Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
Tru here. In the last year or so I don’t communicate one-on-one very well. It has become strained and costs a lot of energy. A common dementia symptom is my sound-processing disorder; trying to unscramble numerous connected sounds into words, sentences and thought sequences, in order to understand what someone is telling me costs me […]
Tru here. Enough added people are following this blog that I thought I would clarify my diagnosis and share my thoughts for the next few months. LONG post! 2015 Update here >> https://truthfulkindness.com/2015/05/18/re-blog-diagnosis/ and 2016 Update here >> https://truthfulkindness.com/2016/11/30/symptom-progression-strategies-2016-dec/ Summary: My GP and I agree on diagnosis of “dementia” but waiting for confirmation from neurologist. […]
Tru here. October was always month of creativity at our house. Trick-or-treat meant we needed to prepare gift for each house we visited. Some years it was physical gift like autumn greeting card, but some years activity gift like song or very brief skit. One year we did dance/acrobatic performance at each door for Halloween. […]
Clarity of Thought: “I am not stupid, but at this rate my bits of brilliant insight will be scattered across space … like the sparkling milky way.” — TLK
These are recent excerpts from FaceBook page of my fellow Person With Dementia (PWD) friend, retired Doctor David Kramer, who is “Living Well with Alzheimer’s”: Living Well with Alzheimer’s Sept 26, 2014 at 7:31am: Words count. Those of us with Alzheimer’s and related dementias are very sensitive to what is said to and about us. […]
Today I want to tell you about my fellow PWD (Person With Dementia) friend, Robert Bowles, and what motivates him for living with a dementia diagnosis well. The introduction is by his daughter Ashley on July 1, 2014: I sit here a grateful, amazed, and proud daughter. … My Dad inspired me as a pharmacist, […]
I am not stupid but my thought process is definitely distorted and causes problems with my decision-maker. … the problem is that these are symptomatic of my decision-making process and I never know when it will become dangerous.
Nightmares of Harry Urban We talk a lot about what our life is like during the day time hours. It is hard and sometimes frightening. We struggle and get so confused. Have you ever thought what our nights are like when you are sleeping? That is when we walk through our Hell, all alone. […]
Tru here. New Sunday paper began in August 2014 titled “Thru the Looking Glasses of PWD: Read our Sunday paper to see Dementia “Thru the Looking Glass” of fellow PWD (Persons With Dementia) Life Perceptions”. This is currently edited by Truthful Loving Kindness and updated each Saturday night online. https://paper.li/f-1408973778 . Subscriptions are available delivered […]
