Tru here. Have you ever noticed that all of my blogs now begin, “Tru here”? There is a good reason for doing it that way, but I got the idea from Richard; at the time he was beginning all his blog entries with the phrase, “Richard here”. Actually I only spoke personally with him a […]
… getting ready for the day can consume much more time and energy than we or our loved ones are prepared for …
These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects.
(I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from those with diagnosis of Mild Cognitive Impairment as well as Alzheimers, Lewy Body, Vascular and other types of “dementia”)
I thank each of you for your generosity of letting the public into your private world ! My hope is that your perspectives can be applied to help and encourage
other patients, care-partners, and professionals.
I was asked to think about what phrases and actions leave Persons With Dementia symptoms feeling left out. … Includes: Phrases that exaggerate my symptoms, Phrases that minimize (invalidate) my symptoms, Phrases that ignore my symptoms, Phrases that minimize (or ignore) my life-expectations, Actions that exaggerate my symptoms, Actions that ignore my symptoms, and Actions that exaggerate my “different-ness” or “alone-ness”.
All of these situations involve showing respect, embracing who the person is, and meeting them at their varied ability levels (because some aspects of abilities are still very high, and some quite low).
These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects.
(I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from those with diagnosis of Mild Cognitive Impairment as well as Alzheimers, Lewy Body, Vascular and other types of “dementia”)
I thank each of you for your generosity of letting the public into your private world ! My hope is that your perspectives can be applied to help and encourage other patients, care-partners, and professionals.
How many of our own children, grandchildren, or others watching us now, will be dealing with these same symptoms in future years?
So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience thru words or projects. Thank you so very much for your generosity of letting the public into your private world ! My hope is that your perspectives can be applied to help and encourage other patients, care-partners, and […]
We all change – but we do not become a different person. The facets of our character are differently reflected with the changing phases, abilities, frustrations, angers and fears, but we are at our basic essence the SAME person – with different aspects emphasized.
I am beginning to eliminate the “PWD” label from by own vocabulary.
I will NOT go to each one of my friends who have dementia symptoms with the need to discuss diagnosis issues, especially with the recent changes is terminology and definitions. Instead I will attempt to change my own phrasing, titles, and pictures, in both blog and newsletter, with efforts to minimize misunderstandings. But this will take time, so please show patience, but also do not be surprised at the changes.
So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience: Cecil Ristow, David Kramer, Harry Urban, Janet Pitts, Kevin Smiley and Max McCormick. Thank you so very much for your generosity of letting the public into your private world ! My hope is that your words can be applied to help and encourage other patients, care-partners, and professionals.
Tru here. Recently returned from three weeks of overnight stays at various places, and I was asked for suggestions. Flooring: Highest priority was carpeting. Most places we stayed did not create feeling of disorientation from pattern of the carpet, but one place did. Every time I stepped out of the door to our room I was […]
