Complex Nocturnal Hallucinations incorrect term for symptom of Lewy Body

Posted on June 18, 2020 by Truthful Kindness

“Complex nocturnal visual hallucinations are
vivid, dramatic, intricate visual hallucinations
occurring during sleep onset or awakenings at night …”
per JCSM; Journal of Clinical Sleep Medicine
(see Link at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5886448/ )

2026 update: We have now discovered that if Lewy Body type of dementia is present, these are not called nocturnal hallucinations. Recently found that for ME, these fall under the umbrella term of RBD, aka REM sleep Behavior Disorder. Some aspects of this disorder have been controlled with medication since shortly after the 1997 onset, but again became more noticeable recently and required an increase in medication. Only adding this note, and not changing anything other than the title.

Tru here.

bad sleep last night; worst night in years.

1am woke from invaders in our home — as usual i can tell you all about them because these hallucinations are like extra-detailed dreams, with vivid colors, smells, and all the sensory details.

2am woke because those invaders had kidnapped me and taken me to a factory-type facility.

various gory installments between 2am and 5am.

5am woke after long dying process because they had been experimenting on my paralyzed body.
… but was still in that horrid environment for a long time after i woke.

Dont remember ever having this hard of a time truly transferring to waking reality.
Yes, it has lasted a little bit after waking before, with sights and smells overlapping waking reality,
… but not this long.

Praying for some good rest tonight.

.
LINKS
from me: Hallucination Types, and Impact
at https://truthfulkindness.com/2020/01/26/hallucination-types/
and https://truthfulkindness.com/2016/01/19/impact-terrors-dreams/ ;

from retired Dr Jennifer Bute at https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/nocturnal-hallucinations/ ;

https://www.verywellhealth.com/what-causes-sleep-related-hallucinations-3014744 . https://www.verywellhealth.com/responding-to-hallucinations-in-lewy-body-dementia-97709 .

Consensus Reality (vs Hallucination Reality) definition at https://en.wikipedia.org/wiki/Consensus_reality ;

…

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am not attending many group Zoom right now.

Calendar expired: removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.*. . .*. . .*. SCHEDULE Expired: .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 18Jun2020. Tags are: alzheimers, complex nocturnal hallucinations, dementia, hallucinations, Persons Living with Dementia, PLwD, rest, sleep.

…

12 Pages from Others

Posted on May 31, 2020 by Truthful Kindness

Tru here.

2-weeks off as Administrative Assistant for Dementia Mentors,
and Currently re-evaluating time and energy use.
Meanwhile …
i will be almost completely off FaceBook ,
and i do not plan to attend any group Zoom gatherings for a few weeks.
i dont even plan on participating in group PM strings, but
i will be available on individual PM (Private Message) and phone text.

Probably no new blog entries for about a month, … but remember there is plenty to read at this website
… ((Remember Links are on text — not pictures))

Last week i posted my own 12 most-read blog entries during past year, and here are the 12 most-read pages from others on my website:

David Kramer “Living Well with Alzheimers” at >> https://truthfulkindness.com/2014/09/26/david-kramer-living-well-with-alzheimers/ ;

Harry Urban Do’s and Don’ts at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/do-dont-dementia/ ;

Zel Caddey Art Show at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/zel-caddey/jan-2015/ ;

Kathleen Anduze Acceptance at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kathleen-anduze/jan2018/ ;

David Kramer “Executive DysFunction” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/david-kramer/2015-nov-10/ ;

Scott Drevs “Intro” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/intro/ ;

Cecil Ristow “Strategies for Hope” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cecil-ristow/strategies-4-hope/ ;

Cecil Ristow “Where Does it Go?” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/cecil-ristow/june-2015/ ;

Kevin Smiley “Realities of Dementia” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kevin-smiley/kevin-smiley-feb-2015/ ;

Norman McNamara “Living or Existing” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/norman-mcnamara/sep-2015/ ;

Kathleen Anduze Changing Again at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/kathleen-anduze/jan2015/ ;

Robert Bowles at >> https://truthfulkindness.com/2014/09/24/robert-bowles-pwd/ ;

Other Contributors >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My Most Crucial >> https://truthfulkindness.com/category/important/crucial/ ;

Index and pdf Link for “PWD Dementia Success Stories” at https://truthfulkindness.com/dementia-success-stories/ ;

…

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i do not plan to attend any group Zoom gatherings for a few weeks.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

Calendar expired.

i do not plan to attend any group Zoom gatherings for a few weeks.
Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.

.
— *** —

.*. . .*. . .*. SCHEDULE expired..*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 31May2020. . Tags are: alzheimers, dementia, Persons Living with Dementia, PLwD.

…

12 from Me

Posted on May 24, 2020 by Truthful Kindness

Tru here.

Beginning fence, so digging fence-posts this week … and other tasks.
Probably no new blog entries for about a month, … but remember there is plenty to read at this website
… ((Remember Links are on text — not pictures))

Top 12 posts from me for past year are :

Context of Appearance at https://truthfulkindness.com/2019/05/27/context-appearance/ ;

Hallucination Types at https://truthfulkindness.com/2020/01/26/hallucination-types/ ;

Andrew Garvey Memoriam at https://truthfulkindness.com/memoriam/andrew-garvey-mem/ ;

Probably Asleep at https://truthfulkindness.com/2019/06/02/i-am-probably-asleep/ ;

Autumn with Dementia Mentors at https://truthfulkindness.com/2019/10/14/2019oct-dementia-mentors/ ;

Verbal Comprehension Strategies at https://truthfulkindness.com/2019/10/20/verbal-comprehension-strategies-3/ ;

Latest Cure at https://truthfulkindness.com/2019/10/08/latest-cure/ ;

Partner Praise at https://truthfulkindness.com/2019/11/11/partner-praise/ ;

Learned from Power Outage at https://truthfulkindness.com/2019/10/31/lrnd-power-outage/ ;

Suffering and “Dancing with Elephants” at https://truthfulkindness.com/2017/02/22/suffering-bk-dancing-elephants/ ;

Chickens for Personal Therapy at https://truthfulkindness.com/2020/04/27/chickens-for-personal-therapy/ ;

Index and pdf Link for “PWD Dementia Success Stories” at https://truthfulkindness.com/dementia-success-stories/ ;

My Most Crucial >> https://truthfulkindness.com/category/important/crucial/ ;
Other Contributors >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

…

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. Calendar Expired.
— *** —

.*. . .*. . .*. SCHEDULE ((expired)) .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

…

Brain Gear-Lock

Posted on May 17, 2020 by Truthful Kindness

Tru here.

strong feelings on my topic.

Spent 5 hours earlier this week trying to compose something on this topic, then 5 more hours today.
i have PIECES written … but they are not yet working together to make a helpful blog entry.

Looks like they fit together — but they just wont turn.

Maybe my scribbles will be helpful to a blog entry in the future, but 10 hours invested is enough for this week.
This topic may come together to make sense — at another time.

…

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. Calendar expired.

— *** —

.*. . .*. . .*. SCHEDULE ((expired)) .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

…

May Update 2020

Posted on May 12, 2020 by Truthful Kindness

Tru here.

The last few months have been more difficult for me to understand words spoken or written,
to think of appropriate words,
and generally to reflect “Truthful Loving Kindness” with regard to my interactions with others.
… and the past couple weeks it has been really hard.

.
(Stress?) Headache almost daily now, and
Discovered that “peopling” time is much more fragile for me lately.
Working on it , but despite best efforts Just downright GRUMPY at times.
So i may post less frequently for a while.

I very much enjoy turtles;
the lovely placid creatures who carry secure covering and so easily pull themselves under cover for time of restoration and rejuvenation.
As a strong introvert my private time is crucial to my well-being … and I think it is time to TAKE some extra time for me.

Here are most recent Pages added at this website:

Andrew Garvey Memorial Page at https://truthfulkindness.com/memoriam/andrew-garvey-mem/ .

Double-Dating in Genealogy at https://truthfulkindness.com/about/life-other/family-history-index/dble-dating/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((Calendar expired)).
— *** —

.*. . .*. . .*. SCHEDULE ((expired)) .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 10 May2020. Tags are: dementia, introverted, renewal, time

Chickens for Personal Therapy

Posted on April 27, 2020 by Truthful Kindness

Tru here.

As i said in the introduction to “Animals and Dementia Symptoms” (see link at base of entry), I think being around an affectionate animal is therapeutic for any disabled person. I suspect this is seldom more true than for someone whose brain is damaged.

Many animals can be helpful for these aspects of life, Not just dogs. Dogs are now the only animals legally accepted as a “Service Animal”, but that involves trained tasks to mitigate a person’s dys-Abilities. Even care of animals can be THERAPEUTIC, in that it gives purpose for getting out of bed and keeping some organization for the day.

Spending time with animals that can return affection has been shown to lower blood pressure and heart rate, reduce anxiety, and increase endorphins and oxytocin. ((These are feel-good chemicals produced inside each of us.)) See Link for 12-month study by Northumbria University at bottom of this blog entry.

i think chickens can be a very good “therapy” animal for person living with dementia symptoms, …

… as long as there is reliable back-up
for awareness of whether they have been fed, watered, released for the day,
and safely in secure enclosure for night.
Also CRUCIAL to remember to wash hands after handling chickens,
and despite reminder note on back door, i often forget that step
… so husband reminds me.

In photo above,
8-year-old Snuggle is on my Lap (mixed-breed of AustraLorp and Jersey Giant,
she has not laid an egg in 2yrs, but is rather possessive at lap-time).
Sally is getting a treat from my hand,
and the rooster Soxx (short for “Long-Stockings”) just moved back so that Sally could have his spot.
He is one-year-old, can be a thoughtful gentleman and at times is nothing short of gallant,
but also seems to have a very longgG memory for folks (or the dog) scaring his girls
– whether purposeful or accidental.
Soxx is looking over my shoulder.
Both Sally and Soxx are Jersey Giants from breeder, and where one is, the other is probably nearby.
The two “blue” Jersey Giants, Molly and Blush are at edges of photo.
Then Adele has her head down,
behind two of the four most recently-adopted mixed-breeds in center of photo
(called “Jersey Giant” and probably from hatchery,
but definitely mixed-breed from both smaller size and color of feet).
i cannot tell these 4 girls apart, so only one is named — from her behavior .
She is called “Grumpy”, LOL !
2 hens are probably under the pine tree branches and not in photo, making all 10 of our flock
(on 1/2 acre with 8-feet tall, 10×10 chicken house that has concrete stemwall, — with its own “tree” inside).

“Every back yard in the United States
should contribute its share to a bumper crop of poultry and eggs
in 1918″. — … a Patriotic Duty …

No longer 1918, but …
During these days when grocery-store visits are complicated with virus issues,
eggs are an important added benefit,
and raising chickens addresses some of my own concerns
for future availability and increasing cost for some of our kitchen staples.

Altho we had a milk cow, we didnt have chickens when i was growing up,
but my mother had chickens as a child (and her pet rooster was in the school play, LOL).
My grand-mothers, great-grand-mothers etc thru the generations also had chickens.
With my interest in history and genealogy,
this creates a wonderful continuity in the circle of life … for ME.

** Reminder that chickens, like most animals, must be socialized to humans in order to be human-compatible.
Our chickens are hand-fed treats every day, and enjoy lap-time at least once-weekly, when weather permits.
Roosters require constant awareness and extra conditioning-time on VERY frequent basis. Even tho i work at it, the chickens we raised from one-day-old are still MUCH more friendly than those which we received at several months old (Adele and the “blues” Molly and Blush). The four most recently adopted were daily hand-fed before we received them. Even friendly Roosters can become very protective and territorial, even dangerous with sharp bone spur at the ankles. In the past we have needed to re-home two previous roosters due to aggressive behaviors.

Video LINKS: My 2014 vid with Onyx, Snuggle, and the other mixed-breed flock
at https://www.youtube.com/watch?v=aZN2dTrKpGg ;

https://youtu.be/HWf96D6xbck ;

Text LINKS:
https://truthfulkindness.com/2015/03/03/animals-dementia-symptoms-1/ ;
https://crhcf.org/insights/dementia-patients-become-hen-caretakers/ ;
https://www.nextavenue.org/calming-effect-therapy-chickens/ ;
… and a 12-month study by Northumbria University is available at Link on this page https://equalarts.org.uk/var/www/vhosts/equalarts.org.uk/httpdocs/our-work/henpower .
Service Dog Links at https://truthfulkindness.com/about/life-other/animals/service-dog-links/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((calendar expired)).

— *** —

.*. . .*. . .*. SCHEDULE ((expired)) .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 27Apr2020. Tags are: animal, chicken, dementia, hen, henpower, therapy

Adding Calendar

Posted on April 21, 2020 by Truthful Kindness

Tru here with an add-on:

Will be adding Calendar format on blog entries, but FYI those calendars will eventually need to be removed, because my webspace is only allowed a certain amount of picture/video space. So will leave calendars for a few months, but then must remove in order to prevent over-loading my “media” allowance. No room on calendars to include specific times for each Time Zones, but more info is available.

pdf of calendar is available at Schdl202005May 20200421 . Left room for writing times in YOUR time zone, after you print calendar.

These calendars are events available for PLwD (Persons Living with Dementia). “DM” are events available for members of Dementia Mentors. DAA is Dementia Action Alliance, DAI is Dementia Alliance International, Teepa Snow “Lets Talk” is for her team’s direct interaction with Persons with Dementia, and Lori’s Dementia Chats are participation in monthly chats thru Lori LaBey that are RECORDED for teaching purposes (and available on YouTube).

i attend a good portion of the DM chats, but limited numbers of the other chats. Disclaimer that i misunderstand things and make mistakes too, and there might be one in Calendar.

.
— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join some of the following during this week:
**.. . .. . .. . .. . .. . .. . .*.**

21 April, Tuesday; DAA Drop-in with Dr Susan is on Tuesdays: While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays at https://zoom.us/j/4567882023 (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

22 Apr, Wed: Dementia Mentors’ members will be offered new Wednesday-night guided meditation series. (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members only. https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

23 Apr, Thursday: DAA Discussion topic ““DAA Work Groups””, hosted by Paulan Gordon, with experts Karen Love & J. Pinkowitz. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

24 Apr, Friday: DAA Faith Hope and Love; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times. Fridays at https://zoom.us/j/4567882023 (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

28 Apr, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 . ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

29 Apr, Wednesday: DAI Meeting of the Minds “Using Montessori-Inspired Principles to Radically improve engagement for Residents and Staff” with Dr Cameron Camp and Gary Johnson. ((1.5hrs beginning 2pm Pacific Time, 3pm Mtn, 4pm Central, 5pm Eastern time, 10pm London and 11pm South Africa.)) More info at https://www.dementiaallianceinternational.org/events/dai-webinars/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

30 Apr, Thursday: DAA Discussion topic ““Social Security Disability””, hosted by JR (John-Richard) Pagan, with expert John Tucker. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

6 May, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ . (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 21Apr2020. Tags are: alzheimers, calendar, dementia, event, PLwD, persons living with dementia.

New in Apr

Posted on April 19, 2020 by Truthful Kindness

Tru here.

Remember that LINK is not in picture, but at text below the picture !

New Pages in my website are:

Others: “Why Cant You Hear Me” by Norrms at https://truthfulkindness.com/index-persons-with-dementia-pwd/norman-mcnamara/hear-me/ .

Crafts: “Emoji Me” at https://truthfulkindness.com/about/life-other/arts-crafts/emoji-me/

FamHist: Uncle Gillies at Culloden >> https://truthfulkindness.com/about/life-other/family-history-index/gillies-culloden/

.
— *** —

.*. . .*. . .*. SCHEDULE ((expired)) .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

New Zoom Opportunities

Posted on March 30, 2020 by Truthful Kindness

Tru here.

With cancellation of many life events due to virus restrictions, there are also quite a few NEW opportunities to participate and connect thru Zoom video.

HOWEVER,
i think it may be time to verify that we all have contact info for each other, as much as possible.

As a result of the “stay-at-home” procedures now in effect,
more people are using various video chat platforms.
This just proves what a wonderful tool these platforms are,
to stay connected with others.

We would like to invite you to renew your connections with Dementia Mentors, etc, on our Zoom chats.

There may be temporary complications
until these video chat platforms can adjust to tremendously higher volume of participants.

But … join … connect … participate.
Get encouraged and encourage others !!!

Looking forward to seeing you around the web.

Dementia Mentors

Join Dementia Mentors from “contact” button at https://www.dementiamentors.org/ .

DAA (Dementia Action Alliance) has added two more weekly Zoom discussions, making discussions now available on Tuesdays, Thursdays, AND Fridays.

Tuesdays: “Drop-in with Dr Susan” is on Tuesdays: While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays at https://zoom.us/j/4567882023 (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

Thursdays: Our weekly “DAA Dementia Discussions” group is designed as an educational platform for people living with dementia and/or care partners to socialize while acquiring knowledge on many aspects of dementia life. Thursdays at https://zoom.us/j/4567882023 (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

Fridays: “Faith Hope and Love”; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times. Fridays at https://zoom.us/j/4567882023 (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

Alzheimers Speaks has 4th Tuesdays for “Dementia Chats”, but now added Fridays.

4th Tuesdays: “Dementia Chats”: This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Lasts 1.5 hours. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 . ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

Fridays: “The Coronavirus has impacted all of our lives and continues to shift and change daily. I have decided to do a weekly zoom show focusing on the Covid 19 which will highlight how individuals, companies and cities are adapting to our “New Normal.” If you are interested in being a formal guest on one of these shows please reach out to me. I invite you to join the conversation. For right now I am looking at doing these on Fridays.” — Lori LaBey. (( Fridays at 11am Pacific Time, 12 noon Mtn, 1pm Central, 2pm Eastern, 7pm UK, and 8pm South Africa )).

.
— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join some of the following during this week:
.*. . .*. . .*. . .*. . .*. . .*. . .*.

31 March, Tuesday; DAA Drop-in with Dr Susan is on Tuesdays: While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays at https://zoom.us/j/4567882023 (( 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

1 Apr, Wed: Dementia Mentors’ members will be offered new Wednesday-night guided meditation series. (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members only. https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

2 Apr, Thursday: Dementia Mentors’ members have opportunity to attend Christian Cafe, video gathering with Prayer. (1st and 3rd Thursdays of each month at 9am Pacific Time, 10 Mtn, 11am Central, 12 noon Eastern, 5pm UK, and 6pm South Africa). Members only. https://www.dementiamentors.org/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

2 Apr, Thursday: DAA Discussion topic ““You Don’t look like you have dementia””, hosted by John-Richard (JR) Pagan. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

3 Apr, Friday: DAA Faith Hope and Love; chatting with Rev. Cynthia Huling Hummel; the Dementia Action Alliance invites you to join us online for an open discussion about using spirituality through challenging times. Fridays at https://zoom.us/j/4567882023 (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

3 Apr, Friday: Alzheimers Speaks; COVID-19: how individuals, companies and cities are adapting to our “New Normal.” If you are interested in being a formal guest on one of these shows please reach out to me. I invite you to join the conversation. For right now I am looking at doing these on Fridays.” — Lori LaBey. (( Fridays at 11am Pacific Time, 12 noon Mtn, 1pm Central, 2pm Eastern, 7pm UK, and 8pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

8 Apr, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia on Wed. Apr 8 >> https://teepasnow.com/services/online-learning/live-public-webinars/webinars-for-plwd/ . (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

9 Apr, Thursday: DAA Discussion topic ““Hobbies to keep us grounded/skills””, hosted by Mike Belleville. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is in left column at this page
>> https://daanow.org/…/connect-and-enga…/dementia-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

17 Apr CANCELLED: Friday: 2020 AFTD Annual Education Conference. regarding Fronto-Temporal Degeneration. Details at >> https://www.theaftd.org/event/2020-aftd-annual-education-conference/ . Some credit card companies have travel insurance clauses in their policy agreement. If you have difficulty getting cancellation refund (from lodging, transportation, etc) then you may want to contact your credit card company to confirm their policy and your benefit.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

27 Apr, Tuesday, is next Dementia Chats with Lori LaBey.
This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 . ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 30Mar2020. Tags are: alzheimers, communication, connection, CoronaVirus, dementia, PLwD, relationship, strategy, Zoom.

March 2020

Posted on March 30, 2020 by Truthful Kindness

Tru here.

Spent much of last week-end and this week-end trying to source our family supplies.
Since we live rather out-of-the-way (almost 2hours from the nearest Walmart, LOL) we have always bought our supplies in bulk,
but now many of those bulk supplies are not available at our usual vendors.
So must search for other providers.

With cancellation of events for virus, there are also quite a few NEW opportunities to participate thru Zoom video,
so they will be discussed in additional entry Later this week.

Meanwhile these are some of the recent pages added on my blog. Remember to click colored text NOT the picture:

Dementia: from retired Dr Jennifer Bute >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/dementia-coronavirus/ ;

FamHist: Rollo the Viking >> https://truthfulkindness.com/about/life-other/family-history-index/rollo-the-viking/ ;

Arts: ZenDoodles March2020 >> https://truthfulkindness.com/about/life-other/arts-crafts/zen-mar2020/ .

Schedule will be included in additional entry Later this week.

Person with Dementia Symptoms

i am not attending many group Zoom right now.

Please pass on Dementia Awareness by Sharing:

i do not plan to attend any group Zoom gatherings for a few weeks.

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

along with daily Dementia Mentors’ video chats, ( https://www.dementiamentors.org/ ) i may (or may NOT) join some of the following during this week: .*. . .*. . .*. . .*. . .*. . .*. . .*.

.

Mark Your Calendars for future events:

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

Mark Your Calendars for future events:

Please pass on Dementia Awareness by Sharing:

Please pass on Dementia Awareness by Sharing:

along with daily Dementia Mentors’ video chats,
( https://www.dementiamentors.org/ )
i may (or may NOT) join some of the following during this week:
**.. . .. . .. . .. . .. . .. . .*.**