Hot August Knights

Posted on August 24, 2020 by Truthful Kindness

Tru here.

!! Remember, Links are on colored text, not the pictures !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

Latest pages added to my website are:

Other Contributors:

“One More Night” by Toby Heyworth at https://truthfulkindness.com/index-persons-with-dementia-pwd/toby-heyworth/one-more-night/ .

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Family History:

Spencer/Marshall/Drake:
Death of John Drake at https://truthfulkindness.com/about/life-other/family-history-index/john-drake/

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Bits ‘n’ Pieces (memoirs):

2000 Bodie at https://truthfulkindness.com/bnp/part-3/2000-bodie/

Exclusive Focus at https://truthfulkindness.com/bnp/part-1/exclusive-focus/ .

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LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendars EXPIRED: will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

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DAILY at DM (Dementia Mentors): we host 40 virtual memory cafes each month with Dementia Mentors.
These are “member-only” gatherings for those living with dementia
(every day except Sundays for persons living with some form of dementia
— and also twice-monthly for Partners on Sundays).
More info here >> https://www.dementiamentors.org/ .

To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

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These are OTHER events i know of during this week: ((Schedule EXPIRED))

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug24. Tags are: n/a.

Mask = No Communication or Identification

Posted on August 16, 2020 by Truthful Kindness

Tru here with TWO added dementia complications from face mask; Understanding speech and Facial Recognition.
For ME, a world of masks is a frightening place … but so is meeting a person without a mask !

Don’t get me wrong; with my other health complications,
getting covid 19 would be high danger for me —
So i think mask-wearing is crucial.
But it is also important for folks to know the effect masks can have,
in order to compensate whenever possible to retain SOME communication and relationship.

So …

Visit to hospital brought discovery that
if those around me have masks on their face, then
i am basically deaf.

With my dementia symptom of understanding speech,
i must see lips moving to make sense of the sounds i hear.
Without lips moving then my primary tool is facial expression
(most of which is covered with mask and glasses).
Tension around the lips or friendly lips ??
IF glasses are narrow frame, then i am more likely to see crinkly eyes that might show a smile
— but must be very close to see it.

Even with my husband beside me,
i must ask him to remove mask in order to truly understand the words that hospital personnel have told him to tell me !

extremely EXTREMELY frustrating and totally useless unless SOMEONE is willing to remove their mask.

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If everyone speaking to me wore a clear mask, the sounds MIGHT be more muffled,
but i would be more able to put together the puzzle of what is said.

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additionally, i already have quite a few problems recognizing faces.
Since most friends my age now have gray hair, there is no recognition of differences there.
So basically there are eyes, nose, and mouth. — but Mask covers most of that area.
Chances that i can recognize you are highly unlikely.

When i am out of the house i am always with only strangers
(including my husband unless he is in the process of speaking – because i recognize his voice).
And none of those strangers are friends or friendly
— because how can i know they are being friendly when i cannot see their face or understand their words ??

For ME, a world of masks is a frightening place
of no identification,
no communication,
and all the friendliness of a SILENT masquerade
— VERY alone in a crowd of anonymous strangers.

i dont feel safe to be around people who are NOT wearing a mask (for my own health),
but i also dont feel emotionally safe to be around people who have their face covered !
… So very thankful that my husband can handle most of the “public” needs for us.

Now more than ever
… i NEVER leave my home !!!

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i know about cell-phone voice-to-text, and that might be something to try next time. (This time i was just totally overwhelmed with the futility of attempting communication). But i also know how often voice-to-text mangles my message. Most usually requires quite a bit of typing to compensate … and often voice-to-text is more work than just typing it myself.

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Now i totally rely on video communication … but i am getting rather touch-hungry. https://www.healthline.com/health/touch-starved#short-term-solutions .

LINKS:

CDC says ”

People who are deaf or hard of hearing—or those who care for or interact with a person who is hearing impaired—may be unable to wear masks if they rely on lipreading to communicate. In this situation, consider using a clear mask. If a clear mask isn’t available, consider whether you can use written communication, use closed captioning, or decrease background noise to make communication possible while wearing a mask that blocks your lips.
Some people, such as people with intellectual and developmental disabilities, mental health conditions or other sensory sensitivities, may have challenges wearing a mask. They should consult with their healthcare provider for advice about wearing masks.

at https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/cloth-face-cover-guidance.html ;

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((expired calendar))
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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug16. Tags are: communication, CoronaVirus, covid19, dementia, isolation, mask, PLwD, recognition, relationship, symptom, virus.

More Pages Added

Posted on August 9, 2020 by Truthful Kindness

Tru here.

I just keep adding more pages to this blogsite,
just as some of the old farmhouses keep adding rooms. LOL !

!! Remember, Links are on colored text, not the pictures !!

Pages recently added to my blogsite are :

Tommy’s Tips for Visits at https://truthfulkindness.com/index-persons-with-dementia-pwd/tommy-dunne/4visits-2020/

Dementia Info Links at https://truthfulkindness.com/about/d-info/ .

Family History: War in Rhineland-Palatine at https://truthfulkindness.com/about/life-other/family-history-index/war-palatinate/

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LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((expired calendar))

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ServiceDog Training for “Pill Watch” Task

Posted on August 2, 2020 by Truthful Kindness

Tru here.

In honor of Assistance Dog Week (( http://www.assistancedogweek.org/about ))
today i am sharing the steps we use in training Service Dog how to respond when a pill drops on the floor.

Symptoms of tremor, and lack of estimated personal space can be a problem.
Just like i seem to have a hole in my lip when it comes to eating or drinking, the same is true for taking my pills. Not uncommon that a pill lands on the floor. Sometimes i realize it dropped — and sometimes i don’t.

Goal is that
*1*: dog will notify me when pill is dropped, because i may not realize it)
*2*: “find” (point to) the pill location, (because i might not be able to find it)
*3*: WITHOUT dog eating the pill !!! (We don’t need a sick dog!!)

When i start filling weekly pill bottles i tell Hero “Pill Watch”. Hero sits or lays nearby, watching for a pill to drop. i have a colored TicTac candy on the table, easy to grab for training. Picked TicTac candies because they are not dangerous to dog in case he swallows it during training process, similar-sized to most of my pills, and their bright colors are easier seen when they drop.

To start with, i “accidentally” dropped a TicTac about 4 or 5 times, every week when i filled pill canisters. Now i “accidentally” drop a TicTac once or twice, and a Fish Oil capsule once every week. Eventually i will only go thru the “accident” process probably three to five times every month — just enough to keep Hero aware of his task.

When filling pill canisters i will
*1*: “accidentally” drop a TicTac, then say “Hero, Bark!!”
*2*: After he barks i say “Hero, Find” — and grab a small treat.
*3*: When he gets his muzzle close to the candy i say “Leave it!” then i say “Hero, Whisper”.
*4*: After his quiet bark (loud exhale?) i put the treat in front of his muzzle and remove the TicTac.
(once in a while, i will give him an extra-high-value treat instead of the standard smaller treat).

We worked with Hero to have him bring high-value unique “found” treasures to myself or husband — without eating them. Example: We will discreetly place a Pupperoni Sausage on the floor somewhere. When he comes across it we are watching, and one of us tells him to “take it to …” (the other person). He is expected to do this WITHOUT eating the item !!!

LINKS:

Service Dog Links at >> https://truthfulkindness.com/about/life-other/animals/service-dog-links/ .

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((expired calendar))

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Home of the Heart

Posted on July 26, 2020 by Truthful Kindness

Tru here.

“You always remember … the IMPORTANT places”, (quote from my friend Susan Suchan).

Those of us who have identified a special location to call the home of our heart
have an added avenue for peace.

i suggest taking the time to identify YOURS .

… a calming, centering PLACE;

For some friends it is DisneyLand,
or the beach,
or maybe even a football field.
… But for me it is a log cabin.

Above is my son’s drawing of the log cabin built by my great-grandfather,
and with help from my grandfather when he was a youngster.

i lived here with my parents during my first winter of Life.

So many important memories here with extended family thru all the years of my life
(especially memories of the outhouse LOL).

The cabin now has indoor plumbing, but the outhouse still stands.

Grammy died and my mother lives there now
(when she is not off gallivanting with her husband and horses).

We are BLESSED;
Those of us who have a special location for
“the home of our heart”
have an added avenue for peace.

When stressed, i can become more calmed and “centered” by looking at pictures of this location.

Travel is difficult, but i hold this location in my heart
… in this drawing, and in actual photos.

How about YOU; where is your special place ?

(“back yard” at the cabin)

LINKS:

Music is Connection at >> https://truthfulkindness.com/2015/08/25/music-is-connection-dementia-symptoms/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

((expired calendar)): Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

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Recent Pages from Friends

Posted on July 19, 2020 by Truthful Kindness

!! Remember, Links are on colored text, not the pictures !!

Pages recently added to my blogsite are :

Harry Urban at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/constant-fog/
.

Jennifer Bute at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/jennifer-bute/no-longer-relevant/
.

Missy at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/missy/alzheimers-anger/

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LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

((expired calendar)): Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

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New Zoom gatherings added

Posted on July 12, 2020 by Truthful Kindness

Tru here.

Relationships are so very crucial … and the peer relationships developed and sustained within our groups are crucial to acceptance of symptom progression and development of strategies to best deal with symptom progression.

In my blog I now provide a calendar of known Zoom opportunities for those with dementia.
Most of these Zoom gatherings are for members only, with a few exceptions.
Recently remembered that both AFTD and LBDA have Zoom gatherings, so now adding those on the calendar.

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TUESDAYS: If you have a firm diagnosis of Fronto-Temporal Degeneration and would like to join the FTD Patient Support group, please contact sherylwhitman.FTD@gmail.com.
The group also has a video Zoom meeting every Tuesday; 10am Pacific time, 11am Mountain time, 12 noon Central, and 1pm Eastern time. Members-only.
https://www.theaftd.org/living-with-ftd/support-for-people-with-ftd/ .

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WEDNESDAYS: LBD Living with Lewy is also members-only:
Membership is limited to those diagnosed with Lewy body dementia.
These video Zoom gatherings are part of the “Living with Lewy” FaceBook support group, so you must be on FaceBook and a member of that specific FaceBook group. Members-only.
https://www.lbda.org/go/virtual-groups .

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LINKS:

>> https://truthfulkindness.com/2014/08/20/online-dementia-communities/ .

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

((expired calendar)): Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.

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To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358 .
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These are OTHER events i know of during this week: ((expired schedule)).

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Calm the Chaos

Posted on July 5, 2020 by Truthful Kindness

Tru here, with pictorial reminders.

This is a time full of tension, turmoil … and anger all around us,
producing chaos of clashing sights, sounds, and emotions.
… so …
What do YOU do to calm the chaos
and quiet the cacophony of current pressures?

Personally, i totally avoid “news”;
at this stage in my life,
i see no constructive outcome for adding that pressure into my cognitive difficulties.
i also try to avoid folks who are tightly-wound like a clock-spring.
… i BRIEFLY focus on whatever stressors are winding my own clock,
to recognize, problem-solve, and make sure care-partners are aware of the needs.
Then
… purposely and with self-discipline
i do something to provide expression (exhale) of those stressors.
Write about them,
draw or “doodle” about them,
and “exhale” that pressure,
before i purposely and with self discipline CHANGE my focus.

. inhale and EXHALE … x3 (three deep cleansing breaths)

do something with that stress-energy

. walk, or exercise to wear off that stress-energy

((video above at >> https://youtu.be/Fcv-CtYdrwE ))

… THEN …

write

soothing music

(( video above at>> https://youtu.be/aub51qOyGtQ ))

prayer or meditation

.Intimacy of non-Verbal Prayer at >> https://truthfulkindness.com/about/life-other/spiritual/intimacy-nonverbal-prayer/ ;

Doodle drawing

.time with animals or nature.

https://truthfulkindness.com/about/life-other/animals/

read SHORT stories or Reader’s Digest.

i soak (see https://truthfulkindness.com/2016/12/20/i-soak/ )

hot (or cold) drink

. i SCHEDULE nap and sleep time

.See “Need for Nap” at https://truthfulkindness.com/2018/06/04/need4-nap/ .

…

… but maybe YOU garden (like Harry) ???

https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/

or sew (like Cecil does)?

https://truthfulkindness.com/index-persons-with-dementia-pwd/cecil-ristow/

or photograph like Gord does ?

https://truthfulkindness.com/index-persons-with-dementia-pwd/gord-settle/

Whatever YOU do to calm the chaos around you, now is the time to do it !

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Related Links.
Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, NOT the pictures.

Teepa Snow discusses more advanced symptoms at >> https://youtu.be/qGqYaRhjxrM

George Huba PhD has some great suggestions at >> https://hubaisms.com/2020/08/20/comfort-activities-for-people-with-dementia-and-everyone-else/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am not attending many group Zoom right now.

((expired calendar)): Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020July03 with 4hrs invested. Tags are: anxiety, calm, dementia, PLwD, pressure, stress.

Staycation Pages

Posted on June 28, 2020 by Truthful Kindness

Tru here.

“Vacation” time in June, and these are some of the things done with that time:

!! Remember, Links are on colored text, not the pictures !!

Pages recently added to my blogsite are :

June 23. Bits ‘n’ Pieces: Mom called last night. She found a poem Dad wrote to me for 6th grade. >> https://truthfulkindness.com/bnp/part-2/2a/1969-jun/ ;

…

Family Tree revision at https://truthfulkindness.com/about/life-other/family-history-index/tree-revision/ ;

…

Graybeard Regiment at https://truthfulkindness.com/about/life-other/family-history-index/graybeard-regiment/ ;

…

Pastors of Ore Parish at https://truthfulkindness.com/about/life-other/family-history-index/pastors-ore-parish/ ;

Index for other contributions here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Jun28. Tags are:.

New Time Allocations

Posted on June 26, 2020 by Truthful Kindness

Tru here June 2020.

After five years as Assistant Administrator for Dementia Mentors,
it is time for me to spend more time on other things.

Feel very very good about my time spent in that position,
but husband feels like he is playing “second-fiddle”.
Time for dog care and training has practically disappeared,
and too many other Life responsibilities are falling thru the cracks.

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Periodic re-evaluation of values and priorities have been very healthy for me.

What is my most important value? ((reflecting Creator’s Truthful Loving Kindness));
Relationships: * Creator, * Family (biological and chosen, human and animal), * Friends, * Spiritual and Local communities, * Nation, * Earth, ((and don’t forget * Self)) .

With changing abilities,
What priorities for time and energy best reflect those values?

Are changes needed? … and how can i best put those changes into action?

…

… so, with current changes, Dementia Mentors’ “Secretary” better fits my current abilities and time availability.
i appreciate the opportunity to continue helping, despite decreasing abilities .

Quora >> https://www.quora.com/What-is-the-relationship-between-priorities-and-values ;
Dummies >> https://www.dummies.com/business/business-strategy/how-to-evaluate-your-strategic-priorities/ ;

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am not attending many group Zoom right now.

((calendar expired)): Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Jun26. Tags are: change, dementia, Dementia Mentors, PLwD, priorities, re-evaluation, values.

Person with Dementia Symptoms

!! Remember, Links are on colored text, not the pictures !!

i am attending few Zoom groups right now.

To be part of Dementia Mentors’ video chats, membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

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These are OTHER events i know of during this week: ((Schedule EXPIRED))

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Please pass on Dementia Awareness by Sharing:

i am attending few Zoom groups right now.

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Please pass on Dementia Awareness by Sharing:

!! Remember, Links are on colored text, not the pictures !!

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i am attending few Zoom groups right now.

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Please pass on Dementia Awareness by Sharing:

i am attending few Zoom groups right now.

Please pass on Dementia Awareness by Sharing:

i am attending few Zoom groups right now.

Please pass on Dementia Awareness by Sharing:

!! Remember, Links are on colored text, not the pictures !!

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i am attending few Zoom groups right now.

Please pass on Dementia Awareness by Sharing:

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i am attending few Zoom groups right now.

To be part of Dementia Mentors’ video chats, membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358 . .

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These are OTHER events i know of during this week: ((expired schedule)).

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Please pass on Dementia Awareness by Sharing:

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… but maybe YOU garden (like Harry) ???

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i am not attending many group Zoom right now.

Please pass on Dementia Awareness by Sharing:

!! Remember, Links are on colored text, not the pictures !!

Please pass on Dementia Awareness by Sharing:

Periodic re-evaluation of values and priorities have been very healthy for me.

i am not attending many group Zoom right now.

Please pass on Dementia Awareness by Sharing:

To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

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To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358 .
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