of energy and motivation. Above is craft in use of color. Lauren U’s picture depicts the creatures from the hallucinations which surround her. Mine is in center, and Max McCormick’s image […]
